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MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/14/2010 10:50 PM (GMT -7)   
I can't say enough about the quality of person I've met here , without exception caring , helpful , patient , informative . I came here rather all over the place , my pain gets pretty bad and I've since heard the testamonials of wonderful , courageous folks dealing with issues I had no idea existed .Although pre-occupied with my own deal ,the reality of humans in trying circumstances began to seep into my brain .Along with my family to talk to the additional contact of others fighting conditions and illness made a impact on me , I feel calmer , it feels more human when iI am in pain , I try to honor that honest feeling but see it as a fact and not make up a story around it (my brothers advice ) and try to let the pain and suffering inso as to trancend these feelings and use them in a positive way .To motivate me , not drive me crazy . again thank you to you all , I don't know if I'm better physically  , but I am mentally and emotionally .I don't easily panic and although I hate the way I feel sometimes , I'm iso much better at dealing with it ! A question , Are there regular chat rooms here besides the one on thurday ? I got a lot out of that one and would like to visit any others here .  luv you all

No real health problems until 51st year ,however battled drug abuse most of adult life and became aware of hiv+ staus in 1994 , started taking meds in 1998, t-cells were 93 , have been between 300-400 for past 8 years and viaral load undetectable for 6-8 years .At 51 expierenced back problem that laid me out for a week , this went away but my hip started hurting badly .X-rays revealed that I  needed hip replacement surgery . That was six months ago , the doctor won't operate with a t-cell reading under 400 and I haven't been able to boost my count , I went from cane to two cane to roalator to wheelchair . Attempting to boost my t-cell count my doctor changed my hiv meds and I got cellulitus which added painX10 to my life ,I'm trying to get this condition gone so I can have my hip surgery .Its been a pain filled emotional ,and depression filled trip thats tested me like never before , Healing well.com has helped emotionally more than any site I've found .Wonderful caring people  who share an outlook thats helped me survive and more .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex .


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 2/14/2010 11:44 PM (GMT -7)   
Mikel99

It is like having a very loving and caring family here that really does understand what your goiing through! Everyone including myself always tell new people that we can not fix them, well physically that is true, but whether we know it or not, the loving and compassionate and caring friendship or companionship that is shown here, does do miracles for ones emotions and mental well beiing! People here have helped me more than they will ever Know! You are not alone here Mikel99 your apart of our family!

So again I Welcome You to our family!

White Beard

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/15/2010 2:21 AM (GMT -7)   
Mikel,
It certainly does help to connect with this "family" - I feel much the same as White Beard does. Finding Healing Well has been a godsend to me.

But please don't forget to get the best medical care you can, so I hope you follow up with your doctor, too. It seems like that leg/knee is way too painful, and you shouldn't have to live with that much pain, although most of us have to learn to manage some.

The chat room is open all the time, 24/7, but you may not always find people in it. You can always look, or put up a post if you want to ask if any members who are currently online want to chat. It's also ok to join people in another condition's chat room, if no one is in Chronic Pain. Hope this makes sense!

PaLady

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 2/15/2010 5:27 AM (GMT -7)   
I agree wholeheartedly with you Mikel. This forum is somewhere to go when you have no one else to talk to. My family understands what I have to deal with but I don't want to be a whiner all the time and ruin things for everyone around me. It's nice to be able to have somewhere to go to let it all out sometimes.

Also, when something new is going on with your body that your not sure of, there is normally someone here with similar symptoms that will share their experiences.

You take care and let your doctor know how you are really feeling and if you don't get help from them find another doctor. We've all had to go through several doctors to find one that understands what we need.
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 2/15/2010 7:02 AM (GMT -7)   

   Good Morning Mikel! I hope we have found you doing better this morning. You are correct, in that talking and sharing can help one mentaly. Just to know that I can come here, and chat has helped me greatly.

I'm also willing to meet you in the chat room anytime. Just send me an email. and we will do it, and if you want we will invite others as well. I also wanted to say that PaLAdy makes some good points, so make sure you reread her reply. Lots of good information here!

