Moan, Whine, Ache, Complain....and Owie!

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MsBunky
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Date Joined Jan 2010
Total Posts : 1097
   Posted 4/4/2010 8:40 PM (GMT -7)   
Yep folks...that would be me getting ready for my Botox injections tomorrow. I took my last meds this morning at 5am and have been without drugs since then. It's amazing how quickly the body "breaks down" for lack of a better term, when you don't have the meds keeping things at bay.

I am SOOOO sore right now...I can barely make it up and down stairs, and could hardly get out of the car a little while ago. I'm cozied up on the couch right now with a hot cocoa and a blanket and I'm hoping against hope I'll be able to sleep. When there's this much pain and nothing I can take for it, I'm thinking it will be a sleepless night.

Injections are at 11:15am Mountain time tomorrow (Monday) so if you're willing to throw a good thought my way...I'd sure appreciate it.

I hope everyone had a good Easter...and a comfortable (as possible) day.

Hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


keep the faith
Regular Member


Date Joined Nov 2009
Total Posts : 91
   Posted 4/4/2010 9:08 PM (GMT -7)   
looks like I am the only one up at midnight and reading so the first to send you warm thoughts and hugs for Monday. I know others will be along to add to that .
 
 
((((((((((((((((hugs))))))))))))))))))

PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 4/4/2010 10:03 PM (GMT -7)   
Pam,
I sure do hope you are asleep by now and managed to find at least some comfort in the little things like your cocoa. Hopefully the night will pass quickly, and you'll be on the other side of your injections soon and getting some relief.

Sometimes when I have to go without meds. because of a procedure the only good thing I can find in it is knowing that the medications I'm taking are having some effect, as I feel the difference when I can't have them.

Let us know how things go tomorrow.

Hugs,

PaLady

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/4/2010 10:23 PM (GMT -7)   
Good evening MsBunky! You know that I will be there to support you! Hang in there, and I expect a good report on you tomorrow afternoon. Will you have your meds refilled by then? Today was a rough day for me here on the forum, but all is well now, and I appreciate your support. Makes me think of the song, "We are Family" See you tomorrow! :)

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 4/5/2010 12:06 AM (GMT -7)   
Good luck with your injections@@ May I ask where you are getting the injections?? I had botox twice for my headaches and unfortunately it didn't work. Is this your first time or second. I will pray hard that this works for you my friend!!
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 4/5/2010 6:23 AM (GMT -7)   
Good Luck today Pam. I am sorry I wasnt up to see this but being up on and off for 2 days straight I passed out last night for 11 hours. You are in my thoughts and prayers.
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis ,gerd,gastric ulcer,gastroparesis..gallbladder removal 3/23/10.
 
meds,ambien, prilosec otc,lortab ,reglan,flonase and  trazodone.


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3611
   Posted 4/5/2010 7:13 AM (GMT -7)   
Pam

I hope the Botox injections go well for you today, and they give the relief that you need ! Good Luck to YOU!

I do wish you well!!

White Beard

Butterfly4
Regular Member


Date Joined Apr 2010
Total Posts : 23
   Posted 4/5/2010 9:11 AM (GMT -7)   
Best wishes, Pam.  I hope the injections help, and that you are feeling better soon.
 
Butterfly4
31 year old female
 
Chronic pain, GI inflammation, Asthma, catracts, Depression, chest pain, frequent fevers, vomiting, weight loss, insomnia, the list goes on.  16 months into this, I still have no official diagnosis.
 
"Be the change you wish to see in the world" - Ghandi


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 4/5/2010 11:22 AM (GMT -7)   
hopefully by now you are feeling great!


melissa
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 4/5/2010 1:20 PM (GMT -7)   
Hello my friends! Thank you for your wonderful support....I really needed it today. I had the injections done this morning after a night of horrible pain - PALady, you're right in that you sure know when your pain meds are working, when you have them taken away. Every part of me hurt this morning - every joint, every muscle...ugh!!!

The injections today are my third set, and the second with Botox. It was the most painful injections I've had so far....the doctor doing them said that he's never seen a psoas muscle as tight and knotted as my right one (the psoas muscle runs along the pelvis and back, thru to the hip and helps to support the pelvic region). The left psoas muscle wasn't too bad, but even with triple the local anesthetic to numb things, it still hurt enough to make me cry, mostly as the doctor advanced the needle deeper on the right side. I was shaky afterwards, cried a bit while waiting the required 20 minutes after the needles (in case of reaction) and generally just felt like crap. I had a good cry in the car after it was done and then we stopped at Burger King so I could eat...a Jr. Whopper always makes me feel better. I took my meds when I got home and then slept for about an hour and a bit.

