Moderator for Chronic Pain
Rare neurodegenerative /movement disorder called “Multiple System Atrophy”. Mobility issues,, neuropathic pain, spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory involvement, Implants: intrathecal pump & neurostimulator. Extra features: O2 & wheelchair.
Hi and welcome to our little slice of nut-house heaven....LOL....But seriously, are you having some problems with the trial? We have similar issues....I have perm. nerve damage, been through many ESI, PT, a Lamenectomy in 1999, and Spinal Fusion without hardwear in 2005..they used the stuff they took out during surgery in place of metal....and I still have serious pain. I just had another MRI a few weeks ago and have major stenosis and DDD and now DJD.
I take 120 mg. Methadone a day along with Oxycodone IR 30 mg. 4 times a day for BT pain. I go back to the PM Doc on April 7th for my follow up and to review my MRI findings. We are also considering a change in my meds. He has brought up switching me to Opana ER 40 mg. 2 times a day...leaving me on only 80 mg. Methadone and hopefully he'll keep me on my BT meds. He tried to change me to Morphine this past year but he didn't titrate it properly and thought that I could just do it mg. for mg. so he only had me taking 120 mg. Morphine a day....I had withdrawls that first day!! No No No....can't have that/can we? The pain scares me, but going through withdrawls scares me even more.
I asked him about the Pain Pump and he said that I would have to do a stimulator trial first.... NOPE...that won't happen. so I guess I'm one of the people that will take pills for the rest of my life.
So, as you see we do have something in common....please let me know how it goes...I'm gauging my efforts to try this on how well you do or don't do.... Good Luck
I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/ 30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1700 mg. at night..Glipizide 10mg. 2X in the morning and bedtime
Lantus 50 units at bedtime with Solostar Pen
Byetta 5 mcg. 2X daily