Dear HW family,
I am hoping some or many of you could help me. As many know, my PM group isn’t the greatest, but let’s put that to the side. My question is simply, how many of you have a pain level of 7-10 every day, 24/7? I have a pretty high tolerance to pain from what I’ve been told by many of the nurses during and after the procedures and surgeries I’ve been through in my life. Then I’ve been reading these posts. Some people talk about what seems almost a reprieve for days at a time! Is that true? A couple of folks have eluded to the fact that if they are going to be in pain, they would rather being doing something more than just laying around. I find that amazing as pain kicks me so hard all the time that just getting up to do a few things is beyond what I can imagine most of the time. I wondered also, how long were those of you who are on a main med with BT meds in pain before the doctor started you on that kind of system? I’ve been on Hydrocodone 10/500 for 5 years and then they went from 4 to 5 pills per day last year. Then last month went from the Hydrocodone to Oxycodone 15mg 4 times a day. I’m on Zanaflex 3 a day and have been for the last 4 years with no change and one of the worst things I deal with is back spasms that scream! The Zanaflex helps, but it doesn’t last nor do the pain meds. So, I just wanted to know if I am some kind of a mutant who is in pain constantly and there is nothing to do but to be in pain or is it just that my pain is not being addressed properly? I want to have a life! I’d like to know what it feels like to be free of pain for a full day! Even an hour at a time! What does that feel like? Or if not free of pain, because it’s called Chronic Pain for a reason! but to have your pain level at a 6 or below? I don’t mean to be complaining, really I don’t, but I am seriously interested in the answers. One last thing; I filled out the pain forms from Chronic Pain 101 and when I showed them to the nurse practitioner she looked at the front, turned it over and looked at the blank back side then gave it back to me without even really taking in all the work I had done on it!
Thanks for taking the time to read this.
Post Edited (skeye) : 3/14/2010 8:10:01 PM (GMT-6)
Two roads diverged in a yellow wood,And sorry I could not travel bothAnd be one traveler, long I stood
* Diaphramatic breathing - breathing exercises to get you mind off of pain.
* Imagery CD's - to redirect your mind from your pain.
KEY - an understand and good Pain Management Specialist. I have been though several to get to where I am today. Am I satisfied with my pain control? Yes - for the 1st time in many years. My specialist is associated with one of the top teaching institions in the country and has lots of experience with a wide range of different types of pain.
Stella Marie Chronic Pain Forum Moderator
Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator). Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces. Med - too many too list or even care about!