Headaches with extended release pain meds. e.g. avinza, opana, fentenyl. Anyone else?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/25/2010 8:37 PM (GMT -7)   
I take percocet 10 mgs about 4 times a day for my fibromyalgia and back pain.  It is bad pain and I see a pain specialist for this.
 
On several occasions she has tried to switch me to 12 hour medications.  I have tried Avinza, fentenyl patches and most recently Opana and they all give me terrible headaches.  Has anyone else experienced this problem with these meds?  Also, I find that these pills don't really cover me for 12 hours either.  On some of them I was taking the percocet for the breakthru pain.  So I figured, what's the point??  I guess I will have to stay on the percocet every four hours. 
 
Does anyone have any suggestions for me??  I would appreciate some feedback.
 
Thanks a lot.
 
Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 1/25/2010 9:52 PM (GMT -7)   
Headaches are a very common side effect of opiods.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 1/25/2010 10:51 PM (GMT -7)   
Hello Linda! Sorry to hear about your pain issue. I too take the Percocet's #10 325mg at least 2 to 3 a day for BT. You might want to ask about Oxycontin, as it is supposed to last around 12hrs. I never got it to last anymore than 8 to 9hrs for me though, but was much better than the 2 to 3hrs I was getting on the Percocet's. It is basically the same med, but without the Tylenol in it. I think the Oxycontin is pure Oxycodone. I hope this help you, or at least points you in the right direction. Oh, and I forgot to tell you that I'm on 30mg of the Oxycontin X2. I sincerely hope you get to feeling better soon.

Also a #30 Oxycontin is the same as taking three #10mg Percocet's over a 12hr period. I take that X2, plus 2 to 3 of the percocet's, so I'm getting basically 8 to 9 Percocet's a day now.
My appt with my surgeon is the 2nd of Feb, and he will then set a hard date for my surgery to fuse L4-L5, and I can tell you, that I'm ready for it. :(

Michael

Post Edited (Screaming Eagle) : 1/25/2010 10:58:26 PM (GMT-7)


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 1/25/2010 11:01 PM (GMT -7)   
Linda
I would agree with Screaming Eagle if you have beenon Percocet for so long and taking them every 4 hours, I would think Oxycontin would be the thing to go on, either every 8 or 12 hours I was on every 12 hours for many years, this past summer they changed me to every 8 hours, but it is better than every 4 and having pain I would think if you don't have head aches with the Oxycodone in the Percocet then you might not have any problems taking the Oxycontin either! Just a thought!



Good Luck to You Lindaloo! wink



White Beard

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/25/2010 11:53 PM (GMT -7)   
Hi Linda...

Gosh, I hope you find a solution to those headaches. They are miserable. I too get them with opioid pain meds...just part of the deal. When I asked doc about it he told me to take "tylenol" (or a generic). My first reaction was that it's a bit silly to take something so light weight for a opioid headache but I was desperate on about day 4 of a headache that I gave it a go. It helped enough to make it worth while. Now if I get one of those non-stop headaches I go for the tylenol and it often helps. Probably can't hurt to try.

Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/27/2010 9:24 PM (GMT -7)   
Thanks for the input everybody. Unfortunately, I have tried oxycontin as well and it does not hold me for the 12 hours so I was still in pain. Not worth it to me. But these headaches were awful so I stopped the recent try of Opana. Guess I'm stuck with the percocet four or five times a day.

I appreciate you all coming in and giving me your support and opinions very much. I hope you all are doing well and Michael, good luck with your upcoming surgery. I will say a prayer for you.

Thanks Whitebeard and Chutzie too. God bless.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 1/27/2010 9:39 PM (GMT -7)   
Lindaloo
Have you tried Oxycontin every eight hours instead of every12? I take it at 6AM. 2PM. and 10PM and for the most part it works great! The 12 hour shift was just to long and the last 3 or 4 hours I was having to much pain! But every eight hours works well for me. Any just something to consider!

I do hope you can get it resolved!!

White Beard

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 1/28/2010 12:01 PM (GMT -7)   
Like WB, I am now taking the oxycontin every 8 hours. When taking every 12 hrs I would start hurting very bad in the afternoon and then again early morning to the point where I'd be up at 3am due to the pain. I talked to my doctor first though and the 8 hr intervals are working better. I'm only taking the 20mg oxycontin and will talk to her about trying a stronger dose at my next visit. I have oxycodone 5mg, the same as percocet without tylenol, for break through pain 3xday. This cold weather and continuous weather fronts are really setting my pain levels up a notch.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 1/28/2010 2:18 PM (GMT -7)   
I will discuss oxycontin and the suggestion about the every 8 hours with her. I don't remember if that med gave me headaches as well. But she can look it up in her notes, I'm sure. But thanks for the suggestion guys. I really appreciate it


Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 1/30/2010 6:48 PM (GMT -7)   
I take Opana now for head pain. Its suppose to last 12 hrs but it seems to last about 6-8. I have to take norco for breakthrough. The opana makes me feel better but its the norco that actually does anything for the pain. i had one of the many student doc explain that the opana was just for the euphoria and the norco for the pain and i'd have to agree. If you can get past the headaches, which I would think will eventually pass, i would give it a try. I certainly notice a difference  when I don't take it as opposed to when I do.
good luck and wishes
cat
sick and tired of being sick and tired


