How do you deal with not being able to do anything?

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ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 2/1/2010 8:32 AM (GMT -7)   
Hi All,
 There might be some folks on here that are not like me, but I am sure there are those that are like me. I am 54 years old, before I got hurt I allways stayed busy, i never set in the house and watched the TV, I allways had things to do, wether it was a hobby or home repair or lawn work I allways kept busy. Now I can't do anything, I have to hire everything done and can't do any of my hobbies! So how do you deal with that? I am in pain from the time I wake up till the time I get to sleep, the pain does detour some of my wants, but in the back of my mind i allways have the thoughts of the things i like to do. It even makes it hard to watch TV, when I am watches the TV I will see some one riding there Harley and having a good time and then my thoughts are gloom and doom, I sold my Harley, I sold my Race Car, and have put the rest of my toys up!!! I know that there are tons of folks that have it far worst that me, and i feel for them!!
So how do you deal????????????
ACE

privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 2/1/2010 9:48 AM (GMT -7)   
I understand Ace and feel much the same way many days. I still can do some of my hobbies like knitting, crocheting and some cooking but the "old grey mare" song sure fits me. The one thing that bothers me most is I have 10 pound wt. limit and a 4 month old grandson that O can't keep by myself because he was born at about 10 lbs. It just breaks my heart not to be able to pick him up. Someone can hand him to me and we can sit and play but I'm useless when it comes to taking care of him...

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/1/2010 10:12 AM (GMT -7)   
Good Morning Ace...

I refuse to let pain stop me from living...that's how I deal with it. It's like this...I can hurt and do nothing or I can hurt and do Something! Either way I'm going to hurt but at least doing something I get my mind off the pain and have some fun too.

The more we concentrate on our pain the more it consumes our lives and the more it hurts. There's a great explanation of the types of pain and how we process them at this page by the Mayo Clinic. www.mayoclinic.com/health/pain/PN00017 Give it a read.

Another thing that many members and others find helpful is seeing a Chronic Pain counselor/psychologist. Sound silly??? It's not. They work with you to learn to put pain in the background of your existance. We are NOT pain...we are people WITH pain. We must change our focus on our daily lives or we will just sit and rot away until we die. That's no life at all.

Ace, I really think you should talk to your doctor and get a referral to a pain counselor. You will be amazed that you will gain back your life and your reasons for living. I hate to see you calling an end to your life. You are young and it's time you start living. Another advantage will be to get your out of the house more and the more you talk to folks in the medical community the more likely you are to find solutions to your problem.

And for some tough love....Ace, you've given up. Please don't do that. We care about you, I care about you! I come to this forum every day to help out. I give my time which is the most precious gift I have, it's all I have really. The reason I do this is in hopes of helping others like you and me to find meaning and some relief in their lives. I too live with 24/7 pain and I have hours and day where I just hate it...more than you can imagine! But I refuse to let those times last for long. Go pick up the phone and get moving. There are tons of things you can do if you put your mind to it. Can you move your hands? Then you can do things that are meaningful and fun. Use your computer for things you enjoy and that stimulate your mind. Try some new hobby. My hubby hooks rugs. Sometimes he's in pain from an old back injury so he changes places where he works on the rugs. Try building small models from scratch, painting, writing, playing music, program your computer.

Also there is tons of money at local community colleges for retraining for people in your position. But...they are not going to come looking for you..

I've talked more than enough!! Please know that all of this was said out of love and compassion and not to hurt your feelings. Always feel free to email me. Just click the little envelope under my name over there <---- .

Keep in touch..OK?
Chutzie
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 2/1/2010 10:54 AM (GMT -7)   
I have to agree with Chutz...there's going to be pain whether you're active or just sitting around, so the goal is to find something new you can enjoy doing.

