Catz4 please read

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straydog
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   Posted 2/7/2010 2:44 PM (GMT -7)   
Hi Catz4,
 
This is in response to your question of police in or around a PM drs office. No, I have never heard of this and I can assure you, if I ever run in to that situation, I am out of there. They will not be seeing me as a patient again. Call me chicken or whatever, but bullets don't have names on them as a rule. I would be terrified.
 
Now, if you have called this dr your sister is wanting you to see and he only does procedures, that may not be the best thing you can do. In fact, it would probably be the worst since you have already been there & done that. Do you think you can go medication free? You are the one that has to make that decision. There are some that just do procedures only-no meds.
 
If things don't work out where you are, then perhaps it is time to start looking for a new dr on your own. It tough having to switch, but quality of life is much more important.
 
Yes, I did read about your brother and I am so very sorry about that. A terrible situation indeed. Perhaps this is why your sister is anti-medication. What kind of medicine does your Sis practice?
 
Anyhoo glad to have you here and posting.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/7/2010 4:19 PM (GMT -7)   
Whoa. I feel like such a naive nut. I just believed what they said, pills sold out in the parking lot. I have a sister that is a Psychiatrist (M.D.) and the other is a Nurse Practioner. When I was diagnosed with fibromyalsia, my sister who is the M.D. said that fibromyalsia is a diagnosis for people who just have mental issues and it's a cover all for not knowing what's wrong with me. That's why she suggested this doctor who only does procedures. I've had all those procedures. Wait, wait...the fact is, I really don't have any family support. Once my sister told my parents that the pain was in my head (along with the syrinx!) none of my "family" gave me any support. She's anti-pain meds because she was hooked on them herself for a long time. I've got my husband and 3 friends who are all very supportive, but who don't really get it. That's how I ended up here on a web site talking to people I don't even know. But, you understand pain. Jeez!! I just got off the phone with my step-sister who is a chronic pain patient...migraines is her deal. She's saying I should take my MRI's and a letter from the doctor to my parents to "prove" I'm sick! NO! I don't have to prove anything! I'm overwhelmed. So, anyway, I guess I'll talk to my Neurosurgeon, who is someone I trust, and tell him I'd like to see another pm doctor. I think he will be helpful. Did I just puke my family dynamics all over the place! Oh yes I did, and I could take it off of here, but I won't because it's a part of who I am. Wow, I'm in terrible pain today and an emotional wreck. Thanks for the advise on the cops and pm. Obviously it scares me too and yes! I agree that bullets don't have names on them and I'd just as soon stay away from what seems more and more like what I envision some kind of drug house being. I so appreciate everyone and straydog, thank you so very much for everything. For talking to me about the pm clinic and for being really honest. I would rather people were straight up than dancing around an issue.
Catz4
Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes and then some
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/7/2010 11:16 PM (GMT -7)   
Catz,
Don't worry about spilling family dynamics; we all have our share of "junk". LOL It sure does make it hard for you if your M.D. sister doesn't validate what's wrong with you. Hard to challenge her, so it seems to me best to go the direction you mention with your neurosurgeon. I'd explain the situation to him, and see if he can help find and connect you with a PM who prescribes needed meds and believes in fibro.

The PM's staff may not have been lying about drugs being sold in the parking lot. That's how it can transpire. One way. And having an on-duty police officer to me says there's evidence of past crimes there. You could call or go to that police dept. (that same jurisdiction as the PM doc's office is in) and ask about crime in that area. Some areas allow details of crimes to be public; others keep it confidential, but if there have been convictions there'd be a public record of that. Overall, probably best to move on. I didn't think of Straydog's bullet theory, but she's got a point!

I can see why your sister might be against narcotics from a personal standpoint, but her professional training as a psychiatrist should open her mind to evidence-based thinking rather than reaching conclusions based on her own personal experience. You just need to take care of you, regardless.

I was also saddened to read about your brother, but it does seem you have learned from the experience. Hard lesson.

Hugs,

PaLady

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/8/2010 2:00 AM (GMT -7)   
Thanks PaLady. thanks for mentioning my brother and same to you straydog. We were very, very close and I miss him terribly. The crazy thing about my MD sister is that I got the feeling the last time I saw her (I stay away from my family of origin as much as possible, but sometimes...) that she was using again. Oh well, what I have done in my life is make my own family, THE family for me. I have friends that are close like family. They are my family much more than the judgemental people I grew up with. My husband is awesome and I appreciate him so much. He doesn't understand but says he doesn't have too. He is also very supportive for me changing doctors. He's seen every single appointment with me. He's never missed one. He makes things ok when I get so afraid of the next procedure, and though he doesn't understand the pain, he sure empathizes. I may go check on the records for crime, but the fact that the cop is there is enough for me. I soooo thought it was just typical pm stuff. Anyway, that's girls, I really need good advice and understanding.
Cat
Catz4
Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes and then some
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 2/9/2010 1:48 PM (GMT -7)   
Hi Catz4,
 
With a police officer walking the perimeter of that clinic you can bet there has been activity there in the past. He may be there now to act as a deterent, but thats not my idea of a trip to the drs office. Also, you mentioned it not being in the best part of town as well. I would certainly talk to the dr that made the referral and let him know about the police officer being there, that is not par for the course with PM clinics. I would have to ask for a referral for a different PM dr in a better part of town. I feel certain the dr had no clue of this going on.
 
