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Veteran Member

Date Joined Apr 2010
Total Posts : 2261
   Posted 4/7/2010 10:10 PM (GMT -6)   
I'm new to the chronic pain forum and to Healing Well.    I've been reading the forums for some time and decided to post now because i really need support.   I have degenerative disc disease, spinal stenosis, osteoarthritis, bone spurs and who knows what else in my spine.  I also have osteoarthritis in both hips and knees.  I have bursitis in my left hip also.   I have had a hard time finding a good pain management dr.  The last one I went to, I took the MRI i had just had done a week before.  He didn't even come in.  A lady came in and took the copy out and looked at it with him and she came back in about 20 min. later and said there's nothing we can do for you.  I had just seen a neurosurgeon because he wanted me to.  The only thing the surgeon said was that he could put cement in my  compression fracture that happened in March 2001 when i fell on frozen ground.  He also told me that the surgery could make me paralyzed and I told him "no thanks".  I'm wondering if that's the reason that the pain management dr. said they couldn't do anything else for me.  I'm very frustrated because the only medication I can get to help my chronic pain is 5mg. of oxycododone from my pcp.  I ordered a tens unit on the internet and it helps a little for a little bit, but doesn't last very long.smhair
I look forward to getting to know everyone.   I hope everyone has as low a pain night as possible.  Everyone take care.

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 4/7/2010 10:25 PM (GMT -6)   

Welcome. I'm sorry you are going through so much... but I'm glad you decided to post and join us. There's lots of good support and encouragement to be found here...which, if you've been reading, you probably know :)

Wow... you've got lots going on...definitely. I hate to hear when someone doesn't have a good pain management doctor...because it makes such a difference. That being said, I know how hard it is to find a good one. It took me almost 7 years...and many bumps along the get to my doctor, who is wonderful. I really hope and pray you can find a doctor that will listen to you...and not blow you off like that one doctor did. I don't want to get started on a long rant...but doctors like that...ruin it for the good ones out there.

Also...for as much pain as it sounds like you are having, it sounds like you are really undermedicated. Does the oxy help at all?

Well, I'm sure others will be along w/ more words of wisdom than I have given :) but I just really wanted to welcome you... and let you know that I look forward to getting to know you.

Take good care...
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation

Screaming Eagle
Forum Moderator

Date Joined Sep 2009
Total Posts : 5005
   Posted 4/7/2010 10:37 PM (GMT -6)   
Hello 9yrsCP and welcome to the CP forum. Oh I feel for you, and it makes me cringe to hear a story like this. First of all, you have come to the right place for support that is a fact Jack! The members here are wonderful and very supportive, and quite knowledgeable in many areas of Chronic Pain. However that being said, we are not Dr's.

I think many of the members here will have several questions for you, and I being one of them, am wondering if there is a possibility of you finding another PM Dr. Usually a PCD will suggest a good PM Dr for you, and if that doesn't turn out they will suggest another one for you. I'm under the firm belief that that if surgery is not an option for you and your PCD understands and agrees with this, then you may very well be a very good candidate for a good pain management program. So my question is, what does your PCD now say that surgery is not an option for you? I hate to hear stories like this, and believe there is no reason for this to go on. No one should have to endure this kind of pain, especially with all the problems you have listed here.

I can assure you that there will be several members that will come on line to lend their support to you, so keep checking here often, and keep posting, and tell us as much about yourself that you possibly can.
I wish you my best, and a very sincere heart felt hope that you get to feeling better. Again, welcome to our family and enjoy! :)

DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 4/7/2010 11:23 PM (GMT -6)   
Hello and welcome 9yrs , you should definatly be getting better pain control meds , whats with your doctor ? Is there a pain mgmt clinic near you or a pain mgmt center ?Please research that online , you really seem to be suffering a lot of issues without them being addressed . The doctor who said ''theres nothing we can do '' could have given you some pain relief .Please remember to be a advocate for yourself , tell these doctors of your pain and demand help in some form .Whether it be pain medecine or something else .Best of luck to you .  Mikel
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines -    ,viracept,truvada, lasix .  oxicontin  '                                                                                                                         

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 4/8/2010 10:26 AM (GMT -6)   
   Dear Nine,
     Good morning. My name is Dani. It is a pleasure to meet you. I am very glad you found the Healing Well Community. Though I am sorry for what has brought you here, I do hope you will find this is a comfortable, relaxing place to come to.
     You have alot of pain. I do not think you should stick with what one doctor says in regurads to your pain. I say this because many of us had atleast one daoctor along the way that brushed us off and/or didnt help us. I would encourage you to get a second opinion reguarding pain management office if it is possible. I know you have been through alot and I can tell plain as day the pain is wearing you thin....But, a good pain managemet doctor can asses and treat All aspects of pain and can help you to regain quality of life.
     It was very nice to meet you. I look forward to getting to know you better as time goes by.



