Why Bother Anymore?????

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Johnnyhasbro
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/9/2010 11:06 AM (GMT -7)   
I am new to this forum as of yesterday. I found it tryin to find out if there was a place like this where you can talk to other people with pain. I have found that most people cant relate to you and dont understand what you are going thru. I had a car accident 2 years ago and ever since then I have had pain. I was rear ended and now have 2 discs in my neck herniated and pressing on my spinal cord which gives me the worst pain in my neck shoulder and right arm. I also have lower back issues as well a couple bulging discs and some other not so fun things to have. I am 30 years old and never had a problem in my life with my back I was always active and now I dont do much but work to pay the bills. I own a limo service and drive everyday... The pain is unbearable and I have been going to doctors that dont perscribe medication. These doctors are worker comp docs and just shove you in then shove you out. They refer me to a couple different doctors for PM but I get tramadol which does nothing for me. So i have been to the hospital a few times and they give me 10/325 percocet and I have to take like 4 or 5 of them to get releif. Just sitting here typin hurts my neck and back.... Sleepin sucks life sucks..... I just wasted 190 at the doc today and he gave me tramadol but he said it was another name and I thought that it was a dif med until I got it filled and saw the name he wrote down was the real name and tramadol is the generic. I have been dealin with lawyers and doctors for 2 mother FIN years now and I am so finished.... They want me to have anterior cervical discectomy with fusion on my neck, I said yes but have changed my mind and just want this all over with and behind me. My wife and I fight cause I am in pain and get seriously depressed. I have been dealin with the pain so far, so whats the difference if I just live like this forever and just move on. IDK sorry for venting but I get SO ANGRY that other people just walk into doctors and get whatever they want but have no problems and are scumbag drug addicts and people with legitamate problems have to go thru hoops to get help..... Hey life is what it is and when its over then you can finally rest right ???????

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 4/9/2010 11:41 AM (GMT -7)   
Dear Johnnyhasbro,

Welcome to the forum!

I'm so sorry to hear about your circumstances though....does your insurance allow you to go to another doctor who is not a workman's comp doctor? Can you tell the PM doctor that the tramadol doesn't help and you need something stronger to allow you to work with less pain?

All of us have had issues with finding the right pain meds....for me the "right" one probably doesn't exist. Fentanyl patches have so far been the only things that really, really helped with my pain, but I can't use them because they interfere with my breathing and swallowing. I'm on Dilaudid right now, which does help, but not as much.

You are in my thoughts and prayers, for whatever that's worth....I hope things start to get better for you soon!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

autoimmunediseasesgfliving.blogspot.com


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 4/9/2010 11:59 AM (GMT -7)   
Hi JohnnyHasbro,

Welcome to the forums. It sounds like you are really suffering right now and I'm sorry to hear that. Are there other doctors you can see? Can your regular doctor refer you to a pain centre for follow up? And why are you deciding against the surgery...are you concerned it wont help and will only cause more pain? (sorry for all the questions!)

You've definitely come to the right place for helpful advice and the ability to vent. We all understand what it's like to live with CP, so we know the feelings you're dealing with as well. I hope others here have more help or advice for you than I do, but I wanted to welcome you.

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/9/2010 12:04 PM (GMT -7)   
Hello Johnny! I'm so glad that you came in to join us here on the forum. We really enjoyed having you in the Chat Room last night as well.

Johnny, there will be members here that may have better recommendations than I have for you. First, I wanted to say, don't blow off the surgery too fast, as there is a lot of success for fusions in the neck area. A very knowledgeable member here and a Moderator is White Beard. He just posted a lengthy post on this very subject. WB is a pretty straight forward tell it like it is kinda guy, but he does know his stuff, so we do give him credit for it! I will try to find the post, so that you can read its contents.

I hate to hear it when a person goes the workmen's comp route, because your pretty much at the mercy of the company doctors. I have a buddy that has the same problem as I at work, and he went the workmen's comp route and I went the other way which is on my own. He regrets ever going that way, and they have not done anything for him to this day. He said if he wants help, he will have to take legal action.