  Michael


DDD (Degenerative Disk Disease) S1-L4-L5


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 2/15/2010 8:20 AM (GMT -7)   
Mikel,

I'm glad that you are doing a little better today. You're absolutely right, the people on this forum are beyond wonderful. Like Palady & White Beard said, I think this place has been a godsend for many of us, me included.

hugs,
Skeye

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/15/2010 8:52 AM (GMT -7)   
 
 
   Dear Mike,
 
     Good morning! It is so good to hear from you. *huggs* You know, I often feel as you do. It is wonderful here and always a place I come each day. *warm huggs* When it comes to chat, you know I think Michael and some of the other folks get online during the week. Also, some of the other forums have "chat nights" aswell through the week.
 
      I wont ramble away, but know your in our hearts here.
 
*hugg*
  dani


 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/15/2010 10:44 AM (GMT -7)   
Thanks so much Dani , and please how are you ? You were one of the folks here with such a great attitude in the face of serous and real challenges that I though more was possible from me . I hope you are doing as well as possible my friend , your brightness in these matters is an inspiration to me .The way your glass always seems half full demonstrates a strong personality , with good upbriinging .Thank you for being you and sharing you Dani ! Friend Mikel
HIV+ also Hep c , need hip replacement surgery on hold because of cellulitus  .most pain from hip condition and cellulitus .hands numb may have carpal tunnel syndrome now .             .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex ,Avalox , lasix .


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40578
   Posted 2/15/2010 11:26 AM (GMT -7)   
MIKEL,

You can always post here that you are in chat. Others will read it and join you. Anytime.

I am glad that you are feeling better and hope that you have a wonderful day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/15/2010 3:28 PM (GMT -7)   
THANKS Karen ! Iwould love to propose anther chatroom meeting time in addition to the thursday 8pm one. I got a lot out of that chat and made new friends and learned a lot ! If anyone else would like this as well please let me know , we can check in twice a week , Thursday and a second day to be detemined by geographical location , time zone , etc .I hope its ok to do it this way , any advice is welcome . Thanks friends !!
HIV+ also Hep c , need hip replacement surgery on hold because of cellulitus  .most pain from hip condition and cellulitus .hands numb may have carpal tunnel syndrome now .             .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex ,Avalox , lasix .


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 2/15/2010 4:23 PM (GMT -7)   
MIKEL-
I am always up for a good chat so I will meet you there anytime. I am so glad you found us.

this site has been really great and the folks in the chronic pain forum especially warm and caring.

I am happy that you are a member of the hw family and hopefully we will get to talk more in the future!
hugs
melissa
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


hydrangea
Regular Member


Date Joined Mar 2007
Total Posts : 190
   Posted 2/15/2010 4:38 PM (GMT -7)   
Mikl, I share you feelings about this forum as well. There really is no place else that we can go and have a "room" filled with people that understand us. Although we may have friends and family outside this forum, they truly do not get what we are going through simply because they do not have chronic pain. I just received a phone call from a friend in out community who found out about my surgery tomorrow. She wanted to wish me well and to say that she understood what i have been going through. She to had had back pain while she lived in another stated. She said these word to me . No one understands pain until you have had it, nobody knows why you go to bed at 6, nod body knows why you are depressed all the time. Because on the outside we look like we are doing great.

So Mikel make sure you come here when you are sad, in pain, or just plain old tired of it all. Everyone here will always make you feel better just by list ending.

Good luck
hydrangea
Diagnosed crohns Disease 07, Bladder tumor and inflammation, Herniated disc, spinal stenosis, facet arthritis, degenerative disc disease, siatica, Three laparoscopis, hysterectomy, physical therapy, trigger point injections, spinal epidurals, Meds lyrica, vicodine, amrix.


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/15/2010 4:47 PM (GMT -7)   
Thanks Melissa , but how do you find folks ? Do I just post here on Chronic Pain something like'' anyone who'd like to chat please find me in the chat room waiting to make friends !'' or'' I'll be available for chat at such and such a time anyone welcome '' and then just hang out in the chat room and see if anyone's logged in ? Thank you too hydrangea for comment and kindness .
HIV+ also Hep c , need hip replacement surgery on hold because of cellulitus  .most pain from hip condition and cellulitus .hands numb may have carpal tunnel syndrome now .             .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex ,Avalox , lasix .


