have pm appt wednesday- not looking forward to it

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merrygirl
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   Posted 2/2/2010 9:20 AM (GMT -7)   
well you may remember that at my last pm appt they treated me badly. I was pretty honest and told them that my pain was not being controlled well enough. I usually see a np, but every so many visits i have to see a doctor. well the np was going to increase my fentanyl, and the doc denied it and gave me a lecture. I have been seeing them for about 8 months, and see the np every month, you think she would know me better.

So I have decided that I am going to complain about this doctor and let them know I am unhappy about the way I was treated and about my pain management. I am sick of being afraid of them and letting them (not my np) treat me like a junkie.




so Any other advice?

thanks.

nono
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hydrangea
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Date Joined Mar 2007
Total Posts : 190
   Posted 2/2/2010 11:21 AM (GMT -7)   
I do agree that some pm doctors treat patients like junkies. I have not had this happen to me, but I have heard another doctor in the group talking to another patient like this. I was in my exam room waiting for my doctor. In the room next door (walls must be thin, I could here everything without trying to listen) Doctor was telling the guy that he was taking t many pills, and that this was the last month that he would refill them. I thought for sure that this guys was a addicted the way the doctor was talking. We both happend to exit our exam rooms at the same time. The poor guy was using a walker and was having a hard time walking with it. You could tell he was in so much pain. I felt so sorry for him.

I do think that it is up to us to let our doctors know how much pain we are having. I actually started to use a pain diary. I would write down how mush pain I had everyday, my activity level and my meds I used. So that I could talk to the doctor about it. I found that if I just complained that i was not getting any relief with out any evidence he did not listen as closely. Also if I had to take anymore pain meds. than presribed in 24 hours I called the nurse and asked them to please put it in my chart, so that when I needed a refill the doctor knew why.
Just a suggestion, but it worked for me. I also tried to bring my spouse with me so that he could talk about my pain level and how it effected our lives.
Good luck!
Diagnosed crohns Disease 07,
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straydog
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   Posted 2/2/2010 11:46 AM (GMT -7)   
I do think Hydrangea gave you some excellent info on relating to a dr. There is also a pain journal in CP 101 that can be downloaded and printed out. By putting something down on paper many times this does show the drs that we are serious about our pain and how it is affecting us on a daily basis.

I think there is way too many drs out there that feel we are junkies, just out to get the medications. I also believe that many PM drs also jumped into the world of CP because of greed and not in the best interest of patients. CP treatment is a very lucrative business for them. Then we do have the drs that are truly interested in our health. I realize that they hear the same the lines all day long, but they should be intuitive enough to be able to sort out the junkies over the true CPer's too. They need to stop the practice of trying to put us all in one category.

We are in a minority as far as I am concerned. I don't know how big the practice is that you are treating with, if there are other pain mgt drs you can change to or not. Be very careful and don't burn any bridges here. Be diplomatic about your complaints, and try not to get angered as you speak. The drs work for you. But, in the meantime remind them you are only wanting to be treated fairly. Good luck.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Stella Marie
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Date Joined May 2005
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   Posted 2/2/2010 11:47 AM (GMT -7)   
I know that you are unhappy about your treatment.  When you say that you are going to complain about this doctor - where are you going to make this complaint,  to him directly or an office manager?  Rather than starting your appointment off on a negative tone, since you do not see your doctor every month, why not ask him or her to spend an extra few minutes reviewing your chart and updating him on your currect status and uncontrolled pain.  Ask if there are other pain relief options.  I have personally found that increasing a medication that is not relieving your pain is sometimes not the way to go, changing to a different medication can often help.  What about having a BT medication?  Have a candid conversation on what his treatment plan for you is and exactly how much pain control can you realistically expect.  If you don't like his answers, then it might be time to change PM's.  Maybe the NP gave the doctor an incorrecct impression about your situation.  Rather then starting off with a complaint, a frank discussion may better suit your needs. 
 
Good luck and keep us posted.


Stella Marie

Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump & neurostimulator.  Extra features: O2 & wheelchair.

 

 

Post Edited (Stella Marie) : 2/2/2010 12:25:49 PM (GMT-7)


Mrs. Dani
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Date Joined Jun 2009
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   Posted 2/2/2010 12:21 PM (GMT -7)   
 
 
    Dear Melissa,
 
       Just a quick note to say I hope it goes well. Also, Stella has a wonderful suggestion and I think it would be worth while to give her idea a try. Good luck! I hope you have a positive out come!
 
*hugg*
  dani 

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


merrygirl
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Date Joined Jun 2007
Total Posts : 702
   Posted 2/2/2010 1:58 PM (GMT -7)   
thanks guys, I am known for being a hothead and have burnt many bridges in the past. certainly i dont want to do this again. I get so darned mad at these people. I dont like to be made to feel less of a person from anyone let alone a doctor. Hmmmph.

ok I got this off my chest! thanks guys and I am going to print out the pain journal.

i will try to behave myself.
thanks for being the voices of reason!
melissa
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PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 2/2/2010 2:30 PM (GMT -7)   
Melissa,
You've been given some great advice, and from your last post it's good that at least your recognize your tone might get too strong and you could burn some bridges with this doctor(and unfortunately, it goes in records so it can follow you to future doctors). I do understand being treated unfairly, and wanting to complain in pretty strong tones, but sadly, we have to take care of ourselves so we don't shoot ourselves in the foot.