I do some crafting including creating decorated ceramic tile coasters, making cards, and I'm going to start making beaded jewellry. My husband is starting to make homemade soap and we'd like to make it a business, so I'm also learning how to create a website and market his products. Most of this is new to me, and now that I'm no longer able to work outside the home, it helps to give me something to focus on. My career has been a huge part of my life, so to have that taken away has been difficult to accept. I simply refuse to feel sorry for myself...this is the hand I've been dealt, so I'm going to make the best of it.

I hope you will consider talking to someone about this if you need more help or inspiration. There's no shame in admitting you need help from a counsellor to live your best life, and truly....life IS worth living.

Take care and know there are many who care and understand what you're going thru.

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Surgical Adhesions
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 2/1/2010 11:31 AM (GMT -7)   
after reading chutz's post I realize I too have kinda given up at the age of 31. I do see a counsellor every 2-4 weeks. He does help.

I went out sat night and it was the first time in about 8 months. I was in a ton of pain. Sunday was even worse. Its discouraging. but I also know my pain is not controlled. If I had a better doctor I would be doing alot better. Do you see a doctor for pain ace? what hurts you?

I can totally relate to what you say,
melissa

(please take out the spaces of your signature lines.  It is more than 10 spaces long.)  thank you.

 

Post Edited By Moderator (Lindaloo) : 3/3/2010 9:04:24 PM (GMT-7)


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/1/2010 1:58 PM (GMT -7)   
Ace,
I can't add a lot more to what's been said, except that I do understand. I live alone, and it's really hard to force myself to do things many days, but I try to come here and post a bit (if my computer is cooperating).

Melissa hit on a great point, though. Our pain needs to be managed - not cured (at least for most of us here on this site, that's likely not to happen) - but managed as best as possible. I get angry because searching for and finding decent pain management robs so many of us of precious time and energy - and contributes, IMHO, to feeling like you want to just watch TV all day. If we had better pain management, less fear of the use of decent pain meds by doctors - use for the right and very much needed reasons - many of us might get parts of our lives back a lot sooner.

On a different topic, my cousin's husband does a lot of gaming on the computer (I don't know anything about that stuff!) and I wondered if, over time, that might give you some of the adrenalin rush that you used to get with more physical activities. Is it the same? No. Do you have to grieve what's been lost? YES. I firmly believe that. But you have to grieve it, and have a vision of someone moving forward, but in a new way. I think the simplest way to say it is most of us need to create a "new normal" for ourselves because we can't go back to the old one.

Use a lot of the suggestions everyone's giving you, and at least try one thing that might distract you from the pain a bit. I know it's not easy. I know.

PaLady

ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 2/1/2010 2:07 PM (GMT -7)   
Hi Everyone,
 In 2003 I was unloading a wooden crate that was in the back of my pickup, it had a new fence line mower banded inside the crate. When I was lowering one end of the crate to the ground the bands broke allowing the mover to slam to the bottom of the crate. this happened about 30 mins. before quiting time, so I reported it but stay till quiting time to go home, this happened on a Friday, I spent the whole weekend lying in bed, Monday morning I could hardly get out of bed, i went to a doctor and was given pain meds, muscle relaxers. I worked for 4 years in pain, the only time i missed work was when i had a out of town medical appointment. During all the test and surgeons, my discogram showed I had pain in L3, L4, and leakage in L5 along with narrowing of the spinal canal and uncle arthur!
Chutz thanks for the link, is was good reading.
Lets take today, today was like every other day, woke up with my back killing me, took my meds and lyed down and watched the tube. At noon I took my meds and back to the bed, about 1:30 I wasn't hurting, I got up and i wasn't in pain, so i walked around some and started to wash some dish's, after 10 mins my low back was locking up and killing me. So now I am back in bed on the computer talking to you all, and my back is killing me!!
I wouldn't know how to act if i had just one day with no pain.
ACE
I am greatfull for all the help you all have gave me.
I would like to ad that I am not trying to cry on anyone shoulder, I am just searching for  anything that will help me.

