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Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/15/2010 2:49 AM (GMT -7)   
Hello Chronic Pain Forum.....
 
How about another general thread on what everyone is doing.
 
Here on the North Coast (the Great Lakes) spring has finally arrived.  Last week was the first week we have had with  temperatures in the 40's and 50's long enough to melt the months worth of snow that had collected.  I noticed by the end of the week the I did not ache as much.   It is amazing how the weather impacts our  pain levels.  I finished a quilt and on Friday, my husband and I took it over to an Amish friend of ours to have it hand quilted.  There is huge Amish settlement about an hour from our home.  It is always a step back in time when we visit her.  All the school houses are one room.  Every school house has a baseball diamond for recess and outhouses.  You have to be careful driving, as buggies and wagons are the main mode of transportation.  My friend is also a quilter.  She has a top of the line sewing machine (Bernina $2500) converted from electricity to treadle.  In our fast paced world, it is nice to take a afternoon out and go back to the basics.
 
Healthwise, I spent the winter in and out of the hospital fighting respitory problems.  Once they take hold they are so hard to get rid off.  That is the one why reason chronic pain suffers can not lay around alot when the are feeling out of sorts.   If you lay down too much - you will not only have pain but also be at risk for major respitory problems.  I think a few days of sunshine and I will have this thing licked once and for all.
 
SO..that's what is happening here....what is happening with you?

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!

 

 



edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/15/2010 5:37 AM (GMT -7)   

Hi,

Here in Phoenix, our spring has arrived as well.  Yesterday it was SUNNY, slightly breezy 69 degrees.....JUST PERFECT.  Our temperatures this coming week are rising and by Friday it will be 80 degrees with lows in the high 50's.  I am praying that we actually have a spring this year and not head into the 90/100's too soon.  We had a cold, rainy winter so my body is going to enjoy the dry, sunny days!

My daughter got married January 29 and my husband and I are having a Reception for her on Friday Evening for 80 people.  My wonderful Sister in law from Colorado is flying in on Wednesday to help me prepare!  Normally I look forward to hosting parties at my home but this last week I've been really tired, so having help is so appreciated!

Thats whats happening here......what happening with you?

XXOO
Patti


cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 3/15/2010 7:51 AM (GMT -7)   
I deleted my other thread as i see it pertains here. Today i had an appointment with my pain management doctor. he was not in a good mood so i didn't press my breathrough pain issues, but that is another thread

i'm going to start water aerobics this month. i also want to try physical therapy. we will see how that goes too. I have a chiropractic adjustment and an hour massage scheduled for this month, that i'm super excited about.

this week was nothing but dr's apptmnts, almost every day, but now it is not. my husband changed shifts from 11 pm to 7 am to 3 pm to 11 pm, not by choice, but i had to change all afternoon appointments and arrange for someone to pick our son up from school, until i get my car back.

other than that, i can't honestly say that i have much planned other than making jewelry and chatting on here. o, and i plan to clean out these haunting corners in my living room as soon as i get some relief from my back pain.

i like this thread.
thank you
27 yrs old-Fibromyalgia; PCOS; Surgery induced Menopause; Classic Migraines with Aura; Neuropathy; Ankylosing Spondylitis w/ narrowing around the spinal cord; Spinal Stenosis of the Cervical & Lumbar Spine; other little things
 
Medications for pain: Oxycontin; Soma **will update when change meds for sleep, etc.
 
Other treatment: Aquatic Therapy (still have to start); Sleep Study (need a sitter)


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 3/15/2010 9:05 AM (GMT -7)   
Morning everyone,

Here in Calgary, AB, it's a balmy 8 degrees celsius and shaping up to be a lovely day. I'm enjoying a relatively pain free day - an easily managed 3 on the pain scale. I've also been getting much better sleep the last few days, so all in all, it's a good day in Pammiland.

I'm still waiting for my long term disability claim to be accepted, and also waiting to hear about some money we're expecting as settlement for a minor car accident we were in, back in November (we were broadsided at low speed on the driver's side and my hubby and I both suffered some minor whiplash).

In the meantime, I'm continuing to work on re-vamping my church's website and doing some other stuff on the computer. I"m comfortable on the couch, I have coffee and water here, so everything is right in my world. This is the kind of moment I'd like to freeze for posterity!

