found another doc for another opinion

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 2/20/2010 1:07 PM (GMT -7)   
I finally got so frustrated with the amount of pain I was having these past two weeks that I posted on Facebook that I needed help finding a pain doctor. Now I know this is a risky business but of all people , my sister in law called and got me in to see a pain doc this coming wednesday to see a doc a a hospital nearby thaaat she works at as a plebotomist.. So quickly my head is spinning. I quess it helps to have connections. I had finally found another second opinion but have been waiting for well over 2 months to get in and still have to wait until March to see her. I put out the plea to find one on friday and they called back within 20 minutes saying they had a cancellation on monday.Unfortunately I must see my current doc monday so they( the new doc) squeezed me in for wednesday. I just hope something good happens . It would be nice to not feel like I was going to "get in trouble" or talked down to at a doctors appointment. I will tell my current do I am going for another opinion, after all he did tell me I should go to Johns Hopkins. I don't want him to think I am doing anything behind his back in case this doesn't work out but I am keeping my fingers crossed that something good will come out of these appointment with these two new doctors and hopefully one of them will be the change I think I need.
keep your fingers crossed for me
catahoula
sick and tired of being sick and tired


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 2/20/2010 1:36 PM (GMT -7)   
Good luck catahoula!! Keep us posted on how it all works out.

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 2/20/2010 1:44 PM (GMT -7)   
Good luck Catahoula, it would be awesome if this new one could help you out. Let us know how it goes.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 2/20/2010 2:10 PM (GMT -7)   
I wish you luck with your new appointment and I understand where you are about the two Dr's. I would love to seek a new PC Dr, but I'm afraid of starting over again. Don't get me wrong, I love her to death as a person, but she isn't always right about her diagnoses and her medications are sometimes not quite right. I have several specialists and always seek them for the issues where they specialize, but it would be wonderful to have a full set of Dr's....all on the same sheet of music.

Don't feel badly about the second opinion...that's why there are second opinions...
Previously PrayingForRealRelief....
 
DDD, CPS, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), IMPROPER GAIT, MIGRAINES, GERD, NISSEN FUNDOPLICATION (failed), GAD, DEPRESSION, EXTREME ANXIETY DISORDER, OCD, PSTD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY.....too many allergies and reactions to mention.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/20/2010 3:01 PM (GMT -7)   
Catahoula,
That is good news! Like everyone, I wish you the best of luck with this new doc - it likely won't hurt that you have a connection he knows.

Take care,

PaLady

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 2/20/2010 4:54 PM (GMT -7)   
best of luck!!!
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/20/2010 5:13 PM (GMT -7)   
Hi Cathahoula,

I hope you have luck with this new Dr. I can certainly attest after years of bad one's...my last Neurosurgeon and Pain Mgmt. Dr. are the most wonderful and caring men I know! I have actually become friends with my PM outside of our appts. so I have learned so many things from 'their' side too.

So..keep faith that there are great Dr.'s out there that truly want to help you live the best life with our chronic pain..There are dozens and dozens of modalities which I try to take advantage of every single one to deal with my pain..

A good PM along with our Pharmacist..a therapist, possibly surgeon, family and friends are all part of our 'team' and crucial to our chronic pain..

I will send some prayers your way that this will be the one for you! It sounds like you are handling it well with a possible transition...for me..I believe that total honesty with each Dr. about your intentions..(ie getting another opinion) is the way to go..

