Anyone ever use the fentanyl patch??

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nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/25/2010 12:57 AM (GMT -7)   
Silly question I know...I'm sure some of you have used fentanyl at some point!

My doctor prescribed it for me today at my request. I asked because of the recommendation of a friend here at HW. She has liver issues, so I figure that fentanyl must be OK for the liver (I have autoimmune hepatitis).

But just now reading about fentanyl on Wikipedia I got cold feet.....100 times more potent than morphine? More addictive than heroin?

Should I be worried about this pain medication? The Darvon I have doesn't do anything for the pain and I don't want to keep using morphine.

Comments anyone?
Lyme Disease, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


Blessedx8
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Date Joined Aug 2008
Total Posts : 3193
   Posted 2/25/2010 1:38 AM (GMT -7)   
Hi Nasalady...

Unfortunately, I've been on every med known to man :) My current long-lasting medication is morphine, but I'm also on oral fentanyl for breakthrough right now. But I've been on fentanyl patches several times before. While the fentanyl worked great for my pain issues, I couldn't deal with the side effects of the patch itself. I have very, very fair skin. I also run a low-grade temp at all time. So, to even keep the patch on - I'd have to use a tegaderm patch (it's a tape patch, found at the pharmacy...like the thing they put over an IV in the hospital). All of the tape would leave horrible rashes and marks anyplace that I'd put the patch. Then, because of my heat issues - I was absorbing the medication much faster than I should have been. My doctor even let me switch the patch every 48 hours; even then, the patch would be bone dry when I would change it.

Those were just my experience re: the actual patch itself... but, for me, personally - fentanyl is the best pain reliever out there.

Now, regarding the "scary" things you read :) (and I do understand your concern...and admire your quest for information...I'm the same way!).... Is Fentanyl strong? Yes, it is. But the thing is, your doctor will start you off at a low dose (hopefully) and titrate it (if necessary) from there. There's side effects that can come with any of these medications; hopefully, though, you won't experience any. Re: being addictive... again, I guess you could say that any of these medications come with the chance of addiction. But, from my own experiences and reading here, I haven't seen any major "more" problems with fentanyl than any of the other opiods.

So, again just my experience - I think it's a great pain reliever. It is strong; and I would suggest making sure your doctor starts you at a low starting point (which I guess would be the 25mcgs, or maybe even 50mcgs....I know I'm not a doc, just an experienced patient!)... let your doctor know of any problems you have with it... and go from there. But I wouldn't overly worry about the things that you are reading.

I really, really hope this helps your pain. Let us know what you decide to do. Or, if you have any other questions - let me know!

Take care, Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation

Meds: MS Contin; Dilaudid; Actiq; Soma ; Neurontin; Atenolol; Midodrine; Phenergan/Zofran/Reglan; Effexor(depression)/Ativan(anxiety); Synthroid; Prednisone; and on the list goes...


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/25/2010 2:04 AM (GMT -7)   
Thanks so much for sharing your experiences, Tina! Your post is really very reassuring and helpful.

My rheumy prescribed 25 mcg/hr patches....that's the lowest dose I think. I have been in a lot of pain lately and have had trouble sleeping so I will probably try them.

After all, I was on morphine recently during a hospital stay, and they gave me some pills to take home (10) and I've been so scared of addiction I still have 6 left, 'cause I only use them when I can't STAND it anymore.

So I know I will be careful with this stuff.

Thanks again...and take care!
JoAnn
Lyme Disease, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 2/25/2010 2:12 AM (GMT -7)   
No problem, JoAnn... I sure hope the patches work for you and reduce your pain.

Just remember it can take a day or so to get in your system...

The one nice thing about the patch is that you always have medication being released into your system; not as many "highs and lows" that the oral meds can brings. Just remember, though... that towards the 72 hour mark, IF you feel a huge increase in pain or "withdraw" symptoms...you can always talk to your doctor about changing the patch earlier. Hopefully, that won't happen... but just something to remember.

I'll be curious to hear what you think about it once you get it on and it starts working. I sure hope it works for you!!
Talk to you soon,
Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation

Meds: MS Contin; Dilaudid; Actiq; Soma ; Neurontin; Atenolol; Midodrine; Phenergan/Zofran/Reglan; Effexor(depression)/Ativan(anxiety); Synthroid; Prednisone; and on the list goes...


