New house nearly there

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Date Joined Sep 2008
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   Posted 2/9/2010 9:54 PM (GMT -6)   
OK i'm off the topic but have to share my joy. The house is so neary there now. We hope to move in in a week or so. I just can't wait. We have been surviving in this tiny house for 18 months and to move back into some space is oh so wonderful!!!
New kitchen, new bathrooms, everything organised around my crappy joints, so I can easily open things and cupboards are mainly all off the floor. Including my fridge. Oven etc. I will need to employ a cleaner but I am soo excited.
My new pain meds are really working for me too. I'm on a 25mcg patch as well as the 12 mcg patch of fentanyl, I probably need something for bt but overall I feel really good. I can't believe I didn't do this sooner, not to have 2 hours relief and then 2 hours waiting to take my next tablets, is just so good. I know there are probably going to be down times but right now I'm riding a wave of happiness.
My rheumy wants to put me on MabThera. Its another chemo related drug used to wipe out B cells, seemingly with RA the B cells can go into over production and these cause joint damage. I need to find out more about it before I agree to this new treatment but its another option. I have to wait 6 more weeks for the remicade to get out of my system before I am elligible anyway so I have lots of time to mull it all over.
I think the house is giving me a wonderful high, I'm trying to enlist a lot of favours from friends to help with the move, my knees and feet are making it hard for me to get around let alone move house, but I will direct boxes and try to organise.
Just thought I'd let you know what I'm up to. Start back at University on the 1st March, so I will be all moved in by then! Golithoturn

getting by
Forum Moderator

Date Joined Sep 2007
Total Posts : 40395
   Posted 2/9/2010 10:08 PM (GMT -6)   

I am new to this forum so I don't know you. But I want to say how happy I was to read your post. Good for you... It sounds like you are so happy with your new house. And that you have your pain managable.

Best wishes to you...

Hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

Regular Member

Date Joined Oct 2009
Total Posts : 453
   Posted 2/9/2010 10:12 PM (GMT -6)   
You go!!! I am happy for you and can feel your high in your post, it was uplifting...and I'm excited for you. You deserve it and know you will enjoy it too. Keep up the uplifted spirits and feeling well kiddo....

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 2/9/2010 10:21 PM (GMT -6)   
Good Evening Golitho! That is wonderful isn't it! I had a new house built several years ago, and remember well how nice it was to have everything new. Even the smell of it was wonderful. I bet you are high as a kite right now. But now you know what is next!...all the landscaping! That in itself, can be a real joy too, especially planting the new trees and watching them grow over the years. Are you getting all new furniture as well? I'm so happy for you, and it is great news to hear that the new meds are doing the trick for you too! Did you have a third car garage attached to it? Man!...I miss the extra garage....and the house too...I lost it all in the divorce :( ...Take care and enjoy the newness, and post some photos on Chutz site if you can please.


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Date Joined Nov 2007
Total Posts : 6795
   Posted 2/9/2010 10:52 PM (GMT -6)   
Great news, Golitho!

Enjoy the excitement of it all!


Veteran Member

Date Joined Mar 2008
Total Posts : 2976
   Posted 2/9/2010 11:02 PM (GMT -6)   
Fantastic! Just take your time moving in (or better yet, recruit a lot of people to help you) so that you don't overdo it! You must be so excited!!

I'm so glad to hear that your meds are working, too. That's even more fantastic! I'm jealous! smilewinkgrin


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Date Joined Sep 2008
Total Posts : 1670
   Posted 2/10/2010 9:28 PM (GMT -6)   
Thanks everyone, I am on a high!
My GP has put me up to 50mcg patch now as she is still not happy with my pain, so even better.
I said yes to the new med with my reumy so she has to now set the wheels in motion to get government approval etc etc. But in the meantime is organising me to have trigger point injections of steroids in my feet or ankles under X ray to try and give my feet some relief. So everything is happening at once.
Cross your fingers the injections work. I have to ring up and book that later.
Skeye I'm not pain free but I feel on top of it, able to deal with it plus I seem to be able to think clearer and make decisions. I think all that pain was clouding my judgement and I hadn't realised!
Hope you are all well, golitho

Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 2/10/2010 10:08 PM (GMT -6)   
Golitho...I do understand the being able to make good decisions...I still make a ton of mistakes, and am nowhere near as sharp as I used to be. Im sure the new house has really lifted your spirits, and then to have the GP working so well for you must put you over the moon! Take care, and let us know how the injections go got you.


DDD (Degenerative Disk Disease) S1-L4-L5

Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 2/11/2010 10:10 AM (GMT -6)   
  Dear Golitho,
    Good morning!!! It is so good to hear from you! *hugg* I am terribly sorry I am so late responding but things have been hecktic around here. Tis the season of sharing (even colds!). hehe.
    I am so glad to hear you will be moving soon. This will be wonderful for you! Oh how nice it will be to not have to dealw ith so much stress. You will have to be sure to tell us how it feels to have everything just where you want it. I agree that hiring someone to help with the house cleaning will be a large burdon off your shoulders! *huggs!* Oh how exciting!
     The new treatment option is a little frightening! I knwo it is just because I dont understand the dynamics of RA but gosh. Thats has got to be a very large decision to have to make. I sure hope that what ever you decide you are comfortable with, and willg et some much needed results.
      I will end this here, but *warm huggs* You are in our hearts here. Stay strong!



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 2/11/2010 12:00 PM (GMT -6)   
Wow, good luck and congrats on the new house, it sounds so wonderful, and always nice to have something to loook forward
good to hear the news about that and I hope you can get a low pain day soon..
Lots of soft hugz and keep us posted..
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 2/11/2010 3:15 PM (GMT -6)   
Thanks Char and Michael. I am going to start moving some bits and pieces over already, so that I can use the builders labourers to lift and carry for me. Some rooms are completely finished. Bit daunting moving when bending is so hard but I'm on a wave so will have to watch myself keenly.
Hi Dani, you hit the nail on the head. I am extremily worried about losing my B cells, the trouble is I don't feel I have an option. My rheumy will admit me to have this infusion so they can monitor me over night for any allergic reactions. I am happy with this decision because the last infusions made it so hard to breathe, always a bit scary.
When I first started with this disease I worried about the toxicity of all these meds, now I realise if I don't take them I am going to be so much worse. But the thought of being open to virus' is fairly daunting. Because I have to wait so long before I am eligible for this infusion I am trying not to think about it too much. Any research I have done on it is pretty scary. I know its used in conjunction with chemotherapy so most people on it are much sicker than I am.
I have so many joints involved in this flare I have to try something. But oh the decision to take such a heavy duty med is very daunting and quite terrifying.
I'm using the new house to block the fear, best wishes to you all, golitho
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