Lets hope another member has a better suggestion for you on how to handle this. It sounds like you do definitely need some stronger meds though.

Hang in there my friend, and I will try to find White Beards post on the cervical fusion. If another member can find it, I will appreciate the help.

You know, I just thought of something! Pain meds and your current job will probably not mix too well either. Humm! What do we do now?
I really wish you would visit the surgery offer again. It is your choice though.

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.

Post Edited (Screaming Eagle) : 4/9/2010 1:11:28 PM (GMT-6)


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 4/9/2010 12:35 PM (GMT -7)   
Hi Johnny...

Welcome to the board. I'm sorry, though, that you are dealing w/ so much pain... I can see how frustrated you are. Don't apologize for venting, though :) We do it here all the time :)

You've already been given some good advice so I don't really have anything to add that way... other than, I really hope you can get to a doctor that will really help you. I agree - it's so frustrating to need pain medications - and not be able to get them.... It sounds like you really need something to at least take the edge off of your pain.

Well, Johnny - I hope you keep posting...and I look forward to getting to know you better.

Take good care --- Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain; migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation


bsjaguar
Veteran Member


Date Joined Jun 2009
Total Posts : 974
   Posted 4/9/2010 1:00 PM (GMT -7)   

Johnny, I'd have to agree with Screaming that you will probably have a hard time finding a doctor to prescribe you stronger pain meds do to your job.  I was never able to get proper pain management meds until I quit working do to working around moving equipment.  Have your doctors considered something for nerve pain such as lyrica or neurontin?  Some of your pain may be nerve related considering the disc problems in your neck. 

Do check more about the surgery your doctors have recommended.  Before my cervical fusion, the shoulder and arm pain along with tingling & numbness got unbearable.  There was a time when I lost complete use of my left arm before my fusion but with the help of PT I did get that back.  Has your doctors suggested physical therapy or any type of injections?  Normally surgery is a last resort thing only after you have exhausted the non-invasive treatments.  Normally, insurance companies will require them before surgery also.

Let us know how things turn out for you.  Oh, yea, welcome aboard!


---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/9/2010 1:02 PM (GMT -7)   
HealingWell.com Forum > Diseases & Conditions > Chronic Pain > Riskier surgeries for back pain raise costs

Ok Johnny, I found it! Go to page 2 of our forum, and look for the thread Riskier Surgeries for back pain raise cost! White Beard has posted a reply there, and I think it might shed more light on the cervical surgery.

Good Luck to you. Let me know if you can't find it. I would just copy it and paste it here, but I'm not sure the rules will permit it, and I get tired of getting my rear chewed on for messing up :)

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/9/2010 1:58 PM (GMT -7)   
Hi, Johnnyhasbro,
I also want to welcome you to the chronic pain forum of Healing Well. You're not alone in the challenges you face, that's for sure, and I do think worker's comp often makes things more difficult because you have to follow their doctors, etc. I do hope you have a good attorney. But like others have said, we often have trouble finding decent pain management - and I'm in that boat myself now.

I have bumped up the thread SE mentioned above to the first page, and you can read it all or just scroll down and read WhiteBeard's post about his surgeries. I'm sure he'll be along later if you want to ask him more questions. I've had a double lumbar fusion, and like WhiteBeard suggests, the cervical fusions seem to be more successful. That doesn't mean surgery should be done lightly, but sometimes it's the only option. Also remember that people who have had successful surgeries probably aren't posting here because they're off living their lives. So the stories you read here about failed back surgery (I'm one of them) are very likely tilted in a negative direction. Yet I'd never go into surgery without at least a second opinion, and having tried other less invasive options first.

One thing that's good to do as a new member is to read through the forum rules. This is a family friendly site, so although I know it's frustrating you may want to watch some of the wording you use when you are venting. A couple of things in your post (I think you can figure them out) you could edit out yourself by just clicking on the pencil icon in the upper right hand corner of your post. That's how you can edit any of your posts, although only moderators can edit the posts of other members. There's also a lot of great info. in the CP101 thread at the top of the page. Many great resources.

Again, welcome!

PaLady

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 4/9/2010 2:00 PM (GMT -7)   
Hi Johnny; I talked with you last night in our chat, but I don't think we've been properly introduced. It's so nice to meet you. I am sorry your in pain. I know what you mean by having doctors that WC wants you to see, believe me it really sucks. I too am going through Workers Comp and it is a real hassle to get anything done right. I have been fighting them for 6 years to be able to do a trial with the Spinal Cord Stimulator, but they seem to think that they don't work period...so why try them.

Anyway I do hope you get more help.

Hugggs

Scarred
I live to "Tame My Pain!" 


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 4/9/2010 2:06 PM (GMT -7)   
Johnny,
My car accident happened in December 1997, at the time the Doctors told me I had sprained the whole left side of my spine,
it was the other person fault as she failed to stop at a stop sign and turned left into us, she was 16 no drivers license or driver permit,
and the parents got two tickets and they called us at home the next day to say they didn't think their insurance would cover it..and failed to ask how I was...

but anyways..Keep looking for doctors that will take WC, there are good doc's out there..have they tried injections, or radiofrequecy ablations, ultra sound
or tens...and the latest is botox injections for pain, I don't know anything of those...sometimes chiropractic treatments can help just don't let them push you...
but please try everything before surgery as once surgery always surgery as it won't last...
Hopefully WhiteBeard will come around to give you some great advise as he's been thru a lot or go and read thru some older posts...

Family and friends usually don't or can't understand how we are in such pain, basically cause pain can't be seen, so sometimes creul things can come from
those we love and they don't mean it...If pain could be seen they'd know better..don't get so discouraged yet, hopefully you will find a good doctor
that can give you better treatment...
((((((((((((((((((((((((((((((((((((((((((((((JohnnyHasbro)))))))))))))))))))))))))))))))))))))))))))))))))))))))))
please know we care, what I said was meant in a nice way...
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 4/9/2010 3:44 PM (GMT -7)   
Hey Johnny man , welcome brother , I hear your frustration and its natural to lash out when you feel an injustice has happened to you .I will tell you brother the quickest way to come to terms with it is to accept it , your not dead by any means and can still live a full life .Although your real job has changed , it is now total dedication to making yourself healthy period .Doing all you can to help your body heal .You sound like a strong man , use that strength and frustration as motivation to get yourself healthy , I reccomend juicing , you should eat totally healthy it will help your pain , use physical therapy to excersise safely , and excercise your mind , take a class or join a group .Painting , meditation ,writing any thing that interests you , meet people and don't stop living life .Don't isolate or you'll just make it harder for yourself , seeek out people and reach out like your doing here , only inperson , we need human contact ,Good luck friend !! you can do it !!!!! Mikel
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines -    ,viracept,truvada, lasix .  oxicontin  '                                                                                                                         


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 4/9/2010 4:52 PM (GMT -7)   
Johnnyhasbro

I know exactly what you mean about the pain. I have a couple of questions, is the pain in you neck an should and right arm is this the main painful area? The ACDF that they are recommending may I ask why you changed you mind about having this surgery? I can only relate to you my experience, my first ruptured disk at C6/7 put me into pure H***!! I went months before I got a diagnoses, and finally proper treatment! The pain was so bad I wanted to die! and I thought I was dieing! I was 34 then an I was in the Air Force Stationed in Alaska. Finally when I was diagnosed and they found out how bad things really were, they ended up doing emergency surgery, at a civilian hospital in Anchorage, the surgery literally saved my life! Back then the ACDF was a relativally new way of doing the cervical disc fusion and I spent 8 days in the hospital, and they took the bone for the graft out of my own pelvis! Afterward that hurt more than the fusion! Last September I had to have another disk fusion the one above C6/7 went bad. This time I was only in the hospital 3 days, ( usually they only keep you for 2 days but I had some other pain issues.) they used donor cadaver bone ( so no pain from a second surgery) and this surgery was a real piece of cake! They removed the disk and bone that was pressing on the nerve root, put in the donor bone for the fusion graft where the disk had been and put on a plate with titanium screws to hold it all together and it was done! I want you to know the same day I came out of surgery and when I woke up in my room, the excruciating pain that I had had in my arm was completely gone!!! I was still having some neck pain but that was caused buy something else! Previous to having this second surgery I had, had two epidural steroid injections, but they only gave me a few days or weeks of relief! The pain relief from the surgery is permanent!

I am not telling you that surgery is the answer to your problem, and that if you decide to have it, you will be as happy with it and have as good of results! I am only telling you how it was for me! The one thing I will tell you the pain meds they gave me (both times to control the pain in my arm caused by the bad disk in my neck) well nothing touched the pain and did away with it! Nothing! Pain causes from nerve root impingement, or stenosis of the spinal cord is very difficult if at best to control or do away with! However you are right they were not even coming close to giving you adequate pain control! Epidural Steroid injections would be much better as it treats inflamation, which is what is causing the pain, because of inflamation of the spinal nerves, because of the impingement by the bad disk! However the injections only helps do away with the inflamation of the nerve, it does not remove the cause of the inflamation ( the bad disk).` Surgery does that!
Am I to assume that you have had an MRI of your cervical spine?? Have they told you what exactly is wrong with your cervical disk and have they explained the surgery to you?

Johnnyhasbro if I can be of any help at all to you let me know you can alway E-mail me using the mail indicator under my name on the left! You are not alone in this there are many here that have been through this and know what you are feeling and are going through! Hang in there we are all here with you to give you support! and to lend you our ear! Oh Yes ( Welcome to our forum family!)

I do wish you well Johnny and Good Luck to YOU ( contact me if you need to)

White Beard

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 4/9/2010 5:42 PM (GMT -7)   
Hi Johnny,

Welcome to the boards...White Beard and I have a lot in common with our cervical surgeries...I have had 3...the last one being a 360 where they went in from the front and the back to really fill me with nuts and bolts:)

I won't repeat a lot of the same questions that others have asked and wait for your reply on some of them...

I do agree that surgery is truly necessary at times when nerves are being compromised and causing damage and loss of feeling in arms/hands....And as WB has said..after each surgery..the specific nerve pain and numbness from that disc pressure was immediately gone...

After my first surgery..which also was just Anterior...and used my bone from my hip..as well as no hardware...did last for a good 3 and half years before I started having pain again...but in my case..the bone actually reabsorbed into my body (that is fairly rare), so my spine collapsed in those levels again..
I only stayed in the hospital two nights..and after about a month..I was on no medication whatsoever and besides roller coasters and bungee jumping...I was pretty much good as new:)

My second surgery with donor bone and plates/screws...was done by an awful surgeon and I stayed one night in the hospital...and he sent me along my way but I was still in excruciating pain..worse than before the surgery...

It took a good year for me to find another Neurosurgeon whom I will never leave!!! LOL...he went in a took everything out and started over..He was very honest saying at this point I would always have some pain and this surgery was to fix the last surgeon's job but not to take away the pain..

I still don't regret having the two, as I have full use of my arms and hands...and I can manage the pain I have now with medicine along with other modalities...

Most surgeries should be done if the risk of not doing them is greater...and for most of us with chronic pain...we don't rely solely on medication to help...there are dozens and dozens of things you can do to help with the pain and in combination with everything, it can lower it to a tolerable level..

So..if you feel like posting again with some more information on the tests you have had done...other treatments like injections, therapy, etc.

Welcome to HW...it's a wonderful place full of caring and supportive people:)
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/9/2010 6:02 PM (GMT -7)   
WhiteBeard, Snowbunny & anyone else who has had a cervical fusion,
One thing that I don't see mentioned often that I'm curious about is how much range of motion did you lose after the fusion? I guess I ask because I've had cervical issues for decades now that I have managed with PT, exercises, ergonomics, etc., but I can tell it's slowly worsening. My ROM is decreasing, although I only have pain down my arms if I sleep incorrectly or without a cervical pillow. So I'm just curious about the ROM after cervical fusion.

Thanks,

PaLady

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 4/9/2010 6:51 PM (GMT -7)   
I had a two level fusion done each of the 3 times...so in the beginning..after the first one..since I didn't have hardware...the range of motion was pretty good...but now that I have all the bells and whistles...I have a bit of trouble looking all the way left more than right...I can still drive...it just takes a little more effort and using mirrors....As well as it hurts to look down with chin going towards chest...

So I bought a shower chair to shave my legs on...because showering is hard enough raising my arms in the air for too long...and then trying to look/hang head down to shave legs was almost impossible...so that has helped...

And then have to watch when I lean back to put my contacts in...it's not like it's excruciating...just enough extra pain to make me stop and do it much slower..

And sometimes when it's quiet and you are moving your neck..you can hear the creaking of the titanium in there...sounds pretty cool!! LOL...But it really isn't any less than before the surgeries since I was in so much pain, I could barely move my neck, arms, and hands back then...
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/9/2010 7:03 PM (GMT -7)   
Thanks, SB! We all really are becoming bionic, one section at a time!

PaLady

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 4/9/2010 11:15 PM (GMT -7)   
PALady


I agree with Snowbunny21 , but I had 1 level done at a time. I have more problems, with the range of motion, because my cervical spine is a mess, along with the rest of my spine. I have lost some use of my arms and some neurologist have said it is the spine causing the problems but other doctors and surgeons say there is something else going on? So who do you believe??



White Beard

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/10/2010 2:13 AM (GMT -7)   
Thanks, White Beard. I was curious. I'm sorry your surgery didn't help more than it did. I know it relieved your pain, but I was hoping it would fix a few more things.

I don't know who or what to believe about these bodies of ours! I feel like I'm falling apart one piece at a time, and I used to be reasonably healthy. Well, before 2004 at least. I can't believe it's been that long since I fell.

Johnny hasn't posted again. I hope I didn't sidetrack your thread, Johnny. If so, I apologize.

PaLady

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/10/2010 5:31 AM (GMT -7)   
Good morning! Well while I have not had the cervical fusion, I do need the surgery per my Dr suggestion. I defiantly have lost some range of motion in it, and have a very hard time turning my head to the right. However right now, I'm not interested in anymore surgery's at this time or anytime for that matter.

White Beard has posted some pretty good reading and advice for those who are considering this type of surgery. I for one have reread it several times, and will keep a copy for myself as a reminder.

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.

Post Edited (Screaming Eagle) : 4/10/2010 9:28:18 AM (GMT-6)


Johnnyhasbro
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/10/2010 9:38 AM (GMT -7)   
Thanks you all for your support!!!! The pain in my neck/shoulder/arm is everyday and worsens when I drive and do other activities. Just pickin up milk or water out of the fridge hurts. The lower back feels sore all the time and I get electrical jolts every now and again depending how I move or what I do so I am limited on bending over and all other physical activities. Just goin to the bathroom sucks and there are days where I cant even clean myself like a normal human being and have to go in the shower... The feeling of helplessness or loss of independence is the worst feeling on the PLANET... Having to suffer for what??? I look at it like this, someone caused the accident who wasnt payin attention and now my life has been ruined. Why do I have to live like this why me what did I ever do to anyone or anything to have to go thru all of this??? People tell me it will be ok and it will get better I try to beleive that but most of the time it is very difficult to beleive that when I have this and other issues in my life right now.

I have called so many PM docs tryin to find help cause the WC comp docs are just for the surgery and once the ins carrier knows that that is all they will approve. And I know driving for a living isnt good for my back and thats a huge reason why docs prolly wont give me anything stronger but it is very discouraginging when they say that they arent takin new patients or no ins no help or its 200 to 500 a visit plus tests. I am not rich I get by with my business but OMG I thought docs are supposed to help people....

I have been given a epi in my neck but got sick from it and felt no different after the 3 4 days of being sick. So the doc said no more of those. I have tried chiro, electro stimulation, heat, cold, and OTC meds. I am 6 1 255 i used to be like 290 300 and have been that way since high school, I am not a gigantor I carry my weight in my tum tum. So losin 50 pds or so in the last 8 months has had to help, I have gone down 4 belt holes already LoL... So the three different ortho docs I have seen all recommend the fusion. Now I have seen three cause of WC not cause I change them. So this last doc is suposed to be one of the best for whats thats worth. I said yes to the surgery but then changed my mind because it is not financially responsible for me not to work for 6 to 8 weeks. I would lose so much and I just cant do it right now, if something changes monatarily in the next couple months then I will have it but until then I will just live the way I have been for the past couple of years.

My wife made me go to a therapist to because she was afraid that I would hurt myself cause I get so depressed over all this. I have told her that I wouldnt and I dont wanna do something like that but then you wonder..... IDK i am just rambiling now... All it is is me and her thats all and even that is so strained right now cause of me and my problems. I dont have a relationship with my parents anymore, I have bros and sis's but dont talk to them much. And her family I have never been close to I describe it like her family is a nice puzzle all put together and I am the oddball peice that doesnt fit... It may be hard to understand that or it may be easy but thats how I feel. I am the nicest guy you will meet I might be big and have a couple tattos but I will bend over backwards to help you, I do it all the time. But I beleive I will be stopping that now cause the last person that I tried to help was just usin me. We were friends for a while and I didnt wanna beleive everyone else I thought this person was genuine and true but I guess people will say whatever they want when they need something...

Man I dont normally tell anyone these things but it feels semi good to get some of this out.....

I thank you all for your help, hugs, and prayers and hope someday I will be in a better place

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 4/10/2010 10:15 AM (GMT -7)   
Johnnyhasbro

From what you are describing I would not wait to long and I certainly would not be lifting anything and would not be bending over any more than you need to. Have your wife help you get dressed and put on your socks! This might sound odd but seriously you might consider stool softeners as you should not be straining yourself when doing those bodily functions, untill you know how bad your disk are, and get them fixed you need to be extremely careful! Maybe I sound overly cautious, but I know I was messed around for several months before I was finally diagnosed and treated, and they darn near made me into a quadriplegic! This is scarey stuff when you have Cervical disk problems! I had a military doctor who was an osteopath and he manipulated my spine when all this was going on and when he did it felt like a bolt of lighting had stuck me and my entire body jumped off the table and he jumped back, the look on his face said it all! He was afraid and he told me he would never do that to me again!. The surgeon, just shook his head when I told about it before the surgery and he told me some one was definitely watching over me, because with the damage the MRI showed right then, that I should have been paralyzed, and nobody could explain why I wasn't! So PLEASE be CAREFUL and I would think long and hard before going to a Chiropractor and being manipulated, that gives me the shivers just thinking about that! I know the pain I went through, and I would not wish that on anyone! Not even my worst enemy! So I have an idea on what you are going through! And no one, absolutely no one! unless they have experienced something similar has any notion of what you are experiencing! So I can not stress this enough, BE CAREFUL!

I do wish you well!

White Beard

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 4/10/2010 9:44 PM (GMT -7)   
 
 
   Dear Jhonny,
 
    Good evening. We met last Thursday at Chat Night. I am sorry I didnt stop by sooner. *hugg* I am glad you came over to the forums. I have read your posts fully and first and fore most I want to tell you. You are not alone. We really DO understand.
 
     I know you said you have no family and friends. But now you have friends. Here at Healing Well. We might not be able to go out for coffee together, but we can brew some coffee and meet up in the chat room *hugg* Also, there is Healing Well on Facebook :-)  Many of us are members there too.
 
     Your wife sounds concerned. Though I do understand why she has concerns.... What type of therapist did you see? Did you see one that specializes in chronic illness? The difference is like night and day. They help us to rebuild ourselves and our lives step by step. The also include your spouse along the way because it is important that our spouses are taught, by a professional, what having chronic illness means. I know others have said casually that just any "social worker or psychologist" can help... but trust me, I spent alot of time with a pain psychologist. They can help, alot. Many of us have sought the assistance of one. Their value is immesurable.
 
    I completly understand about not want the surgery do to financial problems. My out of pocket expenses for all my health was $22,000 last year, and I have PPO. No Kidding. When you see the doctor next tell him or her falt out. You simply cannot afford it right now and it will take (year-2years) to save up the funds to take that much time off from work. I know they never want to discuss costs, but I am rather forward with my own doctors. Money is tight, these tests and procedures cost a great deal. And they need to know there is limitations.
 
      I will end this here, but know you are in our hearts. And it is very nice to meet you both in chat and here on the forum!
*hugg*
   dani
    

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3610
   Posted 4/10/2010 10:41 PM (GMT -7)   
Johnnyhasbro

After rereading your last post let me ask you, What Cervical Disk are bad? Does your Doctors think it safe for you to drive with the condition of your neck? You know if you get into any kind of accident or anything that could cause whip lash, that could be very, very, very bad for you!! You said it was not financially responsible for you not to work 6 or 8 weeks, and you can not afford to lose that much. Well can you afford not to have it done? Believe me I do understand about dwindling finances, but there could be allot more at steak here, and from what you are describing with your pain,.... well Johnnyhasbro your the one that has to live with it, but at least talk with your Doctors and make sure that your decision is a wise one! The pain you describe does not sound good! and these type of things can get worse! Again I will ask you to BE CAREFUL and maybe give it some more thought!

I wish YOU well!

White Beard

Johnnyhasbro
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/12/2010 5:38 PM (GMT -7)   
I know the wife just wants to help and be there for me but she is a caregiver for a living then she has to come home to me and deal with all my stuff. I dont think it is fair to her at all. I love her she loves me but there comes a point when you have to think how am I affecting the other persons life???? I feel that she would be better off without me and I cant say if she would be happier, she prolly wouldnt at first but then she would move on. As for me I guess I am doomed to walk the earth in pain and with problems the rest of my life. Not tryin to be gloomy but thats the way I look at it. We dont do pretty much anything like we used to and its all cause of me. Just for example I had to sell my bike cause I couldnt ride anymore, now I would ride by myself and with her. That was a joy in my life I have no more... Oh well, the discs that are bad in my neck are C 4 5 6 which are pressing on my spinal cord cause me unbearable pain in my neck R shoulder and R arm. The doctors are idiots all they care about is getting paid. I have told them what I do for a living and they dont say much of anything. IDK I have an appointment wit my lawyer on friday and have some serious questions that need answering. Its like today I have been in the GD car since 11 am now I am home as of 8 pm but wil be back out at like 12 am till 3 am then come home and go back out at 5 am then have to go to the doc at 930 am. So as of right now I am in pain and by the end of the doc app 2maro I will have been up like 24 to 26 hrs straight and my neck and back will feel like I just got hit by a train... And all I have for pain releif is tramadol which dont work and I flushed a day ago. Who knows why things happen and why we meet certain people in our life. So I am off again and will type you all later....

Pauliegirl
New Member


Date Joined Apr 2010
Total Posts : 7
   Posted 4/12/2010 9:42 PM (GMT -7)   
Dear Johnny,
I can understand what you are going through. I have had between 12-15 neck and back surgeries. Most of the surgeries were on my neck, however they didn't do anything to relieve the pain. I get those electrical jolts through my arm that you were describing in addition to numbness and tingling. My forearm and hand throbs but the pain is coming from my neck. I also have extreme shoulder pain. I also broke my shoulder and clavicle and they eventually removed the end of my clavicle because it would not heal. The pain travels into my shoulder around my armpit and into my ribs. But mine is all left sided pain. I also experience alot of lower and upper back pain. I am at my wits end too because I feel I have tried everything. I have had so many epidurals that I cannot count with no relief. I also have a spinal cord stimulator that I have not used for over 2-3 years because it does nothing for the pain.
The only thing that I can suggest to you is to try and pay the money somehow to see a different PM doctor preferably at a teaching hospital. I do not know your location but for instance I am close to Philadelphia so I go to Thomas Jefferson. They have their own pain clinic with pain specialists. There is a medication that may help you but you can only take it short term. It is called Toradol. I received it after surgery between fentanyl doses and thought it would never work. But it does work and it works GREAT and it is NOT an opiate. But, like I said you can only take it for 5 days at a time. I hope you can find some relief. I cannot imagine having to drive for a living!!!
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