Do you ever feel like you have new or different pain every day (or every hour)?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1749
   Posted 2/20/2010 5:06 PM (GMT -6)   
I realize all of us here are CP patients and that we all have various pain issues, but I wonder if anyone else out there is like me in the pain department.  It's something new every day....or every hour and sometimes every few minutes.  Are we "programmed" different than other people?  Is it just me?  I can't figure out why, but I hurt all the time and the location of the pain is different all the time.  Even after having several procedures to fix problems, I still hurt. 
 
Sometimes it's my hands, then my knees, always my back, always muscle spasms, always overtired with anxiety and then I have a wonderful day when I don't hurt so bad.  The next day is then horrible all over again.  My PM Dr. gives me my Ultracet and my Dalaudid, so that's no problem anymore and my Psych Dr. gives me my Xanax (controlled release) and my Ambien.  I use HGH daily and take Prevacid, BP meds, Vitamin D, and BC Pills.  I should be able to deal with the pain and the other issues, but I can't seem to reach a place where I am comfortable.
 
I just really wanted to know if anyone else feels accutely aware of pain the way I do?
 
Thanks!
Previously PrayingForRealRelief....
 
DDD, CPS, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), IMPROPER GAIT, MIGRAINES, GERD, NISSEN FUNDOPLICATION (failed), GAD, DEPRESSION, EXTREME ANXIETY DISORDER, OCD, PSTD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY.....too many allergies and reactions to mention.


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 2/20/2010 6:57 PM (GMT -6)   
I definitely feel the way you do. It is also the nature of my main disease- Lyme disease. Its migratory in nature. Have you ever been tested?

just thought I would ask.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/20/2010 7:22 PM (GMT -6)   
Hi retired,

Yes..I can empathize with those days where it seems like everything hurts!...I have learned over the years that if my morning is starting out badly with a new ache or pain...then I try to find things to do that day to help take my mind off of it..

From light exercise, yoga, stretching, to meditation/prayer, taking a nice long bubble bath with music/candles...to taking my pup for a walk, or watching something funny on TV...that way..I can be both proactive to help my pain..as well as help 'forget' about it for awhile..

One other suggestion is to find something like volunteer work..even something from home if you can't get out...like making phone calls to people for a church or organization...or calling a friend/family member that I know is going through a rough time...

Just listening to them..and trying to help...makes me feel good and put's the pain in a different place in my brain...But just getting 'outside' of my own thoughts that seem to circle back to my pain...really helps...

That's also what is great about coming here...you can come and vent away...get it off your chest....I've just learned not to stay in the 'venting' stage for too long...just like with any emotion...sadness..anger...etc....to 'experience' it...let it all out....then move on to something more positive...

Just some of my thoughts/suggestions...I really feel for you and all of us here understand what it's like during those awful high pain days...

Take care...


SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1749
   Posted 2/20/2010 8:26 PM (GMT -6)   
Thank you both for your response and for you suggestions. I have not been tested for Lyme's, but I'm going to ask for a few more tests when I get back to the endocrinologist. He's the most efficient and effective of all of my Dr's.

I do understand about not dwelling on the new pains and I feel like that has alot to do with my post. It just seems like I ONLY think about it right now. This too shall pass...

I like the idea of doing something for others and I think you are right. I can't reasonably get out to do anything right now, but I can look for something that will help me help others. I used to teach computer classes (basic) to adults who had very little computer experience. That was the absolute best time in my career (although they did away with the unit after about a year). I enjoyed most helping others to understand the basic things which would benefit them the most. And I need to quit dwelling on issues. I'm going to talk to the Psych Dr about this on Monday. Perhaps it's all the med changes with the HGH and suplements, but it's much worse lately and I need to do something different to make the changes. This whining will stop soon, but I REALLY appreciate the support.
Previously PrayingForRealRelief....
 
DDD, CPS, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), IMPROPER GAIT, MIGRAINES, GERD, NISSEN FUNDOPLICATION (failed), GAD, DEPRESSION, EXTREME ANXIETY DISORDER, OCD, PSTD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY.....too many allergies and reactions to mention.


