Can life Suck any more then it already does???

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Scarred_for_life
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Date Joined Jul 2008
Total Posts : 1559
   Posted 4/13/2010 10:21 AM (GMT -7)   
The answer to this question is YES!  I went to the doctor today.  I was informed that I will not be getting the SCS anytime soon, as it seems that I did not answer the questions in the psych eval and am being punished!  My crime is that I was honest on the Evaluation and was told that I am "Faking my pain". Or something to that effect....basically I am over stating the pain that I am in is how the doc put it today. 
 
So......what is my punishment you ask???  Oh well, I am being taken off my BT medication and will not be able to take anything for BT pain for at least ten days.  Plus I am losing my Celebrix, which is really no big deal since it isn't really working that well anyway.  So now I'm going to get on my soapbox before the pain gets so bad I cannot sit in my recliner.  Maybe someone else can explain to me why it is necessary to tell a patient that they Will be Getting the SCS by not only the psych that I have been seeing for the past year, but too by the psych that initally decided I needed to go to therapy in the first place.  Then I am told gee nope we are just not ready to give it to you yet.  God I hate doctors, Psychologists and lawyers right now. 
 
I'm in tears because this hurts so much.  I have been working so hard on making changes in my life and its just not good enough?? I'm insane or what???  Why is it that I am denied?
 
Okay gonna get off my soap box before I get to carried away and cause my BP to go up.
 
Hugssss
 
Scarred
I live to "Tame My Pain!" 


nasalady
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Date Joined Sep 2009
Total Posts : 1176
   Posted 4/13/2010 10:26 AM (GMT -7)   
Oh Scarred!! I'm so so sorry! How can a doctor do something like that to a patient in pain.....just yank the meds that you need for breakthrough pain like that???

I'm so ANGRY at your doctors! Is there anything at all you can do to fight this?
Lyme Disease, Babesiosis, Ehrlichiosis, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, Doxycycline, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP

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momtofourangels
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Date Joined Apr 2010
Total Posts : 2261
   Posted 4/13/2010 10:42 AM (GMT -7)   
Oh Scarred.  I'm so sorry that this has happenedcry   I don't understand how they could do this to someone that is in chronic pain.  We're all here for you.  (((((((((((((((hugs)))))))))))))))
 
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


Scarred_for_life
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Date Joined Jul 2008
Total Posts : 1559
   Posted 4/13/2010 10:46 AM (GMT -7)   
Thank you Nasa and 9. I don't think there is anything that I can do to fix it or make them believe me that I am in actual pain. I am so angry, hurt and feel like I have been crushed

Hugs to both of you

Scarred
I live to "Tame My Pain!" 


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 4/13/2010 11:13 AM (GMT -7)   
((((((((hugs)))))) I am very upset that happened to you . Are you on still on the la med for pain. ?
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis ,gerd,gastric ulcer,gallbladder removal 3/23/10.
 
meds lunesta, prilosec otc,lortab ,reglan,flonase. ibuprofren, zyrtec and benadryl.


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 4/13/2010 11:45 AM (GMT -7)   
Yeah I am on Kadian, but after about 8 hours I'm in gobs of pain
I live to "Tame My Pain!" 


bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 4/13/2010 12:39 PM (GMT -7)   
Hi Scarred:

I am so sorry, I know what it is like to be treated like this and it is crushing. I don't understand why they are putting you through so much to approve the SCS. I'm sorry I can't remember, have you done the trial yet? It should be pretty much black or white - if it helps they should go through with the implant, if it doesn't, you don't. I saw a psycologist once just to make sure I didn't have unreal expectations of what the SCS was capable of doing.

Is there any way that you can change doctors? It seems like the ones you are seeing now are determined to work against you instead of for you.

I am sending positive thoughts your way along with a big cyber hug.

Lorie

Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 4/13/2010 12:49 PM (GMT -7)   
Scarred,

I am so upset to hear about the news with the SCS..I have never seen someone have to jump through so many hoops for this particular treatment!

