Update on Masters Test, Endo Visit, and Family

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Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/27/2010 6:11 AM (GMT -7)   
rolleyes  Hello Everyone,
 
I don't exactly know where to begin.  This week has been insane!!  First, I'd like to thank you all for your well wishes on my comprehensive exam.  I did go by myself (very challenging) to take the test.  I left on Tuesday and took the test on Wednesday.  Although it was only 2 1/2 hours to drive each way, it would have been too much for me otherwise.  Thank God I had a hotel across the street from the exam room.  They let me type for one hour and I had less than 30 seconds for review.  I knew the material, but that doesn't mean that I didn't screw up and interchange the words qualitativie and quantitative during my hurried typing and stressed mind time.  Wish me luck with the results.  It could be several weeks before they decide if I passed or failed.
 
On Thursday, I went back to my endocrinologist (about an hour each way) and he gave me the news about the growth hormone treatment.  Apparently there are other hormone issues too, but we're hoping they will resolve over the next few months.  Cushings has been ruled out now because all of the symptoms are secondary to the Growth Hormone Deficiency.  Shots everyday forever, but I'm glad to do it if it brings my mind back.  He also asked about the extreme vitamin D doses my PCP gave me and I told him I had elected to take the smaller doses every day.  I now have to take the strong ones, but for 8 weeks rather than 12 as was written.  He also had them up the torsamide (for water and BP) to double what was prescribed because the swelling is so bad. He also added  600 mg calcium twice a day and 1000 mg vitamin D after the 8 weeks of 50,000 units one a week.  This will also apparently be forever.  We then discussed these blasted hands and he definitely wants me to go to the Reumy for those.  Says it's likely both osteo and reumitoid arthrits (sp? on all).  This will be at lest 4 months before I can get in.  So he added voltaren gel for the knuckles, but I have to clear that with PM on Monday.
 
I did do the family party last night, but not the one on Monday.  It was insane with aunts bring laptops for me to work on and children begging for each other to go play.  Almost all of the children ended up at my mother's for last night and today's Easter Egg Hunt....so I'm out of that too....YEA!!!  I do worry about Mother though, since she just found out that she has to have a consult with a ortho on Tuesday to possibly do knee surgery and my step-father has a prostate text for very high PSA on Monday.  Drama, Drama, Drama!!!!!!!!!!!!!  I just hope they will both be OK to travel in May because they have a Hawaiin trip set that they are both looking so forward to.  They are even taking my little girl to entertain and possibly one of my sister's children.
 
I will do my best to keep up and give some words of encouragement over the next week, but I may still be overwhelmed.  Keep me in you thoughts and prayers for my PM apt on Monday (since I'm scared of what is going to happen next).  I'm sure he's not going to be happy that I had to break down and buy a cane this weekend to be able to walk about without falling.  I don't need it everyday, but I do need it for anything that takes much walking at a time....malls, small festivals and things like that.
 
Just a few more hurdles!!!!!!! 
 
My best to all of you!
Formerly PrayingForRealRelief...
 
DDD, CHRONIC PAIN SYNDROME, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY, CARPLE TUNNEL SYNDROME, EXTREME IDIOPATHIC HYPOGLYCEMIA FROM AGE 12
 
 
 
 


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 3/27/2010 7:00 AM (GMT -7)   
It's good to hear from you and get an update on what you've been up to and going thru. Continued prayers for everything to work out the way you want, and especially for the results of your tests. I'm sure you've aced them, but the stress of waiting for the results can be sooooo hard to handle.

Keep smiling, and I hope the Spring sunshine is smiling back at you!

Hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/27/2010 2:12 PM (GMT -7)   
Retired,
So glad you got through the exam. You did your best - just remember that. It's all any of us can do. And sometimes there are things that we can do the way we used to, and a lot of times we have to accept that we can't. I hope this will be one of the things you "can" do, and that you pass, but even if you don't it's not the end of the world. Just remember you did your best!

Good luck with everything else on your plate. I hope you get some time to relax for yourself - you've earned it.

