Double Topic in One.....Up at 2:am and.....Mental Health!

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Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/24/2010 1:18 AM (GMT -7)   
I've decided, after thinking about this for a while, that maybe I ought to do a double topic. Two reasons, really; 1. Its easier for me.  And 2. I don't wish to take up to much of my friends time on my petty, stupid problems.  So This is a rant.....and I am gonna rant LOL!  Most of you recall that my supposed mental health has been in question for the past year or so and that I have been seeing a Pain Psychologist for some of these problems.  I really thought we had finally hit the end of this whole mess and that I would be getting the SCS trial very very soon.  Yesterday I recieved a phone call from the receptionist of the other psychologist that had initially decided that I needed to see a Pain Psychologist for a year to get some things worked out.  Now don't get me wrong, I am very, very grateful for everything that my Pain Psychologist and the one that did the initial eval for my SCS.  What both have done for me has been a total 180 in my thinking and how I am able to handle daily stress and the all around daily life as a CP patient.
 
Anyway, the receptionist told me that my Pain doctor....by the way, I haven't ever seen the main pain doctor in the PCP group where I am a patient.  I always see his PA.  She is the one who relays the big things on to Doc and then HE decides what is best course of action.  He was the one who, a year ago, sent a nasty letter to WC and got them to get me the 4th Eval for the SCS in the first place.  Okay so this gal caught me off guard and said that I was refered from Doc to see the other doc (sorry if this sounds confusing) and instead of saying "Vickie we have a request from your pain doctor to do another SCS Psychological Evaluation." She made it sound like I was now getting the actual TRIAL!  But, the more she talked  and used words like "tests" I realised that I was now going backwards in time and an appointment for a Psychological Evaluation for the SCS was in the works.
 
Now....my little brain I guess is too small to wrap around this fact, but why in the heck are we doing ANOTHER evaluation???  What features of these stupid and brain numbing psych tests do they think will change from the last ones???  I don't know how to pass this stupid test and apparently, though they tell me "there is no right or wrong answer" there IS!!  UGGGGGGGG!!!
 
Okay now to get to my current problem.  It's 3:09 am and I am up thinking about all of this noise that is going on and wondering of because when we began this Pain Psychologist a full year ago that my Insurance and not WC was billed for this and Wyoming Worker's Compensation cannot get or even ask for access (well I suppose they could ask.....but they are going to get a HELL NOO answer) to my pain psych's notes or what we even spoke of; that WC is decided to be a pain in my side and get another eval. 
 
Oh Lord keep me sane until the 13th!!!!!  That's when I see Doc, not his PA for the SCS trial. Or at least it is to be hoped.  My SCS Eval. is the 31st.  Hubby is really ticked off about this whole thing and says that even an animal wouldn't be left in this much pain.  I feel like I am at the end of my rope my friends......I just don't know how much more of these new diagnosises I can take or how many more stupid hoops I must jump through!!!!
 
Sorry this has been so long my dear friends.  I had to talk to someone and hubby is not being very helpful as far as a shoulder to lean on.
 
huggggs
 
Scarred
I live to "Tame My Pain!" 


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 3/24/2010 4:32 AM (GMT -7)   
Aww..Scarred...So sorry to hear about all the stuff going on..I'm sure that is very discouraging and frustrating!!!

I don't know much about the SCS trial and such so I am just sending you some REALLY big hugs right now (( )) and that I am thinking and praying for you...

I don't want to do anything political here but just read some more details about new health care law and it actually says that new laws are going into place for Insurance Denials and coverage...that companies WILL NOT be allowed to just keep denying or stalling for surgeries/tests, etc...This is a fantastic thing for lot's of us!

So...maybe this will push some things forward for you..I sure hope so..

Hope you are able to get a bit of sleep...I know it's hard but that is so crucial to help you deal with all these issues in the light of day....

Take care sweety!!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/24/2010 6:32 AM (GMT -7)   
Scarred

Admittedly I do not know much about these SCS evals and all! But this is not a pain pump or anything like that right? This is just an implanted TENS unit more or less am I right about that? If I am right about what I just wrote, Then pray tell why are they giving you the run around like they are? Something just doesn't sound right about the way they are treating you! I think your husband is right to be ticked off! Heck I am ticked off, just from reading your post, I think they are giving you the run around! Or I am missing something, and just don't understand! But honestly my pain doc gave me all the stuff on possibly getting an SCS and in the end I decided against it, and my Pain Doc agreed! But I just can't understand why you should have to jump through so many hoops for this! As I said it is not like they are giving you some exoctic, super, duper, pain medication, or anything! And all you want out of this is Pain Relief!
I wish you well Scarred! and I do hope this all works out well for YOU!