What is the purpose for being off the BT for 10 days? Is this Dr. trying to guage by having a 'drug holiday' of sorts to see what level you are on the pain scale? What is his plan after the days are up? Are you able to go back on them?

I guess the one good thing would be not taking you off your Kadian so at least you have something...and I know it's not much..but adding in ibuprohen or acetaminophen during this time might help even the tiniest bit...

Is there any way you can just start over with a new Dr. on your own? Or are you tied to WC forever?

Sorry for the questions..and don't feel you have to answer them right away..I know what a hard day you are having...

So I am sending you some really big hugs...I think we are all so angry with you about your treatment! I would be writing a letter to the State Medical Board if I were you..this is just awful:(
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 4/13/2010 1:06 PM (GMT -7)   
Hey all.
 
Unfortunely I am bound pretty much to WC it would seem.  I don't think my ins would even cover me on this.  I think that they would see this as a pre-existing condition.  I hate the fact that I am pretty much stuck with all of this right now.
 
SB; I was told it is to see if I am having as much pain as I say I am.  Which really bites cause I have been on this med for a little over a month and I am wondering if I will go through some kind of withdrawls without it.   She doesn't want me to back down the BT meds...just stop.  I can't take acetomephen because I am having liver problems right now and they are worried that it will get worse with any amount of tylenol.
 
BlueJet; I haven't done the trial yet, this is all to even Get the trial done. 
 
The funny thing is everyone keeps telling me that there is no wrong answer with the Eval, but apparently there is!  Or I wouldn't be in this position.
 
Huggggs
 
 
Scarred
I live to "Tame My Pain!" 


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 4/13/2010 1:32 PM (GMT -7)   
Is that morphine . if I finally did decide to go back on pain meds   chronically I dont have much to choose from. I am allergic to morphine and dilaudud. I pray the dr sees your are really in pain. ((((((hugs))))))
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis ,gerd,gastric ulcer,gallbladder removal 3/23/10.
 
meds: lunesta, prilosec otc,lortab ,reglan,flonase. ibuprofren, zyrtec and benadryl.
 
Just added today: folic acid supplement  1 mg a day for the next year and also b12 injections increased to once a month. pernicous anemia and  Folic acid anemia.


flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 4/13/2010 1:40 PM (GMT -7)   
Wow. I'm so sorry that you're going through this. Do your doctors have a plan? Are you going to see your doctors in the next ten days, so they can see how much pain you are in?

Will the doc put you back on your breakthrough when the ten days are up and they see how much pain you have?

It really is incredible to me that doctors can do things like this. I would never wish my pain on anyone, but sometimes I wish that doctors like this could live in our bodies for five minutes, then they would understand what we go through.

I'm sorry that I don't have more to say...I'm just shocked.

Hugs,

Flower

skeye
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Date Joined Mar 2008
Total Posts : 2976
   Posted 4/13/2010 1:51 PM (GMT -7)   
Scarred,

Have you thought of switching doctors? Something just doesn't seem right here to me. I don't see how someone could tell you you need an SCS & then say that you can't have one, or tell you that your pain is overstated, when pain is something that is entirely subjective. If it were me, I'd be looking for another doctor. Sorry that you have to go through all this.

hugs,
Skeye

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 4/13/2010 2:05 PM (GMT -7)   
I know skeye! This is where hubby and I think its crazy. I don't know at this point if I can even find a new doc. Going to discuss this with hubby tonight and see where we stand as far as our own ins. I am keeping a journal of my pain. It's already gone up a full point ( a 7 to an 8) since 11:am this morning. I think at this rate by tonight I will be in such pain that I will probably end up in the ER!! Is that what they want?????

Hugs

Scarred
I live to "Tame My Pain!" 


