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Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/14/2010 1:30 AM (GMT -7)   
Well I'm up as usual at 2:15 am and hurting so badly that I'm sick to my stomach.  I've had all the meds I can take and I still am in such pain, I don't know.  I don't know anything. I feel lonely, tired, confused, angry, sad and on. I could handle the pain...who am I kidding? I can't handle the pain. I can barely type I'm shaking so hard. Pain has such a strange affect on me or is it the same for everyone? Does everyone get nauseated when you're in a lot of pain? I've taken Phenergan, but that's not even helping. I want to wake my husband and get him to talk to me, but that isn't fair. Today is our anniversary.  I don't know how he stands it..me being in so much pain all the time. I've tried to tell pm how bad it is, but most of you knew immediately what I haven't know for years, that my pm is not the best. I am keeping the pain charts; maybe they will see. I really want to start a new pm, but I feel stuck in this nightmare of pain. I just needed to vent. Cry.
Cat

Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/14/2010 1:44 AM (GMT -7)   
Catz,
My brain is half asleep, but I at least wanted to offer you hugs. This is the place to vent, that's for sure, and even have a cry. But also have hope - that you'll find better pain management now that you know you need to look. In the middle of the night when you're tired and hurting everything is going to look and feel bleak.

Is there anything you can take to help relax you? Pain has a lot of different effects on us, and none of them are good.

Maybe if you had a good cry, it would help to get out some of the stress. I know it sounds odd. I wish I could think more clearly right now. Just know you're not alone!

((((((((((Catz))))))))))

PaLady

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/14/2010 5:39 AM (GMT -7)   
PaLady, Thank you for taking the time to just acknowledge that I am here and I feel pain. A good cry did help the inside, the emotional part of me which helped me relax. I haven't slept yet, but I'm going to be able to take another pain pill in a 20 minutes. I may take it early! I wish I could just delete this whole thing. I'm sorry for being so verbal! I try so hard to keep it in.
Again thank you,
Catz
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 2/14/2010 8:25 AM (GMT -7)   
Wow, sorry your having such a hard time right now, sometimes a good cry helps me too, then I try either a nice hot bath, or plug in my moist heating pad (I don't like ice, very often, but if that can help) , sometimes a lil epsom salt in the bath helps ( just a little) and turning all the light on low, sometimes I use candles as some scents have been known to help...
Sure hope you can get some relief soon, will be sending you well wishes on that and lots of extra soft hugz..
((((((((((((((((((((((((((((((((((((((((((((((((((((((Catz)))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40590
   Posted 2/14/2010 8:56 AM (GMT -7)   
Catz,

I just wanted to say that I hope that you are feeling this morning. I know how it is to be up all night with pain. And that is when it seems to be the hardest, at night time. And you feel so alone at that time. I know it was tempting to wake your husband up. But I understand why you didn't.

Know that we are all thinking of you right now and hope that you feel better soon.

Many gentle hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/14/2010 10:21 AM (GMT -7)   
Hello, Catz4! I just now woke up a few min ago, and saw your post. Lets hope when you get back to the Dr, you can get every thing to level out. Hang in there, and we do understand what your going through. We all know its not any fun at all...but better days are ahead for you.

Michel

DDD (Degenerative Disk Disease) S1-L4-L5

Post Edited (Screaming Eagle) : 2/14/2010 10:53:44 AM (GMT-7)


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 2/14/2010 10:45 AM (GMT -7)   
hoping you were able to get some rest, and that the pain is under control.

melissa
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 2/14/2010 10:51 AM (GMT -7)   
Hugs from me, too. I'm so sorry that you're dealing with all of this. I completely understand what it's like to be up in the middle of the night in terrible pain. I hope that your pain goes down.

Flower

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 2/14/2010 1:39 PM (GMT -7)   
Hey Catz yes pain can be so bad is makes you sick at your stomach. Never feel bad about coming here and venting, that's what this place is for remember? Try to look at it this way, if someone you see on here is hurting and you send them a post, it makes that person feel better to know they are not alone, also it makes you feel better just to reach out to someone. It goes both ways, whether it is you needing a hug or someone else needing a hug. I hope you were able to get some sleep. That is a luxury as far as I am concerned. One I have little of.