I'm still sore and achy...the injections always cause a Fibro flair for me, which sucks. I can feel some relief in the pelvic/hip area though, so that's a good sign. I'm hoping for at least a month's worth of pain relief this time in that area. Dr. Patel (who did the procedure) recommended that next time, I have the injections thru both the back and the stomach to reach the muscle, for extra coverage, and he's also suggesting injections right into my right hip joint, for some pain relief there while I wait for an appointment with the Orthopedic Surgeon for a consult.

So, that was my day and I thank you all for your thoughts and good wishes. I thought of all of you as I was laying there on the table, and it helped to know you were cheering me on. I see my regular doctor tomorrow for refills on all my drugs, and then I see my pain doctor next week (Monday) to talk about next steps

I hope everyone is feeling as well as possible today. I appreciate each of you more than you could know. It's nice to have another family to rely on.

Big hugs,
Pam

ps: Anniedaze, I am still working with my insurance to have them provide coverage for the Botox...each set of injections costs about $460. We have a pharmacist friend who gets it for me at his cost though, so that brings the price down to just over $300. Friends are sure a wonderful gift!!
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/5/2010 1:25 PM (GMT -7)   
Good day MsBunky! I know those injections are not fun. I had a Epidural with no sedation, and it made me cry like a baby. Lets hope the procedure will give you some relief soon.

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 4/5/2010 1:27 PM (GMT -7)   
Hi Pam,

Thanks for the update...I eat pretty much all organic now but once in a blue moon...a Whopper JR. with cheese and their fries..YUMMY!!!!:) LOL...

Sorry to hear about being so sore and will pray for relief for you as well as maybe you can take it easy the next days to prevent a big Fibro flare...I've learned over the years to buffer in those days to keep them from lasting too long..

Let us know about what the next steps are with PM Dr...

Hope tonight you can just chill out, watch some tv and rest...

Sending big 'gentle' hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/5/2010 2:15 PM (GMT -7)   
Pam...

I'm glad you got your injections today... but I'm sorry how painful they were and how sore you are... Take care of yourself today...

I'll be hoping and praying that the injections give you must longer relief this time.

--Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/5/2010 3:59 PM (GMT -7)   
Pam,
I sure hope you get some relief, too, especially with what you had to endure.

You know, I think the muscle you're talking about may be the same one that's given me trouble (along with many others!) for years. Is there something called the ilio-psoas (sp????). My PT tried to teach me all these names but I keep getting them confused.

Anyway, the one that gets to me is right at the base of my butt, so it affects sitting bit time. I do daily exercises to try to stretch it some, and I think awhile back one of my PM's tried injections that never hit the right spot, so I stopped going. I think they were steroid injections, not botox. It's interesting your doc talks about how hard it is to reach the muscle. I know my PT would say the same thing about many of the muscle groups that keep giving me problems.

I don't have insurance that would pay for any injections right now, but I'll be curious to see if the botox works for you.

Does ice help after these injections the same way it does after epidurals and nerve blocks? I always find it helps at the site of the injection for the first day or two, but if it's the same muscle I'm thinking of it's really deep and hard to get to.

Take care!

PaLady

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 4/5/2010 9:28 PM (GMT -7)   
Hi PAlady,

Yes, the Iliopsoas refers to the three muscles - the psoas major, psoas minor and the iliacus. These three muscles are crucial for standing, walking and running. When I have the Botox injections done, they are done under fluoroscope guidance - basically x-raying the spot to make sure the needle goes into the proper muscle. Ice does help a bit afterward but because the injections are so deep into the muscle, it causes the rest of my muscles to flare up in protest. I can actually feel the sensation of pain going into my thigh during the injections - it's kinda creepy actually :-)

Stretches are good and I have some that I do, but because of the issues with my hip (the head of the femur doesn't fit into the hip socket properly, so I have bone grinding on bone, plus tears in the tissue), some of the stretches are impossible to do.

I do get relief with the Botox, but not as long lasting as we hope - it's usually just a few weeks at most, instead of months. I'm hoping this time will last longer...but we'll see.