Post Edited (ace lungger) : 2/1/2010 3:02:22 PM (GMT-7)


mcdiana
New Member


Date Joined Feb 2010
Total Posts : 5
   Posted 2/1/2010 4:39 PM (GMT -7)   
Ace, I can fully understand where you are coming from. This disease can tear down your life in a heartbeat. I've been diagnosed for about 7 years now and finally had to give up my job as a music recruiter/musician 2 years ago. I thought I'd die! Music has been a major part of my life since I was 3 years old. I used to focus alot on what this disease has taken from me. Now, I can focus, at least most days, on what it has given me:
 
I can get up with my teenage daughter and have breakfast with her before she goes to school. I can spend alot more time with my husband just enjoying each other's company. I can read all the books I never had the chance to. I can help with online fundraisers for animal rights groups. I joined facebook and found alot of my hs friends, talking to them brings back such wonderful memories that I can't be sad. I'm here when my daughter is home from school. I finally have time to be a back-up choir director for my church (can't do it full-time, body doesn't work that way), I can teach a couple vocal lessons a week. In short, I can live life!
 
Please understand...its the little things that always seem to be the big things until you look back 5-10 yrs from now and realize you are alive and loved...everything else is a little thing.
 
I hope this helps.
 
Love and blessings to you and all those you hold dear,
 
Diana

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/1/2010 4:56 PM (GMT -7)   
Hi Ace, I was going down the big back hole at the beginning of last year, just overwhelmed with it all. But tried a few things to get me out of it.
I saw a psychologist and learnt how to meditate when the pain was too much. Positive visual imagery.
I tried anti depressents, couldn't stay on them, made me too hyper, but did change my thinking.
I joined a hydro therapy class where you exercise under water. This was brilliant, I was with a group of people from all ages and backgrounds, injured through accidents and disease, the physio pushed us hard but under water there was incredible support. I built strength and fitness and felt so much better about myself. I had 12 sessions and will apply again this year for another 12 once I am elligible. The social aspect was great, people living in pain to talk to, laugh with, compare progress with.

Please see someone and start to get out more, don't let the pain be you. We have to enjoy life, whatever form its in. I wish I could go back to being painfree too but I don't think its going to happen. I have to climb above it. Isolating myself was doing my head in, getting out and talking to people really helped. I'm not saying its easy, just try.

Best wishes, golitho

ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 2/1/2010 5:02 PM (GMT -7)   
Hi Diana,
 I only wish that I could enjoy something!!! At this very moment I am in a lot of pain sitting up to type.The only time that I am not in pain is when I am lying down! On a half decent day, I will do a little leather work, but I have to be carefull, if I pull to hard with the cutting knife I will hurt under that arm for a couple weeks, if I lean over to long, the next day i won't be able to get out of bed. The only good thing when I was on the Pain Patch  was  that I didn't care if I got out of bed!!!
Thank you so much for the kind words and i am glad for you that you are able to enjoy some.
Later
ACE

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 2/1/2010 7:22 PM (GMT -7)   
First of all welcome to the HW chronic pain family.....
 
As for chronic pain, Chutz and many of our members said it so well.  You deal with it because you have no choice in the matter.  When I became ill in my mid 40's, I too gave up everything I enjoyed.  Then in my late 40's and early 50's, I learned you still have allot more to give up.  Just because I can't do what I use too, doesn't mean that I will ever give up on life.  Oddly enough there are new medications and treatments everyday.  If your PM doctor is not doing enough - get a 2nd or 3rd or 4th opinion.  Trouble walking - get a cane or a walker or a wheelchair.  I have them all.  Can't breath as well - get an oxygen concentrator.  Bed not comfortable - get one that is.  I can't lay down anymore, so frequently I sleep in a lounge chair.  Can't drive - almost all cities have van service for seniors and handicapped. I have used it many times.
 