Happy anniversary and do something different-try to have some fun w/hubby, maybe a movie a good dinner.Anything to help distract the pain this is something we do to survive. Work on getting a new PM dr . Hugs.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 2/14/2010 2:57 PM (GMT -7)   
Catz
Please don't ever feel bad about posting when you are hurting like that! I know, Oh how I know! I am sure most, if not all that post here, do know exactly what it is like to be up at night in extreme pain and you are by yourself! And not wanting to wake or disturb a loved one. It has got to be, one of the loneliest feelings in the world! You hurt so bad and no-one can feel or share your pain and feelings. They are all yours, and all you want is to have them gone!

Catz I hope your feeling better today! Happy Anniversary to You and your Hubby!

White Beard

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/14/2010 3:23 PM (GMT -7)   
Yes, I agree with White Beard! This is the place to come, when you feeling bad. So bring it on! Lets just hope you will get some relief soon.

DDD (Degenerative Disk Disease) S1-L4-L5


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/14/2010 3:24 PM (GMT -7)   
Thank you to everyone who reached out to me in this time of need. I still have not slept so I'mI will enjoy my husband as I do everyday! He's such a delight and he's my best friend. So, we will probably rent a movie and watch it in bed as that is where I spend most pf every day. It's the only position that takes the stress off of my back. But we will have fun being together. He's really trying and doing well with all the mood swings and crying, my new sleep habits, he doesn't like at all. I've had insomnia for the past 3 years and those have become very difficult for all of us. I have migraines and one of the triggers is lack of sleep. Anyway, thank you guys for giving me a glimpse into the house packed full of people just like me. Happy Valentine's Day to each of you and may your pain be tolerable.
Cat
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder, Panic Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/14/2010 3:54 PM (GMT -7)   
Cat,
I'm so glad you didn't delete this! Like you said, you're in a house packed full of people just like you! And like others have said there are days when we need a hug or just knowing someone is "out there" who understands, and there are days when we can give the hug and be the listening ear by responding to a post.

So please don't feel bad about it.

And I do hope you're able to smile and cuddle a bit with your husband for your anniversary! Valentine's Day - must have been a neat wedding!

Hugs,

PaLady

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 2/14/2010 4:12 PM (GMT -7)   
Hi Cat....

I read your post earlier... but am just getting around to be able to post now. I'm sorry you had such a rough night.... I've been there many, many times myself. I have horrible insomnia, too. And, yes, it's a MAJOR trigger of my migraines as well. Finally, I have terrible nausea and vomiting issues... in fact, I've been in/out of the hospital for the last six months, dealing w/ horrible nausea/vomiting. My health issues and the pain leave me very nauseated... I, too, rotate three "anti-nausea" meds: phenergan; reglan; and zofran. Have you ever tried these?? I know you mentioned the phenergan... but you may want to try the others.

I've tried every sleeping medication there is out there... most don't work for me, or have terrible side effects, etc. Right now, I am taking a small amount of Ativan before bed. Not only does it curb my nausea a little bit and help w/ my anxiety... but it makes me a little bit tired, too. I'm still a major insomniac.... but I'm finding that the Ativan at least helps me not feel like I'm going to come out of my skin when I can't sleep.

By the way - Happy Anniversary - as well as Happy Valentine's Day. :)

Well, I hope and pray you can get a little sleep tonight. Just so you'll feel a little bit better. I'll try to check in later and see how you are doing!!

Take good care, ok? --Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; etc etc

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation

Meds: MS Contin; Dilaudid; Actiq; Soma ; Neurontin; Atenolol; Midodrine; Phenergan/Zofran/Reglan; Effexor(depression)/Ativan(anxiety); Synthroid; Prednisone; and on the list goes...