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/6/2010 12:24 PM (GMT -7)   
Pam,
Would you believe I was lying in bed last night thinking about this muscle and realized I was recalling the wrong muscle. The one I was describing to you (bottom of my butt) I think is called the periformus (sp???? - my PT tried to give me all the correct spellings and I have forgotten them!). But the reason I remember the iliopsoas is because that's also one that's a problem for me.

I can see that our situations are probably different, although I don't know if my hip socket fits properly, but I do know my SI joint is always giving me problems. But my PT does some sort of active release process with the iliopsoas. It's a very painful process, but doesn't last long so worth it. He puts my let up on his shoulder, then has to press very deeply around the top of my leg and even he has trouble finding the muscle but when he does I sure know it! I can feel it go all the way to the attachment somewhere in my back. It feels like a knife going through you and has brought me to tears when he does that, but once the muscle releases, it usually stayed released for awhile. But like I said, your situation is probably different. Now I know why your doc has such a challenge finding the right spot, though, and why it's so painful for you. That one bites, big time!
I've had a lot of deep tissue massage, and whole lots of PT in my life, but I do think that one active release movement of that muscle is the most painful maneuver I've endured. Worth it, but still very big ouch!

Hope the botox starts to help soon!

PaLady

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 4/6/2010 6:56 PM (GMT -7)   
Best wishes Pam girl and heres hoping your pain and soreness subside , I  need hip replacement  Pam and the pain was agony until I stared using a juicer and I have't taken a pain med in 3 days ! I am prescribed 6 oxicontin a day 80mg tablets  , can you get a idea how significant that is ?I mean I've taken none , zilch, zero and I've been more active too .I still need the hip replacement but the pain is way less .,Been juicing kale, spinach , carrots , and apples , put a few cubes of ice in there and drink ! its been great all natural .Consider how your diet can effect your health !! Goodluck my friend   Mikel
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines -    ,viracept,truvada, lasix .  oxicontin  '                                                                                                                         


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 4/6/2010 8:34 PM (GMT -7)   
Hi Mikel,

I have been quite conscious of my diet lately as I was overweight and needed to lose at least 40lbs. I've gone from 180 to my current weight of 148, and I'd like to get to 135 (I'm only 5'2"). I've cut most processed foods out of my life and am eating more lean proteins and veggies...but I haven't tried juicing yet.

Why would juicing be better (or is it?) that eating the same foods in their whole state (apples, carrots, etc.)? Is there something in the actual juicing process that makes them more powerful? I'd love to hear your thoughts on this. I'm currently taking 40mg of Oxycontin slow release in the morning and again at night, along with Cymbalta for my Fibro, and some other drugs. I still get breakthru pain after about 4 hours, so also take Tramacet as needed. I'm finding my pain is being well managed with my current dosages, but it would be great to lessen those amounts or be able to go off them completely. Perhaps I'll look up juicing next time I'm at the Library.

Thanks for your thoughts!

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/6/2010 8:52 PM (GMT -7)   
Mikel, maybe you can start a new thread on the benefits of juicing or what it has done for you. This would give the members a single thread to follow, instead of trying to piece together several replies from several different post. I know that it would help me, and I'm very interested in this subject, and now we have a certifiable member who is going through that process.

Thanks!

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 4/7/2010 12:20 AM (GMT -7)   
My question is, does adding the veggies together in a blender cause some lose of fiber? Fiber is very important in the diet especially for colon health. I would think that just eating more fruits & vegetables would improve health regardless of how it is ingested.
---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/7/2010 2:30 AM (GMT -7)   
Jag,
I have a cousin who's about a 15 year survivor of esophageal cancer. While he had radical surgery and an extensive protocol of chemo and radiation from Cleveland Clinic, the mortality rate for the type of cancer he had is 70%. He swears by juicing. Yes, you lose some of the fiber but as someone mentioned a lot of people use the fiber (which is collected in another part of the juicer) in things like muffins, carrot cake, etc. But I believe - and I'm no expert - that part of the theory is that we'd generally never eat the amount of fruit and veggies that we can get via drinking it in one glass. It would be way to filling for most people. I do believe also that one of the keys is doing it fresh every time, but that may not always be realistic for people who are working. Juicing can be a lot of work, but I think it has great benefits. I don't do it, though. Right now affording a juicer is out of the question, but I'm not sure I'd stick with it, but I'm a huge believer that our diets contribute to if not directly cause a lot of our health problems. Just my two cents worth!

PaLady
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