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/25/2010 2:43 AM (GMT -7)   
Hi JoAnn,
I was on the patch and I really liked it. It didn't make me feel "high", but then nothing really does at this stage! I had a bit of an issue with the adhesive as I'm allergic to most types of adhesives. As far as being addicted, this is how I feel, I'm going to have to take something the rest of my life. Realistically, I will be at least physically addicted to some form of pain med or another. So my decision was to take what I have to and be responsible with it. I don't take my pills when I need too as by that time I'm hurting terribly, so I take as perscribed. The other thing that blows me away is that I've actually had people ask me for a pain pill just for the high! And my answer will always be NO!! Now as far as all the side effects, I didn't have any besides the slight adhesive rash. I have a friend who has really crazy reactions to medications, she has even woken up in surgery 4 times! Blah! But, she went into a coma after a short time with the patch. It's really rare and I wouldn't put to much stock into that side effect. Like I said, she's just weird that way!
Try it out and enjoy the constant flow of medication that keeps you from being in constant pain except for the times you get to take a pill. They work well. Take care and let us know how it works for you!
Cat
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 2/25/2010 6:43 AM (GMT -7)   
Hi,

I also had the patches a couple of times, but this particular med doesn't seem to have any effect on me at all. I never notice anything except a skin reaction at the site of the patch. Naturally everyone is different and it may be perfect for you.

Unlike many here on the CP forum, I don't have a high tollerence to meds. I've tried most of them at some time or other and have "reactions" to most, but my doses are very small compared to many of our members. It's not because the pain is less, but because I metabolize the meds differently. A really good PM Dr will check to see how your body breaks down the meds in addition to monitoring the pain level you reach with the dose given.

I wish you all the best!
DDD, CPS, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), MIGRAINES, GERD, NISSEN FUNDOPLICATION (failed), GAD, DEPRESSION, EXTREME ANXIETY DISORDER, OCD, PSTD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY and much, much more...


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 2/25/2010 10:17 AM (GMT -7)   
Hi nasalady,

I was on fentanyl patches for a couple of months. I didn't like them. I was on 150 mcg (which is a huge dose) and I didn't feel like they did a thing. But I didn't have a hard time getting off them either. I just tapered down over a week or two & didn't experience any withdrawls. Of course everyone is different, so hopefully they will work for you. I tend to be very very resistant to medication.

hugs,
Skeye

IsThereAnEnd?
Regular Member


Date Joined Feb 2010
Total Posts : 66
   Posted 2/25/2010 10:30 AM (GMT -7)   
Nasalady ~
I am currrently on Fentanyl patches and have been on them for over four years. For me personally - they help tremendously! They also provide continuous pain relief without any of the usual highs and lows with oral meds. Everyone reacts differently to meds, so I wish you the very best and please keep us posted!
Best of luck Hun ~ Huggggsss!
Cardiomyopathy, Celiac Disease, High Blood Pressure, 2 Fusions @ L4, L5, S1, 2 Fusions @ C7 & C8, Implantible bone growth stimulator cervically, and soon to have Neurostimulation Therapy to treat lumbar, Chronic Pain Sufferer for 8 years, take several meds daily to survive! Looking for a miracle I think ~


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 2/25/2010 10:43 AM (GMT -7)   
Thanks so much everyone for your replies!

I too have an allergy to adhesives (didn't think about that!) so this may be a problem for me. I will keep you posted on whether it works well for me or not. A constant flow of medication will be better than waiting too long to take a pill....I don't always take pain meds when I should.

More soon.....
((((hugs))))
JoAnn
Lyme Disease, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, degenerative disc disease, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 2/25/2010 11:36 AM (GMT -7)   
i have been on 50mcg fent patch for about 8-10 months. I change my patch every 48 hours instead of every 72. I have a higher temp thean most people so i think it runs out faster for me. Please be careful when using a heat sorce such as a shower, hot tub bath etc. if the patch gets hotter than it should it can release meds faster and you can get really sick/ or pass out. So dont apply heat to it. I have a tape allergy and my patch gets a little red, but it goes away.

I thought for a long time the patch wasnt working, but I fell asleep with out one and woke up like the tin man, unable to move. they do work. but I do not feel high, or messed up ever. So that made me understand that they do work.

I still take oxycodone 3x a day for breakthru pain so you may need some thing for that still, but I hope you dont.