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/13/2010 3:03 PM (GMT -7)   
Scarred,
I am truly sorry this is happening to you. I saw your other post about the psychologist input and you won't believe this but I do agree with you. I've always felt that all this was nothing more than W.C. putting you through one hoop after another until you give up or....or what? I know you said you didn't have an attorney yet but that doesn't seem right either. W.C. seems to be getting away with way, way too much here.

Several of us noticed how upbeat you were when you started posting again - after you were finishing with the pain psychologist, so I think it helped you in some ways. But I don't think that was all relevant to the SCS trial.

When W.C. can get their own docs they start to dictate treatment, but I know here in Pa. after 90 days you can go to your own doctor, but the first 90 you have to go to theirs. I know when I went through (and lost) my W.C. case I had to go to one of their orthopedists for an "Independent" Medical Exam (those are generally jokes with outcome predetermined). But with an attorney you ought to be able to get your own independent evaluations. I just don't understand how they can get away with this.

Truly, I think you've done more than your share and I don't think it's the docs as much as the W.C. system you're trapped in. You need legal help to get out of that trap.

((((((((((((Scarred))))))))))))

PaLady

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/13/2010 3:24 PM (GMT -7)   
Scarred, I just now saw your post here, and I have voiced this several time here already, but this subject bothers me to no end. Is it possibly time to get a Lawyer involved now on this?

There are several veteran members that have more experience with this. Lets hope that their wise suggestions will help you.

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


flower123
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Date Joined Apr 2009
Total Posts : 856
   Posted 4/13/2010 3:44 PM (GMT -7)   
Yes, I agree. Can you get a lawyer involved? It really does seem ridiculous for one person to have so much power.

Scarred_for_life
Veteran Member


Date Joined Jul 2008
Total Posts : 1559
   Posted 4/13/2010 3:58 PM (GMT -7)   
PA: I was waiting to hear from you! You always have questions that I never think of!!! I also knew that if anyone would agree with me about the Pain Psych's it would be you! :-) I am not sure if I can involve attorneys in this yet. As I was leaving my doc's office, I always get walked up to the front by my doctor. Well, she said something that made me think, she said that since we are working against a stubborn WC...(very true) that we had to make sure that they had no ammunition to counter with. Upon thinking about this....since I've had a little time to cool off LOL. I think she is just covering her bases so that when they go to WC with this they won't have anything to complain about.

That said.....I cannot tell you how upsetting it is to me that a Psychologist can say to my face "sounds like we have a good plan here. I think you would do well with the SCS!" and another say "Your ready for the SCS." after a year in counseling; that the psychologist that did the eval would not turn around and tell my doctor something totally different.

Warning to everyone that does the Eval....apparently there is a right answer for the tests!!!!!


Hugs

Scarred
I live to "Tame My Pain!" 


Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 4/13/2010 4:35 PM (GMT -7)   
 
   Dear Scarred,
 
     Goodness I am so sorry they are doing this to you. I agree with everyone else, that it is time to get a lawyer involved. Forcing you to go without your pain medicaton and pourposfully dragging you through an endless amount of unrealistic expectations is frankly dangerous. I wish there were some way I could help. I know you must be exhausted and irritated right now. Try rest as much as possible when you can... if your body lets you.
 
*hugg*
   dani

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2279
   Posted 4/13/2010 5:31 PM (GMT -7)   
Scarred,
Well, that just sucks. Not saying the SCS will necessarily even help, but gosh, it seems wrong that you got your hopes up only to find out that you are again being denied.

From what you've written, it does sound like you are being given the runaround. At this point, I would suggest trying to find a qualified mental health attorney. From my own experience, the best place to start is at a university that has a specialized program. Even if they can't offer you any direct help, usually they are well enough connected that if you can clearly & concisely let them know what you need, they can direct you to the appropriate services in your state. In most places it's not too hard to find someone who will advise you for free. Typically, they won't go to court or anything, but they often are good at finding a decent resolution.

I did a brief internet search & if it were me, I would start with The Mayday Pain Project at St. Louis University. Their website is: www.painandhealth.org/contactus.html.

