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Veteran Member

Date Joined Oct 2008
Total Posts : 2022
   Posted 4/13/2010 6:05 AM (GMT -6)   
Hello my dear friends.
Welll I have finished the first week of my ketamine infuision (for those who don't know, I have constant headaches, have had for ten years, no one can help. and a dr. at my hospital, I am a nurse, is trying to help me with ketamine infusion cycles which can break the pain cycle for those in chronic pain)and this is my third cycle. I has been way different than the other two cycles in that it did not affect my mobility so much as I was able to get to the bathroom with my cain, but I was super out of it, drowsy, never able to open my eyes, always sleeping and the pain in my headaches was horrible. So horrible I was afraid to move, to talk, to cry and oh my have I dried bucket this week. Anyways I guess i got thru the rough part cause I am still here and I have my dear friend Micheal who kept calling me and telling me to hang in there just a little bit more each day because he knew if I got past the first week of the infusion then my body starts to get used to the medication and it isn't as rough any more. So I listened to him and he listened to my cries for help and desperation and I was scared and I did not want to live. He kept me going. Michael you are one special person and I know that somehow somewhere we will me each other in this day and lifetime.
So Monday was the start of a better day. although be it difficult because I had a funeral to go to for a young mother, I knew I had to be there and I believe God carried me today and stayed with me each minute of today beause how else could I have done this after spending one whole week in bed wishing to die. I have thanked the Lord a million times today.
Today I need to go for some testing for my bladder parts becuase due to all the narcotics i have taken for my chronic pain i am having to strain to void now and that is not a good thing. I will most likely have to do intermittant catheterization.
So I'll leave you with all that info for now but I will be back because it is all of you here at HW that keep me going. Much love.
I pray that many of you can have a low pain day and that you have some sunshine where you live. And if so try to get outside for at least twenty mintutes as it will make you feel soooooo goood.
Love and hugs
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 4/13/2010 7:59 AM (GMT -6)   
Hi Suzane,

It's good to hear from you and it sounds like some positive things are happening. Make sure you don't overdo it - I'll keep sending positive thoughts your way. Good luck with your doctor today re: the bladder issues. I too am a trickler...I have major urgency issues but when the time comes to actually urinate, it takes forever and it's a very slow process. I'm actually seeing my doctor today, so I planned on mentioning that to her.

I hope you have a great day under sunny skies.

Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily

Screaming Eagle
Forum Moderator

Date Joined Sep 2009
Total Posts : 5005
   Posted 4/13/2010 10:38 AM (GMT -6)   
Good to hear from you Suzane! I knew you would see some sun light soon or later, as I have followed you through these cycles before.
I'm not sure, but I was thinking that the med is a form of LSD, is used in the veterinary clinics. I think Skeye has mentioned this before, and they call it Special K on the street.

Suzane, you have suffered horribly with this problem, and I so hope the Dr finds a permanent solution soon for you.

Take care my good friend!

SE & Mrs. Eagle :)
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 4/13/2010 12:00 PM (GMT -6)   
    Dear Suzanne,
     Good morning. *hugg* I hope you are taking a bit of a nap right now. You have had a very hard week, and no doubt it is taking physically and emotionally. I do hope the results are good for your latest round of infusions.
     I am very sorry to hear of the loss of your friend. It must be very hard on you, as I know you are very compassionate person. You are in our prayers here and always in our hearts. Stay strong and rest as much as possible!!!!



Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood



Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 4/13/2010 1:11 PM (GMT -6)   

I'm glad you made it through the rough parts of the infusion and have come out on the other side. Sincere condolences on the death of your friend.....grief can be even harder to deal with when we are having medical issues. You sound like a very strong person to be dealing with all that you have on your plate!

I'm also sorry to hear about your urinary issues; I've begun to have some of those problems too, it's fairly common in lupus I believe. I hope your urologist can help you with this!

You're in my thoughts and prayers.....
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


Veteran Member

Date Joined Jan 2010
Total Posts : 3557
   Posted 4/13/2010 5:24 PM (GMT -6)   
Hi Suzane,

Thanks for the update on your treatments and your pain levels right now...I will be praying for the other tests you have coming up...it's always good to keep on eye on other internal functions with the medicine that we take so glad your Dr. is on top of that...

And yes..I totally agree about being able to get out for just a bit in the beautiful weather! Today we had rain,,but the past few days have been amazing and just walking with the dog has helped lift my spirits and help with pain levels stretching the legs and getting fresh air:)

Take care..
SB and "the pup who snores loudly" 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006

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