"Tin Man Syndrome"

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merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 3/6/2010 10:40 AM (GMT -6)   
I woke up at 5 am in excuciating pain, maybe the most awful pain I have ever been in in my life a 11 out of a 10!
I felt like a "tin man" not able to move everything was stuck. has this ever happened to you?

It is so awful. I need to get warmed up by a hot shower, but need to wait for my parents to take the kids. maybe I should get the heating blanket out. Its pretty cold in here, as the heat wasnt working right,

It turns out that moving a round helped get unstuck. I had asked hubby to get my meds out of the safe he couldnt do it, so I had to get up and open it myelf. that was frustrating.
time for a lesson on how to open the safe! I am a little bummed out because i had to use one of my 3 alloted oxycodone. that means somewhere else i will have to suffer, 4 oxycodone a day would work out better as I get about 3-4 hours of semi-relief from one tablet.

I am sorry i have been soo needy here lately. I know others need attention too, but man oh man, I can barely move.


thanks melissa
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3123
   Posted 3/6/2010 11:34 AM (GMT -6)   
Melissa!
 
That sounds awful.  I am sorry!  I hope you get some relief real soon.  I am so glad you have your parents close.  Please take care!!!  Let check in and let us know how you are, please.
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/6/2010 1:46 PM (GMT -6)   
Your only allotted so many of your pain medications??? huh? Sorry if this question sounds mean or nosey, I'm just trying to understand your situation.

Huggssss for a better and lower pain time.

Scarred
I live to "Tame My Pain!" 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 11032
   Posted 3/6/2010 2:46 PM (GMT -6)   
Hi Melissa, yes I understand the Tin Man thing, lol. It's rough when you wake up like that. Usually, this only happens if I get cold , but a hot shower generally helps a bunch. I am not understanding what you are saying about the medication. Would you mind being a little more specific on that. I don't know if you are allowed 4 a day or what???
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 3/6/2010 2:57 PM (GMT -6)   
Hi guys,
back from my accupuncture and feel a bit better. I am allowed up to 3 oxycodone a day for breakthru pain. I also wear a fentanyl patch.

So I took one oxycodone at 5 am so to get me thru the day I can only take 2 more. one around now and one in the evening.

leaves a lot of gaps!!


melissa
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 3/6/2010 5:36 PM (GMT -6)   
If your script said 1 tablet every 8 hours as needed that would be a 3 a day allotment.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 3/6/2010 6:11 PM (GMT -6)   
merrygirl ,firstly please don't apologize about being needy because nobody thinks that about you , you've given support freely and generously to all .Its our pleeasure to return that support to you .I'm very sorry to hear your having a tough time with your pain though , perhaps you need an adjustment in your pain meds .I'm glad you logged in later to let us know you felt better ,plese don't ever hesitate we are here to support each other . Anytime at all my friend , I have found friends here at all times of the day and nite .Ihope you continue to feel better and your in my prayers .
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines - Oxycontin , percocet ,  Celelbrex , lasix .


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 3/6/2010 6:25 PM (GMT -6)   
My oxycodone for bt pain is also prescribed up to 3 daily prn. I'm the same way, we get up around 4:45am every morning and if I take my first dose too early it may leave me kinda screwed later in the day if I do too much and need it. I usually try to get moving some & take a couple of tylenol to see if I can get feeling better without it.
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1036
   Posted 3/6/2010 6:36 PM (GMT -6)   
OMG!!!  I felt like I had written this myself today.  I haven't been on here much lately...but I was coming back today because I cannot take it anymore.... I won't hijack your post but I will say that I understand.  I am soooo sorry that you are in so much pain...I wish I could help you.
 
Me.

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen                                                                   

 


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 3/6/2010 8:10 PM (GMT -6)   
thanks so much each of you. mikel thank you, i felt bad about posting so much, but you reminded me that this is what friends are for and what this place is for. thank you.

my rc for oxycodone says take 1 tablet every 4 hours as needed for pain max 3 tablets a day.

uniquelyme,
I am so sorry you feel so bad. I just read your post. your situation totally stinks.
hang in there, we can be miserable together~
I feel worse now.

I tried laying in bed for an hour and I was all locked up again. all rigid an tight, severe pain.

its awful. muscle relaxers are not helping either. I have one oxycodone pill I can take. will take it soon.

thanks for the support and your shoulder,
hugs,
melissa
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


deb in indiana
Regular Member


Date Joined Aug 2005
Total Posts : 387
   Posted 3/6/2010 10:35 PM (GMT -6)   
I feel for you iam that way every day when i wake up its awful.I take my meds as normal but still can't go i go for mri of the lower lumbar Monday and get my leg x rayed there is a big lumb on the right side of my shine bone iam trying to get things taken care of cause i go on medicare 1st of May .Take care Deb

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/6/2010 10:43 PM (GMT -6)   
I am so sorry about the PT pain. I know exactly how you feel. Some mornings you just get so stiff. Maybe it is time to talk to your PM doctor about an extra dose of BT pain meds per day. It sounds like you are living just at the fringe of pain control all of the time. No one should be under such a tight count that an extra early event here or there is no covered.

Good luck and keep us posted.

Stella Marie 

Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atroph;  muscle spasms, muscle pain, neuropathy  & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – an  intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Meds - too many too list or even care about!

 

 



skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2850
   Posted 3/6/2010 11:36 PM (GMT -6)   
Melissa,

I'm hurting too much to write much but I wanted to let you know that you are in my thoughts and prayers. I hope you have a better night tonight!

many hugs,
skeye

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 3/7/2010 6:58 AM (GMT -6)   
Melissa,
I am so very sorry you are going through this! I woke up at 3 this morning feeling quite stiff, but able to go back to sleep and then by 5 this am, I woke back up and I couldn't move! It almost scared me to pieces! So, you go ahead and complain, gripe, cry, scream, throw a fit and get angry! Whatever you need to feel, you have every right to feel. I personally have posted a comment about how I didn't think I could stand any more! Almost every single person came back with such encouragement that really, it made me feel validated. YOU should feel your feelings and I believe most every one of us will wrap our virtual arms around you and hug you softly! Let it out girl, let it out. Oh and as far as your meds go, I take Roxicodone (Oxcodone is the generic) 4 x daily and I don't get a long term med to offset it. I asked but was told no by my dr. I'm going to continue to argue with them about this, but no one should hurt this way when an additional pill or two which is in theraputic levels, can help! Take care and let us know if you get some relief! For that matter let us know if you don't!
Cat(z4)
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 3/7/2010 11:52 AM (GMT -6)   
thanks!

I am not better today. I am really frustrated. the only thing I can t hink of it 1. I skipped physical therapy and 2. stopped cymbalta.

I have missed cymbalta doses plenty of times and this didnt happen.
I cant live like this.
on a good note hubby went to pharmacy and grocery shopping.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few

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