You have a number of different issues & most likely they will not be able to help you with the worker's comp issues or anything like that (though if I remember you have an attorney for that), but someone should be able to help you find out a few things:
1. What's in your mental health records -- you're entitled to them as long as doing so won't provoke you to physically harm anyone.
2. What recourse do you have -- can you get a second opinion, do they have to justify their decision somehow, did they use anything other than their own experience with you to make their determination & if so how did that affect their opinion of you, etc.
3. If the opinion was incorrect (which will have to be proven somehow), how can you get your records corrected -- I will tell you, that is terribly exhausting, but it will make a difference in your treatment for the rest of your life.
4. Is there some type of mediator or advocate who can work with you for a period of time to try to set up a treatment plan (you may not like the plan that is developed, but at least you will have an honest opinion & a witness to that opinion for the future)
5. Who has seen your records -- heaven help you if they were sent to the insurance company. that too can be remedied, but you should know who received copies of the psych report so you can deal with the consequences & if you need to make corrections in the future you will know who to contact
6. How can you revoke your authorization to the psych to release your records to certain parties -- this should be done asap. At this point, the only people who should be given copies of that record are you, your lawyer/advocate & other than that only if it is mandated by law (you can ask them to send you notice if they have to provide a copy of the report to someone because it was legally required of them)

I hope that helps. Gosh, what a mess! I really feel for you. I know psychologists made my own life a circus. Such a seemingly simple misdiagnosis as primary depression nearly destroyed my life. No one wanted to touch me with a 10-foot pole until my new PCP finally figured out I had hypothyroidism (& it had been in my labs the whole time). It took me well over a year to fix my records & then I found out that I still had issues because one of the hospitals had sent a copy to my PM, who a couple years later sent a copy of my file to the insurance company who then shared it with another provider. So now I have looked carefully through all my records with all of my providers & made them redact every reference to depression or anxiety.

But it can be done. So hang in there! I wish there were a fast way to get you help, but hopefully someone can offer you some help & get you on the right path.

hang in there!
frances

MsBunky
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Date Joined Jan 2010
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   Posted 4/13/2010 7:14 PM (GMT -7)   
Scarred, I just want to send some hugs to you and some encouragement. No matter how bad things seem right now, you've got a loving hubby, good friends and it sounds like a doctor who wants what's best for you, so lean on them for support.

If you can get a lawyer, I think you've been given great advice in that regard, I guess what I would want to know from the "experts" is exactly where and how you apparently "failed" or "faked" your pain. I would want a detailed explanation of how they came to their conclusion and the decision to stop your meds. A lawyer would certainly be an advocate for you and be able to ask those tough questions, without it affecting them healthwise or stresswise.

I am praying for a change in attitude from these doctors for you, so you can get what you need NOW.

Hugs and good thoughts coming your way. Hang in there...we're all here with you!

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine plus Vitamin D and Multi-Vitamin daily


PAlady
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Date Joined Nov 2007
Total Posts : 6795
   Posted 4/13/2010 8:19 PM (GMT -7)   
Scarred,
What a great post from Frances. Lots of good info. there. The first thing I think you need to do is request a copy of your psych. records - especially anything that was sent to the insurance company, and that seems like the same report your doctor may have. Now most times you have to request this directly from the "primary source" - in other words from the psychologist himself/herself, but your doctor might be willing to give you a copy of what she received.

Did you take a second test which was the same as the first one? I think if I recall you probably took the MMPI (a very long test of several hundred questions) and usually they give you a "pre" and "post" test - a test at the beginning of therapy and one after. Were these done by your pain psychologist or another psychologist? I think I remember telling you that what's important is the interpretation of the results. The test itself will be scored via computer, and there will be a series of graphs produced, and then those are interpreted by a licensed psychologist. Another psychologist can get the "raw data" - in other words a copy of the graphs, which is generated by your answers - and interpret the same data differently. Your pain psychologist who you worked with over time, and who had a chance to get to know you, may well interpret it differently. You can also get an interpretation by your own psychologist, but like Frances said I'd suggest that be done along with your attorney.

