Screaming Eagle

New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 2/1/2010 5:12 AM (GMT -7)   
Haven't heard a peep out of you for awhile.  Is your doctors appt still on for tomorrow?  Let us know if they get your surgery scheduled.  Hope all is well!!
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/1/2010 11:59 AM (GMT -7)   
Hello Jag! I'm here, but have not been feeling well for several weeks now. I seem to feel worse and worse day by day now, and just don't feel like doing anything at all anymore. When I feel like this, I don't ask for much help, but I will give an effort to help out others over myself first. I have several problems or injuries with my body, and they affect my whole body, and I just feel awful all the time because of it. I have been reading your post on the SSD, and hope you win, or at least sooner or later with it. The people who run the show there, are just plain rotten to treat people that need it so badly. I think Stray has applied for it as well as Pete. I wish them the best, and hope they can get it soon. I may have messed up on the abbreviation, but you know what I meant. Yes, my appt is tomorrow with the surgeon, and I have been waiting patiently for it to get here. We are so ready for the surgery, and Privey brought me several medical devices to help me through the first month or so of recovery. She and her husband live only a couple of hours away, and she was a HR director at a hospital there in Junction City, KS. They are such a nice couple, and have become wonderful friends of ours. One thing, that I think we all need on Healing Well, is a buddy checker, to check up on each other everyday. Cathy and I and Tmjpain check up on each other every day, and it really helps. I would be willing to do this for anyone who wants me to check on them. It just take a minuet or two, and an email address, for a daily contact to see how each one of us is doing. I'm sure there are others out there that are doing it already, but if you are not, please reach out to someone and offer to do so. The friendship is so rewarding to both members, and remember, only we that have Chronic Pain truly understand what we are going through and can talk the same language. Jag, I will try harder to post here on Healing well in the future, I just need to get back on my feet a feeling better. I hate the sickness, pain, meds, and the mental worry from all of it. We do have to remember that we are not the only ones suffering, and I admit that I get to feeling that it is all about Mikey when I feel bad. Bless my wife, she has been so good to me during this time, and has to pull double duty to take care of me. Again Thanks for asking about me, and I will try to make myself more visible in the future. I'm not sure how well I will be able to report to you after the surgery, but I have given my wife strict instructions, to post here first after the surgery.

Michael

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 2/1/2010 1:21 PM (GMT -7)   
Jag,
I would be happy to check up on you anytime. Michael and I along with our spouses have enjoyed two wonderful afternoons together this past month and boy has it been great. It is so nice to have your spouse "get it", maybe they don't suffer with Chronic Pain but I know mine has had back and knee episodes from time to time and he "gets it" and so does Michael's spouse. Right now I believe my hubby has been bearing the brunt of me that I wonder if he'll tire of it. I do try to do the best I can and as much as I can but somedays there just isn't enough energy and too much pain to do anything more than what I get done.
Everyone keep Michael in your thoughts and prayers for his appointment tomorrow so that he gets his surgery and doesn't have to wait for weeks on end. You know Mikey when you feel like you are at the end of your rope tie a knot and hang on. It will be over soon!!!

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 2/1/2010 3:29 PM (GMT -7)   
Dear michael, i will be thinking about you tomorrow and praying that you get an early date for your surgery. i don't want you suffering any longer. So sorry the past weeks haven't been so great. jum in my pain wagon!! LOL!!
Yes I have become dependant on talking to my two special friends, Micheal and Cathy (privey) to check up on me. They certainly understand my situation very well and i support them as much as I can. I only wished we lived closer so hubby and I could join they're get togethers. So if you want someone to send you an email check, just ask. I believe it's a great idea.
 
Take care all my HW friends.
         
 
 
            Suzane


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/1/2010 3:51 PM (GMT -7)   
Suzane, we also are praying for you and your new treatment, and that it will help you. You have suffered so much! We wish you the best! Jag, I will jump in there too, and take you on as a daily buddy, or Cathy and Suzane will too. It really does help to have someone there at a moments notice. In fact.... that is really what HW is all about with the forums, where we can share our daily concerns and burdens, and success. I love this site, and am so glad that I found it. Thank You Pete for the vision and the reality of it!