The pain is always going to be there.  You sound a tad depressed and in need of a new set of hobbies that will occupy your time and that you will find rewarding.  Reading is great.  Kindle offers adjustable fonts for those that have problems concentrating on small print and it evern reads to you when you are unable to read.  Books on tape - fantastic - alloww yourself to escape is a story.  Volunteer somewhere.  If you are reglious, church is a wonderful place to meet others and most usually have a variety of activites that those of us with special needs can participate.  I force myself to get out of the house and be with people.  Volunteer at your local soup kitchen or meals on wheels.  They always need prep people and I have meet some of the most inspirational people there.  Google Volunteer Match for oppportunities in your city.  Take an adult education class.  Even if it is learn to cook with whatever - it is getting out and being with people that improves your outlook.  I refuse to be useless.  If I can do something to help someone else in need, I fell so much better at night.  
 
You have to search to find things that fit you interest and physical ability.  Sometimes you have to dig a little deeper to make a match, but when you do it is so rewarding. If you give up now, what are you going to be like in 10 or 20 years when your abilities are probably going to be more limited.
 
The pain is always worse when you sit on the couch a feel sorry for yourself.  If you get your mind off some of your problems, the day always goes a little faster.
 
Good luck
 

Stella Marie

Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump & neurostimulator.  Extra features: O2 & wheelchair.

 

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 2/1/2010 7:32 PM (GMT -7)   
Hey Everyone,
 
I firmly agree with Chutz on this subject. I have dealt with CP for over 20 years. It has not been a picnic either. I have been up & down that highway of seeing different drs, having different treatments done, all the ups and downs of this or that not working. Was my pain controlled or managed, hell no. They didn't know what chronic pain was back
then. You were considered a whiner or a slacker. My goal to myself was to keep me going. There many, many, many days of suicidal thoughts because the pain was so bad and I was working in this condition in a high stress job. Some will get mad or upset over this next statement, but it can be a mind over matter thing. Thats how I managed to keep going. I was not going to let it beat me. Then, I became sick with different medical conditions and it was like a domino effect, watching them all fall, my health did just that. I gave up, I felt sorry for myself, I dwelled on the pain way too much, the sicknesses way too much, I became consumed with it. I did the poor me thing, the why me thing, I did id all, but I lost my fight that had kept me going for so long.
 
So, long story short, I spent a year in bed doing nothing. Worst thing I could have ever done to myself physically and mentally. I lost a year of my life by laying in a bed. When you take to the bed folks you lose all of your strength, your stamina, you have no muscle, you have nothing. That is why you don't give in and lay in a bed all the time. Of course you hurt when you try to get up and do something, you are moving and using muscles and parts of the body that suddenly have not been worked or used much. That just adds to the pain. You cannot spend your days in bed and then decide one day, hey, I think I will get up and do a load of laundry, of course your body is screaming at you, of course you are going to hurt like hell  for the next week. Our bodies were not made to work that way.
 
It does not really matter if you are married or alone battling CP. I am very much alone with my CP except for when I come here and talk about it. Only a a fellow CPer can truly relate to what your day is like. I am married but my husband has no clue about CP, or anything else for that matter. Believe me he is just as sick of hearing me talk about it as I am having it, so I stopped discussing it with him or anyone else years ago. Because I don't sit around and talk about with people does not mean I am in denial either-oh I know very well what is going on with me first hand. I do not want CP or any of my other health problems to be the highlight of my day either. 
 
I know in my heart and mind I have to be the one to take the bull by the horns and be willing to work around all the obstacles bad health has thrown my way. Oh, I still get mad and want to chunk it all when the psoriasis, cellulitis, crohns disease, ulcerative colitis, and good old CP kicks me right square in the arse and knocks me to my knees. But, I grab my boot straps and pull myself up cause I am not going to let it beat me down. Yes, I do have still have my pity parties and sometimes when I am really mad the old "why me" creeps back in and I slam the door on it real hard to keep it out. I keep my pity parties limited to one day only.
 
