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bsjaguar
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Date Joined Jun 2009
Total Posts : 974
   Posted 2/12/2010 8:44 AM (GMT -7)   
Chutz, I watched the video you suggested for fibro & chronic pain and found it very informative, Thank You!
 
I was curious about his discussion regarding LDN or Low Dose Naltrexone.  I tried looking back in previous posts but most of them were from the Chrones forum.  My question is:  Has anyone here tried the LDN for chronic pain? 
 
I know I'm a good candidate for rf in my lower lumbar spine but there are other things going on too.  Just looking for anyone's experiences with this program.
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 2/12/2010 2:06 PM (GMT -7)   
Jag,
I think edt had been trying it, if my memory serves me (which it doesn't always! LOL). She hasn't been posting much lately, but I did see a post from her recently so maybe she'll see this.

There should be an old thread but it's been awhile, and I don't know if it was title "LDN" or an unrelated topic.

PaLady

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 2/12/2010 2:49 PM (GMT -7)   
I've been checking the web regarding LDN, Low Dose Naltrexone and there is some amazing information out there. This could be break through for HIV, MS, Lupus, Chrohns, Fibro and many more awful diseases.

http://community.wegohealth.com/video/2028394:Video:24292

The above is a video that I found interesting (sorry I don't know how to make it blue so you can just click on it). Stanford has a study regarding LDN going on right now. I know I will be asking my PM about it on my next visit.
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 2/12/2010 4:35 PM (GMT -7)   
Jag,

Palady is right, edt was taking (and I think is still taking) LDN. She's had pretty great success with it! If you search through old threads I'm sure you will come across some by her regarding her LDN.

hugs,
Skeye

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/12/2010 5:30 PM (GMT -7)   
Jag,
Wish I could do videos, but doesn't work out with this dial up connection! It sure is worth asking your doc about, Jag.

You may want to change the title to this thread (I think you can do that with the edit function) and put LDN in it and maybe edt will see it. She just posted on another thread, so she's still active here.

I'm curious how she's doing, too.

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/12/2010 9:36 PM (GMT -7)   
Dear Jag,

I do not take it myself, but I was reading a bit about it and it does sound promising.

extracted from ~~~> http://en.wikipedia.org/wiki/Low_dose_naltrexone

"Some of the many conditions for which LDN has been reported as beneficial include multiple sclerosis (in particular, the primary progressive variant), Crohn's disease, HIV/AIDS, chronic fatigue syndrome, irritable bowel syndrome, psoriasis, fibromyalgia, ALS, autism in children, depersonalization disorder, and cancer.[citation needed] Several clinical trials have been planned and a few are currently taking place."

I think the most intresting part is the theory that "Dr. Bihari" is using it at bedtime, to take advantage of "pre-dawn boost in endorphin production" to help stabalize the immune system. I am excited to see how this treatment evolves as more research and control studies are funded and approved.

*huggs*
dani

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 2/12/2010 9:40 PM (GMT -7)   

Hi PA,Jag and Skeye,

I haven't been posting much but do come on to read everyday!  YES, I am still on LDN, it has been working for me.  I have been able to cut back the pain meds.  Do I still have pain yes, but way more tolerable.  I started on the 3.0 mg. dosage and after 3 mos. the pain level began to increase.  I called the Pharmacy and they told me I could go to 4.5 mg or right up to the 6 mg.  I worked in the homeopathic field (theory-less is more) for over 21 yrs, so I asked why would I want to jump up so high, why couldn't I increase by .5 mg. increments so I had more dosages to move to should the current dose stop working.  So, thats what was done I am now on 3.5 mg. for the last 6 mos. and it is helping so much.  I am able to do alot more then I could before, my quality of life is so much better.

It is proving to be helpful in CP, most Pain Management Dr.s don't know about it, mine didn't but while I was in the office and told him about it he went to the LDN website, came back in the room and was 100% on board with my trying it.  The best thing is you usually know within a short time if it will work for you or not.  No real known side effects.  Its very affordable about $36 for a months supply!

I honestly think it is so worth trying!  The best thing thats happened is I actually sleep better at night, when I do wake up I fall back to sleep easily.  This happened within 2 weeks of starting LDN.  Occasionally I spend a night tossing and turning, prior to starting LDN... tossing and turning was how I spent ALL of my nights with pain not allowing a restful sleep.  Now I wake up refreshed! 

Hope this helps!

XXOO
Patti 

 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/12/2010 11:06 PM (GMT -7)   
Thanks, Patti! That's really interesting.

PaLady

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3459
   Posted 2/12/2010 11:19 PM (GMT -7)   
LDN has been around for a while.  It has been used off label for MS for at least twenty years.  In all that time, none of the douple blind studies completed show LDN to work as a treatment for MS.  Many MSers believe it has helped but those testimonies are purely anectodal. 
 
It could possibly be used to treat symptoms.  It was offered to me but after looking at the research for MS/LDN, I decided it was not for me. 
 
The good news is that LDN has very few side effects and none of those are permanent.  It is very inexpensive.  It is one of those, "worth a try" meds. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 2/13/2010 5:31 AM (GMT -7)   
I don't know about the rest of you but I will be discussing this with my PM doctor at my next visit. Thanks so much to you all for your replies, especially EDT for giving me your feedback!!
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 2/13/2010 6:55 AM (GMT -7)   
EDT-I just looked on the LDN website, and it says that you can't have any other opiates in your system when you take this? Is that the case? Just curious.

I'm happy that you found something tha helps you! I still frequently (after TOO many years and YEARS of this pain) look for new ways to bring the pain down!

Thanks,

Flower:)

edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 2/13/2010 7:15 AM (GMT -7)   

Hi Flower,

I have been told that you can stay on opiates, I have cut the amount of PM that I take.

I don't take the pain meds after 4pm and take LDN at 9pm each night.  I also do not start my day with a pain pill,  I can actually go 4-6 hours after waking before I feel the need.  I wake up at 4am each day....rested!

XXOO
Patti

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