I am sorry that your sister feels as she does about your situation. But, keep this in mind, Fibro is not a "mental disease" and I hope she is better at psychiatry than she was in giving you a diagnosis. I am sorry, perhaps I should not have said that, but it burns me when someone acts in this manner. I don't care who they are. The fact that she has voiced this to other family members is just wrong. Blow her off with her diagnosis and do what is right for you. In fact, I would never discuss my medical conditions with her in the future.
 
Please understand that you are not the first one to come along and say the "family doesn't get it and they are not supportive." The numbers are higher on that than you can imagine. I don't understand this pain a lot of times so I am not going to expect some rookie to get it either. I always say only another true CP patient can understand where we are coming from. Perhaps you can get some good litature from the dr that treats your Fibro and mail copies to parents to read. I wouldn't waste my stamp mailing one to the sister, lol, after all she knows what is wrong with you, right, lol. Yes, this does make me burn, lol.
 
I am glad your hubby and some close friends are there to give you support. By coming here and letting us know how you are doing, this forum will give you some extra support, we need all the support we can get.
 
I can't imagine losing a brother. I only have one and we nearly lost him in a car accident. The drs all said he would not live but he proved them wrong. He was in a coma for several months. I know  the anguish I went thru and cannot fathom yours.
 
Keep us posted on how you are coming along.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/10/2010 4:57 AM (GMT -7)   
It's dark:30 in the morning and as always, my pain woke me to the screaming point. I lay here in bed with my computer typing to the only people I know understand this kind of pain. I had only been alseep for 2 hours, but that seems to be about the length of sleep I ever get anymore. I've been doing breathing techniques, big breath in *in with the good*, slowly release the breath *out with the bad*. I gave it 10 minutes in meditating and it's still singing a sour note in my body. If I had known then, what I know now, I would have certainly taken better care of my body years ago. But then I was apparently born with my Syrinx so, no matter what, it would have probably presented itself. As far as my sister the brainy MD goes, she's "God" to my parents (my Dad and step mother...the evil kind!, no seriously) and whatever she says, goes. What I do is I just don't talk to her, maybe once a year. My Dad calls me about once a month and I just say I'm great, everything is good. Oh Stray, it burns me up too! I mean I could just stew about it, but I accept that my sister, the person I was closest to for many years is not the same person she used to be. Why she needs to keep my Dad stirred up about me, I'll never know. So, the thing I know most is that I have my own family and I will survive. I have been looking for a pm doctor and have made an appointment with my neurosurgeon so that he can look at the Syrinx. The last time I saw him it was from C-1 to C-4, now according to the last MRI at the pm group, it is now from C-1 to T-1. I will see this doctor and I'm sure he can find a pm doctor in my area of Nashville. Thanks for letting me vent and for validating the issues I have. It mean so much to me to be able to just be.
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/10/2010 5:45 AM (GMT -7)   
Het Catz , so sorry , I have the same trouble sleeping and its the worst thing on a list of horrible things.I think I've gotten about an hour or two tops of sleep . I just can't get comfortable and settle my mind like I used to do before my health turn .Its lonely to wake up at 3am , 4am etc . alone , in pain and if your me , scared , alone, frustrated to the max. I'll pray for us both , we must hang in there .Stay strong , focus on the good, I wish I could offer more for solace .

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/10/2010 7:08 AM (GMT -7)   
Mikel Lee, Thanks so much. If you are up in the night and get to the computer, I'll most likely be around too. I ususally can sleep from about 11:00 pm until 1:00 am or so. I take lots of meds that would put a horse down for sleep, but it only lasts a little while and then the pain starts peeking through and I most often wake either groaning or out and out screaming. I'm frustrated that the pain level has not been at least aggressively addressed. I would love to live a life of tolerance. Tolerating the pain instead of fighting the pain. The pm has done all the "procedures" they have. I remember the first day I went there and the actual DR. came in. He said I could visit 200 times and that would not touch the surface of things they could do for this pain. That was 3 years ago. Oh I can't stand it when I'm in such a bad mood! I've been that way since i woke up and I can't stand it! I feel embarrassed, like all I do is complain, but this is the only place I know of that makes me feel secure even if I'm complaining. Mikel, I'm sorry that you have to live like this. I wouldn't wish it on anyone...well maybe every doctor on earth for just 2 hours of their lives! Things might change if that happened. I'll be in prayer with you and the solace is here so, thanks and thanks again.
Cat
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/10/2010 3:47 PM (GMT -7)   
Catz,
Never worry about "complaining" here because we don't view it as that. We all need somewhere to vent from time to time without being shut down by someone who doesn't understand.

