Please welcome 2244CPRS and help with question, please.

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Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/16/2010 11:04 PM (GMT -6)   
Hi 2244CRPS!

I moved your first post where members could find it more easily.

Chutz
~~~~~~~~~~~~~~

I have CRPS has anyone tried Spinal Cord Stimulation SCS? I have done the trail with good results. It was removed yesterday and today my pain level is extremly high and the real surgery will not be done untill May and it will be another 2 weeks before they will turn it on. I am exhasted trying to get back all of the pain fighting behaviors I been using this last year. I have to keep the light at the end of the tunnel in mind to cope.
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


2244CRPS
New Member


Date Joined Mar 2010
Total Posts : 5
   Posted 3/16/2010 11:50 PM (GMT -6)   
Thank you Chutz. I need all of the help I can find. How can I search for post about RSD/CRPS. This is a vicious disorder. Today was always the best day of my life tomorrow was going to be more painful. My SCS trail was the first time I found any relief. Drugs don't work and nerve blocks did nothing. Finding this site is a flashlight in the dark. Thank you again.

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 3/17/2010 4:30 AM (GMT -6)   
Welcome! Yes, I agree...this site is like a flashlight in the dark. Even though everyone has different health issues, we all have pain so we all understand how difficult it is.

Flower

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/17/2010 10:07 AM (GMT -6)   
Hi again!

Near the top of the page is a wide blue bar with lots of links on it. The one on the farthest right is Join Healing Well. Under that is a search button. Click on Custom Google Search and fill is what you want to look for. It's that easy...once you can find the right button. ;-)

Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/17/2010 11:21 PM (GMT -6)   
Welone 224,

I am sorry to hear that you might be in need of a SCS. There is a great thread in the top 25 or 50 postings by BethW called...Neurostimulator Trial. There are several great posting on that thread about experiences people have had with the SCS. After you read that thread, please feel free to ask any questions you might have.

Take care and please keep us posted.

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!

 

 


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