Yup, the stimulator would go on the trigeminal nerve in my face. Unfortunately I just got the second-level appeal denial letter in the mail today. Now the next step for me is to go to the State Insurance Commissioner, unless the insurance company screwed me over (see my current thread), in which case I may need to get a lawyer.
The doctor who would implant the stimulator is a neurosurgeon. I've only seen him once - for a second opinion/evaluation for a stimulator, but he has been great & is willing to fight for me every step of the way. He spent months doing his own research on my case after meeting me, so he didn't his recommendation for a stimulator lightly to begin with. Other than that, I my regular team of doctors (pcp, neurologist, ophthalmologist, and neuro-ophthalmologist) are all still caring for me & they all highly support my decision to go ahead with the trial. They all wrote letters of appeal to my insurance company when I got denied. Other than the stimulator, I haven't ever had any problems with my insurance company. They just paid for another MRI a few weeks ago (which frankly shocked me). It is so ridiculous because they will probably end up spending more on me in the long run if they don't approve the stimulator trial, than if they did & the stimulator worked.
You're absolutely right, this whole thing is ridiculous! It is all about the money. They don't care about the people at all. The insurance companies couldn't care less whether you are in so much pain that you literally barely make it through every day, all they care about is how much is coming out of their pocket. I hope you have better luck with your insurance than I did with mine. The main reason that they denied mine is because it is "experimental." In a sense that is true, because my case is pretty unique, but I found a lot of good published data to support my case, and furthermore the insurance company states that they have the "sole digression" to decide what is experimental and what is not -- so in other words "what they say is always right & no one can argue that it isn't."
My one piece of advice would be to get together as many doctors letters as you can along with papers from the literature that support your case (you could do a pubmed search, or I could actually send you one or two articles that might support your case too - for example, I have one that discusses the long-term safety and efficacy of the SCS implant). These things might not help, but they sure can't hurt. The more educated you are about the procedure, the better.