I really think you need to get at least a consultation with a good attorney experienced in W.C. Since they often may give a free consult, you may be able to get more than one. But I think your W.C. is from a different state than Kansas, right? (Wyoming?) Then you'd need to make sure the attorney knew the laws from that state.

Another thing I was thinking that if you're not already doing it now would be a good time to keep a pain journal, so it can be brought to your doctor, but make sure to keep your own copy, and I would suggest only writing details about your pain there, not your emotional state because you don't want anything used against you. This could also help your doctor have some evidence about the need for BT meds. It does seem so harsh to just remove them from you.

This is all wrong, Scarred. Even in cases where a psychological evaluation is needed (I had a colleague who did them for bariatric surgeries, where it's required) it should not be this extensive. Even if therapy is recommended before the SCS, you've already done that. Don't let all you learned there go to waste. Keep up all the great work you've done, and focus on legal ways to deal with this W.C. company of yours, along with hopefully a supportive doctor (the one you mentioned).

Take care,

PaLady

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2279
   Posted 4/13/2010 9:24 PM (GMT -7)   
Scarred,
PA's post got me thinking some more. Pain journals can definitely be helpful. If you can keep it electronically, that is even better because then you can easily edit it if needed. But for me, it helped a lot more to track both my pain level & my "depression level" each day. Then the pain psych was able to see that there was almost no correlation between the two scores for me.

It actually was the deciding factor in approving my SCS. Since part of the stupid psych exam was inconclusive, they needed to use their own "judgment" to decide. Fortunately, my insurance didn't require the psych eval, just my pain clinic. My PM admitted they were stupid, but the clinic partners were firm on that requirement. I passed the parts about not being an addict & not faking my pain, but I failed the parts about trusting people. Apparently I'm supposed to believe that everyone is out for themselves & that people should have to work like crazy in order to earn just a little bit of my trust. Well, after the test I found those statements a little easier to believe. ;)

But anyways, back to the pain journal. If you do see that your pain & emotions are closely connected, then that could be helpful information for you to have but probably isn't good to pass on to anyone. If they're not totally connected, then including .

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3609
   Posted 4/13/2010 9:44 PM (GMT -7)   
Scarred

There is something rotten in Denmark! I don't know what type of games they are playing with you?????? But I just bet those WC folks are behind it all!!!! I do agree with PALady and Frances and the rest, I think you need a good attorney! As far as I know there is no way to accurately determine if a person is in pain or not and how intense the pain is. I think they are working experimentally on that, with the use of a PET Scan, but I don't believe that has been perfected yet! So as of now, I believe that pain is exactly what a patient says it is! nothing more and nothing less! So if you have some clown claiming to be a Doctor, and they are saying you are not in pain or that you are exaggerating your pain, I would like to see what proof they have of that! Because there is no way to prove if a person is in pain or not, nor the intensity of a persons pain, other than the use of a PET Scan, and that is still in the developmental stages! Something smells bad about this!!! Scarred, they have been giving you the the run-around to darn long on this! I sure can understand your frustration!!! Another thing,.....I sure don't understand what your Doctor is trying to prove by taking you off of your BT pain meds???? Especially if you are still on long term pain meds!!! It just doesn't any make sense to me!!!!!

All I can say to you Scarred, is that I, along will everyone else here, am here for you, and will give you my ear to listen to you, and will give you my full support! Hang in there Scarred! I do wish you well!!

White Beard

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 4/13/2010 11:54 PM (GMT -7)   
Hi Scarred,
 
Wow, you went from not much info on this to tons of info & suggestions, lol. It is amazing how these drs have worked against you from day one to simply do a trial for the SCS. Gawd, what in this world would or will they do if all drs ever agrees and gives a green light for an implantation???
 
