Hi PA,Jag and Skeye,
I haven't been posting much but do come on to read everyday! YES, I am still on LDN, it has been working for me. I have been able to cut back the pain meds. Do I still have pain yes, but way more tolerable. I started on the 3.0 mg. dosage and after 3 mos. the pain level began to increase. I called the Pharmacy and they told me I could go to 4.5 mg or right up to the 6 mg. I worked in the homeopathic field (theory-less is more) for over 21 yrs, so I asked why would I want to jump up so high, why couldn't I increase by .5 mg. increments so I had more dosages to move to should the current dose stop working. So, thats what was done I am now on 3.5 mg. for the last 6 mos. and it is helping so much. I am able to do alot more then I could before, my quality of life is so much better.
It is proving to be helpful in CP, most Pain Management Dr.s don't know about it, mine didn't but while I was in the office and told him about it he went to the LDN website, came back in the room and was 100% on board with my trying it. The best thing is you usually know within a short time if it will work for you or not. No real known side effects. Its very affordable about $36 for a months supply!
I honestly think it is so worth trying! The best thing thats happened is I actually sleep better at night, when I do wake up I fall back to sleep easily. This happened within 2 weeks of starting LDN. Occasionally I spend a night tossing and turning, prior to starting LDN... tossing and turning was how I spent ALL of my nights with pain not allowing a restful sleep. Now I wake up refreshed!
Hope this helps!
I have been told that you can stay on opiates, I have cut the amount of PM that I take.
I don't take the pain meds after 4pm and take LDN at 9pm each night. I also do not start my day with a pain pill, I can actually go 4-6 hours after waking before I feel the need. I wake up at 4am each day....rested!