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pete81241
Regular Member


Date Joined Mar 2010
Total Posts : 73
   Posted 3/26/2010 10:15 AM (GMT -7)   
hi everyone ...
i spend a lot of time on pain forums giving advice to others because im so experienced fighting pain.
i'll try to make it brief. i had gland problem 50 yrs ago and bones grew too much. all kinds of pressure on spinal nerves plus lots of arthritis. i've been in wheelchair last ten years. i have pain everywhere and over the last 5 days i've been fighting a virus so pain is worse. anyway i guess i just need to scream a little and ask for a bit of support....thanks....pete

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 3/26/2010 11:51 AM (GMT -7)   
Hi Pete and welcome to Healing Well's chronic pain forum. I am very glad that you found us and I hope that you will hang out with us here at the forum. Suffering as you have I feel certain that you have much to offer others that suffer with this crazy stuff. I hope that you will find this forum to be what you need. This forum has a great group of people.
 
I am very sorry to hear that you have been putting up with a virus on top of everything else. Seems like when we get hit with those nasty virus' it just magnifies everything else. There has been so many different ones going around it is almost like trying to dodge bullets. Hopefully with you this far in to it, things will start getting better for you. So just scream away, you have found a good place to come to and vent away.
 
I am having some leg issues I am dealing with that involve a lot of swelling and pain so now I am having to limit my time sitting here at the desk with my legs hanging down. I just wanted to pop on and tell you welcome aboard. I am sure others will pop on and tell you hello and intro themselves to you. Take care and please let us know how you are doing.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


pete81241
Regular Member


Date Joined Mar 2010
Total Posts : 73
   Posted 3/26/2010 12:33 PM (GMT -7)   
HI STRAYDOG
i looked at your situation and can see you and i are real veterans at this pain problem situation.
thanks for the welcome. i feel a bit better now. at least i can move around a bit.
i have read several posts here on the forum and the people here seem very supportive. i think i will like this site. you and i know the importance of making a connection between fellow sufferers. if you can give someone else a little cheer it takes your mind off the nagging pain.
i see you have a pain pump. my pm dr just told me i am not a candidate because it can affect hormones and the delivery system can cause some kind of dangerous build up at the end of the nozzle. how has it worked for you?....pete

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/26/2010 1:04 PM (GMT -7)   
Hi, Pete,
I also wanted to add my welcome to the chronic pain forum, although I'm sorry to read of your situation. You sure must have a lot of experience dealing with pain - both emotional and physical, although that's not a badge any of us wants to earn in life.

I'm glad you found us, too. I haven't been posting as much as I used to for a variety of reasons, so I apologize for not catching your post sooner. You're definitely right the support is crucial for all of us.

Again, welcome!

PaLady

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 3/26/2010 1:15 PM (GMT -7)   
Hi Pete,
 
I am a little confused at what your dr is telling you about pumps. But, I will tell you this if a dr is not knowledgable about pumps 500% then they are failures for the patient. Not only must they know these pumps but they must be as educated in medications as a pharmacist. I have been on the wrong end of the stick with a PM dr that did not know either of these things and I paid a high price for his lack of knowledge. I am not trying to be sarcastic or anything like that, but your dr just does not know much about pumps and many don't, even the ones that say they do, lol.
 
I have no clue about the hormone thing your dr is speaking of. I do know men as well as women have pumps and have some quality of life because of the pump. People can develop what is called a granuloma at the tip of the catheter. This is a very serious problem and if this happens the pump must come out immediately, and the chances of ever having a pump again are pretty slim. The studies have shown that people that develop these granulomas are generally caused by using the wrong medications in the pump or they are on very high doses of medication. With the pump the patient actually receives less medication than what they were on orally. This is why it is so important that a dr knows these pumps like the back of his/her hand. I now have a dr that fits that bill and she does her own compound mixing there in her office.
 
Having a pump comes with its own set of drawback just like anything else. Would I do it again, you bet. I have a life now, I didn't have much of one a little over a year ago. Sad part is I have had my pump since 05 and just in the last year that it is being used as it as designed.  I do plan on having another pump put in when my battery is ready to be replaced. I cannot imagine trying to exist like I did before, actually, I am not sure I could. Another big factor with pumps is, trying to find another dr to take over your care is nearly impossible but it is doable. I am guessing it is liability issues as to why other PM dr won't take a pump patient on. But, if someone were to ask me I will tell them the pump is the best thing there is for pain control.
 
Glad to hear you are feeling somehwat better with the virus. Gawd, those things are just awful. Take care and keep posting.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


pete81241
Regular Member


Date Joined Mar 2010
Total Posts : 73
   Posted 3/26/2010 1:47 PM (GMT -7)   
thanks for greeting me PALADY.
the emotional part is the most difficult. i try telling myself that today is the best day of the rest of my life. when pain keeps nagging at you it sometimes helps to put your upcoming day in proper perspective.if you can convince yourself of that it will end up as a good day. of course my good day would be someone elses terrible day. its all so relative.
anyway palady thanks for contributing to making my day better....pete

pete81241
Regular Member


Date Joined Mar 2010
Total Posts : 73
   Posted 3/26/2010 2:02 PM (GMT -7)   
hi straydog....
thanks for the info on pain pump. youve taught me more in five minute than i learned at my drs appointment.. i read a little about the granulomas and found out they can affect 3% of the people that have the pump.
the pain pump is my last hope as the scs never helped me.
meanwhile ive taken some dilaudid and tylenol and things feel a bit better. this day wont be so bad after all.

have a great day....pete
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