For the first time in many, many, many years my CP has been under the best control ever.  This past year I have had the best control ever, only because of a new dr taking over my care. Am I pain free no, and if you have true CP you will never be pain free either. Forget about pain free days, they do not exist.  Can I stand up straight, no, can I walk very far before the pain kicks in bad, no. The closest I get to standing straight is hanging onto a shopping cart. If there is no shopping cart to hang onto, I don't shop. The bottom line its like Chutz says, you have to learn to work with what you have and build from that. You take it one day at a time. One day at a time is the best any of us can do and there is nothing wrong with that either. I stop setting myself up for failure when I started living one day at a time.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/1/2010 8:11 PM (GMT -7)   
Good Evening Stray! Your words sound so familiar to me, and you are right on the money. I think I'm in that area now, and have been think about it, and even saw Chutz write on this subject as well. I'm guilty of doing the same thing as you went through. I think the trick is to be able to get a person to see it first, before you can help them though. What is the best approach...be bold about it and lay it on the line or do we nudge them in that direction and hope one catches on? I wrote somewhere today about life being about just that...relationships! I think many come here not only looking for information, but relationships, because they are lonely from the CP. I have said this before...that CP is a lonely condition. I have met few around here that suffer from CP...but have bumped into a few that do suffer from the same as I, and you should see their face light up, and at times close to tears. Many of these people have been abused not only from a non caring spouse, but also from non caring employers and Doctors as well. I totally agree, with what you are saying, but how best do we get that message across to members and visitors. I wish I could....or would like to see what you wrote put in the Chronic Pain 101. I feel that strongly about it. You come across as a tough bird, but in reality we need a little jolt or jab from time to time, by someone that knows that we need to wake up. I take it in stride, and know that it is well meant, and so stated in your reply too! Stray your are a straight no frills tell it like it is kinda person, and that is in it self not a bad thing. I appreciate your truthfulness and experience, and wish that some of these statements could be highlighted as the post of the week kinda thing. Maybe Chutz can do something like that some time. I did not take time to read all of the post here on this topic, as I have been under the weather as of late, so forgive me what I missed. Also did not mean to hijack the thread either...just scanned through and your words hit home with me, and wanted to respond to it. Take care Ace, and take the good advice you have been given here.

Still Learning,

Michael

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/1/2010 11:22 PM (GMT -7)   
You all are wonderful people and opening our hearts and souls to each other is why we are here. I have to confess I have tears streaming down this tired face but they are tears of joy tinged with a bit of sadness. But without hope and something to look forward to ... well....


This reminds me of a quote from Dante's Inferno (part of "The Divine Comedy") as he is passing over...Inscribed on the gates of Hell, "All hope abandon, ye who enter here".

It may have made him famous but no thanks for this gal. I refuse to abandon hope! Some days it feels like it's all we have left but that's not a bad thing. Hope is Life!

Warmest hugs,
Chutzie
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 2/2/2010 5:14 AM (GMT -7)   
Ace, have you ever been to a physical therapist or as Golitho suggested some hydro therapy. Lying in bed all day could possibly be making things worse. If I sit in the recliner or lay on the bed too long during the day I get so stiff & sore it makes my pain worse so I try to pace myself throughout the day. You said after 10 minutes of doing dishes your back was shot. I can't stand in one place either for very long but maybe you could try placing a couple of high stools in your kitchen to sit on while working. Somehow you need to get moving.

I don't want to come off as insensitive because your pain is real, I don't doubt that at all. Are you using any extended release meds to help keep your pain levels at a more even keel? I was taking oxycontin every 12 hrs but it seemed that every afternoon & morning my pain levels would put me down so my doctor upped it to every 8 hrs and this has helped. I also have oxycodone for breakthrough pain.

Sounds like you need to sit down with your doctor and make sure he knows what you are going through. A pain journal may help give him/her more information. Good Luck and please keep us updated.
---Jag---
 
DDD, osteoarthritis, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus left knee 2000 & 2002, buldging disc L-2/3


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 2/2/2010 10:14 AM (GMT -7)   
Jag hit on a very good thing pacing yourself. I am still in the learning process on pacing myself. I have to admit I am limited in many ways, but then I have to remember I am 56 yrs old, I am not a kid anymore, I don't like getting old either. But, my body dictates to me what it can or cannot do. So, learn to pace yourself and save yourself a lot of grief. Also, lower your expectations and quit setting ourselves up for disappointment.

