Does anyone have experience with Methadone?

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IsThereAnEnd?
Regular Member


Date Joined Feb 2010
Total Posts : 66
   Posted 2/25/2010 12:51 PM (GMT -7)   
Good afternoon fellow CP'ers ~ I just got off the phone with my PM doc. After four years of Fentanyl patches, he is now wanting to change me to Methadone? This is completely new med to me and what little research I've done so far......I'm a bit skeptical about it. The patches are not controlling my pain like they used to which is his reason for the switch. He said my body was physically tolerant to them and it was time to change. Will I still need BT meds with the Methadone? I have so many questions, I'm not sure where to start! Thanks for your help ~
Huuuggggsss!
Cardiomyopathy, Celiac Disease, High Blood Pressure, 2 Fusions @ L4, L5, S1, 2 Fusions @ C7 & C8, Implantible bone growth stimulator cervically, and soon to have Neurostimulation Therapy to treat lumbar, Chronic Pain Sufferer for 8 years, take several meds daily to survive! Looking for a miracle I think ~


IsThereAnEnd?
Regular Member


Date Joined Feb 2010
Total Posts : 66
   Posted 2/25/2010 12:59 PM (GMT -7)   
Forgot t add: I'm going over to the chat room for a bit.....
Cardiomyopathy, Celiac Disease, High Blood Pressure, 2 Fusions @ L4, L5, S1, 2 Fusions @ C7 & C8, Implantible bone growth stimulator cervically, and soon to have Neurostimulation Therapy to treat lumbar, Chronic Pain Sufferer for 8 years, take several meds daily to survive! Looking for a miracle I think ~


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 2/25/2010 2:30 PM (GMT -7)   
Hi and welcome to Healing Well's chronic pain forum. I am very glad that you found us. It is always terrible to see someone new come along suffering with CP but the numbers seem to be increasing by the minute. It is amazing how many of us that are out there. I hope you will stay and become aquainted with everyone here. This is the best forum out there as far as I am concerned. We try to help each other out, offer up ideas and thoughts. There is so much compassion on this forum-no judgmental attitudes allowed. We get enough of that just by having CP. We do ask that all new member read the forum rules and abide by them. We also have a topic at the top called CP101 that is full of valuable information that applies to CP people, lots of good info there.
 
My old PM dr tried me on Methadone and I could not tolerate it like so many other medications. I can tell you it can be a very good pain reliever for many and inexpensive. However, with that being said, it should only be used as a last resort as far as I am concerned. There are many other medications out there that I would try, sometimes it takes combinations of meds, but I would sure try those before starting Methadone. You are started out on a low dose when starting the Methadone, it takes several weeks to build up in your system, the same with the increases. It has a half life that you have to always remember and keep in mind. It must be taken exactly as prescribed otherwise you run the risk of over dosing on it. Many drs will not offer BT meds when they put a patient on Methadone and that is not right. You should be given something for BT pain. If the dr knows what he doing with medications then he will know that. If he is not educated well in medications then you may be told no BT meds. Once starting it and being on it a while it can be very difficult to get off of and on to a different medications. One of our members has been on it several years and she is trying for the second time I believe to get off of it. I know her first attempt was not successful. You can do a quick search here at the forum and find a ton of info on Methadone, we have discussed it here a lot. Uniquely Me is the member I am speaking of that is on Methadone, perhaps she will see your post and offer up some info.
 
Again welcome aboard and we hope to see you posting.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 2/25/2010 4:18 PM (GMT -7)   
Hi IsThereAnEnd I've been on a methedone program for several years now and only recenly realized its used as a pain med .To me I don't find it effective but I think its individual , I am a member of the Chronic Pain forum and when I really started feeling pain the meth didn't help . now it could be a tolerance on my part , I don't know . but for me , I didn't find it effective .
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines - Oxycontin , percocet , Oxycondone , Celelbrex ,Avalox , lasix .


IsThereAnEnd?
Regular Member


Date Joined Feb 2010
Total Posts : 66
   Posted 2/25/2010 4:26 PM (GMT -7)   
Thanks straydog and Mike for your input ~ I am still up in the air if I'm happy about this switch.....but regardles my doc thinks it might help. I was nervous about getting off it at some point....but I've been on fentanyl patches so long now I know the withdrawal from that would be a nightmare ~ so I figure I might as well TRY it to see. If not, I will go back to the patches. Hoping he considers BT meds - even with my 50 mcg patches, they are a must.

Wishing everyone a fantastic evening with LOW pain! Thanks again for all the support!

Hugggssss!
Cardiomyopathy, Celiac Disease, High Blood Pressure, 2 Fusions @ L4, L5, S1, 2 Fusions @ C7 & C8, Implantible bone growth stimulator cervically, and soon to have Neurostimulation Therapy to treat lumbar, Chronic Pain Sufferer for 8 years, take several meds daily to survive! Looking for a miracle I think ~


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 2/25/2010 6:03 PM (GMT -7)   
Hey IsThere,
My sister has had debilitating migraines all her life. She is now 37 and has been on Methadone for over 10 years with bt meds as well. She swears by it. The only thing I noticed that changed with her was that she became terribly argumentative. I don't know if it's the methadone, her age, pain, or the fact that she is just a loney woman. She won't ever get off of the methadone and doesn't want too. That's all I know about it. I hope you find your way with this change. At least your doc is trying something different!! That says a lot to me at least! Take care and let us know how it goes. And FYI, I really appreciate your input and caring in my own situation. If you need anything, I'll be here as will the rest of us.
Thanks,
Catz4
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


IsThereAnEnd?
Regular Member


Date Joined Feb 2010
Total Posts : 66
   Posted 2/26/2010 1:16 PM (GMT -7)   
I wanted to thank everyone for their input and for sharing their experiences with me. I am officially switching to methadone today.......crossing my fingers and praying for some relief. All I ever ask for is a 50% improvement....beginning to think that is too high of a number. ;) The first dose I took so far has done nothing - but realizing it will take up to a week to get in my system, I am trying to be patient and optimistic. Thank goodness for BT meds!

Hope everyone has a superb weekend accompanied with LOW-pain! :-D We can always hope, right?

Huuuuggggsss!
Cardiomyopathy, Celiac Disease, High Blood Pressure, 2 Fusions @ L4, L5, S1, 2 Fusions @ C7 & C8, Implantible bone growth stimulator cervically, and soon to have Neurostimulation Therapy to treat lumbar, Chronic Pain Sufferer for 8 years, take several meds daily to survive! Looking for a miracle I think ~

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