Massive amount of pain

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Sal1965
New Member


Date Joined Jan 2010
Total Posts : 18
   Posted 1/27/2010 5:33 PM (GMT -7)   
I was recently diagnosed with Osteonecrosis of both hips, stage 4, in massive pain. Have seen Orthopedist he recomends hip replacements as soon as possible, however I don't have insurance. I have applied for SSI, and SSD, haven't heard anything yet. No perscription coverage either. I have tried Vicodin, Darvocet, and Percocet, none of them come close to relieving the pain, any suggestions? I also have high BP, high cholesterol, type 2 diabetes, sleep apnea.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/27/2010 10:51 PM (GMT -7)   
Hi Sal!

I wish I had an instant cure for you but I do have some suggestions. In our Chronic Pain 101 thread at the top of the page is a list of places you can look for help. Here's a link to that information...
www.healingwell.com/community/default.aspx?f=16&m=1633476

These are for help with medications. But what you need is some insurance and help from other resources. For that try calling the Red Cross in your area. Yep, they can help with all kinds of emergencies...and this certainly qualifies. Also a great resource is your elected officials. Look online for your state and federal senators and representatives. They all have ways to send then a question or request for help. Plus if you write to one they usually have a box you can check and that message will go out to all of those who represent you. You'd be amazed how fast some of these folks will pop up with help, especially if they are up for reelection...lol I've had great success when I needed something associated with an incredibly noisy neighbor. One rep. even came to the house with his wife in tow.

So all of the door are never shut. I've learned over time there is always another one to knock on when you are in need. I think most of us her have, at one time or another, been in that position.

Keep us posted and don't give up looking for help,
Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 1/28/2010 8:51 AM (GMT -7)   
Hello Sal. Chutz gave you some great ideas about possible available resources. I'm sorry you are in so much pain but maybe your energy should be focused not on pain meds but on getting those hip replacements ASAP like the doctor said. Pain meds can only take you so far and can't help correct the underlying problem whereas surgery is your best bet for some lasting relief. There was a time when my orthopedic surgeon thought I might have had osteonecrosis in my knee and I have to tell you that the thought of that scared the crap out of me so I wish I could give you a big hug to help take some of that fear away that you must be feeling. cyber ((((((hug)))))) I too wish I had an instant cure for you but don't so I guess you're going to have to do the best you can to get this settled. Also please don't be shy about coming here to ask for advice or support. We are all going through some type of pain problem so we do understand. Best wishes, Lisa
If I can laugh at it, I can live with it.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 1/28/2010 11:50 AM (GMT -7)   
Sal, I'm sorry to hear about your situation. My son is in the same boat, lost his job & insurance but can't get state funded medicaid unless he is disabled. Just because your not disabled doesn't mean you don't need basic medical care, the whole situation s*cks!!!

When did you file for your SSDI & SSI? It took 5 months after filing for SSDI to get my first denial. Maybe the SSI moves along faster if you qualify. I'm in Ohio & I think every state is different.

Sorry I don't have any answers for you but I do understand your frustration because I do understand your situation. My son is living with us now & would be homeless without our help. He tried to get living assistance but the program had no money available & would only help with rent for 1 month anyway. Maybe you need to contact one of your state representatives.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


Sal1965
New Member


Date Joined Jan 2010
Total Posts : 18
   Posted 1/29/2010 9:10 AM (GMT -7)   
Jag; I filed for SSD & SSI in November of 09, they're supposed to have a decision by mid march. I talked to an examiner in December 09, he said I will need to go to an SSI doctor, he's supposed to send me info, but haven't recieved anything yet. My parents help out as much as they can, but they're in their late seventies, and I feel like a burden on them. The whole situation is really getting me down, but I try to remain positive, every day that I wake up I try to thank God for being alive. Thanks for your encouragement.

Sal1965
New Member


Date Joined Jan 2010
Total Posts : 18
   Posted 1/29/2010 9:14 AM (GMT -7)   
Thanks to everyone who has posted replies, I have a doctors appt. coming up I'll keep you updated. Thanks again for all the advice.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 1/29/2010 10:27 AM (GMT -7)   
Hi Sal, I am a little late as usual in welcoming you to HW. I am so glad you found us but sorry you have to be here. One thing about it, at least by coming here you know you are not alone. I do hope you get a favorable decision on your SSD claim. Have you tried filing for Medicaid? Perhaps you could qualify for it until you hear from SSD. I know waiting is awful. I am sure you will hear something concerning the appt with the SSD dr. pretty soon. Hang in there and don't give up, we have to keep fighting it seems like every day.

Let us know how the drs appt goes.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 1/29/2010 3:33 PM (GMT -7)   
Sal, I was never required to see a SS physician for anything. I think alot of it depends on the information in your medical records, what doctors you've seen and if you are currently under a physicians care. I think if you have any psyciatric issues it may be required also.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 1/30/2010 10:58 AM (GMT -7)   
Hello Sal,
Welcome! I'm sorry that I didn't get to welcome you earlier. I am also dealing with osteonecrosis but in the wrist and hips. I have it at a stage 3b according to one doctor and the other says a stage 3c, which I have never heard of. Anyway, I understand your fears about having surgery but my understanding is that once it is done, that patients do really well afterward. If you have any more records from the doctors that you are seeing, then getting copies and sending them to SSDI can only help your application. Especially since this is bilateral , it is obvious that you will be disabled for some time, and if you can get the surgeon/doctors to put that in your records, it helps your application get approved faster.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too

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