My goal today, is getting some laundry done. Will I get it all done, probably not, thats unrealistic on my part to think I can get it all done. So, I will be happy with getting one or two loads done.

Tomorrow, is going to be a me day. I am going to hop in my car and go to Wally World, grab onto a cart and just walk around the store. It will get me out of the house, get me out with people, and get me moving around. I won't last long cause I can't stand up straight, but thats ok, the key is I am making the effort.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/2/2010 12:08 PM (GMT -7)   
 
 
   Dear Ace,
 
      Good morning. I am terribly sorry I am so tardy in welcoming you. My name is Dani and it is a pleasure to meet you. I am oh so very glad you came to the Healing Well Community.
 
     I am sorry that pain has pulled you to a stand still in your life. It is hard for sure. I think I would spend all day listing the things I do to be able to tend to my house! I saw a pain psychologist for a very long time. She gave me the tools I needed to "re define" myself. If you can get a referral to one I highly recommend it. No different than seeking the help of say? a tax accountant for your taxes? or a landscape designer for a new flower bed? So pain psychologist for chronic pain tools is no different really :-)
 
      I wont chat endlessly! Just wanted to stop by and say welcome! I look forward to getting to know you better as time goes by.
 
*huggs*
  dani
 
 

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 2/2/2010 5:15 PM (GMT -7)   
Hi Everyone,
 You all make a lot of sense, and I am great full for the fact that everyone on here tries to help. As I had mentioned earlier I spent a year in bed when I was on the Pain Patch, now I am on Vicoden and that is like taking candy. One of the things i hate most is self petty!! I don't think that I have dwelled on why me??? I do try and get out, but everytime I do, I pay for it for days! Take today for a example, I wasn't dieing from pain, so I went out to visit my brother for a little bit, I wasn't there over 20 mins and my back went to killing me!! I have spent the last 3 hours trying to get it to let up with no luck!!!! Someone ask if I had been to PT, I have been to 2 differnt places, both killed me and before I went to the last one, I could sit in my reliner and watch TV, but after the second PT I can no longer sit for more than 15 mins or so.  I am not giving up, it is hard to go do anything when you know you are going to pay the price later. Right now I can't change Doctors, because it is work comp everthing has to go threw the court. I went 3 months with out a doctor here just 6 months ago. I have tried the drinks that are to help with joint pain, i bought a inversion table,  nothing seems to help much! When spring gets here I won't hurt as much as I do now, and I will be able to do more things.
I am very great full to all of you and wished that I could help others like you all do, but since I can't figure my own deal out, I don't think that i would be much help to others. I do understand the therory behind going to see a scrink, because I have about 20 bottles of anti de., bi polar, you name it, i think I might have it.
Later
ACE

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/4/2010 8:04 AM (GMT -7)   
Dear Ace,
 
      Oh my goodness! It never occured to me the way "pain psychologist" might sound to someone who hasnt ever been to one!  I am so terribly sorry!!!!
 
     You said ~~>". I do understand the therory behind going to see a scrink, because I have about 20 bottles of anti de., bi polar, you name it, i think I might have it."
 
     Pain Psychologists arnt regular "shrinks". Well, I mean, if you feel you want a psychiatrist to, you know, just talk about "life, experiences, etc." theres nothing wrong with that and I am sure your regular doctor can help you find one of those....
 
      Pain psychologists are different. You are taught the mechanics of pain, how your body react to pain, physically, emotionally. "signs and triggers" to watch for to be indicators to take your break through medication, rather than waiting til you are at a full blown "10". They have machienes that will measure your 2 highest indicators. IE increased breaths per minute and cold feet are my indicator. (which occurs about 30 to 40 mins before full blown 10 for me)That is time to take break throu medicine. Instead of ~~> "Holy cow I can't function, I should take break through meds". As you well know, trying to "catch -up" to a level 10 is an up hill battle. Better to avoid that all together if possible.
 