ALso rotate where you put the patch, I use my chest,

good luck,
melissa
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/25/2010 11:44 AM (GMT -7)   
I have used the patch and all it did was give me a rash where the adhesive was , no pain releif detected , but I suppose everyone is different .Good luck with it maybe it can help you , I hope it does .
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex ,Avalox , lasix .


ace lungger
Regular Member


Date Joined Dec 2008
Total Posts : 94
   Posted 2/25/2010 3:22 PM (GMT -7)   
 Nasalady,
DON'T GET ON IT!!!!! It took a year of my life a way, I never got out of pain, just wanted more drugs. I don't remeber must from that year I was on the patch. My mind is still foggy. I truely hope that you can find a better route to go, the Fentanyl patch system should be the very last thing. If I can be of help just get a hold of me!
Later
ACE

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13469
   Posted 2/25/2010 3:33 PM (GMT -7)   
You have been given several ideas on how they can or cannot work for a person. We all metabolize medications differently so there is no positive way of telling. I had problems at 75mcg and came off of them and it was the best thing that ever happened to me. If you get hot and your skin becomes warm too much medication comes out and the end result it will not last 72 hours. Some people have them changed at 48 hour intervals. Some drs will do this and some will not. It is a real mixed bag. If you need further info you can do a search here at the forum and find a lot of info on them as they have been discussed in the past.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


todd1074
New Member


Date Joined Feb 2010
Total Posts : 6
   Posted 2/25/2010 4:12 PM (GMT -7)   
I agree if you can avoid the patch then do it.
Ihave been on 75mcg/hr every 48 hours since July last year and am desperate to get off it.
I am also on 15mls of Oxynorm 4 times a day for breakthrough pain.
It is true you start low but your body soon becomes used to that level and you just need higher and higher doses.
I am very drowsy all the time and am no longer allowed to drive which is hard living out in the sticks.
I suffer from terrible hot and cold sweats which are awful and my body temp is aways either too hot or too cold never just normal.
Getting off the patches is not easy and the withdrawal affects are terrible even with gradual reduction.
I wish I never started on them.

snowflake
Veteran Member


Date Joined Feb 2007
Total Posts : 595
   Posted 2/25/2010 5:17 PM (GMT -7)   
Morning nasalady , Everyone is different and have different problems with each drug .I was on fentanyl patches for a while but found they were released into my system really fast in the first day but the effect tapered off by the next day .Nausea was my biggest problem and with the amount of pain i was in a bit of drowsyness was accectable .However i have been on the morphine tablets now for three years and find them to be ok they tend to help at times ,i can increase them more if needed and have done so on many occassions however nausea is then a big problem .But the pain is even worse .As for being addicted to them that has not been an issue as i can go without them no problem with no side effects .I did find the patches a bit of a problem as to the reaction at the actual site due to allergic reactions to the stick substance just do not put another patch in the same area for a while giving it a good chance to recover .One thing let your pharmacy know about your reactions to the sticky substance as they report it back to the manufacturer and they are the ones who cn change them . I hope you find relief and something that works well for you .There is nothing worse than being in pain day in and day out .
Snowflake

treehealing
New Member


Date Joined Mar 2010
Total Posts : 6
   Posted 11/5/2013 6:47 AM (GMT -7)   
I am on the Fentanyl patch, and it is prescribed by my neurologist....who seems to want to have nothing to do with it but prescribe it. I have horrible neuropathic pain and I am going to the Mayo next week for a consult. I called her office yesterday and left a message with her secretary. I am sweating profusely and I am hot and cold...also I cannot sleep. I thought she would call me back. Her secretary called me back and said "she said it might be withdrawal" and to go see your primary. My primary, first of all, wants nothing to do with narcotics. What can he do? Could I be in withdrawal? I was started at 25mcg and now on 50mcg. It is changed every two days. I hate being on this...I still have quite a bit of pain. I have lost my appetite and I am getting very thin..112 pounds. I don't know if this is the right place to post this.

treehealing
New Member


Date Joined Mar 2010
Total Posts : 6
   Posted 11/5/2013 6:51 AM (GMT -7)   
ace lungger said...
Nasalady,
DON'T GET ON IT!!!!! It took a year of my life a way, I never got out of pain, just wanted more drugs. I don't remeber must from that year I was on the patch. My mind is still foggy. I truely hope that you can find a better route to go, the Fentanyl patch system should be the very last thing. If I can be of help just get a hold of me!

Later

ACE


I am not sure I am doing this right. I am on the Fentanyl patch 50 mcg. I am sweating profusely and want off. How did you get off of it?

nvrthesame98
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   Posted 11/5/2013 7:59 AM (GMT -7)   
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