Hope everyone is doing well today - my thoughts, prayers and good wishes to each of you.

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 3/15/2010 11:48 AM (GMT -7)   
Here in Southern CA, the high today in the foothills of the San Gabriel mountains will be 69 degrees, warming up into the 70s for the rest of the week. The lows are still around 50. It's nice and sunny...spring has arrived here too! The birds have been singing loudly in our backyard, and we've been hearing raccoons playing and running across the roof at night (thump, thump), like small elephants.

I'm supposed to be working on a small project due today (!) at my place of employment; I can deliver it online so I can work from home, thankfully. I'm in pain since I stopped using the fentanyl patch last week and don't have anything yet to replace it. I actually fell on Saturday and am bruised (but no broken bones, thank goodness!) so I'm in more pain because of that.

Well, I should start working! I hope everyone has a low-pain day!
((((hugs))))
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/15/2010 12:44 PM (GMT -7)   
Hey from Beautiful Kansas!

Well, as for the weather it hasn't been to bad. Still getting in the 30s at night but the daytime temps warm to a balmy 50 to 60 degress. Flowers are beginning to show their little faces and the grasses are beginning to green up as well. We had a water line burst here last week at my little home and that brought in a big digger as well as a mess in my yard ACK!!

I have heard from my attorney about my appeal with SS. He is gonna call me on the 25th about the letter and heading back to court.

I am so sorry for being a bit out of sorts today. My pain is up because of some recent news that brought MORE stress into my little world. You all know about the recent bloodwork that came back abnormal....well, I went to the doctor today and it seems that I might have Diabetis and he said something too about Hepatitis. The bloodwork musta bothered him cause I went back in for some more bloodwork and since I didn't have any food on my tummy a fasting blood test to see what my clestoral is.

Gosh can the week get any worse?? I mean I think this is enough (if I get diagnoised with any other problems) to make even hubby shy away from me.

God I hate getting older!!!

Hugsss

Scarred
I live to "Tame My Pain!" 


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/15/2010 12:44 PM (GMT -7)   
Hey from Beautiful Kansas!

Well, as for the weather it hasn't been to bad. Still getting in the 30s at night but the daytime temps warm to a balmy 50 to 60 degress. Flowers are beginning to show their little faces and the grasses are beginning to green up as well. We had a water line burst here last week at my little home and that brought in a big digger as well as a mess in my yard ACK!!

I have heard from my attorney about my appeal with SS. He is gonna call me on the 25th about the letter and heading back to court.

I am so sorry for being a bit out of sorts today. My pain is up because of some recent news that brought MORE stress into my little world. You all know about the recent bloodwork that came back abnormal....well, I went to the doctor today and it seems that I might have Diabetis and he said something too about Hepatitis. The bloodwork musta bothered him cause I went back in for some more bloodwork and since I didn't have any food on my tummy a fasting blood test to see what my clestoral is.

Gosh can the week get any worse?? I mean I think this is enough (if I get diagnoised with any other problems) to make even hubby shy away from me.

God I hate getting older!!!

Hugsss

Scarred
I live to "Tame My Pain!" 


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/15/2010 3:26 PM (GMT -7)   
Hello All,

Just checking in. I posted a great deal of information last week so I'll keep this short. Pain is/was much better today (until I helped my step-father find a computer mouse and leaned a little too far). Anyway, I received a really strange blood result from the Endocrinologist today. It turns out my HGH (Human Growth Hormone) has jumped to somewhere in the 180's. This was my goal and we thought that it would take over a year to get there. My initial was a 91 and the next was a 97 so this was totally unexpected. I have a follow-up next week and hope to have positive news then. It's no wonder that I've had so much swelling and other changes in the last few weeks. This explains a lot!!

On another note, I got my referral to a good Reumy today. She only comes to the area once a month for 1/2 day and I'll have to wait until June to get in, but she is the only one (other than a real mess of a Dr about an hour from here). This is really good news since I've needed this referral for so long and have never been able to get one because of the lack of Dr's. I'm excited about having a specialist in an another are of real need!!

Best to you all!
Formerly PrayingForRealRelief...
 
DDD, CHRONIC PAIN SYNDROME, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY, CARPLE TUNNEL SYNDROME, EXTREME IDIOPATHIC HYPOGLYCEMIA FROM AGE 12
 
 
 
 


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 3/15/2010 3:46 PM (GMT -7)   
hi!

ITs been raining here for a few days we have about 9 inches of rain! We are nearly flooded out.
Hubby is on vacation this week. it is also our 9 year wedding anniversary tomorrow!! :)

Pain is a little better this week, but got a head cold. blah. Going on wednesday to get cervical injections. I am a little nervous for some reason.

anyway thats all with me.

hope everyone has a great week.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 3/15/2010 5:41 PM (GMT -7)   
 
 
     GOOooOOoOOood Evening from New Mexico!
 
       The weather here has been odd to say the least, random, short lived snow storms, to bright warm and sunny. All in the same day. So, a little bit of everything!
 
     My bumblebees are home for spring break. It is always so nice to have midd morning breakfeasts and stay in jammies till 10 am. It warms my heart to no end!
 
     My husband and I have cleaned up all our loose ends financially and now we are "shopping" for hotel suites in Florida. We are excited to start this part as it took many months of saving to plann our 2 weeks trip.
 
     As for my physical health, I am having increased diffaculties with mobility. It is rather hard to walk, and only getting worse. I think I need to bit the bullet and talk with my doctors about it (just afraid of what their idea of a solution will be). On a more positive note I had once laffed with my husband that "It is a good thing I have such a horrible memory other wise this health stuff might bumm me out!" hehe so, I suppose noone of it is as bad as it could seem.... I am not looking forward to the barrrage of new doctors I have to meet next week... but, now that I am thinking about it I should find a new book or two for my kindle. It always seems to me the wait for your first appointments take forever.
 
      Thats about all here in my end of woods!
 
*huggs*
   dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/15/2010 7:20 PM (GMT -7)   
Hi all,

It's been a horribly windy, cold, rainy past few days here in New England. I usually am not too negatively effected by weather, but these past few days have been really hard on me. Everything seems out of whack. My eye is bad, which is nothing new, but now my shoulders are really killing me. I haven't done anything out of the ordinary, so the only explanation I have is the weather. They kept me awake all night last night; lying on my side is like torture. My depression has been rearing it's ugly head as well. I just started a new medication, Pristiq, a week ago, but it will take several more weeks before I know if it is helping or not. I sure hope it makes a difference, because it is pretty much the last medication option.

Next week is spring break for me. I can't wait. I could really use the break, although I won't get too much rest, as I have to write a considerable portion of my thesis and work on vet school application stuff for my school's pre-health advisory committee. But at least I'll be home, off campus & get to spend time with my dogs. This time change is killing me.

Thanks for starting this Stella, it's nice to see how everyone is doing. Perhaps we should make this a weekly thing?

hugs to all,
Skeye

bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 3/16/2010 2:59 AM (GMT -7)   
Yesterday, March 15, was my 53 birthday.  My husband had to work but we did go out to eat last night then came home to watch one of our favorite shows "House".  Don't tell my PM but I even had 1 Pina Colada.  It was yummy!
 
My husband did have some bad news though.  I was finally scheduled for rf to be completed on March 22nd but his boss won't ok his vacation day to be with me due to some big inspection at work that whole week.  The next two weeks after that he has an employee on vacation so he can't really take off then so I'm going to try to re-schedule my injection for April 18th.  I was really looking forward to having this done but I also am nervous and want my husband there with me. 
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/16/2010 11:11 AM (GMT -7)   
Thanks everyone for the updates. I hope we here from more members of the Chronic Pain Forum.

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!

 

 



Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/16/2010 6:04 PM (GMT -7)   
Hi Stella!!

And all... I've been a bit swamped with family members. Some just seem to feel the need for drama in their lives but they sure can leave me out!...lol Things are starting to settle down a bit. The new puppy training is moving forward and she's now about knee high instead of a little furball. My daffodils are almost bloomed out as we had an early spring this year. But I'm waiting for the tulips and others to start blooming soon. I have a new flower bed planned. Might take me all summer to get it finished but I will get it done!

Thanks for everyone's story.
Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

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