Here's a suggestion: Today take out a notepad and write this doctor a letter. Let out all your anger, say whatever you want. BUT YOU ARE NOT TO GIVE THIS LETTER TO ANYONE! It is just to get the raw emotions out of your system. Then read it through and see if there's any valid points in the letter you want to keep to communicate in an assertive, but not aggressive or angry, way to the doctor. Take the "venting" letter and shred it! LOL I say this as someone who needs to do this exercise periodically myself because in my younger years I was one who could shoot myself in the foot in lots of situations. Now I pick and choose my battles!

Remember to think about what's going to be EFFECTIVE for you. What strategy will work best for YOU. What's the saying - you can catch more flies with honey than vinegar? Now that doesn't mean let them walk all over you, and be ok with substandard pain management, but it does mean thinking rather than feeling your way through communicating with the doc's office, and the strategies some others have given you can help with that.

I'd be sure to emphasize how you're just trying to get the best quality of life you can, and then items from a pain journal can be helpful to show what's working and what's not. Then if you don't get any response, it may be time to look for another PM, but at least there won't be anything negative in your records to keep you from moving on. I wouldn't even say anything to this doctor about moving on, because most of them are all too ready to get rid of a CPP that doesn't just stay quiet and do as he/she is told. So if you decide to find another doc, you want to do that maybe with your PCP, but you don't want to lose this doc before you get another one.

Hope some of this helps. But we do understand your anger and frustration!

PaLady

skeye
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Date Joined Mar 2008
Total Posts : 2976
   Posted 2/2/2010 8:28 PM (GMT -7)   
Hi Melissa,

If you don't feel comfortable with your PM, then perhaps it is time to change doctors. Remember, as patients, we are the consumers. We hire the doctors, they don't hire the patients. So if you don't feel that you are being treated well find someone who will! You deserve an understanding and respectful doctor. Don't settle for anything less!

Another thought. Could you bring your husband with you to the appointment? Sometimes it helps to have that extra support & someone who can advocate for you if for whatever reason you cannot. It may make your doctor act more respectful as well.

Good luck tomorrow. I hope you have a productive appointment!

hugs,
Skeye

merrygirl
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Date Joined Jun 2007
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   Posted 2/3/2010 12:40 PM (GMT -7)   
I am back from the doctor. It wasnt too bad, they didn t change my meds, but I am going to try aqua therapy again.

I am also going to get an emg of my legs.

Then we are going to do trigger point injections again immediately followed by the graston technique, which is new to them and me. anyone try this?

I behaved myself but was honest that my pain was getting worse. i need some relief!
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Snowbunny21
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Date Joined Jan 2010
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   Posted 2/3/2010 4:41 PM (GMT -7)   
Hey Merrygirl,

I haven't had this yet...but learned from my PM that the Graston Technique is a new therapy to help with scar tissue...You might be a little sore and possibly have some bruising afterwards so please talk to them about what to expect...you do some stretching first...then they perform this...then some more stretching and ice..
It is time consuming with one to two sessions a week for a few weeks..and takes a few sessions to see results..

Do you mean they are going to do the trigger point injections at the same appt as this?

This would be something to discuss with the Dr. as this to me is way too much for one day...they should be done on separate days...some time from eachother to be effective and not cause too much extra pain for you..

That is just my thoughts as your Dr. knows best I'm sure

but if it could help with some of your pain...it would be worth it..


SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006

Post Edited (Snowbunny21) : 2/3/2010 6:00:55 PM (GMT-7)


golitho
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Date Joined Sep 2008
Total Posts : 1670
   Posted 2/3/2010 5:06 PM (GMT -7)   
Well done Merry Girl for being assertive without losing control. Not easy to do when we are soo frustrated dealing with these inept professionals.

Goodluck with these new options, I hope they bring you some relief. Keep up that pain journal so you can document your reactions to the new treatments and show them9The docs) how seriously you are trying to deal with your pain. Hope that makes sense. Grammer was never my strong point!

Best wishes, golitho

merrygirl
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Date Joined Jun 2007
Total Posts : 702
   Posted 2/3/2010 6:48 PM (GMT -7)   
thanks for the support!

Yes they are going to do the trigger points (4) immediately before the graston technique. They gave me the option and I am going to try it, the thought is if they can nust up some of the knots, and then do this technique, it may work better. if it is too much I will stop doing both.

melissa
Chronic Lyme Disease
Fibromyalgia

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea

Hypothyroidism

Adrenal Fatigue

Type 2 Diabetes


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 2/3/2010 10:09 PM (GMT -7)   
Merry & Snowbunny,
Looks like I'm going to have to learn more about this Graston technique. One of my problems is scar tissue around the nerve that formed after my surgery. My PT worked with the area, and it helped a little, although now it's getting sore again. And I have no insurance for PT anymore.

Will be curious to see how it goes, Merry. And good for you for managing your emotions but still giving the doc the needed info about your pain.

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 2/3/2010 10:19 PM (GMT -7)   
Melissa,

I'm glad the appointment went smoothly. I've never heard of the Graston technique before, but I hope it helps! I did aqua therapy for a while after my 3rd shoulder surgery & it was great! It is a nice way to increase mobility and strength without overdoing it. Hopefully it will be the same for you.

hugs,
Skeye
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