Take care and keep us posted..
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 2/20/2010 7:33 PM (GMT -7)   
Hi Cat,

Glad to hear that you found a new doctor who will take you. Is he at John's Hopkins? They have a really good reputation. I've actually thought about traveling down there for my eyes, but they are more retinal specialists & that's not where my problems lie. I hope your appointment goes well & this new doc is willing & able to help you!

hugs,
Skeye

catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 2/25/2010 12:08 PM (GMT -7)   
well I saw this new doc for a second opinion or perhaps to change pain docs to him yesterday.  I called the day before to confirm my appointment. I didn't hear back until 2 hours before my appointment with a call saying that I wasn't on the schedule..( not a good sign) but they could squeeze me in.  The appointment had been set for 1, then they told me to come at 1:15, then 12:45. I arrived at 12:30 so I could regester and to be sure I was on time. After waiting in the hospital waiting area for 1/2 and hour I was taken to the exam room where i waited for an hour before the doc came in. He introduced himself and gave me all of his degrees and awards and scholorships. He then asked me  what was wrong with me. I told him what the  symptoms were and what the diagnosis was to which he replied that it was all wrong. I explained that I had the suprorbital nerve stimulator. He stated ' Well you won't get anything fancy like that here" and then asked me what it was and could i show him where it was and where the battery was etc, pretty much passing judgement on it without knowing anything about it. I explained that I hadn't come to get scripts but rather to tell him where we ( my current doc and I) were at in treatment, what we had tried, and where we were at and that we've pretty much hit a wall  and asked how he would go about treating this. He stated that he would have me go swimming and maybe get motivated to get a job, maybe join a support group. He said there were lots of docs at the local hospitals and that I didn't need to be driving all the way downtown( my drive to the teaching hospital is a four hour round trip). I told him that I did indeed have a scheduled other appointment with another doc at a local hospital next week and when i told him who it was he said "oh shes' going to what to stick things in you, thats her thing". Beside swimming and  he would try 2 nerve blocks ( which I had told him I had already had with disasterous results) and that I was "invited" to come back, that I was "one of us", that "we are in it for the long haul with you" and I should go and get all my office notes from my current doc and the neurologist I saw 5 years ago.
 
so, my dear friends,do I stay with the doctor who has been treating me for 5 years but has no new ideas of where to go but seems to keep plugging away(even though I think this frustrates me because I want him to cure something that perhaps can not be cured) or do I take of the invitation of this new doc and go swimming OR do I go see this other doc next week to see what kind of things she will want to "stick me " with?
decisions decisions
can't someone just make the pain go away?
cat(ahoula)
sick and tired of being sick and tired


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/25/2010 12:20 PM (GMT -7)   
Hi Cat, I'm Cat(z4) too and I've been wondering if someone would take this pain for a while. So far, no takers. I would soooo not go to this particular new doctor. First of all, he's very dismissive, and secondly he sounds really full of himself. Just because he was a second opinion doesn't mean he has to be the last! That invitation is one I would R.S.V.P. "no thanks"! No, not literally say no to him, just not go back to him. For a doctor to demean another doctor is a very disturbing thing to me. That in itself would give me the insentive to say, no way! Try the poke me doctor, she may turn out to be the right ingredient in this mixture we call life. Please keep us filled in o.k?
Cat(z4)
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


IsThereAnEnd?
Regular Member


Date Joined Feb 2010
Total Posts : 66
   Posted 2/25/2010 12:41 PM (GMT -7)   
Hi Catahoula ~
Reading your story it hits home so closely. Why is it that all doctors look at us and treat us so poorly? For once, I wish they could live in our shoes for a 24 hour period and then see how they feel! I know how frustrating this whole circle of ridiculousness can be.......IMHO: you should follow your gut and go with the doctor or situation you feel most confident can help you. Please keep us posted and take care of YOU!
Huuuggggsss!
Cardiomyopathy, Celiac Disease, High Blood Pressure, 2 Fusions @ L4, L5, S1, 2 Fusions @ C7 & C8, Implantible bone growth stimulator cervically, and soon to have Neurostimulation Therapy to treat lumbar, Chronic Pain Sufferer for 8 years, take several meds daily to survive! Looking for a miracle I think ~


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 2/26/2010 12:30 AM (GMT -7)   
Hi Catahoula, I am afraid I would have to keep the appt next week. It is your call on this and only you can decide but if it were me I sure would not return back to his office. it was unprofessional for him to speak of the dr the way he did. So much for all of his credentials as far as I am concerned. He flunked the manners course, lol.  This guy sounds like he is just too full of himself and not really in to taking care of patients. He may very well have the "God syndrome" and those are the worst of the lot. I have seen those kind before and they are just nuts..
 
