Could really use advise on pain meds

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patsy123
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 3/19/2010 5:29 AM (GMT -7)   
I'll make this short and sweet.  I have a lot of back and knee issues as well as other issues and have finally found a PM Dr. after my Rymloatoligest retired.  I had an appt. with him yesterday and he want's to put me on a more long term med. instead of the few Vicodine I take per day.  What I would realllllly appreciate is if anyone has every taken the following meds and could give me your input on which med. gave you the most relief.  I have till next week to study up on these meds. and decide which I want to try.  Thank you in advance for in input.  The meds. are Suboxone (I guess they have found that this med works well on controlling pain and not just for withdraw purposes), Fentanyl Patch, or Kadian.  Thanks again.

IsThereAnEnd?
Regular Member


Date Joined Feb 2010
Total Posts : 66
   Posted 3/19/2010 1:42 PM (GMT -7)   
Hi Patsy,
I personally used fentanyl patches for years and they worked very well for me......like all meds, our bodies become tolerant to them and as a result, I had to change meds. But I will say the patches were truly a life saver. They controlled my pain very well - no ups/downs due to the constant release of medication. I started out changes mine every 72 hours - but with time, I had to change them every 48 hours. I hope you find something that will work for you. Welcome to the CP Forum ~ and I hope you have a very tolerable pain day!
Huuuuugggsss!
Cardiomyopathy, Celiac Disease, High Blood Pressure, 2 Failed Fusions @ L4, L5, S1, 2 Failed Fusions @ C7 & C8, Implantible bone growth stimulator cervically, and soon to have Neurostimulation Therapy to treat lumbar area, Chronic Pain Sufferer for 8 years, take several meds daily to survive! Praying for a miracle and fighting through the pain daily ~


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/19/2010 2:36 PM (GMT -7)   
Hello Pasty,
Welcome to the CP Forum.  I sorry you had to seek us out becuase of pain issues that you are having.  I was on the Fentanyl patch too for several years and also had good success with respect to pain control.  The nice thing is that you do not have to worry about swallowing pills.  Because you receive equal dosing around the clock, you prevent most major pain flare-ups before the happen.  If you perspire a lot, they sometimes are a little tricky getting them to stick.  I found using a tegagerm type bandage over them help keep them on longer and prevented water from showers seeping under them.  Like all narcotics, you will build up a tolerance for them over time.  Suboxone is a whole nother beast.  There are a lot of dosing issues with it.  It stays in your blood stream for a long time and you have to be very careful about over-dosing.  Don't quote me, but it is my understanding that when you are on Suboxone, it binds with specific receptors sites - thus interferring with any narcotics you are taking.  I am not sure what you use for break through pain when you are on Suboxone.  I do not have any experience with Kadian, so maybe one of our other posters can help you with that one.
 
I guarantee you that you will feel so much better when you have an appropriate pain control plan.  Best of luck developing a plan that works for you.  Please keep us posted.
 

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!

 

 



flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 3/20/2010 1:18 AM (GMT -7)   
Hi and welcome! I did take Kadian for some time and it did help with pain! I don't have experience with any of the others.

I have read a lot about Suboxone and that it doesn't control pain as well as other medications for many people, but everyone is different. I think that because of the differences, many people go through a period of trial and error with pain medications to find what works best for them.



I'm glad that you'll be getting your pain more under control!

:)

Flower

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/20/2010 4:27 AM (GMT -7)   
Hi Patsy. I would like to welcome you to the forum. I am soory that you are in so much pain. I have been on Kadian 200mg for the past 6 years and it really has been good for me. Of course, what may work for one person, may not work for others. So I would try the one you think is the best and go from there as to what is best for you.

Anyway, just wanted to say hi and welcome you to the family.

Hugs

Scarred
I live to "Tame My Pain!" 


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/20/2010 4:46 AM (GMT -7)   
Hi and welcome.

I have no experience with any of the drugs you were offered except the fentenyl. I didnt find any relief from fentenyl, but many ohters have. I have tried other long controlled release meds and found I could not take them. They are a Godsend to many here, but difficult for others. Again I chime in to say everyone is different and we all respond differently to meds.

Best to you!
Formerly PrayingForRealRelief...
 
DDD, CHRONIC PAIN SYNDROME, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY, CARPLE TUNNEL SYNDROME, EXTREME IDIOPATHIC HYPOGLYCEMIA FROM AGE 12
 
 
 
 


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 3/20/2010 4:51 AM (GMT -7)   
i am on fentanyl patches 50mcg.

They are pretty good. I also started off changing them every 72 hours, but ended up going to every 48. my temp runs high.

anotehr thing about the patches is that you can not apply heat to them. Like no hot tubs, real hot showers etc. It makes the meds secrete faster and it could cause major problems.

