In pain and desperate for some help

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New Member

Date Joined Mar 2010
Total Posts : 2
   Posted 3/23/2010 8:43 PM (GMT -6)   
I am looking for some advice from anyone so I can hopefully go into my next PCP appointment with some other ideas. I have been in pretty severe full body pain for over a couple of years. It started around September 2007 with some chest wall pain and a sore "trigger point" right on my upper spine (not my neck, actually on my back). Over the last two years, I developed hip pain, which seems to be "classic sciatica" according to a PhD in Physical Therapy who I have seen, and it's spread to nearly my entire body. I have trigger points that are incredibly sensitive to the tough all over my body. Since I went to the doctor in March 2008 to start the process to figure out what's wrong, I have been diagnosed with Hypothyroidism (I'm on 100 mcg of Synthroid, with normal TSH levels right now), psoriasis, eczema, a heart murmur, and irregular heartbeat with palpitations, TMJ, and chronic ear infections. My PCP has referred me to a Sleep Medicine practitioner for a sleep study (because I have night terrors), who then referred me to a Cardiologist (because the sleep study showed heart rhythm issues), and my PCP then sent me to an Orthopedic and Spine specialist who sent me for Physical Therapy (which did not help). I am in the process of switching PCPs because it seems odd to me that none of these issues are related to one another - when I asked my PCP if they were somehow related, he told me "No, you just have bad luck." Obviously, that is not really a clinical opinion, because I feel like I'm having bad luck without him telling me, and I'm not a physician! Anyway, I am now 35 years old and too young to limp all over the place. The only pain medication I take is a prescription-strength dosage of Aleve (Naproxen) because I truly believe I can get better and don't want to take anything strong until someone figures out what is wrong with me. Has anyone else experienced something like this? I have had people guess Fibromyalgia, lupus, rheumatoid arthritis, lyme disease, osteoarthritis, and some kind soul even said I probably have some kind of cancer. I do have a family history of autoimmune disorders (lupus and rheumatoid arthritis are two, plus I'm not the only family member with Hypothyroidism). I go to my new PCP in mid-April, and am just looking for some kind of advice, in the meantime. I sometimes rate my pain nearly at a 9 and I have given birth to two children, so I am truly not exaggerating. I still go to work daily, and just suffer through it, but end up crying at night many times :-( I feel the MOST pain at night, and have some slight improvements with massive amounts of sleep (like 12-14 hours, which is clearly nearly impossibly to ever get since I work full-time and also have two children). Please help!!! I have even contemplated going to the ER, but have no desire to #1-contribute to unnecessary ER visits (that's already a big enough problem for the healthcare industry) and, #2-I recognize the value of coordinating my care through a good PCP so I'm trying to wait it out. I also don't know what all of the tests are that my former PCP conducted, because he didn't share test information with me (he drew blood twice though). THANK YOU if you can help, give advice, or just commiserate!

Regular Member

Date Joined Mar 2010
Total Posts : 132
   Posted 3/23/2010 8:54 PM (GMT -6)   
Yikes! I'm sorry that all of that is going on. Hopefully, your new PCP will be able to address your concerns better than your old doctor.

I'm not sure how much I can help, but... I'll try. Ask your new PCP's office to request your records from your old PCP, and ask if the new PCP could review your file before the appointment in mid-April. Tell the new office all of your other doctors so that they can get those records, as well. Also, as you think of questions or concerns, write them down and bring the whole list with you to your appointment.

I'm not sure what else to tell you. I'm new here, myself.
DDD (4 levels- L2-3 thru L5-S1)

New Member

Date Joined Mar 2010
Total Posts : 2
   Posted 3/23/2010 9:01 PM (GMT -6)   
Thank you, BethW. I did submit the medical records release request last month so I'm VERY hopeful the new PCP will look at them ahead of time. I am switching from Family Medicine to Internal Medicine, because I am also hopeful an Internist can help identify more "whole body" or systemic issues while my former Family Med practitioner seemed fine with acute conditions/illnesses. It feels weird switching since I've seen the other doctor for 8 years, but I just need someone different to review everything. Thanks again for posting and I hope you are doing okay, yourself!

Regular Member

Date Joined Mar 2010
Total Posts : 74
   Posted 3/24/2010 3:24 AM (GMT -6)   
Hi Buckeyegirl! So sorry to hear u have all this going on. I was interested to read u have psoriasis and back pain. I've had psoriasis for 10yrs and started with back pain 4 1/2yrs ago. It turns out that was the begining of the Psoriatic Arthritis that I was diagnosed with last August after it spreading throughout my body. Might be worth u looking into hun but on the other hand I could be way off the mark. XXX
Arthritis, GORD, IBS, PCOS, Neurosarcoid, Hypothyroidism, psoriasis, mental health issues, BIH, high blood pressure and high cholesterol. . . Methotrexate injections, folic acid, Prednisolone, Alendronic Acid, Adcal D3, Morphine, Lansoprazole, Domperidone, Norethisterone, Metformin, Levothyroxine, Amitriptyline, Sertraline/lustral/Zoloft, buspirone/buspar, Carbamazapine/Tegratol, Risperidone/Risperdal, Melatonin, Lisinopril, Atorvastatin ". . . but hey, Tomorrow is another day!" :-)

Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 3/24/2010 6:27 AM (GMT -6)   
First off I'd like to welcome you to the forum.  Sorry you've had to come here under the circumstances but hopefully we can help some.  By your name I'm wondering if you are from Ohio?  I am so the Buckeye thing is familiar to me.
Have you ever had blood work completed to rule out any auto-immune diseases?  I would think that with your symptoms and family history that would have been the first thing your pcp would have tried.  If not that would be my first step.  The only way to get a dx of fibromyalgia is to rule out everything else first.
Next would be to start a pain journal to take with you to your first appt. with the new PCP.  This would help give your new doctor an idea of your true pain levels and maybe anything imparticular that may be setting it off.  Also, write down any questions or points you want to remember.  Sometimes it is easy to forget things when you are in the docs office.
Did the ortho doc do any kind of testing before sending you to PT?  If he did could you let us know what the results were?  This may help us give any suggestions that may help.  There are alot of us here with chronic back pain and we all find different things that help.
One thing you have to realize is that we are not doctors but can give suggestions that may help.  Everyone is different so what helps one person may not work on another but if you've been reading any of the posts I'm sure you have figured that out.
One thing I may suggest is that you are using Aleve to help with your pain.  I myself find that Aleve and other nsaids such as ibuprophen do nothing for me.  Tylenol on the other hand does.  You just need to be careful not to overdo either due to either stomach upset or kidney problems.  A rice bag heated in the microwave makes a good moist heat pad which is the best kind of heat for pain.  They are easy to make, cheap and alot of us here use them.
Good Luck and keep us posted.  I'm sure there will be others along to give you more ideas.
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3

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