White Beard Charley Horse?

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Screaming Eagle
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Date Joined Sep 2009
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   Posted 4/1/2010 2:14 PM (GMT -7)   
Hello White Beard! I just read in one of the post that you were suffering from Charley Horses. I'm sure you already know this, but I have always been told that drinking Pickle Juice will help cure this. Is it mainly in your legs, or just all over like you stated.

I know your pretty in tune with your body, but have you looked into the possibility that this may help?

Just a thought, and trying to help here.

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


Chartreux
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Date Joined Aug 2006
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   Posted 4/1/2010 2:38 PM (GMT -7)   
Awe WhiteBeard, a charlie Horse is no fun at all...my brothers would sneak up on me to try to give me one...
one of those boys will be boys games i guess...
Hope your feeling better soon...
((((((((((((((((((((((((((((Whitebeard))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

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White Beard
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Date Joined Feb 2009
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   Posted 4/1/2010 3:47 PM (GMT -7)   
I am on Baclofen 30mg every eight hours, to treat them and have been on Baclofen for quite a few years now, It normally does very well and it really has been a Godsend for me! But every once in a while, ( and the time frame varies) I will start having major problems with them. It is just like the medication has quit working altogether! I start getting them in all the different muscles, and sometimes this will last for just a few days and other times for several weeks, This has been going on for 3 or 4 weeks now! and I get them not only in my legs and feet, but in both my arms, and my hands! and in my back and in my neck! The other night I had it in my jaw, and it was from my cheek down my neck, at first I thought I was stroking out! as it affected my mouth and my throat! It only lasted a minute or two but it did scared the "heck" out of me! After that and a few other wierd things, I finally picked out a neurologist and gave my PM Doc the name and he is writing a letter and setting up an appoitment with him for me!. My pain Doc told me he can not increase the Baclofen because I am on the max dose for it! Anyway, this has been an ongoing problem, and I also have other symptoms that go with it! Usually when it does go away I am often left with some type of deficit! The Charley Horses and spasms are a real SOB! I have found it rather difficult and some what unsettling to be alone and have them! Not that the ex was much help when I had them before, but it does change a little how I have to deal with them now!, I have been having trouble with spasms in my lower rib cage, and in my back, anyway there have been a few times that when I hook the hose up to my mask ( I have sleep Apnea and I am on supplemental O2 and VPAP ASV at night when I sleep) I have had spasms in my bottom ribs and my back and I can not breath! I rip off the mask and it does not help, I try sitting up, and still nothing, I am ready to panic, so I jump out of bed and stand up and then I start gasping or air! I am trembling and sweaty! I have not had this happen before and now the other night was the forth time in the last week and a half!It is hard to explain what it feels like, kind of like being squeezed and not being able to get air in??? It is painful and frightening! Hopefully I will be getting an appointment with this Neurologist soon! ( I am stuborn I will not go to the ER! I have had two bad experiences with the ER and I will never go back!)


S.E. and Chart I thank you for the concern, I have put off gettin a neurlogist for quite a long time now, and all my Doctors have been telling me I need to be under the care of one! But to date, I have never really ever had one that has helped me, nor have I ever had one that I liked or trusted! Hope run eternal I guess, so who knows, maybe this one will be able to help me!



Anyway it can not be all that bad! After all I am still here!

Again Thanks for the Concern!



White Beard

Retired Mom
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Date Joined Feb 2010
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   Posted 4/1/2010 5:37 PM (GMT -7)   
Ok, so I'd like to issue a disclaimer before I type anyting esle on this thread. I'm very hopeful that would find your problem with these spasms. I too have had spasms throughout the body for many years and can't remember a time before the started. Every doctor that I went to alwasys said "that's strange" when they could see a spasm and then moved on to whateve their area of expertise. Finally, when this new endo did my background information for intake into his office, he asked a lot of questions about the spasms and other issues that I have.

Now I have no idea why he tested me for the HGH deficiency because they tought for sure it was cushings. Needless to say they found the problem and I have to admit that the spasms are much, much better. I wish the best for you with this!
Formerly PrayingForRealRelief...
 
DDD, CHRONIC PAIN SYNDROME, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY, CARPLE TUNNEL SYNDROME, EXTREME IDIOPATHIC HYPOGLYCEMIA FROM AGE 12
 
 
 
 


Screaming Eagle
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Date Joined Sep 2009
Total Posts : 5005
   Posted 4/1/2010 5:52 PM (GMT -7)   
Good Evening White Beard! Man this sounds serious, and I can hear the fear in your voice. I guess that I do not know enough about you to ask the right questions, but I am concerned for you there. Is there a chance that you have family close by? If that question brings up bad memories, just ignore it, as I understand what a Divorce can do to relationships. I can tell you that after my surgery I felt totally at the mercy of anybody, as I could not care for my self at all. My wonderful wife had to wipe my rear at the Hospital, and I'm sure it was not pleasant for her.

White Beard I sincerely hope you find a solution to this problem. Is there anyone at all that you can reach out to for help when things get like this? Surely your Dr will realize the seriousness of this after you talk to him about it.

I'm sure many will be worried for you after they read this. Lets hope they are much smarter than me and have a solution, that may help you get through this. I feel that you need someone there checking on you, especially through the evening.