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



Veteran Member

Date Joined Aug 2006
Total Posts : 9607
   Posted 4/8/2010 10:33 AM (GMT -6)   
Nice to meet you, sure wish it was under better circumstances other than Chronic Pain...
It can take awhile to get a good PM Doctor, but I would say keep looking til you find one, they are out there,
just hard to find, it took me two tries to find my current PM Doctor, there are others here that
will come by with better answers and they are very nice here...we have chat night's on Thursdays nights
Hope to see you there sometime...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Veteran Member

Date Joined Mar 2008
Total Posts : 2976
   Posted 4/8/2010 11:20 AM (GMT -6)   
Hi 9yrs,

I too want to add my welcome to the group. It sounds like you've been through a lot! You've definitely come to the right place for support! The members here are fantastic. I"m sorry about the circumstances which lead your to join us, but am happy that you found such a wonderful group. Welcome aboard.


Regular Member

Date Joined Jan 2010
Total Posts : 492
   Posted 4/8/2010 3:24 PM (GMT -6)   
Welcome 9 years.
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis ,gerd,gastric ulcer,gastroparesis..gallbladder removal 3/23/10.
meds,ambien, prilosec otc,lortab ,reglan,flonase and  trazodone.

Veteran Member

Date Joined Apr 2010
Total Posts : 2261
   Posted 4/8/2010 10:15 PM (GMT -6)   
Thank you all so much for the support that you all have given me.  It feels better to know that you all know what I'm going thru, although I wish that none of you have to go thru it.  I'm so glad to meet you all.
A little about me:  I'm a 44 yr. old female.  I've been married to my wonderful, supportive husband for 16 years this June 18.  I have other health problems besides the chronic pain also.
I'm not giving up on the PM dr.  I have ones that I have found on the internet plus a few in my insurance book that I am going to call hopefully starting tomorrow.  It's just really frustrating.  I thought for sure I had found a good one, but I didn't :(   I really don't understand how a dr. can just say what he did to me.  I thought he would have at least tried some meds or something.  Well, I guess i need to put that behind me and get busy calling the others.  If I'm going to get some relief, I'm going to have to.
I look forward to getting to know you all better too.

Veteran Member

Date Joined Apr 2010
Total Posts : 2261
   Posted 4/8/2010 10:45 PM (GMT -6)   
lol Annie.  I've had ct scans before.  They're really a lot easier than they sound.  I wish you good luck with the ct scan.turn

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3602
   Posted 4/8/2010 10:53 PM (GMT -6)   
When you go to your pulmonary Doctor, go into see him by yourself then he will have to talk directly to you! There is no excuse for a doctor to talk to your husband about your condition, you are not a child. A CT scan is a CAT Scan it is kind of like a 3 dimensional X-ray and it is a very useful test to have done. Are they doing this to your lungs? If your Doctor ordered this test, I would think that you would want to have it done, as it is important to find out what kind of damage was done by that antibiotic they had you on. Anyway Good Luck to You

Welcome to the Chronic Pain Forum, I do hope that you can get things to work out with your Pain Doctor or you can find a new one. It does sound like you have been through allot! I am glad you have found us! I don't think you will find a more compassionate and caring group of people anywhere on the internet! I do hope you become an active member of our family here on the forum!
Again I Welcome YOU!

White Beard

Forum Moderator

Date Joined Feb 2003
Total Posts : 13366
   Posted 4/8/2010 11:56 PM (GMT -6)   
Hi 9 Years,
I too would like to welcome you to Healing Well's chronic pain forum. I am very glad that you decided to jump on board and post. Sometimes that can be a big step for many of us. This is the first forum of any kind that I ever joined or posted on lol. Boy, do I remember those days, lol. None of us are drs here but we all have a story to tell of our own and we certainly understand what CP does to a person. I am very glad to read that are not going to give up on finding a PM dr. Some of these drs can be such cads and it is not limited to PM either. I have kissed a few toads along the way in my effort to find the prince, lol. You have the right idea of checking with your ins company on PM drs that are covered by them. I do not know how up to date your book is, but many times the drs that were listed were no longer on my plan. If your ins company is available online you might want to go that route since it would be more current. If that is not an option calling your insurance company is good because they can give you names & numbers of drs. One thing to keep in mind there are two types of pain mgt drs out there. One will do nothing but procedures and injections no medication. The other will do the same and they will write scripts. So my suggestion is to call who is listed on your plan and ask who ever answers the phone if the drs also writes scripts for pain meds if he feels it is necessary. This will not make you look like a drug seeker. Not knowing how long you have been on your quest with PM there are a lot of stigmas attached to us by many and that happens to be one of them unfortunately. Also, your insurance may require a referral to a PM dr, most PM drs do require patients to be referred by another dr as well. You can also find out if the dr is taking new patients. Believe it or not, this will speed up the process with your PCP's office if you have this info available. You may find a person very friendly and helpful on the phone and that may be someone you may want to try. If you are given a hard time for asking questions, then I would mark that dr off and call the next. If a person is ugly or rude to me on the phone I never darken that drs doorway, if he is a good dr he will not hire staff that handles patients in that manner the way I see it. You are hiring them to work for you and you have the right to be treated with respect and dignity. It sounds like a lot of work but it really isn't, its just taking the time to make a few calls.
You certainly have a lot of issues going on that would cause you to suffer with severe pain. I think the neurosurgeon probably did you a favor by being honest about any kind of surgery. One thing I do know, most good neurosurgeons will not do surgery on people with bone spurs, it'd risky and a very good chance they will grow back.  I would bet with all of the stenosis you have going on which is narrowing, somewhere in the mix of it you may  have a herniated disc. It will not many times show up on an MRI but once the surgeon gets in there they find a herniation. I have seen people with symptoms of a herniated disc and it not show up on the MRI and the dr say no herniated disc, guess what, it could not be seen because of all of the narrowing. They end up having surgery and then there it is.  You will not get many good reports on surgery at this forum because most of the folks here for whatever reason did not do well after surgery. Had they done well, they would not be hanging out here they would be out getting on with their life as they should be.
Again, I wanted to pop on here and tell you welcome aboard and keep us updated on how you are doing. One thing we encourage all members to do is read the "forum rules" and abide by them. As one of our members here puts it, "keep us all coloring within the lines", lol. I think that is a pretty good summation of it. We also have CP101 you may want to read and go thru, there is a lot of wonderful helpful info listed there. Also, if there is a question you may have about something there is a "search" at the top and all you have to do is go there and you can find just about anything you can imagine on CP. By doing this not only can you get an answer quicker but you can find lots of info that way. It also helps cut down on posting on the same subject over and over. The owner of this forum is charged for each letter typed on each post. So, we like to keep things reasonable in that regard. Take care and keep after finding your new PM dr.