Michael

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/2/2010 10:46 AM (GMT -7)   
 
 
   Good afternoon Micheal,
 
      Just a quick note to say I hope everything goes well today! Update us when you can.
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 2/2/2010 11:04 AM (GMT -7)   
Michael,
I hope the meeting with your surgeon goes well. I hope you found a top notch guy.
will peek in on this and hope you have a good reply for us..Lots of soft hugz for now.
get into your pcp if your not feeling better soon, could be a sinsus infection, take care of yourself and get well so that your surgery can have a good outcome, okay...
(((((((((((((((((((((((((((((((((((((((((((((Michael)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
how's the kitten?
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/2/2010 4:58 PM (GMT -7)   
Went to see the surgeon today, he said that he wants more test done on me before the surgery. The MRI I took to him is a year old, and he wanted a new one done. Also, he said they will do an Diskogram..what ever that is...to see which disk to remove during the surgery. The wife was pleased with him as was I, and the surgery is set to take place in 3 weeks..somewhere around the 22nd of Feb. No real hard date has been set yet, but they will call in the next few days to give us one..they said it depended on when they could get me in for the other test. That is pretty much all I know for now, and now it is a waiting game again, but were getting closer. Just to hear him say 3 weeks away was music to my ears...and he did say the recovery would take around 3 months minimum. I will update when I find out more. Oh..I almost for got..he did say he was looking at the L5 & S1 disk that needed to be removed...which was news to me as I thought it was L4 &L5 all along.

Michael

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 2/2/2010 5:44 PM (GMT -7)   
I'm glad this doctor has ordered up tests, but the discogram is not a pleasant test, it will hurt. Just thought you should know that and It does sound like you got a good surgeon. I'll be hopeing that these next few weeks fly by for you. Best of wishes to you. I'm still on the mend, getting over this pneumonia is not easy, I go for another chest x-ray on friday. I had a posts started about you, but I guess I forgot to hit the post button, so thanks Jag for starting this, and Michael you keep us up-dated on everything okay, Prayers.
((((((((((((((((((((((((((((((((((((((Michael)))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/2/2010 6:00 PM (GMT -7)   
Hello Chart! I was a afraid of that! Seems any test they do is painful...and I fear it in the worst way. I guess a bottle of my favorite...before I go in? :) I was wondering how you were doing with your latest bout of illness. That is a bad thing to get, and can be very deadly if you dont catch it in time too! Tell your Hubby..that we were proud of him for keeping us up to date on your condition. He is welcome here anytime. You got a good one there!

Your Buddy!

Michael

I always like seeing the Cat faces at the bottom of your post! :)

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/2/2010 6:07 PM (GMT -7)   
Michael,
I'm not surprised he's ordering a new MRI. My neurosurgeon wouldn't even see me if my MRI was older than 6 months. I also had a discogram, but as I mentioned in someone else's post, there's some controversy about those tests. They usually inject a "control" disk - meaning one of the GOOD disks to see if you know the difference between that one and the other disks. What they are trying to do is reproduce your pain so they know more precisely where the source is. But I just read a study (you can go to medscape.com and type in discography and you'll probably be able to find it) that is questioning the test, especially the potential for damaging the good disk by puncturing it. It's been thought that a small needle going into the disk wouldn't harm it, but there's some evidence, at least it appears from that study, that it may contribute to that good disk eventually having problems.

If it was me I'd want to sit down with my doctor after the new MRI and ask what he sees, and discuss if the discogram is necessary and have the reasoning explained. The MRI often shows more of what the problems are, especially if you're having a fusion (at least I think that's what you're having). And if there are problems with both L4-5 and L5-S1, I'd be asking if you need more than one disk fused, because the adjacent disks tend to the fusion tend to weaken over time.

You can do a lot of research on your own at medscape.com for free. And you can also access some medline.com articles (the journals the docs read) from there, too.

Don't want to scare you, but now is the time to ask the questions.

Good luck!

PaLady

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 2/2/2010 6:11 PM (GMT -7)   
Well that sounds like good news Michael. I am glad you don't have to wait so long. But it's pretty close to my birthday when i wanted you to party with me on the 24. Hopefully that day you will be able to use your phone messenger. Do some research on the discogram but I know recently someone here had one and said it was not pleasant to have done. I know we will be in close contact my friend.

Have a nice evening with your wifey~~

hugs
         
 
 
            Suzane


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/2/2010 6:22 PM (GMT -7)   
Hello PaLady! Its been a while since I last got to speak with you. Your a hard one to find these days. Did you get your computer problems taken care of yet? Ever since we switched over to the Mac's, we have been rocking on the Net! I hate pain, and am a pretty big sissy over the little things, so I'm not looking forward to the test at all. Also, yes they are doing a Fusion for sure, but do not know which ones at this time...so we will see soon. If I get a chance to see the surgeon again, and I'm not sure I will..I will ask him about the test and the reports that you mentioned.

Suzane, I hope I'm awake for your Birthday too! I will put it into my e-card list, if I haven't already! Deborah and I hope we all get to meet someday! :)
I will be watching for you in the morning! Take care..little one..and get a good nights rest....Now Scram! :)


I don't to forget anyone that has posted a reply here..So Dani, Thank you too...and anyone else I may have missed....I greatly appreciate it!