You know I worked in the legal field most of my life doing worker's comp as the primary till our laws changed here in Tx in 1991. Once the new laws went into effect they basically put lawyers out of business on handling comp claims and hung all of the claimants out to dry for any type of recourse against an insurance company. They took the claimant's right away to have a jury trial, no lunp sim settlement and the claimant's right to see a dr of their choicr is very restricted and limited, the whole nine yards. Big business got this pushed through with a lot of money for some very deep pockets. I spent some time down in Austin during this mess.
 
Be as it may the comp laws are different in every state. Each state has their own set of laws. I am thinking you said you had a worker's comp atty back home that was handling your claim. What has happened to him? Is he still your atty or what? If you in fact have an atty then you need to get with him ASAP and let him know what all has transpired in the past year with your medical care and where things sit now. I would think, but again, each state is different, why an informal hearing cannot be held over the dispute of the medical. Here when an IME pours someone out, the atty gets an informal hearing before the commision and the commission can make the comp carrier pay for another IME with a different dr that all parties agree on,  but this dr is picked from a list that the commission holds.
 
Anyway, before I get off track further, I think you have been given some wonderful info but the bottom line is the majorioty your medical expenses are being paid for and by the worker's comp carrier and unless your state has real slack comp laws which I am sure they don't this can also put you at their mercy. I seem to remember you saying the psychologist that you have been seeing for quite awhile was filing his bills under you health insurance and comp was not privy to any of that info. This leads me to belive the dr never mentioned in any of his records that this is a worker's comp matter which can cause a potential problem with your private insurance company. If they get a whiff of this being work related claim they can demand the psychologist to refund any and all payments they have made and this is perfectly legal.
 
I am a little in the dark here on which psychologist poured you out and said you did not need the SCS. If it was one you were sent to by the comp carrier for an IME , well those appts always go that way. I never saw a favorable IME in 18 yrs of handling comp claims. It was just a given because who was paying that dr. bill.
 
I do know if you are are expecting the worker's comp ins company to pay for the SCS trial you will not legally be able to withhold medical information, because under the law they will be entitled to it. its a mess I know.
 
Bottom line if this were me, I would be finding myself the best worker's comp atty from state you were injured in, if I did't have one already. You also did touch on a good point, about private health insurance paying for this,  due to it being a pre-existing condition, what the clauses are in the policy.  Biggest hurdle on private insurance paying, is it being a work related injury. I have seen private insurance deny payment of treatment when there was no comp insurance available to pay the medical expenses.
 
I do hope you can get all of this straightened out and soon. Hugs. 
 
 
 
 
 
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


edt
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Date Joined Dec 2008
Total Posts : 773
   Posted 4/14/2010 6:07 AM (GMT -7)   

Scarred,

First of all I am so so sorry you have been on this up and down road for so long.  I know you have had numerous posts on the progress and set backs, so forgive me if I missed this.  Have you been told by a neurosurgeon (this is who actually puts in the permanent SCS) that you are or are not a candidate?

When I was offered the trial by my PMD he felt I was, I asked to see the Dr. who would be putting the Permanent in and was sent to a Neurosurgeon.   He ordered an MRI and CT scan before my appt.  When I went to him (my regular NS) he told me he thought the trial might work BUT felt in the long run it would not work for me.....I went back to my PMD and he referred me to another NS who does most of his final implants, he told me there are 3 types of candidates, the definite yesses and the other 50% are iffy's or no's.  He told me I fell in the iffy category as most of the pain is in the upper 1/2 of the body.  At the cost of the procedure I decided not to take the chance.

Again, I am so sorry for all of the emotional pain this has caused you...I have to agree with everyone, I don't get why this Psycholgist has so much power in this decision.  Has your PMD sided with this decision?  If he does, I don't understand HOW that could happen, when he is the one who recommended this in the first place?

XXOO
Patti

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