PaLady

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 3/27/2010 6:15 PM (GMT -7)   
 
 
   Dear Retired,
 
      Good evening *hugg* It is good to hear from you. I am so glad the test is over! I am sure you did great. How fortunate there was hotel so close by. I bet that made things much easier.
 
     hey! I didnt know you took Drisdol too :-)  I think what I like the most is having a healthy glow and shiny hair. I have to take it rest of my life too. I told my endo I didnt mind taking the Vitamine D2 but sure would be nice if he moved closer to my house!
 
     I am sorry your Mother and Father are facing such diffacult health problems, but, Oh how nice to have all the family together for early Easter celebration! That is fantastic. Now, if they need anyone else to go to hawaii with them you be sure to give them my number! hehe
 
     You know I wouldnt worry so much about buying a cane. I think your PM should know mobility is so tremdously hard for you. Maybe there is some way to help? I hope the voltren gel works for your hands, I have heard good things about it, and hope it can help you too.
 
     I wont chatt away, but I sure hope your appointment Monday goes well. Stay strong!
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/27/2010 9:31 PM (GMT -7)   
retiredmom

Why would your PM mind if your using a cane? Would he mind if one of his patients was wearing glasses or using a hearing aid? You know there is actually very little difference! If using a cane helps you with your balance, then use it as much as you feel you need to! There is no shame in using a cane, it is just another tool that we can use to help us over come some difficulty or problem that we have! The same as wearing glasses, or using a hearing aid! If you have difficulty walking, and it does not make any difference how far or where you are at, if you have difficulty with it then use your cane as much and as often as you need it! I use a cane and I have it with me everywhere I go! I find it a very usefull tool. it not only helps me walk, but also when sitting it helpd me get up from a chair, and when standing it helps me as I lean forward and to the right ant it helps hold me up! I find it a very useful tool,. Anyway, if it helps you, then that is great, and I would use as often as you need to!

Good Luck to You!

White Beard

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/28/2010 4:17 AM (GMT -7)   
Thank you all for taking the time to respond. I guess it must have been pretty obvious that I have been a little pensive about the cane thing for a while. Whitebeard, you really hit the nail on the head. I should have thought of it that way instead of being so concerned about what others will say. I actually started wearing "reading" glasses last year and they are now the only way I can read much at all.

I guess I just worry that people will think I'm "putting on" like they always have. It seems like the only time people believe you is when they see you fall or when they are actually a witness to something. Other than that, I put on my makeup and jewelry and some decent clothes (despite that they have to be maternity now because my back cannot stand the pressure of regular clothing).....I just cover the pants with a nice top and go on. It amazes me that people stare so when I get out of the car (if I use my placard). The limp and drag of the leg (after about two minutes) should give it away, but no.....I get the constant stares and "who does she think she is?" looks. As I mentioned in an earlier post, I even got "run out" of a handicaped changing room the other day because the needed it for someone who was "really disabled". That really hurt!!! It takes a lot to get ready to leave the house and sometimes just walking into the store exhausts me. I'm sure you all understand what I mean because you live it too.

I've been scared I would get the same type of reaction to the cane.....look at her trying to get attention (even from the doctors). I don't want attention, I want this to go away and give me some peace. I want to walk normal again. I want to loose the ton of weight I've gained since my fusion. I want to go play with my child. I want to go to a store and just enjoy looking....like I used to. Part of my OCPD is covering up my flaws and keeping them hidden. I only let people see what I want them to see and I'm finding that my one year anaversary of fusion on Friday was very upsetting to me. I still can't pretend it away and the pain is always there. Am I better than I was a year ago....yes...am I well or will I ever be well...NO! I'm in the middle and I'm scared.

Again, thank you all for listening.
Formerly PrayingForRealRelief...
 
DDD, CHRONIC PAIN SYNDROME, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY, CARPLE TUNNEL SYNDROME, EXTREME IDIOPATHIC HYPOGLYCEMIA FROM AGE 12
 
 
 
 


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 3/28/2010 10:21 AM (GMT -7)   
Good Luck . you are in my prayers.
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis ,gerd,gastric ulcer,gastroparesis..gallbladder removal 3/23/10.
 
meds,ambien, prilosec otc,lortab ,reglan,flonase and  trazodone.

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