Just came from Dr. appt..

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Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 3/2/2010 5:18 PM (GMT -7)   
Hey there,
 
Well...I am so full of emotions right now...My PM said today that he thinks that I should file disability and that he, and my Neurosurgeon discussed it and after my 3 surgeries...as well as my pituitary tumor..that this is as good as I can ever get with recovery and since I've had so much pain trying to hold down even a part time job, as well as possible more surgery in the future...this is the next step..
 
He was very sweet to say that he and their office will do everything in their power..the nurses too..to help me through the process..and that he was very worried about me not getting all the treatments and updated MRI's and such without healthcare right now..he is limited as to what he can write off...
 
I started to cry as the thought of giving up...it's scary..Everyone came into the room and gave me a big group hug!!! LOL....I will have to search the boards as I know this topic has been discussed many times as I have no clue even where to start or how to file...does it differ by state?
 
Ok..just wanted to update...I wasn't even thinking about this as it was just my regular 3 month check up appt.
 
Thanks for listening everyone...
 
 
 
 
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 3/2/2010 5:38 PM (GMT -7)   
(((((((((SnowBunny))))))))))

Please try not to think of it as "giving up".........try to think of it as starting a new phase of your life, hopefully a less stressful phase, that will allow you to concentrate on your health and ways to improve your quality of life!

I know this is a very tough time for you.....I'm on the verge of filing for disability myself and I'm so full of mixed emotions sometimes I think I'll explode! None of my doctors have yet recommended this, so I may still wait awhile.

You're in my thoughts and prayers!
JoAnn
Lyme Disease, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L4 and L5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP, Darvon, Morphine Sulfate

autoimmunediseasesgfliving.blogspot.com


Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 3/2/2010 5:47 PM (GMT -7)   
Thanks so much for your kind words JoAnn...I think it's like in Mike's thread..somehow finding a way to accept this new life...

I really am thankful for all my years previous to my surgeries...the hardest part is I am an adrenaline junkie at heart...rock climbing..skydiving..roller coasters..lol...probably all the things that caused my neck issues!! I'll just have to find more creative ways to get that same excitement in more 'tame' ways..haha

Thanks again..everyone's support on here is such a blessing to me:)
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


MsBunky
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Date Joined Jan 2010
Total Posts : 1097
   Posted 3/2/2010 7:17 PM (GMT -7)   
Awww {{{{{{ Snowbunny }}}}}} - I wish I could give you a big hug, but this will have to do.

What a difficult conversation that must have been for both you and your doctor...he and his team sound pretty special. I'm sorry they feel there's not much more they can do for you, but it sounds like he's willing to try everything and anything in his power to make things as easy for you as possible.

There are lots of posts here about disability so you'll definitely get better input than from me on that (I'm on it, but thru my employer and I'm in Canada, so it's much different here). I can offer you a shoulder when you need one though and you know everyone here is rooting for you and will listen to you.

I hope you don't see this as "giving up". nono It's not...it's just a different path than the one you thought you'd be taking. This new road may be bumpier than you wanted, but you may still get to enjoy some new scenery and meet some new people along the way.

Wishing you well, and I'll say a wee prayer for you if you don't mind.

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily

Post Edited (MsBunky) : 3/2/2010 7:21:03 PM (GMT-7)


skeye
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Date Joined Mar 2008
Total Posts : 2976
   Posted 3/2/2010 7:31 PM (GMT -7)   
(((((((((Snowbunny)))))))))). JoAnn is right, try to think of it not as giving up, but moving onto a new phase -- one that will bring on new changes and challenges. Of course you'll mourn the things that you have lost & you should certainly let yourself, but this isn't the end, it's just different! Try to hold your head up high & look for the positive things that will result. It may be rough for a while, but you'll make it through. It sounds like you've got a lot of great support behind you. Just remember to always keep fighting.

Skeye

Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 3/2/2010 7:48 PM (GMT -7)   
Thank you Pam and Skeye...what sweet notes!!! I feel so cared for on these boards and that is so wonderful when going through this life of chronic pain...

I really am blessed with my team of Dr.s...He piled me high with samples of some of my meds...as well as he has always worked at prescribing pain medicine that works but is least expensive..and they charge me only $60 every 3 months for visits with all the free acupuncture..as well as injections too...

He said that he will be able to provide even better care to me once things go through as it's been frustrating for him not to do more for my pain levels..He is one of a kind PM Dr. who ' feels the hurts' of his patients...

