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IsThereAnEnd?
Regular Member


Date Joined Feb 2010
Total Posts : 66
   Posted 2/24/2010 1:11 PM (GMT -7)   
Hello! I am SO thankful I have found a support group who can emphatize with how I feel. I have suffered with chronic pain for 8 years now and up to this point I have kept to myself and prayed for a miracle. When I found your grouop via a web search, I knew I had found a HOME! After spending hours and hours reading every single post - I had to join. I read so many stories similar to mine and realized there are people out there who know how I feel, 24/7. I look forward to chatting with all of you and I am forever thankful for such a great support group!

Medical Background: Celiac disease left untreated, causing multiple level disk which led to fusions at levels L4, L5, S1, C7, & C8. Four failed fusions led to years of pain, high blood pressure, insomnia, depression, just to name a few ailments. I currently have a bone growth stimulator implanted cervically and am about to have neurostimulation therapy implanted to help the lumbar/leg pain. I also have cardiomyopathy and am on SS Disability long-term.

If anyone has experience with the neurostimulation therapy, I welcome your input and look forward to "talking" to you all! Thanks for reading!
smilewinkgrin

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/24/2010 1:17 PM (GMT -7)   
Welcome to you IsThereAnEnd? I'm glad you found the HealingWell.com site it is for people like you and me and everybody .Please feel free to ask anything as everyone here is a giving and caring person , and I am equally sure that you have much to give as well . So welcome , welcome .welcome !
HIV+ also Hep c , need hip replacement surgery on hold because of cellulitus  .most pain from hip condition and cellulitus .hands numb may have carpal tunnel syndrome now .             .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex ,Avalox , lasix .


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 2/24/2010 1:57 PM (GMT -7)   
Hi IsThereAnEnd,

Welcome to HW. I'm sorry that you have to join us because of pain, but I'm glad that you found us. You're absolutely right, this place is like a home and the members family to so many of us. This is the one place where CP patients can come where people truly understand! This is a fantastic support group.

As for neurostimulation. There are several members here with nerve stimulators. I'm actually in the process of battling my insurance company to be approved for one, myself. They were so kind to deny insurance coverage the day before I was supposed to have to trial done back in December, so now I'm fighting them with everything I've got. My pain issues are different from yours, though. I have chronic eye and facial pain from a bad trauma & so the stimulator would be a little different, but it works the same way. Good luck with your stimulator trial, I hope it is successful!

hugs,
Skeye

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 2/24/2010 2:01 PM (GMT -7)   
Hi and welcome!

I hope you enjoy the site and the people. You'll find that everyone here is understanding and kind and will be willing to listen and answer questions, when possible.

I wish you the best!
DDD, CPS, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), MIGRAINES, GERD, NISSEN FUNDOPLICATION (failed), GAD, DEPRESSION, EXTREME ANXIETY DISORDER, OCD, PSTD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY and much, much more...


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 2/24/2010 2:25 PM (GMT -7)   
Hi, IsThereAnEnd,
I want to add my welcome to the chronic pain forum of Healing Well. This is the best support group on the internet, IMHO, and it's been a godsend for me and many others here. I'm glad you found us.

I'm assuming by your post you mean a neurostimulator implant, and like Skeye said several of our members do have them. Plus there's a lot of information on older threads, so if you search the site you should find some of them.

It's good to familiarize yourself with the site a little because there's lots to offer here. The CP101 thread has great info. and resources, and reading the forum rules helps all of us to stay coloring within the lines, so to speak, which is what keeps this site so great.

Again, welcome!

PaLady

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 2/24/2010 9:28 PM (GMT -7)   
IsThereAnEnd? (I like your screen name!)...

I'm glad you found us! Sorry you have to be here, though. This group is wonderful for support and encouragement. It helps to just see that others "get it"....

I'm not feeling too well today so I'm going to keep this short; but just wanted to take the chance to welcome you, and tell you that I'm glad you are here!

I hope to get to know you better!
Take care, Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation

Meds: MS Contin; Dilaudid; Actiq; Soma ; Neurontin; Atenolol; Midodrine; Phenergan/Zofran/Reglan; Effexor(depression)/Ativan(anxiety); Synthroid; Prednisone; and on the list goes...