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/14/2010 5:06 PM (GMT -7)   
Wow, I feel bathed in love and understanding. I don't know how to react to such kind words and words of motivation. I'm stunned. I feel kind of like Sally Field when she won an Oscar back in the 80's for Norma Rae, "you love me, your really love me." Lol! I'm just so surprised by all the caring. I'm still going on no sleep. I've written it down and I have gotten a grand total of 13 hours sleep since last Sunday. 13 hours!!! Is it the pain that keeps me up or the lack of sleep that puts me into more pain which then keeps me up?? It's a vicious cycle. Anyway, thanks again. I can't believe that so many people care even though I know you are going through as much as I am and more. One question though, how many people are, for the most part, bedridden? It's the only way I'm able to keep my sanity even though it still is horrible to be in bed except when I have a dr appointment. I don't want to spend my life in bed!
Thank You,
Cat (z)
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder, Panic Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 2/14/2010 5:10 PM (GMT -7)   
((((((((((Cat)))))))))))). I hope you are feeling better this evening!

No, you're certainly not the only one who gets nauseated from pain. I almost always have some underlying nausea from the pain. I don't usually take anything unless it gets really bad, or it actually has me throwing up. When that happens I take zofran. I can't take some of the other anti-nausea meds because they give me horrible headaches. I find that the zofran works pretty well.

hugs,
Skeye

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 2/14/2010 9:44 PM (GMT -7)   
catz,
I'll be praying that you can get some relief tonight to get a good night of rest. Do you have any self relaxing cd's you could try to listen to, maybe us some ear buds instead of head phone or try going to bed earlier in the evening and putting on the relaxation cd's. and hopefully you'd be asleep before you hubby gets back to you, just a thought..
I will be thinking of you in hopes that you can get some rest.
lots of soft hugz
((((((((((((((((((((((((((((((((Catz)))))))))))))))))))))))))))))))))))))))))))))))))))))))
good luck tonight and Happy Anniversary...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 2/15/2010 2:46 AM (GMT -7)   
Sometimes just venting can help. It can change our emotional state and break the cycle a bit and allow the medication and our own bodies to work better at reducing our pain.



And I do fully understand how pain can make you sick to your stomach. As a child I suffered from terrible migraines and now my back and the pain from diabetic complications so I know all to well what you are talking about. I have both phenegren and compazine in the house but what I have found that helps me the most is the OTC nausea liquids. I am not talking about Pepto but the stuff that is marketed just for nausea. I have purchased this at both Wal Mart and Walgreens in their respective store brands and both have done quite well.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/15/2010 4:00 AM (GMT -7)   
Yep, up all night. I'm exhausted now. Jim, are you talking about Emetrol? I used to live on that stuff, but when I developed diabetes I understood it was not good for diabetics. I too have had debilitating migraines since I was 12 years old. It's so much different, but it's all pain! I have another question for all of you. When I go into the pm group and they ask how much pain I'm in with my meds, I've always put 7-8 and without I've put 9-10. I know pain well. I've been through some things that taught me that there are levels way far past a 10 that there isn't even any crying anymore, just delirium. So, if I put on my sheet each week that I am at a level that high with and without my meds, why in the world have they not addressed it more aggressively? Any ideas? I'd like to get an idea what kind of pain level many of you consider yourselves. I mean, looking at the happy face/sad face chart, I'm the levels they say. I have had the following procedures at least once and with some 3 or even 4 times. Radiofrequency Treatment (but it was called something more than that), Selective Nerve Root Block, Trigger Point Injections, and Nerve Root Block. I know I've had a couple more procedures, but I can't remember them all. I had little to no relief from any and on most, I would swell up in my neck to the point I could almost not breathe. We (my husband and I) figured out that I was allergic to Marcaine and by that time, the dr was just finished with me. Now I only see NP’s. Anyway, I’d be very open to knowing what others rate their pain. Thanks again you guys.
Cat
Cat
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder, Panic Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 2/15/2010 4:40 AM (GMT -7)   
Rating pain is so subjective. Doctors tell you to to rate it 1-10 or 0-10 with 1 or 0 being no pain at all and 10 being the worst pain you have ever felt or can imagine feeling. For someone who has never or rarely had pain of any kind a small splinter might rate an 8 or 9 but someone who has been subjected to a lot of pain a broken leg might be a 6 for them. Then to make matters even more confusing is a person's own pain tolerance level.

