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Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/2/2010 4:59 PM (GMT -7)   
Hi there,
 
I have been a 'reader' for the last few months and even though this is my first post, I feel like I know everyone and pray for you all daily as I know how difficult it is to live with chronic pain.
 
I have had 3 cervical fusions, two levels, over the past 8 years, as well as other misc surgeries for other issues, and have been in a Pain Management program for the last 3 years.
 
One of the blessings I have is that I have become friends with my PM Dr. outside of our appts so we get to chat about his work and how hard it is to be a PM these days as well as learning so much about pain and how important it is to have a 'team' of people to help us, as well as doing everything we can in our power to help ourselves.
 
I live in VA with my pup...who is sound asleep on my foot as I write this:)
 
Look forward to getting to 'really' know you all now that I am signed up and posting.
 
Take care,
SBsmile

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 2/2/2010 5:56 PM (GMT -7)   
SB

Welcome to Healing Well Chronic Pain Forum, sounds like you have been through quite abit! I am really glad that you have found us, I think since you have been reading our posts for the last few months that you probably know that the folks here are a very caring and compassionate group of people, and we are always here to give a listening ear and caring support. So join in and post as often as you want, and share as much as what you are comfortable with.

Welcome to our Family SnowBunny!

White Beard

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/2/2010 6:01 PM (GMT -7)   
Thanks so much White Beard! I have a niece, nephew, two brother's and Dad all military..3 USAF and one Army...Brother was a crew chief with the Thunderbirds many years ago...

so thank you for your service too!

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/2/2010 6:12 PM (GMT -7)   
Hey Little Snow Bunny! That name sounds sooo cool! :) You will be a great addition here, and we welcome you with open arms! It is great that you have a good relationship with a PM. They are a little tough to get into these days. So a little insider peek into their world might help us understand what is going on these days. Again, welcome to the forum!...and enjoy your stay with us!

Michael

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/2/2010 6:24 PM (GMT -7)   
Thank you for that warm welcome Michael! I thought Snow Bunny was a fun name to pick since it is doing that very thing outside right now and I wish I could go play!!! LOL

I really am looking forward to getting to know everyone here. It's sad that we all have to be here, but such a blessing to have caring support from those whom also have to live this life with pain.

I hope to learn from others any tricks with coping that I may not know or be doing, and hope that I can offer some help as well with the things that I have learned.

SB and 'the dog snoring loudly'

Post Edited (Snowbunny21) : 2/2/2010 6:35:47 PM (GMT-7)


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 2/2/2010 6:58 PM (GMT -7)   
Hi Snowbunny,

Love the name! I'm so glad that you finally decided to post. I guess I don't have to tell you what a wonderful place this is smilewinkgrin. Welcome to the family!

Skeye

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/2/2010 7:22 PM (GMT -7)   
Thank you Skeye..you all are so kind with your warm welcomes:)
SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, removal of old hardware, use of titanium plates, rods, screws, BMP, kitchen sink (lol) Dec 2006
 
PM since 2006


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 2/2/2010 8:01 PM (GMT -7)   
Welcome Snowbunny I too am glad you found us but sorry you had to. This site is full of people who "get it" because we are all in the same boat. I hope you keep us updated and post often. I family in VA, Richmond area. take care cause I care

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/2/2010 8:13 PM (GMT -7)   
Welcome Snowbunny,
I live in Australia, Sydney actually and I'm dying with the humidity at the moment so funny to think of snow for me.
 
Welcome to our little forum, there is always someone here willing to reply and share your pain or your frustrations or simply your thoughts. Love this place, welcome again, golitho

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/2/2010 8:22 PM (GMT -7)   
Many thanks Cathy and Golitho for your hello's...

Cathy..I am up in Northern VA but have many friends down in Richmond so drive there often...

And so wish I could visit Australia...I have been blessed to travel a lot but that is one place still on my bucket list") Scuba diving and cute guys with accents...lovely!! HAHAHA
SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/2/2010 8:43 PM (GMT -7)   
Greetings, Snowbunny,
I wonder if you were hopping around Punxatawney Phil this morning as he declared 6 more weeks of winter! (no surprise to me, tho' I always hope he's wrong!) Been too cold for too long here in PA.

Glad you decided to post!

I need an animal to keep me warm!!

PaLady

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 2/3/2010 8:01 AM (GMT -7)   
Hi Snowbunny,

I too am new here...welcome! This is a great group to hang out with...lots of knowledge and ideas and advice, but the best part is we're all in the same boat, so we understand how the other feels.

Looking forward to seeing your posts here.

take care,

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines

(plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/3/2010 8:16 AM (GMT -7)   
Thank you PALady and Pam...