leliwela
New Member


Date Joined Feb 2010
Total Posts : 3
   Posted 2/19/2010 10:00 PM (GMT -7)   
Hi Lindaloo!  I happened to end up at this forum by which what means I know not.  idea   But I am really glad that I did.  I was amazed at the fact that you said that Avinza and Opana give you headaches.  I say that because I have been on Avinza for about 5 yrs. now with no problem. I was taking 180mg twice a day and had Percocet 10/325 for the breakthru pain though I  rarely had to take it. My insurance however, now decided not to pay for Avinza anymore and now the substitution is Opana! I just started it today and so far so good....... so we'll have to wait and see if it will continue this way and also PRAY that it works for me as the Avinza did! I'm a bit worried, as the dosages are totally different between the two, yet they are supposed to be the same, or no similar, I guess would be the word to use..?? I just pray my doctor did the calculations for the change correctly as apparently the Opana is much much more potent than Avinza?! I went from Avinza 180mg to Opana 40mg!!  Makes you wanna go "hmm", right?!
Anyway, I wanted to tell you about a medication, an opiate as well of course, called EMBEDA.  It is quite new in the market I was told.  My doctor wanted me to try it because it is so much better absorbed than Avinza. As you've probably figured out by now.. I am totally partial to my AVINZA!!  nono   So, though reluctant to any change, he wrote me a script for the Embeda PLUS a card you get with it which lowers your price tremendously, use even with insurance, & it turns into a really sweet deal! He also gave me a script for my Avinza (just in case..and Thank God, as it would turn out! smhair ) cause the Embeda gave me the absolute most horrendous headaches I've ever had!! skull   So, I Just thought I would mention this rx,  as I personally have not heard it mentioned anywhere??  The good thing about long lasting meds is that you put less meds into your body (IF they DO last for the duration they are supposed to that is!) 
I don't know what formation of Percocet you are taking, but many of them have lots of Tylenol in them which will totally FRY your liver. Though I know it is moreso the Vicodin and their "generics" that are the REAL killers here! Many people are not aware of this and once they find out.. it's often way too late.  I would like to somehow be able to get the word out on these medications.  Many doctors are just prescribing these medications without explaining just how dangerous they can be!   NOT that these  "long-acting meds are wonderful"  for you.. but when it comes to the smaller amount of Tylenol you get with them, there just is no comparison.  Esp. for those out there who are taking  Percocet and/or  Vicodin at much, much more per day than 4 or 5, as we all know to be the case.  The damage to the liver is simply horrible and cannot be reversed!
In any event, I hope you can talk to your doctor about EMBEDA, and perhaps try it and see??!!  It just MAY NOT give you any headache at all! smilewinkgrin   I do wish you the very best of luck and am sorry to write a book, but I really wanted to get all this in. Remember.. it's my 1st "forum"!!  Well, I hope this helps you or even anyone else out there!!  Let me know OK?  Anyone!
 
I live in Riverview, Florida (just east of Tampa)
I am in Facebook under the name of  "leliwela26" , so look me up if you want to chat more in an "email type of setting".  I do not wish to discuss our "medications" on our Facebook "walls"  lol lol    That would not be cool guys!! turn
 
Fibromyalgia.  Disc herniation L5, C6 and Bulges in remaining cervical discs, 2nd to MVA.  Sleep Apnea.  DDD with Arthritis of spine.  Bone Spur between C6-C7.  Heel spur.  Asthma.  COPD.

leliwela
New Member


Date Joined Feb 2010
Total Posts : 3
   Posted 2/19/2010 10:17 PM (GMT -7)   
Forgot to mention on last posting that I have also heard from various doctors that headaches after taking an Opiate usually indicates that the dose of the Opiate is too high! Sounds nutty I know, but it's what I've been told many times. Am a nurse and was told this when my patients' would c/o headache after pain meds were given, The docs would decrease dose everytime and all would stop. young_abuelo
aka leliwela26

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 2/19/2010 10:23 PM (GMT -7)   
Hi Young abuelo,

Cute name. My dtrs use to call their grandfather
abuelo too. They loved him very much.

I see this is your first post. I am honored that you chose my thread to comment upon. Welcome to Healing Well. You will find a great group of people here, all supportive and caring. I suggest you start a thread to introduce yourself, if you haven't done so already. It's a good way to get to know everyone.

I appreciate all the thought and time you took to respond to my topic. I am a retired RN and realize the percocet has the tylenol in it, but it is the only drug that has helped.

I wouldn't want to even try the embeda if it gave you such wicked headaches. I hate the headaches and as I said, I am already prone to them with these long acting drugs. The only one that has not given me a headache is oxycontin and after reading these past posts, I am thinking I may not have been on a big enough dose to cover my pain, so I may consider trying that medication again

I see a pain medication expert and I trust her and her ARNP as well. They treat me very fairly. So we will see, but for right now, I'll stick with the percocet since it is helping at the moment.

Once again, it was nice meeting you and I hope to see more and more of you on this forum. Please continue to post and let us get to know you and you get to know us.

God bless.

Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


leliwela
New Member


Date Joined Feb 2010
Total Posts : 3
   Posted 2/19/2010 10:42 PM (GMT -7)   
Thank you SO MUCH for your kind and QUICK post to me!! It means alot. I will have to do an introductory post, yes!! Thanks didn't know about it. As for the Embeda, I was trying to say that since none of the other LA meds ever gave me h/a's, yet they did you..I thought perhaps we are opposite and Embeda would NOT harm you since it was the only one that did me! lol Sounds nuts I know..but just a hunch. Perhaps its the fillers used? And NO I am NOT an Embeda Pharmaceutical Rep. hahahaha Take good care and hope to meet many new friends. Btw leliwela26 is really my name..made a mistake upon entering..gotta fix it. I hope I can? Take care.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 9:13 PM (GMT -7)
There are a total of 2,734,466 posts in 301,216 threads.
View Active Threads


Who's Online
This forum has 151332 registered members. Please welcome our newest member, Blueswoman.
301 Guest(s), 11 Registered Member(s) are currently online.  Details
DQueen, Bloom93, jdcd57, mspt98, time2reclaim, sam12, Red_34, Yarbo3, Gram4plus, Mister Mike, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer