Sending in my appeal for permanent disability and TMJ update!!

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tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 3/31/2010 12:29 PM (GMT -7)   
Hi everyone!! How are you all doing today!! Is the sun shining brightly at your end of the world?? It sure is here!! I will go outside soon. i have not felt well today, hence the reason for still being in bed. i had my massage today and check by the chiro and the massage wiped me out pretty bad. It feels good but my headache is still 9/10. Bummer. I was also nauseted so I took some gravol whhich has helped. My nurse also came to change my picc line. I've had an off week with feeling down, crying, scared, tired of all the pain everyday. Some days i still wonder how i will ever get thru all of this. We will be starting the next cycle of Ketamine Easter Monday and go from there. The dr., hubby and I will meet next week. One day at a time right!!!
 
On a better note, we are leaving for Vermont tomorrow morning, Killington actually. My son, his buddy, and hubby will ski and I will do some major R and R and check out the town. The place where we will be staying had internet (so I can talk with all of you)indoor pool (except have to cover my picc line and keep it dry) and a hot tub. fireplace in the room two. Won't even need to share the bathroom with the boys, as they will have their own. So it sounds pretty nice to me. Can't wait to get there!! I am so anxious to have this break in scenery and routine. i need it badly as I have been in bed the better part of two years.
 
Well that's about it for me. If you live near Vermont give me a shout incase we can hookup while \i am there.
 
Hope you can all have a low pain day this weekend as the temperature is suppose to be unbelievably warm!turn yeah yeah yeah yeah
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 3/31/2010 12:40 PM (GMT -7)   
Tmj,
Although you may not be feeling well, your attitude sounds great. I hope you have a wonderful time in Vermont. I've never been there, but I have some friends who have home in Burlington. The room you'll be in sounds great, as does the resort.

Have a wonderful time - and I do believe a change of scenery helps all of us!

PaLady

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 3/31/2010 12:45 PM (GMT -7)   
Thanks PALady. Yes I believe a change in scenery will do me a lot of good. I am anxious to get there. A good little reprieve before I start my next Ketamine cycle which will knock me out.
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/31/2010 4:33 PM (GMT -7)   
Hey my little Buddy! So your coming to the States, and not even going to stop by for a visit! :) Really, I'm so happy to see that your able to travel. It will be a nice change for you, as you have suffered so much.

It was good to talk to you on the phone today, and I love to hear you laughing again. That is much different than before your treatments. I also talked to Privey today, and she mentioned you and said you sounded wonderful as well.

I wanted to Thank you so much for the card I received in the mail, and the Canadian Magnet you sent with it. You are such a Dear, and have such a lovely spirit about you.

I did get to visit with your husband on one of my Phone calls, and you are lucky to have him for support. A very nice Chap! Take care my friend, and enjoy your Visit here in the Good Ole US of A!

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.

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