White Beard

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 3/24/2010 9:24 AM (GMT -7)   
Let me explain WB. This is the Spinal Cord Stim trial that I am trying really hard to get. Unlike a few others on here I don't seem to answer the right questions on the Psych eval for this thing and have been trying to get to at least try the stim for the last 6 years. This will be my 5th Evaluation for the thing and I am about to say to heck with it and just give up. Very hard to keep the faith on things when you keep hitting brick walls.

Hugsss

Scarred

P.S.: Snowbunny; thanks hun. Nope didn't get but another 30 min of sleep in my recliner. Crying fits today and I feel just lost
I live to "Tame My Pain!" 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/24/2010 1:25 PM (GMT -7)   
Scarred,
I'm wondering if this is a "re-evaluation" to see if the therapy with the pain psych. has helped. What I'd suggest is to both ask your attorney about it and possibly call your pain psychologist and see what he thinks this is all about. If it's just that his reports didn't get to where they should be (not uncommon), you can talk with him about how to make sure that happens. He also may be able to write a letter (if he hasn't already) stating clearly he thinks you're ready for the trial, and your attorney should be able to use that to override any test you may be required to take.

If it's the MMPI (a long test that takes a few hours and has a few hundred questions) there are no "right" answers per se, and if you're anxious about trying to figure out what to answer the anxiety will likely show. Best you can do it relax and go into it and answer from a relaxed place inside you rather than an anxious one. The MMPI is likely now computer scored, and it will produce various graphs...it's a complicated thing, BUT the interpretation of those graphs by the therapist is what's key, and the pain psych. you saw should be able to get a copy of the test results (the raw data - your answers) and do his own interpretation. Maybe the pain psychologist could administer it to you, since he's seen you, but WC likely has their own hired hands they want to do this.

Use your attorney and pain psychologist. This is just more WC baloney. It's a shame what they're putting you through because they don't want to pay for the stim. They're afraid the trial might work and they'd have to pay for the unit. So in the meantime they pay for all this other junk. Go figure.

Take care, lady, and use all the relaxation techniques you've learned!

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 3/24/2010 4:14 PM (GMT -7)   
 
 
   Dear Scarred,
 
     I am terribly sorry they are doing this to you again. I really hope this is the last time they ask you to go through a battery of tests and evaluations. More so, I hope you get a moment or two of rest. The stress must be a tremendous burdon right now. I am so sorry they are doing this to you.
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 3/24/2010 11:04 PM (GMT -7)   
Hi Scarred,

It's now 2 am here & I'm up too! I'm sorry to hear that you have to jump through more hoops for the SCS. Is the psych eval something that is required by the doctor or by your insurance company/workers comp? Frankly, other than on HW, I've never heard of a psych eval being needed for an SCS. I know I wasn't required to complete one before my trial. The doctor never mentioned it and I never asked.

I know that you are worried about passing the psych eval because you failed it before, but honestly, I don't think you need to worry. You've been in therapy for over a year now & you have a realistic belief about how the SCS will help you. You know that it won't be a miracle cure, you know that you'll still most likely have to remain on medications. With a realistic attitude, I don't see how they can fail you. Just be honest with the evaluator. You need to go into this with a positive attitude. It's just another hurdle you have to overcome. Have a little faith in yourself. You'll do it.

hugs,
Skeye

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 3/24/2010 11:38 PM (GMT -7)   
Hi Scarred:

I had a nervous breakdown (due to pain level) just weeks before my permanent SCS was implanted, and for that reason only I was asked to see my PM's staff psychologist. The only thing they were looking for was to make sure that I did not have any unrealistic expectations from the SCS. At the time, my PM told me he liked to know patients for a year before even suggesting the SCS, but I had only been seeing him for 6 months. He told me himself that he felt comfortable going forward because he knew the breakdown was completely pain related, and he knew I had a good support system at home, and I didn't have any unrealistic expectations of the SCS such as thinking that it was going to take away all of my pain and I'd never have to take pain medication for the rest of my life.

If this is your doctors doing, and it is not your insurance company that is making you jump through these hoops, I think it's time to find a new doctor. This is all absolutely rediculous.

I wish you the best!

Lorie

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 3/26/2010 8:57 AM (GMT -7)   
I would say that the MMPI is used for several things, including fitness for military duty. It is just a measurement, like do you see dead people, type of questions. Second I would feel most comfortable with someone who has done more then 250 evals as a reviewer.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13481
   Posted 3/26/2010 1:29 PM (GMT -7)   
I am wonddering too if this is a re-eval since you have completed all of the other things. Oh, the mess you have been put through. It is interesting that you had to file this on your health insurance. Makes me think along the lines of let your private ins pay for the SCS and let them fight the out of state comp carrier for reimbursement. At least if you did it that way you could get the unit provided they ok it. Its a thought anyway. Good luck.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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