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Veteran Member

Date Joined Oct 2008
Total Posts : 2022
   Posted 3/17/2010 8:50 PM (GMT -6)   
Hello my dear friends
How are all of you doing? I need your udates as I am not able to get on here too much. I hope that will change in the near future.
I came off my Ketamine drip yesterday and the next cycle will be in a week or so. The headaches have been 9-10 the last four days.confused I have had a big disappointment in that my trip to Myrtle Beach has been cancelled due to my heath but also some family in law pressure. I know they love me and care about me but I was really ready to do this trip and was not worried. Anyways will have a rain check for next year from my friends. We hope to do something else while I am off the infusion. I will keep my head up.
Some you are all hanging in there.
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada

Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 3/17/2010 10:15 PM (GMT -6)   
I said prayers for you and was hopeing that those headaches were getting alittle better,
will keep you in my prayers tonight with hopes that you get a low pain day soon...
Thanks for posting your up-date was nice to see you..sure wish you can get a break in the pain cycle soon...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


New Member

Date Joined Mar 2010
Total Posts : 9
   Posted 3/17/2010 11:23 PM (GMT -6)   
i dont know your whole story, but i have tmj as well, so i was drawn to your post.

how long have you had it? Or how long has it caused you so much pain? what do you do for it? mind comes and goes. it will be awful for a year or two, or months, and then it will calm down for a while. of course, i dont eat certain foods, chew gum, etc. but it is the weirdest feeling ever. have you tried cranial sacral therapy for your tmj? I am doing that now, and it is releasing so much of the pressure in my jaw. but it only last for a day or two. better than nothing!!

well, i am sorry to hear about your trip. i hope that you can do something else fun and for yourself in place of it. any info you'd like to share would be greatly absorbed and appreciated. take care!
TMJ, migraines, i dont know what ailment causing my chronic back pain still trying to find out. but i had 25+epidural attmpts and have had chronic back pain ever since. maybe arachnoiditis or CRPS...but i cant say for sure. meds, i have a cabinet full but cant bring myself to take many of them and they dont work anyways so i stick with hydrocodone, neurontin cream and tizanidine.also, med mj for headaches, as it is legal in MT.

Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 3/17/2010 11:36 PM (GMT -6)   
I am sorry you are going to miss your trip. I understand the family pressure part. There have been times where I have been invited to a function and feel that it is something that I can manage, but my family is unsupportive of the idea. Your friends are right, your will have a chance to do it next year.

How are the drips going? You mention you need a series of them, but many will that end up being? Are you noticing any success at all?

I glad to here you are ok and please keep us posted.

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!



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