All about me...of course

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uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 3/29/2010 2:20 PM (GMT -7)   
Well now....I just want to apologize to all of my friends here for my not being here very much.  I seem to have a bad habit of hibernating when things get a bit too much for me.  So, I am sorry.
 
Most of you have read about the MRI results so I won't go into that.  But I will say that I'm not surprised that it came out so badly...I was having some horrible pain so I knew something wasn't right.
 
What I am worried about is what can really be done for me.  When I agreed to have the Spinal Fusion I was under the impression that it would solve my pain problems once and for all....boy was I naive.  It didn't work because I already had permanent nerve damage that they didn't know about until they got in there.  Since then I've had more and worse pain.  What's next?  After fusion I think my options surgically are very limited.  I wish I had waited and maybe had more options.
 
So. what can I expect?  All of the NON surgical things that can be done have been done.  Is there such a thing as a fusion revision?  Can they go back in there and try to open up things again?  Since I have such severe Stenosis I don't think there's much left.
 
Oh....Help me.

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1700 mg. at night..Glipizide 10mg. 2X in the morning and bedtime
Lantus 50 units at bedtime with Solostar Pen
Byetta 5 mcg. 2X daily                                                                   

 


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 3/29/2010 3:33 PM (GMT -7)   
I wish I had help, but I can only offer hope and an ear.

We'll be here when you need us!
Formerly PrayingForRealRelief...
 
DDD, CHRONIC PAIN SYNDROME, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY, CARPLE TUNNEL SYNDROME, EXTREME IDIOPATHIC HYPOGLYCEMIA FROM AGE 12
 
 
 
 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 3/29/2010 5:09 PM (GMT -7)   
Hi!

And I sure wish I had an extra miracle in my pocket for you. From the reading I've done and talking to doctors I don't think they can 'undo' a spinal fusion. The concept is that the disk is destroyed as is the bone, if I understand it correct. Otherwise they could have just replaced the disk. I did some looking and learned that once you are fused, that's it. What would they do? Put in a new disk? If that were possible they should have done that to begin with, I suppose.

I'm no expert on this, just sharing what I've read and learned from medical profession. You might ask about a pain pump to get some relief. There are things they can do for your pain if they aren't already addressing the problem. If your doctor isn't interested in helping you with pain control, I'd be looking for a new doctor and fast! No way do you need to live with that much pain and not get help.

You might also consider getting in touch with the closest university/teaching hospital in your area. In the Chronic Pain 101 thread at the top of the list is a link to the teaching/university hospitals around the world. You can get a doctor there and they are on the front of technology and research. Might be well worth the drive. This is your life you're talking about and you are the one who will have to advocate for getting some quality back into it. Most likely your doc isn't going to come after you with offers, you will have to ask and find them.

Good luck and keep in touch...
Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/29/2010 11:24 PM (GMT -7)   
uniquelyme

You know according to that report that you posted, you still have a disk and it is bulging at L4/5 what disk did you have fused before? as far as the narrowing ("There is severe bilateral L5 neural foraminal stenosis. Disc material approximates both L5 nerves.") They can go in and remove some of the bone and open up and give the nerve roots room so they are not impinged upon. Now the question is, will that get rid of your pain? Well it could, or at least help it, if you can you should probably get a second or third oppinion. but according to the report you posted, When you have osteophytes, (bone spurs) osteoarthritis your bone is growing and causing the opening (foraminal stenosis) to narrow and this puts pressure on the nerve roots, and causes inflamation, and pain, epidural steroids injections, reduces inflamation, however it does not do anything to reduce what is causing the inflamation. I don't know of anything that keeps the bone from growing either. When they do a disk fusion, they remove the disk ( cartilage) and they rough up the vertebra (bone) and then but in either your own or donor bone in the space where your cartilage was, and over time this all grows together and it makes all those vertebra all one solid bone, you lose flexability and the bone can grow and cause encroachment on the nerve roots,. And like they told me when they do a disk fusion it puts more stress on the disks above and below the fusion, and allot of times those disks will go bad usually with in ten years of the fusion.

I think you need to talk to your Doctors, I do wish you well Me!

Good Luck to You!

White Beard

uniquelyme
Veteran Member


Date Joined Nov 2008
Total Posts : 1037
   Posted 3/30/2010 9:38 AM (GMT -7)   
Whitebeard...you hit the nail on the head when u mentioned that I still have a disc at L5....As far as I know I had fusion at L4-S1...but how can that be?  In the report it mentions that I had 2 lamenectomies....but I only had 1...I am so confused!!!  Could it be that they told me I had the fusion surgery and they really only did a lamenectomy?  What would be the reason behind it?  When I go back on the 7th I am going to ask about it....These are the Dr.'s that sent me to the surgeon to have the Fusion done so I am assuming that they have records...right?
 
Besides all that mess I am worried about what's next...what is possible?...is anything possible?
 
These Dr.'s are my Pain Management Dr.'s so they do deal with my pain control.  I have been going there for over 6 years...maybe 7.  They have always been there for me....even when they should have told me to "hit the bricks" they didn't.  They are the first and ONLY Dr.'s that haven't treated me like a junkie...even my old PCP acted like I was making it all up just to get some Lortabs...Lortabs?  Really?  If only....I wish that I were just some drug seeking feind that had no real pain...then I could just worry about getting HIGH... What a life that would be....not being a junkie...being pain free.
 
So...I wish I had done something else besided the fusion..but I can't take it back.  All I can do is wait and see what they tell me when I go back next week.  I have always known that I would be on pain pills for the rest of my life, that's ok.  What I do want is better pain control.  Methadone has been great for me over the years but it's time to try something else.  Maybe Opana ER...maybe Oxycontin...I'm not real sure what would work for me. 
 
Thanks to all of you for caring so much...it makes a big difference in my life.
 
Me.:-) turn yeah scool

I have been a spectator for so long..Now it's time to participate.......
 
Post Lamenectomy Syndrome, Spinal Stenosis, DDD....
1999 Hemi Lamenectomy/2005 Spinal Fusion(L4-S1)
Methadone 120 mg. a day/  30 mg. Oxycodone as needed(up to 4 x a day)
High Blood Pressure: Lisinopril HCTZ 10 mg. daily
Type 2 Diabetes: (March 16, 2009)
Metformin HCL ER 1700 mg. at night..Glipizide 10mg. 2X in the morning and bedtime
Lantus 50 units at bedtime with Solostar Pen
Byetta 5 mcg. 2X daily                                                                   

 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 3/30/2010 11:12 PM (GMT -7)   
Me

I noticed that right away! I will be curious to hear what they tell you! Anyway they can do more surgery and cut some of the excess bone away and open things up to give your nerve roots more room. Over time the bone might grow back, but it should give you some relief, and remember the more the bone growth increases the more pressure it puts on the nerve roots and it can cause permanent damage. So it can be a double edge sword, you can still have pain and problems if you get it worked on, but you can still have pain and problem if you let it go, and it could even be worse! Weigh your options carefully!

Good Luck to You!

White Beard
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