This may take me hours to write but here I go. I know that I haven't been here much, and I do apologize for that. I have been having some issues with my pain for the past week and I don't know how to handle it.
At my last PM appt. in Feb. my Dr. told me that I had Fibro. Also I had a DEXA Scan and I have Osteopenia in my left hip and femur. Anyway, I never in a million years thought I'd be DX'ed with Fibro...Never.
She said that it explains why I am always having muscle spasms, always tensed up, and always have weird pain. This is something I DO NOT NEED right now. She put me on Savella. So far it makes me Super Nauseous and I can't stand that. When I'm throwing up it makes my back and legs hurt 10 times as bad. So I'm not taking it. Then, just in the past week, I have been unable to stand up straight. The last time I had this same pain was right before my first surgery because of a ruptured disc!!! Please,,,No Ruptured Discs....but I'm pretty sure that's what it is.
I walked all hunched over, and that's only for a few feet at a time... the pain in almost unbearable....a 12 out of 10, and that's putting it mildly. lower back feels like someone has beat me with a baton. I have to sit on the bottom of the steps and pull my leg up over my other leg just to put my shoes on....then that makes my back come into contact with the step behind me so hard that I feel like i"m going to pass out from the pain. Then the pain radiates into my right hip then pelvis then leg....all the way into my foot. I seriously cannot handle this. My mom is usually here but she went to the casino for the weekend...so I have no help....well, my teenage son...but he's out with his GF and friends. So, it's just me....I don't want to go to the ER because they just don't treat me very well.(you understand). And my next PM Appt. isn't until next Friday, the 12th.... I have taken all of my Oxy IR's...and the Methadone just doesn't cut it for this kind of pain... I should have called them yesterday but I thought I could make it.
I'm sorry....I just have no one to talk to about this. OH,,and one more thing...I have been peeing on myself. If I have to go then I'd better get there right then...I can't physically hold it at all.... What do you think guys?
I have been a spectator for so long..Now it's time to participate.......
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/ 30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1000 mg. at night..Glipizide 10mg. 2X in the morning
Lantus 35 units at bedtime with Solostar Pen
Wow....this Cauda Equina Syndrome sounds like me to a tee!!! As I said before, this is the EXACT SAME PAIN I felt when I had to have my firts Lamenectomy in 1999....but since I read about this other thing I'm wondering.... I have Spinal Stenosis...that's the reason I had Fusion Surgery several years ago...it didn't help because I have perm/. nerve damage. My next appt. is scheduled for Friday....but I am going to call tomorrow morning. Is this Cauda Thing serious? Does it have a fast onset usually? Does anyone else have any experience with it? I'm kinda scared now..
I'm used to pain....I have pain every day...But THIS PAIN...OMG!! This is so bad....Can't stay on here it hurts to sit here....but I want to thank everyone...I'll let you know what happens.
Wow, thanks everyone.... I hate that you are all so worried about me, but I'm very thankful that I have someone that is. I did call the Dr.'s office today and I'm still waiting for a reply. It might be tomorrow before they call. My appt. is on Friday, so if I have to wait then I have to wait.
I am feeling a but bettet today....though still in terrible pain. It makes me mad at myself....For the longest time I thought the pain was really bad...then this happens and I realize how much worse it can be. Maybe I just need to BUCK UP and deal with it.....Who knows....
I'm just sitting here on the puter, playing Yoville and Mafia Wars and Farmville to pass the time....
I'll let you all know if they call...
Hey Pete....Glad to hear from you... I did call my Dr. and she said that she would have the front Desk call me this morning to get me in early....I had to call them and with their scheduling I decided to keep my regular appt. on Friday....Less of a hassle. I am feeling a but better....not much, but a little bit...Thanks
I am having more pain then ever...I thought it might be a ruptured disc .... My Dr. called me yesterday and the first thing she said was UTI....No!! I know what that feels like...then she said I should go see my PCP....No, its my back not anything else. I got the impression that the nurse didn't tell her everything...so I proceeded to fill her in. Then she said I needed to come in early...But that didn't work out. So, I'll be okay until Friday.
The main reason I stayed with that appt. was so I could see the Head PM Dr. and get my meds changed.... she can't do it unless he's there. So, it is all good.
I'm using a new heating pad but it doesn't help much...just makes me sweat like a pig. So, I lay here....suffering....and waiting.... the story of my life...