Yes...I must admit that even though I really don't like getting the chills...I do love the beauty of the snow! As for me, the humidity of summer is worse for my pain as it seems to up my fatigue levels and keeps me inside more with the oppressive heat.
At least with the cool weather, I love my ThermaCares...should have bought stock in that company!!! LOL...and can get bundled up to go for walks outside...

I really wish I could live in Colorado or AZ as yes..I am one of those that loves the dry heat! Grass is always greener, right? LOL...

You guys at HW rock with all your welcomes to us newbies!!
SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


Pete trips again!
Veteran Member


Date Joined Nov 2006
Total Posts : 1899
   Posted 2/3/2010 11:04 AM (GMT -7)   
Hi Snowbunny!
Welcome to our little family! Thanks so much for posting such kind words to me on the Pete thread that Mikey started!! I'm sorry that I'm in such a bad way right now as you might get the wrong oppinion of me. Sounds like you have had more than your share of pain with all the cervical problems> Ouch!! I to have had neck problems & a failed fusion and know that they can be "life changing" to say the least!
I like the others are looking forward to getting to know you better. From your posts I can tell you are a very caring person and we can always use more of them here! So please stick around and concider yourself a member of "Da Family"!!!
Hugz from your new Buddy,
Florida Pete!

hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 2/3/2010 11:14 AM (GMT -7)   
Welcome snow bunny......
This is a great place to meet people that understand what we are going through. I have found so much great information on this site and so many great people.. To be honest, don't think I could make it through my surgery in the near future without every ones help on this board. Again......welcome.
Diagnosed crohns Disease 07,
Bladder Inflammation
Three Herniated disc; stenosis, facet arthritis,degenerative disc , severe siatica
3 laparoscopies, hysterectomy
p.t. and trigger point injections for severe pelvic pain.
Spinal epidurals for herniated discs and siatica
meds: lyrica, vicodine, amrix
 


hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 2/3/2010 11:18 AM (GMT -7)   
i just read your reply on my thread.....Thank you so much for the good luck wishes. That is so funny that you mentioned PJ's. I am totally addicted to great pajamas. it started with my first surgery a couple of year ago, now I can not walk into a store without buying a new comfy pair. I will be purchasing news ones for this "big event" as well. As far as keeing busy, I have lots of books, and have to study for a big exam that I will be taking in April. Hopefully I won't be to drugged up on pain med's to study. haha
Again, Welcome.
Diagnosed crohns Disease 07,
Bladder Inflammation
Three Herniated disc; stenosis, facet arthritis,degenerative disc , severe siatica
3 laparoscopies, hysterectomy
p.t. and trigger point injections for severe pelvic pain.
Spinal epidurals for herniated discs and siatica
meds: lyrica, vicodine, amrix
 


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/3/2010 11:23 AM (GMT -7)   
Thanks Pete and Hydrangea..

I think it's crucial to have people who have walked in your shoes to offer the type of support and care that we all need...

To be able to say and hear.."I totally understand"..means so much to our well being so we don't feel so alone in our daily walk with chronic pain.

Hugs back to you all!!
SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 2/3/2010 12:13 PM (GMT -7)   
snowbunny


I seen in one of your post ( I think it was on Petes thread) that you had just recently prurchased a light box, could you possibly E-mail the information on what type it is and where you got it from? When your signed in just hit the envelope under my name on the left for my E-mail. I have a friend that has been wanting to get a light box to treat SAD. So any information you can provide would be appreciated.



So how has your CDF held up since your last bout of surgery? Do you still have lots of pain? As I have already mentioned I had C6/7 ACDF in 85 they used the bone from my pelvis on that one,with no hardware, and then a C5/6 ACDF this last Sep 28th 2009, this time they used cadaver donor bone, and a plate with titanium screws, this instantly took away all my arm pain, but didn't do nothing for my neck or head pain. I just had another MRI with contrast of my neck last week, and they found nerve root impingement on the right side at C2/3 the 24th they are going to start a serries of epidural steroid injections at that site, to see if that will help relieve the pain! I have had them at the base of my skull before and they helped. None of the others in my back or neck ever did much good! So is your cervical area the main area of problems? Or do you also have other disk problems in your back. Anyway I do understand what you are going through, and I wish you all the best!



White Beard

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/3/2010 12:46 PM (GMT -7)   
Ok WB...I sent you an email with the info...so let me know if for some reason you don't receive it..

Wow...we are pretty darn similar with the neck issues..huh??? Yes...the surgeries did the same thing for me..relieved the immediate arm/hand pain and numbness..but nothing to help with the neck pain..But I really wasn't expecting it to do this anymore as I have a wonderful surgeon this last time who went over realistic expectations...