My 10 is currently based on when I had a SEVERE case of pneumonia a few years ago. Every breath felt like an elephant sitting on my chest while someone was performing surgery with a spoon on me. Based on that my current pain level was a 6 for a long time but in the last several weeks it has escalated to an 8.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/15/2010 5:56 AM (GMT -7)   
That's what I mean, it's all so relative. The most painful thing I've ever gone through is not having babies! It was when my colon ruptured. It was the kind of pain that made me seriously consider...well you get the idea. Anyway, the pain I feel now is constant. It's not like I think I'm going to just get better like I finally figured out about the colon. No, this I know will last forever. The colon wasn't even a 10, it had so far surpassed any pain I was ever in before! I'd give it a solid 16! So with my back and neck creaping up to a 10, I get into a panic. I don't know, I guess some of the others can make better sense of it that I can. Thanks Jim.
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder, Panic Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/15/2010 6:50 AM (GMT -7)   

    Good Morning Cats! I hope you are feeling better today. We are there for you, and understand.

 

       Michael


DDD (Degenerative Disk Disease) S1-L4-L5


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 2/15/2010 9:04 AM (GMT -7)   
My doctor started a new system other than the 0-10 pain scale, it's an A thru M scale and it gives more definitive descriptions under each letter other than using a sad face. He started this new system in December..at last office visit my pain was either a J or L because of the pneumonia and I think it would've been a 10+ on the older scale, but recently my migraines have been acting up as well and by evening I'm hurting pretty bad that I'm taking an extra tylenol at night and I will tell my doctor this at my next appointment which is next week. but I sure hope you can get some much needed relief soon.
Sure hope you can get a low pain day soon, lots of soft healing hugz coming your way.
(((((((((((((((((((((((((((((((((((((Catz))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 2/15/2010 10:51 AM (GMT -7)   
Good Morning Catz,

First of all, I want to send you a gentle hug and tell you that you are in my prayers. Secondly, I want to tell you this...never, EVER feel bad about needing to vent. We all understand what you're going thru, so who better to vent to than us? It helps to say that you're in pain, to have it acknowledged and to affirm that we understand and sympathize and are here to listen to you.

I hope that by the time you read this, you are feeling better and that your pain is in a more manageable state. It's awful when it's out of control and moreso when you're alone in the wee hours.

I do hope you are able to find a better PM doctor to help you. Until that happens though, please make sure you come here to share instead of trying to keep it all in. It really does help to let it out to people who know and understand. We might not be able to make your pain go away, but we can sure listen and try to help you feel better.

Big gentle hugs to you...

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines
(plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/15/2010 2:17 PM (GMT -7)   
Catz,
You're right about it being confusing to rate and describe our pain. And like Jim said, there are so many factors that go into it. I was reading some research a few months ago that indicated the 1-10 scale really wasn't very effective for many of the reasons Jim described. Whenever I'm asked "how's your pain?" I kind of want to scream, but I take a breath and ask - which pain, in which location? Because in one area it might be a 2, in another area it might be a 9. And some of the pain might be acute (a muscle spasm because I just bumped into something), but most of it is chronic. Then we get into the different sensations - numbness and tingling or piercing or burning or whatever! Honestly, I think it takes a good, caring doctor to really understand each patient's pain, and then treat it effectively. And we know from what you've said you don't have one yet. (neither do I, come to think of it, but I hope that will change once winter's over and I can drive the 3 hours!)

Guess I want to say to you don't give up and think that your pain has to stay at the levels you're at. Yes, I sure understand that it's not going to go away completely, and you know that, too. But have faith if you keep looking, it can be better managed.

Have you checked out the CP101 thread at the top of the page? Because there's a lot of great info. there, including links to pain journals and that may help especially if you're going to a new doctor.

I don't know if this helps, but just don't give up!

PaLady
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