Yes..it's going to be a long haul drowing in paperwork..but you guys will keep me strong and can get encouragement along the way..

THANK YOU ...Big hugs back at ya ((( )))


SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 

Post Edited (Snowbunny21) : 3/2/2010 8:16:29 PM (GMT-7)


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 3/2/2010 7:59 PM (GMT -7)   
Snowbunny,
I'm just starting down that road, too (which appears to be long one). Are you eligible for any other low income insurance in the meantime?

It's all so sad and frustrating for awhile, I don't think I'm anywhere near making peace with it all, but I am determined that somehow I will. Afterall, what choice do we have.

I know a couple of people who really get their adrenaline high from playing a lot of the online games - maybe that would give you a bit of the same feeling, although I know it's not the same.

In the meantime I'll send hugs - and suggest you do look for older threads.

The government website ssa.gov/disability is what I've used because it's the place that makes the rules. Straydog also knows a lot about this.

((((((((Snowbunny))))))))))

PaLady

Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 3/2/2010 8:24 PM (GMT -7)   
Thanks PAlady..

We can walk this together then and share our stories...what other type of low income insurance would that be? I am really green with all of this..

Thanks for the website info...will definitely be reading/learning a lot in the next weeks...

Online games might be fun...good suggestion...When most people have their sweaty palms at the top of a roller coaster in the front seat...I just LOVE that feeling in my stomach...right before you drop...LOL...

the last time was a helicopter tour of the Grand Canyon...which I guess I could still do with my neck...just has to warn me to hold on when we do the side to sides...but that moment when you are flying over the trees...and the BOOM....it drops to the canyon floor....AMAZING!!!

Glad I have video and pics to remind me of all those things:)...

I cannot tell you all how much I appreciate and am grateful for this site and those on it:)
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/2/2010 8:48 PM (GMT -7)   
Snowbunny,
As far as health insurance for lower income people (which I've now become) you could first see if you qualify for Medicaid. That's the government program, and it's a combination of federal/state regulations, so each state can be a bit different. I wasn't eligible (yet) for Medicaid in PA, but was for another program offered by BC/BS. I had to send in all kinds of proof of income, and as a matter of fact just got the application to renew in the mail a couple of days ago (only applied 6 months ago!). They really want to make sure your income doesn't go up, but it is limited coverage. Only 4 doctor visits a year, low limits on testing $, but it does cover surgery and hospitalization. No Rx coverage, but through the www.pparx.com program I've been getting a lot of my meds. at no charge from the pharmaceutical companies. A lot of this info. is in the CP101 thread.

What I am getting tired of is having the details of my life scattered all around in everyone's computer in order to prove all this, but I guess it is what it is. I used to be a private person, but it's one thing that you have to let go of.

Don't know if this helps, but it's worth a try. The Rx programs have been particularly great, as there's no way I could afford my meds with out them, although I still pay for generics scripts. But I have learned to call all over the place to compare pricing and there are huge differences if you're paying out of pocket. Most of the time WalMart is the cheapest, and I also use a discount card. I found the prices at the chain drugstores like CVS and Walgreens were like double or triple WalMart's!

Hope this helps a bit. But I also need some good cries now and then.

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 3/2/2010 9:26 PM (GMT -7)   
Hi Snowbunny,
 
I remember the day very well when my gastroenterologist gave me the same speech. But, its ok to cry some about it, but do not dwell on it. Believe it or not, you are already a step ahead in filing for SSD. You are retiring early at your drs recommendations and that is a must to have your drs behind you 500%. If they are not behind a person filing you can be sunk.
 
Your next step will be to call SS and tell them you need to file for SS disability and they will take some info from you and then you will be given a telephone interview on a certain day and time. Whatever you do, don't miss this call. And don't get all worked up over it and get all nervous. It is no big deal. I did and was near tongue tied by the time rolled around for my phone call, lol. I got all worked up for nothing, lol. The interview you will be asked info such as when you stopped working, who your drs are, and they will go over your earning record with you and can tell you if you qualify for SSD. You have to pay in so many quarters to be qualified. Again, its real informal. Also go to SSA.gov they have tons of info there for people needing to file.
 
In CP101 there is info as well. Don't delay in filing your claim. it does take time for things to go though the usual hoops with SS. If you are awarded benefits then you can be entitled to Medicare which is similiar to health insurance. You just have to find drs that are taking patients on Medicare. Medicare has cut drs fees so bad it can be taxing to find good drs willing to take it. But, Medicare does not kick in till 24 months after the approval date so you do not have coverage immediately. I would suggest if you do not have ins now check and see if you can get approved for Medicaid. Just takes a phone call.
 