The first surgery I had I was maybe a 1 or 2 for a few years which was great..and 2nd surgery was a joke with a terrible surgeon..ahhh....but ever since then...even with last major 360 one...I think it's a permanent issue now sad to say...and with the double level fusion..it puts so much pressure on the above and below discs...as well as pain from the scar tissue..and movement with all the metal and rods/screws in our neck just plain hurts:(

Isn't it strange when you can hear the titanium making that 'creaking' noise when it's quiet??? Freaky!! LOL

I just went through a few weeks with lower back pain...I think I had been neglecting my core strengthening, posture, and bending wrong...so have been using heat/ice...anti inflammatory meds...to get the flare to go away..

I think when there are any issues with our spine..it can cause other areas to go out of alignment ...and cause pain and bulging discs...as well as over 90% of the population ends up with DDD in their lifetime...so it's not surprising that so many of us have bad necks/backs..

I do find that either a steroid shot or round of oral steroid meds help when I get a really bad inflammation and extra pain...the downside is the loss of sleep with those and can only be used a few times a year safely...but to me..it's worth it...along with my pain medicine...PT...yoga...cognitive therapy..and screaming into a pillow when needed!!! I can get back to my usual 5-6 on the pain scale...

Sometimes...even after all these years...I think..really???? this is the way it is??? Ok God...good one...I'm sorry for taking that pen from the office years ago...jokes over...back to the way it was please...

It just plain stinks at times!!

I do hope your shots will help you..

Again...I'm sad that I have to meet all of you under these circumstances...but so glad to have others who understand..to cheer eachother in the good days...and shoulder to lean on in the bad..

Hugs...
SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 2/3/2010 1:10 PM (GMT -7)   
SB<

I am glad to meet you. sorry you have to be here. I just wanted to say hi and welcome!

melissa
Chronic Lyme Disease
Fibromyalgia

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea

Hypothyroidism

Adrenal Fatigue

Type 2 Diabetes


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/3/2010 1:43 PM (GMT -7)   
Thanks Melissa...Hope that your aqua therapy goes well to help you...I sooooo wish I could do that...I do not have insurance but it gives me the idea to try and look where my local indoor pool is nearby to possibly go...

Take care..
SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/3/2010 3:48 PM (GMT -7)   
SB,
Do you think maybe if you bring the pen back to the office the magic reversal can happen?

Ok, I know it's not funny, but it did make me chuckle and think about how many pens I'd have to return! Probably need to bring an extra pen to each place for every year it's been missing? And a box of chocolates and roses? Maybe????? Ya think?

If you try it and it works, please let me know!

PaLady

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/3/2010 4:06 PM (GMT -7)   
:)...Yes...pen..paper..and maybe a computer or two...hahaha...noooo...never took that...they were locked down! LOL...

I know I have to laugh every day to compensate for all the yucky stuff..That's why I am so excited about my new favorite show Modern Family on tonight!! LOVE IT!!!....Makes tears come down with laughter...

And I downloaded the first two seasons of Damages on FX on my computer and wow...what a show!..
SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/3/2010 4:25 PM (GMT -7)   
I think I would go insane living in the States having to deal with your insurance as well as all the other rubbish we put up with in chronic pain.
Aqua therapy is truely wonderful. I know when you're cold and its snowing its probably furthest from your mind. I had 12 sessions free last year and couldn't believe how much muscle wastage I'd had when they assessed me before I began. It really helped build my core strength and mentally it did absolutely amazing things, I've felt so much more able to cope since I did the water therapy. Now I just use a local warm pool and take my noodle and do my exercises in the shallow end away from peak times. If I keep the water up to my shoulders I can even run under water now, great for my heart etc. But its taken me lots of hours to get there.

I had a fairly tough physio who pushed the class very hard within our limits, I'd often have to go home and sleep from exhaustion after one of her classes but never once did she injure me. One of the other women who had a horrendous back injury from falling 6 metres said she was really good in comparison to another physio she'd had before, so maybe I was just lucky for once. Couldn't recommend it enough.

Best wishes, golitho

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/3/2010 4:46 PM (GMT -7)   
Oh boy...don't get me started on the whole insurance...or more specifically...lack there of...it's tough for a lot of people that's for sure...

Thank you for your info on the aqua therapy...actually...a nice warm pool sounds wonderful when it's cold/snowy outside:)...

So with both you and merrygirl mentioning it...it's destiny that I buy a noodle and go!! Wish I could take my pup with me...he loves to swim! I take him to a pool that used to be for horse rehabilitation...and they now rent it out for a half hour for $15 and he swims his tail off...haha!
SB and "the pup who snores loudly"
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha"))
 
ACDF with hardware, allograft bone Nov. 2005
 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006

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