Straydog - Thanks for the Pump Info

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Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 2/2/2010 12:22 PM (GMT -7)   
I can't thank you enough - and you are probably scratching your head and wondering what I am talking about.  In one of your posts you mentioned changing pump meds every 6 wks.  Bells went off for me.  I always have my pump refilled two ahead of time.  BUT -  I also notice that about a week before refill time I have dramatically increased BT pain.  When you mentioned the meds breaking down after 6 weeks - I realized that is what was happening to me. 
 
It is amazing how much information we have to share with others.  You have just saved me weeks of pain.
 
Thanks a million.

Stella Marie

Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump & neurostimulator.  Extra features: O2 & wheelchair.

 

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 2/3/2010 1:17 PM (GMT -7)   
Hey no problem this was new to me with my new PM dr. My prior one had me in every 90 days, rather 88 days and I add that item to his long list of he did not know what the h%*% he was doing list. I have an old 90 day pump. When my new PM dr explained it to me it made perfectly good sense.

I am so glad you are getting your meds changed sooner and it is helping. Hugs.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 2/7/2010 7:06 PM (GMT -7)   
I discussed this with my PM. He told me that is why he never uses any of the pumps longer than 90 days - for med stability. He also told me the FDA had approved both baclofen and morphine for exactly 90 days. No studies have ever been done with the affect on mixing meds and length of stability. He said it made total sense, since I have continously had an increase in PT pain right before I am due for a refill. I was getting mine refilled one week ahead of time. We agreed on trying three weeks the next time. If I still have BT, will add another week.

What a pearl. That is why this forum is so important. One little pearl can have a major impact on your life.

Stella Marie

Moderator for Chronic Pain

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump & neurostimulator.  Extra features: O2 & wheelchair.

 

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13478
   Posted 2/7/2010 10:14 PM (GMT -7)   
Stella Marie I am glad your dr was open to this subject. It was something I certainly never thought about. But, after seeing that pump on an xray and thinking about the medication sitting there for nearly 90 days in that small dark place for some reason it just made good sense. After all, the medication is not in an air tight place when you think about it. I can see the mechanics of that small amount of medication losing its punch just sitting there.

I am so greatful for my PM dr, because she taught me more in one visit about pumps than I learned in 4 1/2 yrs with my prior dr. I know this lady is sharp because she knows compounds and does her own mixing right there in the office, It takes a very smart dr to know them and it is a gift.

My old PCP knew compounds, his father taught him and it is a true gift. Some of the stuff that man could come up with and it worked, lol. I use to tease him and tell him he was an old witch dr. He was old school he did surgery to delivering babies, he was from that era, very special. I loved him dearly.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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