Privey...you don't count..as your a family member now! :) Love You!

Post Edited (Screaming Eagle) : 2/2/2010 6:28:05 PM (GMT-7)


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 2/2/2010 7:44 PM (GMT -7)   
Yea big sisters rock huh? lil bro? hehe. I am was so glad you got a decent time scheduled for this procedure rather than having to wait around longer. I know you are anxious to get it over with. I ask questions but really feel if you have done your research thus far on your doc then you are probably in good hands. I haven't had the discogram test but have had several myleograms (sp) and you are right they aren't pleasant I'm sure but no pain no gain I guess. You can do it lil' bro it might hurt but the end result will hopefully be what you are looking for and the end result with years of no pain would certainly be worth the pain of the test. Take care. ttyl

keep the faith
Regular Member


Date Joined Nov 2009
Total Posts : 91
   Posted 2/2/2010 9:23 PM (GMT -7)   
Screaming Eagle
Thinking of you buddy
 

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 2/2/2010 10:25 PM (GMT -7)   
Good luck Michael...wishing you all the best. No one likes to go thru painful tests or surgery, but if there's a chance it all might help, then it's a good thing.

Sending good thoughts and prayers your way.

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Surgical Adhesions
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/3/2010 12:28 AM (GMT -7)   
Thank you all...and good to hear from you Andrea and MsBunky. Bunky....your going to fit in nicely here on the forum...and I'm glad to see you jump right in there with the help so soon. Keep up the good work, as we need all the help we can get.

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/4/2010 8:43 AM (GMT -7)   
        Just a short note, My surgery has been set for the 5th of March. No responce necessary, just letting you all know.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/4/2010 9:23 AM (GMT -7)   
 
 
   Dear Michael,
 
     That is wonderful news! I am so glad that you will be able to have this done so quickly. It must come as a great relief to you. Stay strong!
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13477
   Posted 2/4/2010 2:37 PM (GMT -7)   
Michael, I encourage you to read up on the info PaLady posted. Discograms have been very controversial for many, many years. Most of the ortho & neuro's I know have always refused to do a discogram. A good quality MRI is far more reliable than a discogram.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/4/2010 8:49 PM (GMT -7)   
I will check on it, but this Surgeon is pretty much set in what he wants. He made it clear that if I did not have the test done he would not do the surgery. My wife agrees that he was pretty serious about it. I dont think I have much of a choice in the matter in it right now. And I'm not going to make waves at this point in time. Thanks for your concern though Stray. I appreciate it.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/5/2010 5:09 AM (GMT -7)   
Hi Michael,

As you can see..different Dr.s use some or all the diagnostic tools before performing surgery.

And not trying to be argumentative against anyone..truly..just want to share my experience...

The Dr.s where I had my spine surgery...which people actually fly around the country to come to, as well as from overseas...they perform Discograms about 75% of the time after a MRI...to hone in on the exact areas before the surgery..they want to have every ounce of information before doing such extreme surgery on our spines...

Especially if someone has had previous surgeries..like I did...there is a lot of scar tissue that hinders getting a perfect MRI..

If done properly...it's a really good detailed look at each disc space since the MRI gives the overall view..yes..it's a little painful..but you should be given medication to relax..as well as local anesthetic..

I think just like with certain epidural injections, etc....if the Dr. doing them is unskilled..it can make for an awful experience. But done well..it should be small amount of pain compared to our daily pain we suffer..

When I had mine done..there was some pressure and pinch of pain when he would hit the spot...and then just achy afterwards...

Again..I truly am not negating anyone else's experience or thoughts on this issue..Just wanted to share my own. It's like when one person has a bad time with a medication..and another person it could be their best one...

I think it's important and what's great about these boards is we can gather a bunch of different thoughts to help us learn about our chronic pain..

I truly hope and pray that both the test and the upcoming surgery goes well for you and truly helps resolve to lower your pain levels..


SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 2/5/2010 5:20 AM (GMT -7)   
Good Luck, Michael. It's pretty scary when you get to the pre-op phase before your surgery. I remember starting to cry before my lumbar fusion for fear of something going wrong, nerves or whatever so I always ask for a little joy juice to be given as soon as the IV is in place.

Before my cervical fusion I had to wait because the surgery before mine had run into complications. I was already prepped, had the IV in place and was getting hungry from not eating. So don't be scared to ask for something, it is a common thing.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/5/2010 5:32 AM (GMT -7)   
Yes Jag..that's the best part..lol...about surgery..the joy juice right before the wheel you back...feeling no pain...all giddy...I usually end up telling my life story to the nurse...hahaha...

