Appt. went the new doctor!

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Regular Member

Date Joined Jul 2005
Total Posts : 229
   Posted 3/10/2010 1:03 AM (GMT -6)   
Dear Friends,
I went to see the doctor at the pain management place and I really liked him. So did my husband. I had a good feeling about him when he walked in the door. He was very interested in my problems and had several suggestions for me. First, he didn't want to add any new pills to the 22 that I take a day. He did start me on a titrating dose of Topamax and if I tolerate it well we will do away with the neurontin. (If you remember..increasing the dose of Neurontin put 25 lbs. on me in 2 wks. ) The good thing about the Topamax is that it will be twice daily instead of the three times daily as is the Neurontin. The problem with my arm and shoulder is definately RSD or Complex Regional Pain Syndrome. He would like to inject the shoulder joint with steroids to see if that would calm down the arm some. I have to contact my surgeon first to see how he feels about that and then get back with him to make the appt. He is afraid that I may not be a good candidate for a nerve block for that area since I have had 4 cervical disc surgeries and things would be shaped differently. He would of course do the block under flouroscopy. One downside of this procedure because of where it would have to be done is that it can temporaraly paralyze one side of my throat. That could be a big problem since the right side is permanently paralyzed already.  My luck both sides would be paralyzed and I'd have to end up with a G-tube or something. If all of this didn't work he thought we should think about a spinal stimulator. I pray that we don't get to that point. Anyway, I fell I was certainly blessed today because this new doctor has a genuine interest in trying his best to make me as pain free as possible to make my daily life better. I literally could have hugged him when we left the room as I was a little concerned that if this didn't go well that I didn't know which way I would turn next. Oh, another thought that he had was that if I didn't tolerate the Topamax that I would give the Lyrica another try. He said that the dose I was on was not near enough to have given it an adequate trial and that he would get me up to 300mg per day and see how that went. So again, there is another idea to think about.
I hope each of you have had a better day today and I will pray that you will be able to get some peaceful rest tonight.
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, chronic heacaches and chronic pain.
Find blessings in every day!

Regular Member

Date Joined Feb 2009
Total Posts : 487
   Posted 3/10/2010 1:13 AM (GMT -6)   
Hi Nurse2:

Although I haven't been posting much lately, I have been reading your posts regularly, and you have been in my thoughts and prayers.

It is so good so hear you sounding hopeful, I think this doctor may be the answers to your prayers.

I wish you the best!


White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3602
   Posted 3/10/2010 1:44 AM (GMT -6)   

I have my fingers and toes crossed for you, and all the prayers I can muster, I do hope this Doctor is everything that you want and need and a whole lot more. It is so nice to feel and since the up beat tone in your post! I do hope that you finally get some relief!

I keep you in my prayers nurse2! I want nothing but the very best for you!

White Beard

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 3/10/2010 4:32 AM (GMT -6)   
I'm so glad that you found what seems to be a good match in a PM doc! Someone who is really thinking about options for you - even thinking ahead for "plan b" if his initial changes don't work. I like that in him already!

Great news - and you sure deserved some!


Forum Moderator

Date Joined Feb 2003
Total Posts : 13366
   Posted 3/10/2010 5:11 AM (GMT -6)   
Nurse 2, it sounds like you have hit upon a good dr. Someone interested, understanding that you have a real set of problems to deal with and someone wanting to help you. I am so very happy for you and I know you must be too. I am very fortunate too to have a wonderful PM dr and it is just a shame everyone doesn't have one on their side. The difference is just incredible.

It is time for things to start looking up for you. I know, its horrible to take so many different medications a day,I have many times sat and looked at my list and wondered what I could do away with, but guess what they are all vital to my well being so I am stuck with them. Take care and keep us posted.

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 3/10/2010 6:40 AM (GMT -6)   
Sounds like you may have found a good PM doctor. Keep us posted on how the new med works out.
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3

Veteran Member

Date Joined Dec 2008
Total Posts : 773
   Posted 3/10/2010 7:48 AM (GMT -6)   


I am so glad that you found a good Dr.  It makes all the difference to have a Dr. that is open to finding an answer for us!!

Keep us posted!


Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 3/10/2010 8:29 AM (GMT -6)   
Hi Nurse2,

I'm so glad you were able to connect with your new Dr. I honestly believe that the connection is essential in the care!

Best to you!!

Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 3/10/2010 9:42 AM (GMT -6)   

Isn't it a great feeling when you find a doctor that you can relate with! I always feel like a weight has been lifted off my shoulders when I find someone who will work with me. Looks like he might be a winner.

Good luck and keep us posted.

Stella Marie 

Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atroph;  muscle spasms, muscle pain, neuropathy  & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – an  intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Meds - too many too list or even care about!



Veteran Member

Date Joined Mar 2008
Total Posts : 2976
   Posted 3/10/2010 3:44 PM (GMT -6)   
Hi Nurse2,

I'm so glad to hear that the appointment went well and you like the doctor! That counts for a lot.


Regular Member

Date Joined Jul 2005
Total Posts : 229
   Posted 3/10/2010 8:42 PM (GMT -6)   
I can't wait to talk to the surgeon tomorrow about the idea of having my shoulder injected with steroids. This afternoon my arm was fairly well one minute and then the next it became a deep purple-red and began hurting from my elbow up into my neck. I'll be so glas do get some sort ofhelp as this is really grating on my nerves.
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, bilaterial knee replacements, total left shoulder replacement, years of chronic headaches and chronic pain, asthma.
Find blessings in every day!

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