Remember, you are starting on with a different phase. Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/2/2010 9:40 PM (GMT -7)   
Good evening little Snowbunny! I know for a fact that several members will help you through this. It may be a long process, but you have Dr's on your side, and that will help I'm sure. Stray, and PaLady, are both pretty sharp, and I would follow their lead if they offer. Hang in there! I will be out of it for a few days from my surgery, but hope to check on you as soon as I can.


SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 3/3/2010 5:15 AM (GMT -7)   
Wow..thanks so much PA and Stray for all the great information and support..I will do lots of research on all of those things today!

As well as Screaming to your kind note...even though you are about to have surgery...you are on here helping others...that is so sweet..

You guys are awesome!!

Big Hugs to you all ((( )))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 3/3/2010 9:43 AM (GMT -7)   
 
 
   Dear Snow,
 
     Good morning *hugg* I hope you got a chance ot rest last night. How are your pain levels today? I hope you have a few moments to relax.
 
      I am terribly sorry that you are having to apply for disability. I can tell it is something you have mixed emotions about. But, really, youve endured through so much.. and worked so gosh darned hard.. It will be a big help for you. You ve done everything you possibly could and tryed so very hard that you could use some much needed help.
 
     I cannot offer up any advise as I have never applied myself, but please know you are in our hearts here in New Mexico. Stay strong!
 
*warm huggs*
    dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 3/3/2010 9:52 AM (GMT -7)   
Dani...you are such a sweetheart! You are going through so much yourself but always have time for us on the board and find such inspiring and comforting words..You are a special person!!!

Trying to just chill out today...catch up on American Idol..:)...and take a day off from worrying or thinking about things...I will get started tomorrow on research with a more calm and clear mind...

Again..thanks to everyone for all your suggestions/thoughts and prayers..

HUGS ((( )))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/3/2010 12:43 PM (GMT -7)   
Snowbunny,
Just had to let you know I just read your signature and you gave me a chuckle with the "burp" and "kitchen sink" comments. I bet you could write a nice humorous book about all this - with the snoring pup's help.

Yes, we all need to take some emotional breathing time with these big decisions. I know Straydog has to nudge me along (LOL) as I'm a little (a lot?) sluggish about the whole thing myself. Probably best not to follow my example! :-)

I did read your note to SE re: the cadaver bone and protein you had. I didn't have any cadaver or donor bone, but some mix of synthetic substances that my NS said was "state of the art" but very expensive. He said the hospital had to write it off because insurance didn't pay for it, so I guess it's was probably just off the experimental lines. I have fused well, so I can't complain - except it never helped my pain. :-(

Maybe I have a kitchen sink, too? ;-)

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 3/3/2010 2:34 PM (GMT -7)   
Snowbunny I hope you are having a good day just chillin, sometimes that is what we need, attitude adjustment day, lol. I could use lots of them. It can be draining thinking about filing for SSD but if you are like most of us, it is income that is badly needed. My gi was kind enough to say I needed a medical retirement, as I detest the word disabled. I am not disabled I am limited, lol. Eventually at some point I would have been filing for SS, I just needed it a little earlier than intended. Enjoy your day.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 3/3/2010 2:42 PM (GMT -7)   
PA...glad I could offer a chuckle..I know I try to laugh often each day...love those endorphins!! And so glad to see that your fusion is going so well...that is great that the hospital was able to write off part of that surgery and you were able to get the most advanced care possible!

I think they used both the bone and the BMP for me since it was my 3rd fusion as the other two had failed...so it was a mess in there...LOL...

Stray...yes...the money/healthcare is desperately needed and I really like the term medical retirement! I am sticking with that one now too!:)

I just can't thank you all enough for helping me through this...
I'm having a fun and relaxing tv/computer day...now catching up on Monday nights Damages on FX...boy...that is one exciting show!

Sending hugs to my all my peeps (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 3/3/2010 2:57 PM (GMT -7)   
Just keep your head on straight and you will do fine thru the SSD hoops and above all laugh whenever you can. You have a very good attitude keep it. We are here to help any way we can. At SSA.gov they have an actual tool thingy that helps new people getting ready to file their claim. I forgot to warn you on CP 101, there is some info about SSD from a guy that says he use to work for them. He does offer up some very good points and info but he is not totally correct on everything he has put together for his article. Your best bet is to stick with SSA.gov for correct info.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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