I think you're really on the right track in not only making your own new "family" but now making your own new team of doctors. If your NS refers you to a PM doc, just be sure to ask if that PM doc prescribes meds long term. Some of them only do the high tech, interventional procedures, and then it makes for a wasted visit.

BTW you probably are onto something with your sister when you said you thought she might be using again. You're probably picking up on some changes in her mood and/or behavior that may be indicative of that. Like Stray suggested, best you leave your medical care to others who aren't connected to the family.

Hugs,

PaLady

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/10/2010 4:03 PM (GMT -7)   
Catz , thanks man , You have no reason to gert down on yourself , frustation is part of it and it gets to be to darn much sometime , especially when you can't sleep and everybody can(it seems) venting your frustration helps a lot .I've said the same things I'm sure , its hard to deal with , period. We aren't made of stone ,I'll send a ''Hello can't sleep again '' out on the Chronic Pain Forum in the am when I can't sleep , maybe you or someone will want to talk .

cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 2/12/2010 10:37 AM (GMT -7)   
Hey catz4 I usually can't sleep either, so maybe I'll find you and mikel on the chat rooms at night. I am in central arkansas so I'm central time.
27 yrs old-Fibromyalgia; PCOS; Surgery induced Menopause; Classic Migraines with Aura; Neuropathy; Ankylosing Spondylitis w/ narrowing around the spinal cord; Spinal Stenosis of the Cervical & Lumbar Spine; other little things
 
Medications for pain: Oxycontin; Soma **will update when change meds for sleep, etc.
 
Other treatment: Aquatic Therapy (still have to start); Sleep Study (need a sitter)


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/12/2010 1:17 PM (GMT -7)   
cat82016, Mikel, and gang,
Thanks so much for everything! I'm not kidding, I feel like a person instead of a patient knowing you guys are there with support and validity. Being in chronic pain is such an awful way to live and one day I have to believe that I will get enough relief to be able to get up and take a walk or go to the zoo with my girls. The pain is so intense that it's all I think about and it's every breath I breathe. I don't want to feel like that for now on. I am seriously taking the pain chart from Chronic Pain introduction to my doctor when I go back on the 24th.
I get so nervous going in there and I've never done anything wrong, but they all make me feel like I'm ridiculous. Not even pm gives validity to this pain, they are too busy with the police there apparently! LOL! Actually, stragdog is right on the money, I feel like there were past problem and that's why they keep a police officer there. They have a pharmacy in the clinic which I find really asking for trouble! Anyway, thank you all for making me feel so welcome here.
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 2/12/2010 1:18 PM (GMT -7)   
Hey Catz I am glad you found this place too, it is my safety net for sure. As far as your sister goes, I think you are doing the right thing by putting some distance there. I sleep anywhere from 2-3 hrs a night if I am lucky, then will nod off during the day if I sit down for very long, lol. What I would give for a full nights sleep and to sleep at night time as well.

Be sure to take your recent MRI film & report to the appt with your neurosurgeon. He will need to review it. I hope you have a decent weekend.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/12/2010 1:39 PM (GMT -7)   
Catz,
The fact they have a pharmacy there really makes for problems, just as you suggest. I'll bet they've had several robberies in the past. Police departments don't have the man/woman power to assign officers everywhere there's been a little crime. This place must be a target, and the pharmacy makes it even more so - probably even when it's closed down. Hope you can be free of that place soon!

PaLady

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/12/2010 8:47 PM (GMT -7)   
PaLady and all,
Thank you! You guys are validating all the things I've been concerned about since the day I started there. I just haven't ever been to a pain management office before so, I didn't know any better! Now I do. I'm going to get into a pm closer to my home which is in the better part of Nashville. I should have known better when I found out where it was. I mean, it's not the worst part of town, but it sure isn't a nice place. Even the furnishing is terribly uncomfortable and shabby, but certainly not chic!
Thanks to every one of you and I'll keep you updated. And Please, Please if you think of anything else I need to know about searching out a new pm, let me know! The thing is, I have no clue and I really want someone to take this whole thing, my health like they give a darn. Take care all and I'll be watching for anymore advise. You guys are really great.
Cat
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 

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