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Veteran Member

Date Joined Dec 2008
Total Posts : 773
   Posted 4/9/2010 7:36 AM (GMT -6)   

Hi 9yrs,

Welcome to our family!  How awful for you to have met a Dr. so ignorant....definitely keep searching until you find the right PMD.  I have found over the last 10 yrs. of CP, when I finally found the right PMD and correct dose of medication, although, the pain is there it is much more bearable! 

Don't give up....we are here to help with our support and care!


Veteran Member

Date Joined Jan 2010
Total Posts : 3557
   Posted 4/9/2010 7:51 AM (GMT -6)   
Hi 9yrs...

Welcome to HW...I am truly sorry for all the troubles with Dr.s and the pain that you are having.

There are a lot of caring people on this board who know what you are going through and can give lots of empathy and support.

I agree that you should continue to search for a great team of Dr.s. I have both a Neurosurgeon and PM Dr. who will do everything they can to help me avoid a 4th cervical fusion and they have come up with a comprehensive plan.

The best treatments for chronic pain usually have many modalities such as PT, exercise, yoga, aqua therapy, different injections, core strength training, muscle relaxers, pain medicine, antidepressant, sleep medicine, nerve pain medicine, cognitive behavioral therapy, seeing a counselor to help with the emotional side of chronic pain, eating healthy, not smoking, etc..

If there is something that can truly be 'fixed' mechanically so to speak, then finding a Board Certified surgeon to do this is important. They have the most years of training and newest technology.

We are happy that you are here even though it's because of pain...

It's a great place to vent, share ideas, help others, have a shoulder to lean on, and have some laughs along the way:)
SB and "the pup who snores loudly" 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006

Regular Member

Date Joined Feb 2010
Total Posts : 358
   Posted 4/11/2010 8:17 AM (GMT -6)   
Dear 9yrs, Welcome!!! to HW! I know you are going to enjoy your time here! I'm fairly new and still figuring things out here at HW, but I really appreciate all the people here and I also admire each one of us who make the step to gather with like people. It makes it so much easier to talk to someone who knows what pain really means. I've been having migraines since I was 12 years old and I found out that one of my dx's called Syringomyellia is what probably started the migraines and what is really causing pain now. It's amazing what I can find out by asking my neuro surgeon questions flat out! He's an amazing dr, but I too have a terrible time with my pain management doctor...wait, I don't have problems with him because I haven't seen him in over 8 months (I believe)! I see the Nurse Practioner at every appointment. I really don't like my pm group, but I too am having problems finding a pm group who takes my insurance and is hands on with the problems I have. At any rate, may you have a day free of pain and full of joy. I know you will learn a lot from the very wise and kind people here at HW and I imagine we are all going to learn a lot from you. Take care and again, welcome!
I'm called Cat, but as there are few other Cat's on here, I put the number of cats I have and combined it to spell out Catz4
DXed-Syringomyelia C-1 to T-1, Hypothyroidism, Diabetes Type II, IBS, Panic Disorder, ICC , Fibromyalgia, Migraines, Bipolar Disorder, Chronic Muscle Spasms, Torn Rotator Cuff in Left Shoulder, Had emergency surgery for ruptured bowel in '05 w/colostomy and takedown in '06.
Too many meds to name/Too many allergic reactions/sensitivities to too many drugs to name. Meds for Panic Disorder, Pain, Bipolar, IBS, Hypothroidism, Diabetes, Insomnia and then some.

Veteran Member

Date Joined Apr 2010
Total Posts : 2261
   Posted 4/11/2010 3:51 PM (GMT -6)   
Thank you Patti, Snowbunny, Catz4 and anyone else that i've missed.  I appreciate all the support and caring.
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety

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