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 4/1/2010 9:50 PM (GMT -7)   
White Beard,
Is there any chance you might be having panic attacks on top of the muscle spasms? It really can be difficult to differentiate between the muscle spasms in your ribs and back which certainly can affect your breathing, and maybe a panic attack which gets triggered in part by some of the spasms. It's just a thought. I know with your history of the muscle spasms that's the main culprit, but I wonder now if anxiety might be added on top of that. It might be worth asking your counselor about if you think that could be it.

I sure know what it's like being alone with health issues, but then you know that. It is different, isn't it? Somehow we manage, but it can get scary and also exhausting & overwhelming.

Take care,

PaLady

Blessedx8
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Date Joined Aug 2008
Total Posts : 3193
   Posted 4/1/2010 10:32 PM (GMT -7)   
Hey, my friend...

I just e-mailed you the same thought... but you gotta get in to the neurologist. ASAP. Please.

Thinking of you...
Tina

White Beard
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Date Joined Feb 2009
Total Posts : 3611
   Posted 4/1/2010 11:52 PM (GMT -7)   
PALady and Tina

Honestly that was my thought too! As I knew there was air and oxygen coming in the mask, it was like I could not inhale, and I was being squeezed, even when I ripped the mask off it did not help, even sitting up on the side of the bed did not help, and admittedly by that time I was starting to panic, after standing up and trying to stretch out a bit the squeezing started letting up and I started gasping for air! on the third and forth time it happened, I just left the mask on and stood up and stretched and it I was OK. Not a comfortable feeling by any means, but what can you do? Actually the one in my jaw and neck really scared me the most, as my mouth and cheeck dropped on that side and I was on the phone and it affected my voice it hurt like the dickens and as I said I thought I was stroking out! Now that really did scare the you know what out of me! It was the next day that I personnaly took the name of the Neurologist that I selected to my pain Doctor so he could write the letter and do the referral! Normally these spasms are not this intense and do not last this long of a time. But this has been going on for quite a few weeks now and they are not letting up and I am having allot more muscle pain! But I will not rule your idea out either, because, only a fool will diagnose him self! and I am only relating it as I have experienced it. And even though I try to be objective with my self I know that is not always possible! All I know is that these spasms are really getting old and it is affecting the use of my arms and my legs, and walking is becoming difficult as is trying to put my hair into a pony tail, when trying lift my arms up and putting my hands behind my head my biceps in my arms knot up tight, and my hands, clamp up! Go figure??? Your right PALady being alone with health issues is scary and we do manage some how, but sometimes it does seem overwhelming! Also, it is often just down right lonely! Is it ok to talk to yourself?

White Beard

PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 4/2/2010 2:17 AM (GMT -7)   
White Beard,
If I didn't talk to myself (myselves? LOL) I'd really go crazy! LOL Those of us who live alone can pick up some odd habits, or maybe they're just survival skills. It's not all bad, because sometimes it makes your stronger. I have learned to realize I can get through a lot more than I would have ever thought, although still it would be nice to have help with some things at time (right now winning the lottery would help a LOT! :-) ).

I don't want you to think I believe panic attacks are the main problem. You really do have muscle spasms, and you need to get other things ruled out (you know this from being a nurse) - yes, even the stroke possibiity. The panic attacks could be layered on top of all of that, and it would sure be understandable. They're just a hyperaroused state of the CNS, with a rush of adrenalin that needs time to dissipate through the body, so if you can remember that it may help with the breathing. Think of a wave that you're riding that will eventually reach shore. But do have a doctor rule out other things!

Take care, friend!

PaLady

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 4/2/2010 5:59 AM (GMT -7)   
OMG White Beard I honestly did not realize you were having this much of a problem. I guess I hadn't read clearly or missed something. This is very concerning and something I hope you have checked out TODAY! It's Friday and, as everyone knows, it's really hard to find good medical help over the weekend...especially a Holiday weekend.

Please seek help. This sounds dangerous to me.
Formerly PrayingForRealRelief...
 
DDD, CHRONIC PAIN SYNDROME, TLIF L5-S1 2009 (failed), FIBRO, MINEYER'S (SP?), VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HUMAN GROWTH HORMONE DEFICIENCY, VITAMIN D DEFICIENCY, CARPLE TUNNEL SYNDROME, EXTREME IDIOPATHIC HYPOGLYCEMIA FROM AGE 12
 
 
 
 


solar powered
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Date Joined Nov 2007
Total Posts : 538
   Posted 4/2/2010 9:28 AM (GMT -7)   
Hello White Beard. I am sorry to hear of your troubles. My suggestion may be way too simplistic for what is really going on with you but thought I would offer it anyway. I was having a lot of trouble with muscles spasms in my legs especially when I go to bed. My chiropractor suggested taking a magnesium supplement, 500mg, about two hours before bed. That really helped my issue. If I do still have a problem even after taking the mag I will take an additional 250mg and that usually takes care of it. Like I said, simple but maybe it could be helpful to you to increase your magnesium intake throughout the day somehow. I really hope that you find an answer to this problem soon. It sounds like it is no fun at all. Lisa
If I can laugh at it, I can live with it.

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