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/15/2010 5:04 PM (GMT -7)   
Dear Mikel,
What a dear thing to say and that I am a part of something this special is remarkable. I have begun to realize how o.k. it is to open up and let things come out! I was raised in and upper middle class Christian home where we had all kinds of secrets and I was taught to keep everything in. So, for me to be able to open up and have someone as kind as you are and the others here in our "family" to say it's o.k., I'm o.k. well that's just huge! So thank YOU Mikel, for being honest and open and kind.
Cat(z)
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder, Panic Disorder
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/15/2010 5:13 PM (GMT -7)   
Mikel,
Yes, you can do just that as one way of finding friends to chat with. If no one is in any of the chat rooms, you can start a post with that title, or maybe post one earlier on a day when you want to chat that night and give a time for anyone who wants to meet you there. It doesn't have to be formal at all!

If no one is around, you can always delete your thread by clicking on the "X" in the upper right hand corner of your post. A note about that - you can delete or edit your own posts anytime, but if you start a thread and no one responds, you can delete the entire thread, but once someone posts a response, you can no longer delete the thread or the first post in it. You can always edit by clicking on the pencil icon in the upper right corner of any of your posts. (only moderators can edit the posts of others). You could have a thread that asks "anyone want to chat?" and you can keep editing the day and time in the post and bump it up to every time you want to find someone.

Ok, I'm probably confusing you cuz I'm starting to confuse myself! LOL Hope some of it makes sense. Chutz is also very good at explaining all this, and she should be back from her weekend vacation soon, so she can help out.

PaLady

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 2/15/2010 8:25 PM (GMT -7)   
Hi Mikel, its really great to hear that you're getting so much out of the forums. I discovered this place 18 months ago or so and just wouldn't have survived so well without it. I love the fact you can get such practical support from so many, nearly everyone here has something ot offer, no matter what you're going through.
 
Fantastically supportive, even for us Aussies in the wrong timezone for chat rooms!
 
How is your leg going? I was in hospital next to a woman with cellulitis in her arm and she was in such agony even on morphine! I can't begin to imagine how sore it must be for you, best wishes, golitho

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/16/2010 1:06 AM (GMT -7)   
Hey golitho , thanks for asking friend . Its got us mysified it seems to lose the redness but the skin remains tight , then the swelling goes down but it starts to itch , one day the pain will seem to be lessened but I cant be sure because of the pain meds . Its frustrating , the one common denominator is the super slowness everything occurs , everything good that is , will see doctor on wednesday but thats been no revelation either , I'd love for a general inprovment of course but that remains elusive . Thanks for asking friend .
HIV+ also Hep c , need hip replacement surgery on hold because of cellulitus  .most pain from hip condition and cellulitus .hands numb may have carpal tunnel syndrome now .             .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex ,Avalox , lasix .


privey
Regular Member


Date Joined Oct 2009
Total Posts : 453
   Posted 2/16/2010 9:40 PM (GMT -7)   
Mikel
This site has been a godsend. There are so many nice, compassionate and kind folks on this site ane as days dwindle down you'll find out that you can count on all of them. Welcome and enjoy and let me know when you wanna chat too cause I'm usually up for it.

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/16/2010 10:31 PM (GMT -7)   
Hey privey/Cathy , I'm sorry I missed you too . I don't sleep well at all and wish I had an insomnia chat list where Icould check and see who's awake and wanting to chat . As it is I try to put it out on the Chronic Pain forum about my idea to meet in that chat room of the same name in a few hours , usually 8pm eastern daylight time .
HIV+ also Hep c , need hip replacement surgery on hold because of cellulitus  .most pain from hip condition and cellulitus .hands numb may have carpal tunnel syndrome now .             .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex ,Avalox , lasix .

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