      Also can start up cognitive behavioural therapy along with biofeed back. So, for instance, while waiting for your break through meds, you can do bio-breaths. That will keep your adrenaline from going into over drive.... and excess adrenaline will cause all sorts of extra physical symptoms you dont need or want.  Biofeedback will also help pain management doctor. While you are under light anestesia (if you recieve steroid injections /epidurals) your doctor can say your trigger phrase to get you to do your bio-breath through the steroids being injected? In my case, my spine specialist uses my "key words". They also help you to "re-define" all the things you do in your life. Same things you want to do without pain? Just with a different point of view, while in pain and accomplished in a low impact way.
 
       Pain psychologists arnt normal "shrinks". They work in conjuction with your other doctors, not independently and communicate with them regularly. They help to keep track of when your symptoms started, how long, what areas of your life are most effected. If your medicine isnt effective or is too much for your day to day life. Also, they can help your other doctors to assess if you are a good candidate for other long term therapies(meds)/internal and external devices/surgeries for your pain.
 
       I think you get the idea? Please know I wasnt saying "hey go see a shrink" I was mentioning it because for me it is/was just another tool for our pain management, thats all. *hugg*
 
      One aspect you have is the Workmens Comp. We have a few here on workmens comp that can give advise on how to attain the different things you might want as part of your chronic pain treatment (procedures/devices/assistance tools). Hopefully white beard and father john can help in that area. I hope you still live in the same state that your workmens comp originated from, there are members here with out of state workmens comp and it is a huge burdon for them to change and request other services!
 
     *huggs*
        dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 2/4/2010 10:43 AM (GMT -7)   
Hi Dani,
 I didn't take anything you said in a bad way. I realy didn't understand much of what you said in your last post? I did go to one Doctor that ask me to do a test, I realy didn't know what he was asking me to do,but I agreed. This test had over 500 questions, and in my opion they were the dumbest questions I had ever seen!!! I am sure that I over reacted but I felt insulted having to do that test! I have never refused any thing a doctor as ask me, because all I ever wanted was to get fixed and go back to work! I asume I have Chonic Pain because it is 24/7. And of course this causes all kinds of problems. I never feel like doing anything and my wife is bored sitting at home, so she is allways on the go and i am left all alone most of the time! Before I got hurt, I was none as a people person, never meet anyone that I couldn't talk to. Since I never feel like doing anything I have adjusted to being by myself, but it does bother me that I can't go do anything without hurting more and paying the price later. I know that at this time there isn't anything that can be done to fix my back, so my only course is to take pain meds, but i don't want to take so much that I am wacked out of my mind! Seems it is a catch 22, a no winner!
I am great full for you and every one else's concerns.
Thanks
ACE

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 2/4/2010 2:29 PM (GMT -7)   
Ace, the best thing you can learn is to how to pace your self. You do have to start out slow and let your body build up endurance and tolerance. Laying in a bed or laying in recliner watching tv is very hard on your structure. Yes, you will have pain but as your stamina and strength builds the pain from activity will lessen. Pain from your injury will not get less.
 
Don't you remember how use to when a person hurt their back the drs use to say a week of bedrest. Well, now if you hurt your back they tell you no bedrest. The reason being that one week in bed weakens all of your muscles and creates another problem. This is what has happened to you because of laying in bed or laying in a reclincer all the time.
 
Its tough but if you put your mind to it you can do it. I could lie to you and say I had no problems after laying in a bed for a year, but we know better than that, look at what its done to you.
 