And my surgeon goes with the thought process that our bodies should have the least amount of pain and stress before surgery...so for the month preceding it...he had me up my pain medication..which helped so much with my nerves as well since the last one was my cervical 360..

So, trying to do as many realaxing and fun things to help keep your mind off of it should help..
SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/5/2010 10:23 AM (GMT -7)   
Hello SnowBunny and Jag! I will take all into account. Right now I have just given up on everything, and am just waiting for the big day. The pain after the surgery is what worry's me the most, but the surgeon assured me not to worry about it. He said he would make sure I was comfortable and would provide care for a while afterward s too. My PCD said he would normally start me on Valium prior to the surgery, but since I on such a heavy dose of pain meds, he did not feel comfortable doing that. The meds that I'm on right now, just take the edge off, and are not providing me much comfort right now. I just got my refill of all of my meds yesterday, and I will get another a day before the surgery, so that gives me some comfort knowing that they will be there for me, when needed. Right now I'm having second thoughts on my PCD, as he has not acted like the same Dr, since he moved his practice. I think there are some political undertones affecting his decision making for the care of his patients. The surgeons office called my Dr yesterday to schedule an MRI, and he denied it, or at least the place they were sending me to to get it done. When I picked up my meds I asked them about it, and did not really get a good answer about it, but they said they would take care of it. That really means that I will have to check to make sure they got it done. Oh well, time will tell, but I will sure be glad to get this done, and will have to have it repeated for me neck as well. The elbow is still bothering me, and I get a burning sensation from time to time, which tell me there is a tear there. So that will be a surgery as well. I feel like I have been run through a shredder, or a little like Humpty Dumpty who cant be put together again :) I am so very glad that I have a good support group here, and with all of my home town friends and co workers. It is wonderful to have this type of support system. The members here at Healing Well are the ones that really touch my heart though, as we all understand what CP really is. Even if I turned out healthy from all of this, I will always support this group for the rest of my life. There are a lot of good, well meaning, members here...some of the best on the planet! We all have our own personal problems and different health issues, but we do share the common Chronic Pain problem. You will always hear me say this like a broken record, but I so appreciate this Web-site and the members. The moderators have been wonderful, and were the first to welcome me here, followed closely by veteran members too. Keep up the good work, by reaching out to new members, and following up on them...Thanking your Moderators from time to time, and sharing your experience with us here. Don't ever think that your efforts go unnoticed, you never know who you may be helping. We need a break from time to time, and we need to take it when needed....so do it! Age should make no difference either in the matter of sharing here...we have many a wise veteran members, and some pretty smart newbies too. Just a simple Hello is all that is needed in someones life. I still like the idea of a buddy system here, and I and a few others are doing just that. a good example is Tmjpain....she is taking treatments right now for her horrible head pain...Privey and myself are on contact with her every day, and she has asked that we keep the members updated for her. She simply is too sick to work the computer. Remember when Scarred for Life was in the Hospital?...she too wanted us to know how she was doing, so her husband of course kept us all updated....we would have never known that something was wrong had he not posted how she was doing here. If you can, and you have some extra time, buddy up with someone...of course that will let you...so that that person, or you have a backup when either one of you are down and out. A little effort..YES...but so worth it for the ones that want to. I cannot tell you how much tmjpain has appreciated this. Ok...I will get off my soapbox...just wanted to share some of my feelings with you all. One last thing...we all need a little fun in our lives, and I strongly encourage you to join us in the Chat room on Thursday evenings. If your not sure how to get in there, just send Chutz or one of the other members who have their emails listed, and ASK! We would love to have a full house, although it can be very confusing for a non/multitask person such as myself. You will certianlly enjoy it, even if you just sit there and watch the conversations. I myself look so forward to that evening, and my wife joins in every once in a while too! ....Which reminds me...if you do have a spouse or a child that can run a computer....please ask them to keep us updated on your condition, when your not able to. OK...I'm done....See you all later, and Thank you for your suggestions and encouragement.

Michael
New Topic Post Reply Printable Version
28 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Friday, December 09, 2016 6:20 PM (GMT -7)
There are a total of 2,735,603 posts in 301,319 threads.
View Active Threads


Who's Online
This forum has 151422 registered members. Please welcome our newest member, Gabor88.
277 Guest(s), 17 Registered Member(s) are currently online.  Details
scifigal2k, mikeb2308, Rikky1, Tirzah, Serenity Now, Girlie, Charmed3, Pratoman, NiceCupOfTea, Dyna1, gfields, exqualls, Ariel Smith, aloha234, k07, Michael165, Tall Allen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer