I can't stand being up in the middle of the night!!!

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Veteran Member

Date Joined Apr 2009
Total Posts : 856
   Posted 2/18/2010 4:10 AM (GMT -6)   
I feel that I deal with the pain much better after all these years, but one thing that still frustrates me is when it wakes me at 3:30 a.m. I'm up a few times a night because of it, but I can usually go back to sleep which is a lot better then a few years ago whenI hardly slept...but it's hard when I'm up and then I need to go to work in a few hours and function. It's hard because at my job I work with people and I always have to be "on." Did that make sense???

Thanks for reading.


Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 2/18/2010 4:53 AM (GMT -6)   
That makes perfect sense to me! One of the reasons I can't function at a job anymore is because I can't be "on" like I need to be, especially with all these meds. So I commend you for being able to do it!

My sleep schedule is so screwed up it's pathetic. The cold is horrible, and I've been getting into a very bad habit of taking a "nap" around 10 or 11 at night - when I should just be going to bed! But I'm mostly so cold and achy the only place I can get warm and somewhat comfy is on my bed. I leave the tv on and listen to it, telling myself I'll get up in a few minutes. Then it's 2am and I wake up hurting because I haven't taken all my pills, and I'm hungry because of this screwy eating schedule I have with all my GI issues.

So I get exactly what you're saying!



Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 2/18/2010 5:09 AM (GMT -6)   
Flower , PAlady it is very unsettling for sure to not be able to sleep when you know you need too .I sure having a job where you must always be ''on'' just makes it more difficult .I wish we could meet in a chat room and commiserate with each other .Maybe it would help ? Then oh yes remembering meds that make you groggy in the first place is great fun to boot . I feel for us and all like us and I hope things can work out somehow .
HIV+ also Hep c , need hip replacement surgery on hold because of cellulitus  .most pain from hip condition and cellulitus .hands numb may have carpal tunnel syndrome now .             .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex ,Avalox , lasix .

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 2/18/2010 5:38 AM (GMT -6)   

As you can see by the time I'm up (and others, too!)... I do understand this whole NOT sleeping thing. Unfortunately, all too well. Yes, it would be even more frustrating to have to be at work and having to be "on". Even though I have to get up with the kids each morning, I can still stay in my PJ's after a bad night (well, most days, anyway). Still, though, not sleeping makes the days super long and just impacts everything...I think.

Anyway, I sure hope you get an hour or two more of sleep! Do you wake from the pain? Or do you just wake up? It's both for me... sometimes, from the pain; other times, I just wake up for no reason and then can't get back to sleep. The thing that gets me is that I'm am SO tired. But just can't sleep!

Frustrating! Take care, Flower...
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; etc etc

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation

Meds: MS Contin; Dilaudid; Actiq; Soma ; Neurontin; Atenolol; Midodrine; Phenergan/Zofran/Reglan; Effexor(depression)/Ativan(anxiety); Synthroid; Prednisone; and on the list goes...

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