I do take oxycodone for bt pain.

good luck
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


patsy123
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 3/20/2010 5:14 AM (GMT -7)   
WOW, thank you everyone for your reply's (I've never felt so welcome)  :)  For those that do use the patch, I was just wondering if  you have to always have one on.  What I mean is if it's time to change the patch and you fell good,  can you go a few day's without putting another one on?  Or, do you have to keep them on at all times?  Once again, THANK YOU SOOOOOO MUCH!!!!!

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/20/2010 1:04 PM (GMT -7)   
Patsy,
Welcome to the CP forum. I'm sorry you have reason to be here, but glad you found the site. One thing to remember is that we're not doctors, and are a great support group for many people. Another thing to keep in mind is that medication is a very individual thing, so what works for one person may not work for another.

What I would say is that jumping from vicodin to fentanyl is a pretty big leap. I'm not saying you don't need it, but usually a lot of other things are tried in between like percocet, oxycodone, or oxycontin. Kadian is closer to the mark. Suboxone has a different set of challenges and I guess I wonder why your doc suggested that at this point.

Again, I'm not a doc and not here to give medical advice, but if it was me I'd want to do some research on credible medical sites and learn about all the meds that way, as well as discuss with my doctor the pros and cons of each. Your pharmacist (not a tech but the head pharmacist) is also a great source of information.

Good luck!

PaLady

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 3/20/2010 5:51 PM (GMT -7)   
Hi Patsy,

Welcome to the CP forum!

I just tried fentanyl patches, 25mcg/hr. I was on them for almost 2 weeks when I realized (with help from people in this forum) that the fentanyl was interfering with my breathing and swallowing! Unfortunately these are a couple of the possible side effects with fentanyl....but not everyone will experience these.

I had to stop the fentanyl right away. I did go through a weak version of the withdrawal, a bit of stomach trouble, and bad dreams so vivid I ended up falling out of bed one morning around 5am!

Now I'm on Dilaudid, 4mg every 6 hours. I'm not taking them all the time though....I don't want to be too dependent on them, but don't know if it's a bad idea to skip doses.

Good luck to you!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


Hello~Kitty
Veteran Member


Date Joined Jun 2005
Total Posts : 610
   Posted 3/21/2010 1:46 AM (GMT -7)   
Us giving you advise on this is all going to be very diffrent from person to person. The patches to me worked at the beginning but wore off too fast and stopped working and making them stay on was quite a mission and was too much trouble for me. Kadian did absoutly nothing for me, actually it made my pain from my chronic pancreatitas worse and made it so I couldnt sleep at all. Suboxone I've had good releif with, but like other have said, I wouldn't jump to Suboxone if all your taking is vicodin, that's way too strong of a medication, although overdoses on it is very rare it can make you feel really yucky, 0.03mg of suboxone equals 10mgs of morphine and suboxone comes in 2mgs and 8mgs, so you can do the math and figure out that it is not a med to mess around with.

But for me, finding pain relief took me 7 years of trial and error, I think I tried everything under the sun for pain several times except Opana and the painpump, and my body loved the Suboxone, my pain went down alot, but alot of people dont find releif with it. But lots of people said they find help with the patches and kadian, but I didnt....also if your expecting surgeries soon then suboxone would be a very bad choice and you cant take other pain meds with it, but some people have said you can.

Suboxone is becoming a number one choice for alot of pain doctors due to benifets it has, like the low risk of people abusing it (of course where their's a will, their's a way), people cant build tolerences to it, and th eside effects are exactly like other pain meds but it's very strong, and they okayed it for people who abuse opioids cause they cant abuse it as easily like methadone, but if taken worng it can make one very miserable...it's attached to alot of rules, so I wouldnt recommend that it be a first choice for anyone, or a 2nd of 3rd unless your desperate like I was for pain releif and you've tried other things, even if your doctor pushes it on you, I would do lots of research. the same goes for the patch, thats very big jump.

but either way, good luck, and dont give up if finding the right med takes a few, or alot, of tries.

-Carmen

Carmen~*~*~Chronic Pain Moderator

DX-Chronic Pain due to two freak car accidents, Pancreatic Divisum,Fibromyalgia, Asthma, Depression w/anxiety, Migraines

Meds- Suboxone 16mg for pain, Cymbalta 60mg, Lyrica 50mg, Imitrex 100mg PRN,Ibprofen 800mg PRN, Ventolin Inhaler PRN, Visteril PRN

 


catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 3/21/2010 9:37 AM (GMT -7)   
Hi Patsy
sorry to meet you under this way but please stick around. you'll find great support here. I was on the fentanyl patch but it really offered no relief. I have a whole drawer full of varying doses, wish I could pass them on to those who they do work for. Currently I am trying to get by on Norco alone but I wish you well. The support you find here will be the best.
Cata
sick and tired of being sick and tired

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