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/20/2010 8:36 PM (GMT -6)   
I hope you don't misunderstand my post..I truly think it's good to vent/whine/cry when we need to..that's what this board is all about! So please don't feel bad about having some bad days...I just wanted to give some suggestions for when the time is right...

We are here for you!! Big hugs ((( )))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 2/20/2010 9:07 PM (GMT -6)   
Hi retiredmom,

I haven't experienced what you mention, but that is because my pain is from an injury in a specific location.

Has anyone ever discussed fibromyalgia with you? I honestly don't know too much about it, but I know it involves "all over" pain/pain in different locations. Maybe I'm way off (I'm not a doctor, of course), but there are many members with fibro here on the CP board. Maybe one of them can answer your question better.


Oh, and welcome to the CP board! Don't worry about whinning -- you're not! That's what we are here for - to try and understand, support, and help one another!

hugs,
Skeye

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/20/2010 9:31 PM (GMT -6)   
Wanted to add real quick that when I was on Cymbalta a few years ago...which can be a wonderful medicine for some people..don't get me wrong..and maybe because it was only perscribed for nerve pain for me...I had the worst mood swings...crying all the time...everything seemed 'magnified'...all my emotions...

Like handling traffic...or waiting in line at the store...would throw me for a loop it seemed...I think it changed my brain chemistry too much in the wrong direction..

And after taking many months to come off that medicine..that was a task in itself!! yikes...but now I am back to my 'normal'...still have ups/downs and my cry in the pillow days with pain...but not close to before...

So..it might be some of the medicine's you are on may need adjusting? or the hgh as you suggested...I think talking to your Dr. is a good idea...

Just want you to not feel alone in this...Sending more hugs your way (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1749
   Posted 2/20/2010 10:41 PM (GMT -6)   
Thank you all again! I will be checking on the meds and I do have Fibro (have for many years). This is all probably just one of those things that you go through before you get better. I keep telling myself this anyway. I do know the HGH is messing with my hormones really bad because I have not had a menstrual cycle (for no known reason) in over two years and had some light menstration last month. I also had acne, hot flashes and other hormone issues. HGH affects virtually everything including depression and anxiety. It's supposed to get better, but I guess I'm just getting used to the medication. I will definitely discuss it with my Dr. at the next apt.

Thank you all again!
Previously PrayingForRealRelief....
 
DDD, CPS, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), IMPROPER GAIT, MIGRAINES, GERD, NISSEN FUNDOPLICATION (failed), GAD, DEPRESSION, EXTREME ANXIETY DISORDER, OCD, PSTD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY.....too many allergies and reactions to mention.


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 2/21/2010 12:44 AM (GMT -6)   
Hi Retiredmom,

Yes, I can identify with what you're saying. I have the general all-over pain of Fibro, plus constant pelvic pain and pain in my hips. Every now and then though, I'll suddenly be having a ton of pain in an area that normally isn't a problem. For instance, a few weeks ago, I started have really sharp pain on the top of my left foot, along with numbness. I'd never had that before...I hadn't injured it, and as far as I know, hadn't done anything new that would cause it to hurt. The pain lasted for about a week and then was gone and I haven't had it since.

That happens a lot to me - pain in various places with no real reason I can see. It usually doesn't last long, but I'm always left wondering when it happens if it's serious, temporary, manageable, etc. I've tried to wait things out, only to have it end up being something serious, and I've gone and sought medical care right away, only to find out it's nothing at all. * le sigh * It's just so hard to know how to handle it.

Hope things settle down for you soon.

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Nortriptyline
Other: Vitamin D, Multi-Vitamin

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, August 21, 2014 10:54 PM (GMT -6)
There are a total of 2,199,841 posts in 244,786 threads.
View Active Threads


Who's Online
This forum has 155092 registered members. Please welcome our newest member, vtecvegan.
366 Guest(s), 10 Registered Member(s) are currently online.  Details
Agent9er, hypoHashimoto, sunshinesue, crazyhazeynut, Flip Flop, LymeinOR, megan77, ellip, CarenZ, Delmar


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer