Ecstatic over pain validation!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23427
   Posted 3/16/2010 5:45 AM (GMT -7)   
Hi everyone!  It's been a long time since I've posted on here.  Mainly because I can't relate to a lot of the people that are on pain meds and need help (I'm allergic to many pain meds so I can't take them), however I do read the posts sometimes.
 
But I thought I would create a post to see if anyone is as weird as I am!  smilewinkgrin   I have been having a lot of lower back pain for the majority of my life.  Went to many doctors but they didn't have any answers for me.  Then the pain increased to encompass my entire back - from the end of my skull to the end of my tailbone.  The progression was slow but painful nonetheless.  I have had EVERY kind of test imaginable but yet doctors couldn't find the cause of my pain other then having two bulging discs in my neck.  That gave me some answers to a couple a things. 
 
So I finally decided to give a chiropractor a go.  He did xrays and validated my pain.  Why, in all these years I thought I HAD every test imaginable but not one single doctor did xrays!  It turns out that my entire spine is messed up.  So FINALLY after having someone tell me that I am NOT crazy and that the pain I am experiencing is very real I am just ecstatic!  Does that make me weird??? LOL
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA (hands and spine)-Tylonel Arthritis, Celebrex, Fibromyalgia (diagnosis pending)
To help Healingwell - click here: DONATE
 
 
 
 
 

 
 


Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 3/16/2010 9:08 AM (GMT -7)   
You would be weird if you didn't get an emotional high from it.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/16/2010 11:06 AM (GMT -7)   
I am glad you found validation. I know chronic pain is invisible. I often get the feeling that not everyone believes we are in the amount of discomfort that we say we are. It is nice when we find a doctor that listens. I hope there is appropriate treatment for your back problems.

Do not stay a stranger. Please keep us posted.

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!

 

 



Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 3/16/2010 12:15 PM (GMT -7)   
I didn't want to have an illness or a lifelong problem with my neck, arm and back, but it was the most relieving thing in the word to hear a doctor validate my pain! I had even been told there was nothing wrong with me at one point! Now they know what I have is very real and very dangerous! So soak in that validation all day, until your fingers get all pruney from soaking and then soak a little more!!! YOU deserve it!!!
Catz4
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23427
   Posted 3/16/2010 12:52 PM (GMT -7)   
I had the feeling that my primary doc was starting to think I was a hypochondriac - not quite sure she believed me. She felt like her hands were tied because all the tests were coming out negative and I can't take hardly any pain meds. I've been to a neurologist, a rheumatologist, a pain management doctor, I've had accupuncture, EMG's, numberous blood tests, MRI's, CT scans but I just find it astonishing and almost ridiculous that not a single xray was taken. Never crossed my mind at the time to be honest.

One visit with the chiro and I found out my neck is poker straight instead of having a curve, my cervical/Thoracic area is bowed out to the right like a scoliosis spine and I have bone spurs and some OA in there, my lumbar spine is a bit to the right and twisted, my right hip and right SI joints is higher then my left and my tailbone is curved to the right. I guess I am a righty!

But thanks for letting me know that I am just not some weirdo who gets tickled over a diagnosis. I guess after suffering for so many years that I am just relieved to finally have answers to my problems that were previously elusive.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA (hands and spine)-Tylonel Arthritis, Celebrex, Fibromyalgia (diagnosis pending)
To help Healingwell - click here: DONATE
 
 
 
 
 

 
 


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/16/2010 2:17 PM (GMT -7)   
Hi and congratulations! I understand completely where you are in this.

Although I do take pain meds and still need help, EVERYONE thought I was just griping and complaining about pain because I was just "needy". Nobody understood until I found my medical team now. The breakthrough moment was when I had gone to yet another Dr...this one an endocrinologist. He asked me all the usual questions and many more (to include MH questions). Then he did a very quick exam, ordered several unusual tests that I had never heard of and BAM, I had the answer that had been eluding me for so many years. I honestly felt elated to have someone believe me! Now I'm being treated for Human Growth Hormone Deficiency and have to admit that I'm having some "good" days. They are not pain free, but I'm at least having some good days now.

Best to you!
Formerly PrayingForRealRelief...
 
DDD, CHRONIC PAIN SYNDROME, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY, CARPLE TUNNEL SYNDROME, EXTREME IDIOPATHIC HYPOGLYCEMIA FROM AGE 12
 
 
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/16/2010 8:00 PM (GMT -7)   
Red,
I have found that just having my SI joint out of alignment alone created numerous problems, although I had a lot more going on. SI joint still comes out, and my PT know how to roll it back in gently. I do tightening exercises for the ligaments, and sometimes wear an SI joint belt - just a small belt to tighten the ligaments for a few weeks. Most docs don't understand a lot of this.

Good luck!

PaLady

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/16/2010 9:35 PM (GMT -7)   
Red,

You have every right to be ecstatic! It is so hard because chronic pain is often such an invisible disease & for those of us without a diagnosis, it makes it even more frustrating. You get to the point where you don't care what is wrong, you just want an answer. Although I remain mostly undiagnosed, I have had a couple small moments like the one you describe. They were not good news, but to me, they were wonderful. They help me to understand and accept my situation & in turn help me to move on. These little discoveries help prove beyond a doubt that something is wrong & that you are not crazy! Enjoy the momentary clarity that this moment brings & focus on it when you are struggling!

hugs,
Skeye

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23427
   Posted 3/17/2010 5:52 AM (GMT -7)   
Yeah, it's not like I WANT this to be wrong with me but just happy to have answers. I kept my complaints fairly quiet because I felt if I let anyone know how much pain I was in that they too would view me as just a whiner. I have a very high pain tolerance so even I knew something wasn't right but I was starting to doubt my sanity.

So I have 30 visits scheduled with the chiro, he then is going to do some more xrays to see if the alignments are helping. If not, he said we will cross that road when we get to it. Btw, I found this chiro guy thru ratemds.com He was given a 5 out of 5 as a good doc. Ratemd's is a good site to go to if you are trying to find a good doctor in your area.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA (hands and spine)-Tylonel Arthritis, Celebrex, Fibromyalgia (diagnosis pending)
To help Healingwell - click here: DONATE
 
 
 
 
 

 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 6:01 AM (GMT -7)
There are a total of 2,735,805 posts in 301,336 threads.
View Active Threads


Who's Online
This forum has 151439 registered members. Please welcome our newest member, owillie.
194 Guest(s), 5 Registered Member(s) are currently online.  Details
Rebel_runner, Loutucky, Dan Embrey, U B Tough, dbwilco


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer