Monday Morning Roll Call

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Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/22/2010 3:17 PM (GMT -7)   
Hello from the Great Lakes:
 
The weather here has been wonderful.  The bluebirds are back and busy looking for places to nest.  If I am lucky, I usually get a family or two in my bird houses.  We are battling our annual sping ant infestation.  What a mess that is.  The minute the weather warms up they find any crevice they can and move inside.  Our two cats are totally ticked of about the antsf, as their sacred food bowls had to be moved to higher ground.  Our one cat is deaf and does not realize how loud she can be.  She had been walking around the kitchen screaming at the top of her lungs because her precious bowl was moved.  What a drama queen.  The older cat (Dolly) just bonks the deaf one (Lilly) on the top of her head with her paw, trying to tell her to "knock it off" already.
 
For some reason my thyroid medicine is all out of whack.  I started having night sweats, facial flushing, high blood pressure, elevated heart rate, and heat intolerance about 6 weeks ago.  I just figured out what is was and saw my doctor.  Now the I have reduced my Sunthroid dose, things are slowly getting back to normal.  If it isn't one thing - then it is something else.
 
So what's going on with YOU!

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!

 

 



Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 3/22/2010 3:32 PM (GMT -7)   
Stella -- I enjoy what people write on this "Monday Roll Call" thread :) I'm glad you figured out it was your thyroid meds... I'm assuming you have hyperthyroidism? I have hypo, and am on Synthroid, too.

You are right, there's ALWAYS something going on here, too. Just par for the course! Today's been one of those days here, too. There's lots I'd "like" to share... but I just am not there yet...

BUT... the weather here is absolutely beautiful (SF Bay Area). Keep in mind...due to my health issues...I'm NOT a hot weather person. But this weather is perfect. Very low 70's; no wind; sun shining. The boys can go out and play until at least 6:30pm or 7pm... which makes bedtime MUCH easier (they are tired!!).

The boys are all well. They are now almost 15 (he cannot wait to get his driving permit!); almost 14; 12; 10; 8 and 6. They are all very good boys.

That's pretty much the "bulk" of my world today. Oh, lots of people I know are having high pain days... my husband (who has psoriasis arthritis); an IRL friend - having low back pain; etc. My pain is it's normal "7-ish" range...but that's good for me.

Ok, that's it for me. Hope you are all doing well today. --Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/22/2010 5:36 PM (GMT -7)   
This weekend was GORGEOUS here. It was in the low 70's on Saturday and Sunday & the daffodils even started to bloom! I spent most of the weekend at work, outdoors. Large animal spring vaccination season is in full swing, so Saturday afternoon was spent out on the farms vaccinating about 50 horses and a few odd dogs & cats. It was so nice to be outside with the sun shinning down on me. Today is a different story though. It barely made it out of the 40's and it rained all day. Gotta love New England weather. It's too bad that the weather didn't stay nice because I'm home on spring break this week -- although I suppose it is just as well because I have a lot of work to do on my thesis and other things.

I finally got all the info today from the neurosurgeon's office for the neurostimulator appeal. I was shocked at the quality of his letter. It was horrible! It didn't say a thing, it's no wonder the insurance company denied the appeal! I'm not sure what I'm going to do about it. I'll wait until my father looks at it. I may ask the doctor's office for a new letter. But either way I think both my father and I are going to include our own letters this time. We also submitted a complaint letter to the insurance company because I wanted to meet with them in person & that never happened & it wasn't really my fault. Probably nothing will come of it, but my insurance agent thought it was a good idea.

I can't wait to see my psychiatrist later this week. I've been really struggling with everything for the past few weeks (both emotionally & physically) & I think it will be good to just talk. I just hope that I'm able to convey what I need to - talking is not easy for me.

Skeye

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 3/22/2010 5:48 PM (GMT -7)   
Took the weekend to relax after having one of my friends come to visit for 12 days!! She was coming for a Dr.s appt. but ended up hanging out for more days than expected..I think she was trying to avoid some issues with her life right now so I didn't say anything and just let her chill and get some needed rest...

But happy to have my place back to myself and the pup:) He was having to stay in my room with me a lot since my friend had the living room sofa bed...

Also..had to actually pick up pain meds..Tramadol..for the doggy today for his hips...What a pair we are!!! Plus they have this huge tub of Glucosamine/Chondroitin chews for him to take twice a day too!

So..a few days of working on disability stuff before I see my mom and take her to Dr.s and grocery shopping on Thursday...at least we will get to enjoy a lunch/movie rental that day too which should be fun..

Ok..Ambien is on board so any posts you see past 9:30pm could be squiggy!!! HAHAHA...

Hugs to all my peeps on HW!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 3/22/2010 6:12 PM (GMT -7)   
having a hard day, neck and headache from my cervical epidurals last wednesday. I have a call into my doctor they will call me in am. I had some hallucinations last night too. very odd.

See my doctor wednesday to talk about lyme. hopefully we will start treating that asap!

hope everyone has a great week.

melissa
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


edt
Veteran Member


Date Joined Dec 2008
Total Posts : 773
   Posted 3/22/2010 8:21 PM (GMT -7)   

Hi All,

It was sunny and 83 here in Phoenix today.

Had my daughters reception on Friday evening, 80+ people, cooked most of the day with alot of help from my sister in law (thank God)!  It was a fun time and turned out to be a great Party.  Saturday morning clean up went quickly but all the work caught up with me in the evening.  Still trying to recuperate! 

Not much else to report here! 

Whats going on with you?

XXOO
Patti


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/22/2010 10:07 PM (GMT -7)   
I can empathize with merrygirl, I to have had epidurals in my neck, the last one I had was the 10th of March, and I had one two weeks before that, the first one did nothing, the second one he threaded the cath further up so he could put the steroid up closer to the problem area. The latest MRI shows nerve root impingement at C-2 on the right side and that is what is causing my head aches. Anyway this last one has helped a little, as it doesn't feel like the back of my head is being pounded with a hammer, but the pain is not totally gone either! Probably my biggest problem lately is that I have been having problems with muscle spasms again, every now and then they will come back, even though I am on baclofen, the last 2 or 3 weeks have been terribe! I wake up in the middle of the night with baseball size knots in the calves of my legs, and I also have been getting them in my biceps when I put my arms above my head to put in my pony tail. I get them everywhere and I have fallen twice last week because of them! I know eventually they will pass as they always do! Anyway I talked to my pain Doctor last week about it, he said he he is afraid to raise my baclofen dosage as I am on 30 mg every eight hours as it is and that is the max oral dose. He wants me to find a neurologist, which I haven't done yet! I have never met a neurologist I have ever liked or trusted! That is one reason I have been putting it off! My weather is pretty much the same as Stella Marie's as I am just a little bit south of her!
And that is my Monday update

White Beard

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 3/23/2010 10:19 AM (GMT -7)   
Good morning everyone!

I had a real up and down day yesterday so didn't post anything, but it's official...my long term disability claim thru my employer has been accepted. They are backdating payment to Feb. 8th, which was the last day of my short term disability...I've been without any income since then, so that was a bonus I wasn't expecting.

I've been asked to provide a follow up to them in May, to let them know if I've received an appointment date for the Orthopedic surgeon regarding my right hip and the problems that were found there in my MRI, but other than that, I don't need to check in with them every month, etc.

I will now be receiving $2450 every month, and my benefit plan for prescriptions, dental, medical, etc. has gone up to the Gold level (better coverage) and my employer takes over paying all the premiums for me...nothing comes out of my pocket now. I only pay 10% of my drug costs now, which is great...I'm on several expensive meds, so it all helps.

I had some emotional issues with this yesterday...accepting that I need to be on long term disability, but I know it's the right thing to do. I slept 4 times yesterday, just from being exhausted and sore. I have been feeling better with the drug regime I'm on, so I think we've found the right dosages, but it's certainly not a cure.

At any rate, everything is set now financially, so one less thing to worry about. Now I can focus on various other things to help myself, like exercising, walking and stretches .

In other news, my mother in law has been staying with us for a short period of time and she's heading back to Ontario soon. I've really enjoyed her company, and I'll be sad when she goes. We've done some shopping and just general browsing and we've talked and talked I get along with her so well and I really love her, so I've sure enjoyed these last few days.

That's it from me...I hope everyone is doing well and experiencing some relief. Happy Spring to everyone!!

hugs,
Pam

turn
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 3/23/2010 7:39 PM (GMT -7)   
It is grea to hear from everyone. How about some of other CP posters, won;t you join us. I is nice to hear how everyone is doind, not just when they are suffering major problems. Let us know what is happening in your part of the world...

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).  Extra fun little toys and gadgets; O2 generator and assorted wheelchairs, walkers, canes, and orthotic braces.  Med - too many too list or even care about!

 

 



Jim1969
Veteran Member


Date Joined Jul 2009
Total Posts : 2042
   Posted 3/23/2010 8:50 PM (GMT -7)   
I have been spending every day this last week when the weather was nice punishing myself big time. (Overdoing it).

I have been working on our camper trying to get it ready for some summer fun. So far I have replaced most of the outside lights, which took 3 days since I had a wiring issue to solve, and got most of the water damage on the inside repaired which meant measuring and cutting new paneling for several sections. So lots of climbing, bending, lifting and all of that good stuff. The good news is that I am almost done with all of the repairs and updates, though I still have to replace the fridge which I am not look forward to doing. The only other two things that I need to do should be pretty easy and quick. Have to install a new water pump and a new propane line and regulator.
2 confirmed herniated lumbar discs. Spinal Arthritis. Spinal Stenosis, diabetic peripheral nueropathy.


arneeb
Veteran Member


Date Joined Nov 2009
Total Posts : 2350
   Posted 3/23/2010 9:38 PM (GMT -7)   
Howdy from the Red River Valley... the land of perpetual flooding... I normally post over on hepatitis forum... but with my jaw pain increasing with spring time here.... thought I'd join in here for this note... the weather change has everyone hurting up here... we're swinging from 29 at night to 50's in the day... and my jaw feels like it is going to fall off. and it is throbbing... and I'm trying to quit popping tylenol like candy.................. but... can't... I have a dry socket that causes chronic pain issues every few months.. and weather changes affect it greatly... and sometimes... I can't focus it hurts so bad....................... and no insurance ... so no help... anywayys... will survive this............ looking to get out in the yard... and put in garden........ soon and these 29 degree nights need to go away................. Sandi

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 3/23/2010 10:18 PM (GMT -7)   
Hi everyone! The weather is gorgeous in Southern CA too! At our house I noticed today that the grapevines are growing new green leaves after being dormant all winter. And our hummingbird is back....

I wish I could be outside for more than just a few minutes at a time, but I'm very sensitive to the sun (due to either Lyme disease or lupus....maybe both).
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 3/24/2010 3:05 PM (GMT -7)   
 
 
   Dear Stella,
 
   Well.. its wednesday.. Sorry for being late!
 
   It is sunny and 70 degs one day and 50 degs the next with rain. So, a little bit of everything here in Beautiful New Mexico!
 
     I have been bogged down with meeting new doctors. So far they are nice, but, all want tests of some sort done and blood. I have been battling some heavy fatigue for a few weeks. My vision fades to black, sounds are far away and I jerk to the ground. Yuck. I had gone so long without this happening, now its happening repeatedly each day mad very frustraiting. It only makes the fatigue and ringing worse to boot.
 
     My doctor would like pictures of my brain as soon as the rheumatologist and ENT are done with their tests. I got the "bone" pictures of my spine and hipps done yesterday. WHich wasnt so bad, except there was a radiologoy student there and as you know 5 views of all 4 sections of spine + hipps took a very long time. But! One spine series down, one more to go, then im done with rheumatologist can move on to ENTs tests.
 
      I will try to logg to stop by as much as possible but, but really between the fatigue, weakness, high pitched ringing in my ears, vision going blurry and weird episodes that leave me on the floor and trying to remember what the heck I was doing.... Its hard to do anything other than sit next to the dryer and try to think. Argh smhair Hopefully my husband wont replace the belt in the dryer any time soon. So far, the dryer and washing machiene are my only reprieve from the ringing.
 
*huggs*
  dani
    
    
 
    

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 

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