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Please Help me with your comments for the neurostimulation therapy and Drug delivery Therapy
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Please help me on my decition with my chronic pain
Drug Delivery Therapy - 100.0%
Neurostimulation Therapy - 0.0%
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Date Joined Feb 2010
Total Posts : 1
Posted 2/19/2010 11:47 AM (GMT -6)
Hello my name is Jessie and I'm 25 yrs old. I need help. I have endometriosis and I have had 9 laparoscopys and 1 hysterectomy, and I have scoliosis and 2 bad disc. I went a few months ago for a test dose for the pump (Drug Delivery Therapy), which my doctor couldn't find the spot so he had to inject me like 5 or 6 times with baclofen test dose which I ended up in the hospital with a leak in my spine, a headache and I couldn't move for anything. So this test dose went really bad but my doctor keep persisting that the pump will help me and I told him I'm afraid of getting paralyzed. Now he is talking to me about
the Neurostimulation Therapy which still has to do wit my spine I understand that if it works and God Makes a miracle with this doctor this time I probably wouldn't feel my back pain my leg pain and specially my pelvic pain is just I don't know what to do. I know there's people out here that had good and bad experiences I will like to know what you guys think. This is my last chance and hope I really really want to stop feeling all of these pains specially my pelvic pain that has been destroying my life and I want my life back. Thank you sooooo much for your understanding and answers in advanced and Good luck to all God Bless you all.
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Date Joined Sep 2009
Total Posts : 5005
Posted 2/19/2010 12:24 PM (GMT -6)
Hello Jessie05! Welcome to the Chronic Pain forum! It sounds like you have had more than your fare share of pain, and I hope they can find a solution for you. Straydog is our local pump expert, and I'm sure she will be along to help you with your questions on it.
You will fine that the members here are very supportive and will help in any way they can. Keep checking here often, as sometimes it takes a while for the replies to come rolling in.
For what it is worth, I really think that if you can get a good test done with the pump or the neurostimulation, it could very well change your life, so please don't give up too soon on these kind of test. Hang in there!
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Surgery to place Stint in,
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Date Joined Feb 2003
Total Posts : 14016
Posted 2/19/2010 5:23 PM (GMT -6)
Welcome to Healing Well's CP forum. I am glad you found us but sorry to hear of your health issues. You can do a quick search here and find a lot of info on the SCS and the pain pump.
I can understand you being leary of the pump that is very reasonable. Please don't misunderstnad this next statement but just how experienced was the dr doing your trial. Any of these devices require a very experienced dr from start to finish. Neither of these devices will totatlly get rid of your pain either. They are designed to help lower your pain level. Each device comes with their own set of issues to deal with too. Once you have an implant it takes quite a while to get it adjusted to the level you need to lower your pain. Expect to have to take break thru meds too, if a dr says he doesn't offer break meds with these devices, then run from his office as fast as you can. A reputable dr will tell you, you will need oral meds even with the devices. Also, once a device is permanemtly implanted, switching drs is very difficult because others for some reason do not want the liability of taking on a patient that has one. I am not trying to persuade you against doing either, you need to know up front what you are dealing with. I wasn't told this by the dr that put my pump in before having it done.
My pain pump was put in back in June of 05 for lower back pain. My pump only addresses my lower back pain, nothing else. After the first year I decided I had made a mistake because my pain was worse instead of getting better. Little did I know that my dr was way too under educated in pain pumps and the medication that goes in them. A dr needs to understand compounding medication for these pumps, if he doesn't you are screwed. Once he got my pump to a certain amount there were no more increases in the medications, no change out to try a diffferent medication-nothing. I had to realize & accept this was as good as it got. I could not stand up up straight, I was bent over. I had no quality of life. This was not the life he told me to expect after the pump. Then he decided to quit pain mgt and go back into anesthesiology. That was a blessing in disguise for me and 45 other patients of his with pumps. He referred us to a retired neurosurgeon that had over a decade of experience with pumps and handled pump patients only. Not only that she mixes her own compounds for the pumps right there in her office.
I have been with this new dr a year this past January. She was shocked and appalled at the 46 pump patients that got referred to her. Not only were we under medicated in our pumps, as a pain patient we were grossly under treated. Her words not mine. She did make adjustments in the meds in my pump, changed the dose of my BT meds and thanks to this wonderful dr I now have a life. Yes, I still have pain and I always will but I can tolerate what I have. Understand the pump is not a quick fix and neither is the SCS. I am telling you my story so you can hear the down side to what can hapen with these devices if the dr is not knowledgeable. Any rookie can implant one-managing it is a different ballgame. I honestly do not know if the punp is designed for pelvic pain, I have not heard of it being used for that area of the body. I would suggest that you go to Medtronic.com and read up on the pumps and placement of the pumps. I could go on for days about
the goodness of a pump but we have to limit the size of our posts, this is why I said to do a search here at the forum and you can find tons of posts on both devices.
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other
issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.
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Date Joined Jan 2005
Total Posts : 9090
Posted 2/20/2010 12:30 AM (GMT -6)
Hi and welcome!!
I don't have experience with pain pumps but I can tell you that those who do can give you some great information on their experiences. I would put my money on straydog and her advice any day. I do think you should get at least a second opinion and even more. I'm with you when it comes to my spine....either be the best or stay away from it. There's just no room for error. From your descript
ion it seems as though this doctor is pushing treatment plans that he offers ... but are they the best thing for you? Just some things to think about
Please keep us informed on your thoughts and decisions. We're always here to bounce ideas off of and for all of the support and comfort we can muster.
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.
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Date Joined Dec 2004
Total Posts : 921
Posted 2/20/2010 1:13 AM (GMT -6)
Welcome to Healingwell!
I have a Boston Scientific Precision Plus SCS (http://www.bostonscientific.com/Device.bsci?page=HCP_Overview&navRelId=1000.1003&method=DevDetailHCP&id=10068931&pageDisclaimer=Disclaimer.ProductPage) and my biggest advice would be to find a doctor/surgeon you trust. I had a "trial" implant put in October 2009 and the permanent implant December 2009. I am still making adjustments with programming but am doing better than pre-surgery. I completely trust my PM doc and have a great BS rep, I think without these two things I would not have gone forward with the stimulator.
I would be glad to answer any questions you have. I unfortunately don't have any personal experience with pain pumps though. I hope you find something that can offer you some relief.
More info: http://www.controlyourpain.com/index.cfm?langid=1
Sara-Migraine/Headache Forum Moderator
Battling head pain for 17 years.
DX: occipital neuralgia, cervical spondylosis, fibromyalgia
Boston Scientific Spinal Cord Stimulator implanted 12/14/2009
Norco 10's prn
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