Sometimes dwelling on the pain makes it worse. When I say dwelling it is like you said, "its hard trying to get up and do anthing when I know I am going to hurt worse for trying". You have to change your mind set on that one. You have to stop thinking that way. You are far too young to let life pass you by. You have to be willing to fight it every single day. The rewards for the fight far out weigh the other side.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 2/18/2010 3:54 PM (GMT -7)   
Good evening Straydog,
 I have been trying real hard to follow your advice, for i would do anything to have a good day! I have been doing best to be more active in my daily life. I have been taking it slow but not having any luck. It might have a lot to do with the weather, our weather has been crappy and that weather kills me!! I went to a indoor auction Sat. night I had a real nice padded theather seat, I sat there for 4 hours, when I went to get up I wasn't for sure I was going to be able to get up!! I spent Sunday and Monday in bed. Maybe when summer gets here it will be a lot better??
Later
ACE

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 2/18/2010 5:54 PM (GMT -7)   
Ace,
I would've answered sooner but I had pneumonia pretty bad, but I try doing physical therapy once or twice a week and take walks when the weather is nice 15 minute to 1/2 hour walk sure can clear the mind, I used to be able to do my needlework everyday whenever, but not anymore, so yeah it can be hard, but being active a little each day might help, ask your doctor about physical therapy it'll keep you moving and the more your mobile the better your joints, omega-3 and vit D helps as well so ask your doctor about those, I hope your feeling better soon..I used to have roses, but have scaled back due to this pain and gave away my roses to someone young...
Soft hugz
(((((((((((((((((((((((((((((((Ace)))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
hope you can get low pain days soon...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/18/2010 6:10 PM (GMT -7)   
Hey ace , I think I know how you feel brother .I'm 53 and up until a year agoi I was independant in every way then Bam ! I need hip replacement , the pain explodes of the charts , I can't walk without help and it is all i can do to take care of my own hygene , dress , cook and eat .I can't travel without help . andthe pain generally prevents any excess exertion so I don't get tired making it hard to fall asleep .Its a matter of finding hobbies you can partake of , doing what you can around your house .Getting out when you can , even for just a ride someplace , get out if you can .Yes summer is a great time , at least get out and enjoy the beautiful day .Great luck
HIV+ also Hep c , need hip replacement surgery on hold because of cellulitus  .most pain from hip condition and cellulitus .hands numb may have carpal tunnel syndrome now .             .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex ,Avalox , lasix .


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 2/18/2010 11:42 PM (GMT -7)   
Ace

I know well what you are going through, I have been on disability for quite some time now, when I first went on disability I started doing hobbies, some sculpture and drawing, I went the local junior college and took sculpture classes and then drawing classes, as time has progressed I have difficulty using my arms and I have had to give sculpture up completely and even drawing tends to be a pain, and I do not do much of that any more. I do knit some, and I enjoy being on the computer. Right now I have more than enough stuff going on in my life to keep me busy. But I was where you are, and I know how difficult it can be! It does sound like your pain is not being controlled all that well though. I know I was on Vicodin and Vicoprofen, and I to was taking them all the time, and my pain was still not being adequately controlled. I got a new Doctor and he put me on Oxycontin, that made a big difference. I was only taking it every 12 hours and I was taking 5mg Oxycodone for break through. It literally changed my life, it controlled my pain much better than anything else I had taken and I did not feed drugged like I did with the Vicodin and Vicoprofen. Over time my dosage did have to be increased and this past summer they changed it from every 12 hours to every 8 hours, and although I am never pain free, my pain is for the most part manageable ! I do still get epidural injections, and I did have another fusion this past fall! My life has changed allot over the years, and yes I am not as active as I once was, and I can not do some of the things I once did, but I have found other things that I can do. I think you will eventually find the same, but I really think your pain needs to get treated better first! May I suggest that you start ( if you haven't already) a pain journal, keeping track of everything you do and the pain that you are in. Then take it to your Doctor, and show him/her staying in bed does not help you, but they need to get your pain under control so you don't have to stay in bed!

I do wish you well, you are not alone in this, we are all here to help and support you!

Good Luck to You

White Beard
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