Words from my Orthopedic surgeon today

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Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 3/31/2010 7:17 PM (GMT -7)   
Apparently this has been a busy week for everyone! My best wishes to you all! 
So, I saw my ortho-surgeon today for another cortizone shot through the shoulder blade into the shoulder joint.  Afterwards I said, "I have a really high tolerance to pain, but this is just unbelievable!" He stopped in his little cocky way, turned and looked at me and said, "You have one of the highest tolerances to pain of any patient I have. First of all, your adhesive capsulitis (frozen shoulder) is one of the most painful issue a person can have and then with diabetes it is over the top." He then said, "The shot I just gave you, I have seen it take a grown man to their knees many times so, I'd say you have a very high tolerance to pain." Once again, I needed validation!  I also wanted to know because it hurts so bad! He also said it is completely frozen and I have a choice of intensive therapy or surgery. One or the other. Wow, when does it slow down? I know it doesn't end, but at least it could slow down! I'm going for intensive therapy! Wish me luck!
Thanks to everyone who has left a posts and well wishes through all of these things.
Cat(z4)
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 3/31/2010 7:24 PM (GMT -7)   
Hang in there Catz4....it's pretty scary to have your pain levels and tolerances confirmed to be over the top. I hope for your sake the therapy will help, and get you to a point where you can be "normal" like everyone else.

You sound like a very strong and courageous person, and I know you will do well with whatever you choose...but I sure hope your choice starts providing you with some relief!!

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 3/31/2010 7:40 PM (GMT -7)   
Pam,
When you realize that I have only been on oxycodone 15mg for 1 month and 1 week, this being the most potent medication I've used with no long term meds to help through, I guess I have used my heart and my loved ones to hold on to my sanity when my pain level is a constant 8-10! The only other pain med I was on for the last 5 years was Lortab 10/500! I did wear the duragesic patch in 2005 for about 4 months and decided to take it off. I not courageous, just hurting so bad that I want to throw up! and wonder often if I'm the only one??? What would you choose? The horror of intensive therapy or the horror of surgery? I don't know and as I read back over this, I think it sounded like I was bragging. I'm surely not! In fact, I think I'll close because I'm in enough pain right now that I almost didn't start this thread! Maybe I shouldn't have! Thanks so much for your answer.
Catz4
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 3/31/2010 7:52 PM (GMT -7)   
Catz, I just think you are an amazing person - you deal with tremendous pain and you strike me as being very courageous. I think all of us who deal with chronic pain are courageous...to live day in and day out as we do does take courage. I hope you didn't think I was putting you down in any way or minimizing what you go thru.

Each of us handles our pain differently. I went for years without any meds because working was such an important part of my life and taking anything for pain put me off my game...I would make mistakes or forget things, etc. and I have always prided myself at being "perfect" at my job. I have been a Sr. level office administrator for 15 years, most currently supporting an executive team of 9 and a retail team of 100. I just couldn't afford to mess up, but man...I'd get home from work and collapse in agony. I should have taken better care of my pain needs, but I didn't...until my body just gave up one day and forced me onto disability.

I admire every person on this board, because we've all been given a pretty raw deal to manage with chronic pain, and we're here and fighting thru it, and helping others on top of that. To me, that's pretty amazing, and I am greatful beyond belief.

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 3/31/2010 10:36 PM (GMT -7)   
Catz4, count me in for a member who hopes that you get to feeling better. I would have been one of the guys that your surgeon was talking about going to the floor in pain. Lets hope your Therapy will go fine and cure the problem.

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 3/31/2010 11:57 PM (GMT -7)   
LOL!! SE!! Thanks for the laughter, I needed that so much tonight! And Pam, I didn't think you were being anything except kind. I come from a family of origin that says "you have to be the toughest of the tough" in everything and frankly it wasn't you, it was me! I didn't mean to come off bragging it was the relief of validation from the doctor. My Dad, bless his heart, told me the other day that a frozen shoulder is no big deal, he went through it and felt great. Oh the dynamics of my dysfunctional family of origin. He made me feel bad NOT you!! So, thanks to you both for taking the time out and giving me a boost today. I'm with my Brother Mikel, we do have a wonderful family here on HW!
Love and grateful to all,
Catz4
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 4/1/2010 9:13 AM (GMT -7)   
Sweet Sister I know we have been keeping up by e-mail and text , but wherever you are your brother will be with you !!!I'm sorry it seems so overwhelming right now sis , hang in there it'll get better I'm praying every da that it will for me and you , so hang tough and lean on me and your friends .Remember always thst your never alone I'm always with you in spirit , and i'm a call or text away ,Sometimes those shots take a day or two to take effect I've heard and I've aldso heard the initial effects can be a little bad but then it helps the pain . I hope this is the case for you dear sister..Hey sis would a jacizzi or whirlpool be soothing to you ? Does heat , like a heating pad help your pain ? Let me know ,if it does maybe I have an idea for you if heat or aqua treatment help you . your loving brother Mikel
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines -   Celelbrex ,viracept,truvada, lasix .  oxicontin  '                                                                                                                         


Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 4/1/2010 9:27 AM (GMT -7)   
I had a bad reaction when I got the shot yesterday, I got dizzy and nauseated for a little while and they made me lay down, then when I got home my lower back, groin, and finally my legs all the way to the marrow hurt. All night long it was hurting so bad. So much for tolerance. I called today and the nurse said he didn't think it had anything to do with the shot even though I had the same reaction with the last one, but they will not do another shot and from the tone, I think he won't do anything at all! Oh well, this is why I try to hang tough. I'm upset about this.
Catz4
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 4/1/2010 9:46 AM (GMT -7)   
I don't blame you , I'd be royally p o'd , thats terrible sis , geez that makes me mad !!! Go to emergency if it doesn't get better sweetie , don't take any risks with yourself my sister, I don't care what they say , they must be crazy or insensitive to suffering , wow I'm upset over this , Stacey I'm so sorry , man this is bothersome . I'm thinking of you sister . luv ya much Mikel
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines -   Celelbrex ,viracept,truvada, lasix .  oxicontin  '                                                                                                                         


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/1/2010 11:47 AM (GMT -7)   
Hey Cat... Oh my goodness...that shot sounds like it was painful. I'm sorry for all the stuff you are going through. I'm right there with you on how nice it would be if things would slow down...just a little, huh?

I'm sorry you had a lousy night...and are feeling bad today. I think it's definitely from the shot - especially if you had a similar reaction last time! Ahhh...doctors can frustrate me at times.

Anyway, I'm hoping you are resting and taking care of yourself today. Let us know how you are doing.... And, as always, know that there are people thinking of you today...and hoping that you feel better quickly.

Hugs...
Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation


Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 4/1/2010 12:11 PM (GMT -7)   
Oh Cat,

I wish things had turned out better for you. I know you were really hoping for relief and this is so disheartening. I too have reactions to shots and didn't realize what it was until after the second or third one. Then we realized there was a cross reaction to a med I had listed an allergy to. The positive thing is that the meds in your system should start to diminish soon and that you may reap the benefits of the meds even though you had a reaction to them. (That sounds kind of crazy, but you can have both bad and good come from meds and I'm praying that you will have good to follow the bad).

Anyway, have you considered asking if you can take benadryl or something to combat the possible allergy. If not, you may want to give them a call and ask. It's what they had me do after we found out, but each person is different and I would never recommend meds without checking with the Dr (even if they are over the counter and generally safe).

I hope things improve soon!
Formerly PrayingForRealRelief...
 
DDD, CHRONIC PAIN SYNDROME, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY, CARPLE TUNNEL SYNDROME, EXTREME IDIOPATHIC HYPOGLYCEMIA FROM AGE 12
 
 
 
 


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 4/1/2010 12:24 PM (GMT -7)   
Hi Catz4:

It amazes me the kind of procedures doctors do to us without any kind of sedation, knowing full well that it is barbaric, and then they treat us like we did something wrong if we dare to say how sore we are afterwards!

I don't want to wish bad things on people, but sometimes I wish it was a requirement that these doctors "practice" on each other and experience these procedures themselves.

I am so sorry that you are in so much pain. Lots of hugs and wishes for relief of your pain!

Lorie

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 4/1/2010 12:35 PM (GMT -7)   
Thanks everyone! It really didn't hurt before or while he was doing it. I'm pretty tough about those things, but then these other things started happening and I was so upset to know the doctor not only said it wasn't the shot, but that he wouldn't give me another. Maybe I don't need another! I'm really ticked at what happens when I have intolerance to a drug! It's like I'm stupid or crazy and they think I'm making things up and I can assure you that through it all I was literally crying during the night! Me, crying! As that wasn't acceptable when I was growning up I don't do much of that. My HW family, I love you all and I thank you for such positive words and thoughts!
Cat
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 4/1/2010 1:10 PM (GMT -7)   
Hi again Catz4:

What a contradiction from the doctor: It wasn't the shot, but he won't give you another one? Even if after getting through the initial soreness, it does provide some relief? Unreal!

I hope you are feeling a little better at least.

Lorie

Stac/Catz4
Regular Member


Date Joined Feb 2010
Total Posts : 358
   Posted 4/3/2010 4:23 PM (GMT -7)   
Thanks annie. My shoulder is completley frozen and the pain I'm going through right now is intense. My husband has been through several surgeries with me and has decided he believes surgery is going to be my best option. I'm back on the fence simply because I don't know how much more I can take and the PT is to break up the adhesive capsulitis or as my dr said it's kind of like calcification. Just too much pain from too many areas and on top of it all they have to be extremely careful of my Syrinx. The PT could easily cause more injury to my spine so I've come to find out. ??? Who knows. I'm going to at least one PT and see what they are going to try to do.
Catz4
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.
 
 


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 4/3/2010 9:02 PM (GMT -7)   
 Dear Catz,
 
     *warm huggs* I wish more than anything I could give advise to you, but I cant. I do however completly understand about vomiting, nausa and passing out from pain. I use a product called "Cola Syrup" . It is in the "children's medicine" isle at most super markets. On the back of the bottle it has directions for adult dosing. No side effects. It doesnt interact with anything and works in 2 to 3mins. Thou come to think of it, you have diabetes, so you might want to check with yoru doctor just in case.  It helps me a great deal.  I wish I could be of mroe help. You are in our hearts and prayers here. I know you face terribly hard decisions!! Stay strong!
 
*hugg*
  dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 

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