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 2/24/2010 10:41 PM (GMT -7)   
HI!!

And welcome to the family. We too are thrilled that you have joined us. As you said, it's wonderful to have others to talk to who truly understand what living with pain is all about.

As mentioned above, we have several members who not only have implanted stimulators but they are quite knowledgeable. I'm sure they'll be along soon. In the mean time make yourself comfortable because we're in this family for the long haul. We do care about each other!

Warm hugs,
Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/25/2010 2:12 AM (GMT -7)   
Hi IsThereAnEnd,
I'm so happy that you found us! I'm pretty new myself and I've gotten tons of support from people who know what it feels like, we all understand! I am sad that we found each other because of pain, but very glad there is such a place as this. Enjoy and remember we are behind you every "step" of the way.
Catz4
Cat
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, Adhesive Capsulitis "aka" Frozen Shoulder, IBS, Panic Disorder, ICC (Interstitial Cystitis), Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


IsThereAnEnd?
Regular Member


Date Joined Feb 2010
Total Posts : 66
   Posted 2/25/2010 11:07 AM (GMT -7)   
What a wonderful, kind greeting! I already feel right at home here. I was able to find the most amazing information on Neurostimulation Therapy including a blog w/pics which answered 99% of my questions. At this point, I feel ready for the "trial" implantation and am looking forward to some pain relief (God willing). I look forward to getting to know everyone better and thanks again to all of you!
Huuuggggsss!
Cardiomyopathy, Celiac Disease, High Blood Pressure, 2 Fusions @ L4, L5, S1, 2 Fusions @ C7 & C8, Implantible bone growth stimulator cervically, and soon to have Neurostimulation Therapy to treat lumbar, Chronic Pain Sufferer for 8 years, take several meds daily to survive! Looking for a miracle I think ~


missty
New Member


Date Joined Feb 2010
Total Posts : 6
   Posted 2/25/2010 11:20 AM (GMT -7)   
hi,
im a newbie to but would like to welcome you aswell.smilewinkgrin

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 2/25/2010 11:28 AM (GMT -7)   
welcome to the group!

Everyone here is great. you will get lots of support here. we also have a chat tonight if your interested.

hope your pain is low today.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 2/26/2010 9:35 AM (GMT -7)   
 
 
   Dear ITAE,
 
     Good morning. My name is Dani and it is a pleasure to meet you. I am very glad you found the healing well community. I do hope you find it as wonderful a place as we do.
 
      I am however, sorry for the reasons that brought you here. You have been in severe pain for a very long time! Hopefully, the stimulator will give you some much needed relief long term. You be down right exhausted from it all. *hugg*
 
      I wont chat away endlessly, but I did want to stop by and introduce myself and send a welcome. I do look forward to getting to know you better as time goes by.
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13455
   Posted 2/26/2010 11:59 AM (GMT -7)   
Hi Is There,
 
I too want to welcome you to Healing Well's chronic pain forum. Well, I guess you know by now that you are not alone dealing with this miserable mess called CP. There is a whole bunch of out there that deal with it day in and day out, or at least we try to deal with it.
 
Wow, what a story you have to tell. You have really been put through the ringer several times. You know each and every one of us have a story of some kind that led us to this forum. I think you will find this to be the best group of people on the net. We try to help each other out the best we can, whether is it offering up ideas or just listening. At least you know now there is a good warm place to come to and be able to talk to someone that really knows about CP.
 
There are several people here at the forum that has the SCS implants. If you will do a search here at the forum you should be able to pull up a lot of posts on this subject. It most likely will be a quicker way to get some info because it can be a hit or miss on the people with them getting back to you quickly.
 
Anyway, I wanted to say hi and welcome aboard. Keep us posted on how you are coming along.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 2/26/2010 4:22 PM (GMT -7)   
Hi there ITAE,

Welcome to HW...I am fairly new myself...was away for the last week with a friend in town to visit..

It's such a wonderful and caring group of people on here and is so comforting to know that we all 'get it' when it comes to dealing with all the ups/downs of chronic pain..

Look forward to getting to know you better...:)
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
PM since 2006

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