You know it tough out there finding good drs but we have to keep seaching and we don't give up. At times it seems like that may be the best thing to do but not really, there has to be someone that can help. Kind of like kissing a few toads before finding the prince.
 
Hang in there and let us know what you decide. Hugs,
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/26/2010 10:20 AM (GMT -7)   
 
 
   Dear Cata,
 
 
       Good morning *hugg* it is good to hear from you. I do hope you find a few moments to relax today. I know you have had a busy last few weeks and must be very tired of it all.
 
       I dont have much to add that hasnt already been said... But! I do think you should wait, if you can, till you see the other "perspective" doctor before making you decision. I am not so sure this new guy sounds like the right type of doctor for you. Also, you will want to keep your options open so you can fully assess all three possibilities.
 
      Stay strong! You are in our hearts here.
 
    
 
*warm huggs*
     dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 2/26/2010 11:01 AM (GMT -7)   
I'm sitting hear reading your kind words trying to recall the appointment  making sure it wasn't just me being negative about switching so I'm trying to relive the entire time. When the doc first came in, he held the door open as he spoke with another patient who was out in the hall asking him a question. I could hear their entire conversation and he was pretty much giving him the whole " you're one of us, we never give up on you line." I saw the patient, I know what was wrong with him, I know he needed a written excuse for his employer so he could get paid for a sick day. I think I just know way to much about this man. I may be a stickler on HIPPA rules from my caseworker days but I don't think I should even know that he was another patient let alone his issues. Something is just not sitting right but I'm trying to keep an open mind. I definately will see the other doc next week but I certainly won't let her "stick me", I just think it would be bad form  to do that on the first visit with out getting a complete history, especially on what is suppose to be a second opinion appointment.
Thanks for your words and support, opinions and advice.
painfree weekend to you all
 
cata
(short for Catahoula since there seems to be quite a few Cats' here, we'll try Cata!)
sick and tired of being sick and tired


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13470
   Posted 2/26/2010 11:08 AM (GMT -7)   
Cata I am with you on HIPPA anf firmly believe in it. I doubt very seriously the "stick dr" ever "sticks" a patient on the first visit, lol. It is almost as if this guy was trying to throw a scare in you, shame on him and his unprofessional manners. This guy is a real cad.

At least you still have an option or two and nothing is in blood and you have nothing to lose by seeing the other dr next week. I hope you gain a lot.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/26/2010 4:42 PM (GMT -7)   
Hi C,

So sorry to hear about the bad appt...so frustrating!

I know for me...it took a few years unfortunately to finally find the most wonderful Neurosurgeon and Pain Mgmt. Dr...so please don't give up! You deserve to be treated with respect and dignity and a PM who wants to work with you and all use every modality to help with your pain. They should be part of a 'team' with your other Dr., Pharmacist, Therapist, family and friends..

If I might suggest that before your next appt. with a new Dr. that you call ahead to speak with a nurse or even email the actual Dr. and tell them about the type of nerve stimulator you have and make sure that they understand your condition and have the capability to help you..Ask them if they use all modalities to treat a patient or only specialize in one...

I know how hard it is to keep on trying but it really is worth searching for that great Dr...

Take care,
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 08, 2016 9:08 AM (GMT -7)
There are a total of 2,734,676 posts in 301,233 threads.
View Active Threads


Who's Online
This forum has 151347 registered members. Please welcome our newest member, Marie34.
339 Guest(s), 16 Registered Member(s) are currently online.  Details
English Alf, sheepguy, BnotAfraid, Chanymom, mikeb2308, Mouche, Serenity Now, Loutucky, Tudpock18, iho, Healing98, Sallyyy, joavila92, houseboy, Mustard Seed, YiyiBoo


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer