Not what I wanted to hear

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Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 4/13/2010 7:42 PM (GMT -7)   
hi ya'll. hope you are doing as well as you can. something is pressing on a nerve. i went to spine surgeon today after having 2 nerve root blocks for the back pain. in the lumbar area.he said if he did a fusion, that it would only have a 50% chance of helping. so he wont consider it. that sounds like a serious operation. i am going back to have another root block. and see where to go from there. the only time my back, hip and leg doesnt hurt is when i am sitting down. i sit to do dishes, cook. but i want to be outside. hubby just planted our vegetable garden. and that is my favorite place to be. thanks for listening.just having a whiney day.
hope  a low pain day for you all.
julie
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001..Diabetes,,Sleep Apnea,,Silent Heart Attack,,Blocked Kidney Artery after the Bypass..Bulging Disks, Pinched Nerve..MEDS--,Purinethol,Folic Acid, Fish Oil,Humira,,Bentyl,Anamantle Cream, .and many more. 25 meds..

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 4/13/2010 11:04 PM (GMT -7)   
I'm sorry you are in such pain. Nerve pain is the worst! As a person who has had 2 fusion surgeries and a total of 23 back surgeries, I can tell you that it is a very serious operation and there are no guarantees. Many of us here have had fusions and "structurally" we would be considered a success, but we are still in a lot of pain. That being said, some people do very well. Are you taking any pain medications? Has your doctor ever suggested a Spinal Cord Stimulator or an Intrathecal Pain Pump? If you have exhausted every other form of conservative treatment, and the root blocks don't give you significant relief, I would discuss these options with him.

I know how hard it is to deal with the limitations put on us by CP. I, too, have to sit to do any household chores, and I get very frustrated that I can't be the kind of wife and mother I once was.

Please don't ever feel like you are whining here. This is the one place that you can come to and vent, cry, scream - whatever you need to do, and we will always here to support you because we truly know what you are going through.

Hang in there,

Lorie

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/13/2010 11:22 PM (GMT -7)   
Hello Pommom! I too am sorry to hear of your pain!

Blujet2 has given you some great advice here, and it seems that she has, shall we say, a lot of experience to say the least!
I, myself just went through double lumbar fusion, and I will not know if it is a success for quite some time. All I can say about the surgery is "Ouch!"
One thing you said that caught my attention, was that your pain subsided when you sit down.

I have read several times that when your sitting, this puts your spine under more stress, and I'm a guessing at the lumbar area.
I'm so nervous at the moment of doing more damage to my spine, that I'm either standing or laying down, and I very rarely sit anymore. Weird I know! :)

Good luck to you, and of course many here will tell you to get a second opinion as well. I tend to agree, unless you have a complete trust in your DR and or Surgeon.

SE :)
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.

Post Edited (Screaming Eagle) : 4/14/2010 12:26:32 AM (GMT-6)


Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 4/15/2010 1:47 PM (GMT -7)   
i'm sorry it has taken me so long to reply. bluejet 2 ,i cant imagine that many back surgeries. my heart goes out to you. i got stuck 13 times in a row to try to find a IV place,. that seems minor now after hearing ya'lls surgeries.
Screaming Eagle, I have all fingers crossed that your op will be very successful. the doc did mention a stimulator. i am terrifed of having a stimulator or pain pump.. i was just hoping he would say it could be a minor fix and all would be ok. i did go to a spine pain dr, also. he gave me some injections that didnt help. and tried a few meds that didnt help/. my family doc seems to have a hang up about prescribing meds for pain. he sent me to the spine pain doc. so all i take is tylenol which doesnt help either. i cant take meds that have aspirin because they can cause intestinal bleeding. which would be bad for my crohn's disease.
thanks for your replies. Julie
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001..Diabetes,,Sleep Apnea,,Silent Heart Attack,,Blocked Kidney Artery after the Bypass..Bulging Disks, Pinched Nerve..MEDS--,Purinethol,Folic Acid, Fish Oil,Humira,,Bentyl,Anamantle Cream, .and many more. 25 meds..

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 4/17/2010 3:09 PM (GMT -7)   
Hi Pommom,

I'm so sorry for your pain! You remind me of a lady at the Surgery Center where my mother had her knee surgery a few days ago. The poor lady was in horrible pain. I could almost feel it because it was so similar to the day I went in with the same thing (even though that was over a year ago).

I have no recommendations for you medically because my fusion (although a "medical" success) has not stopped my pain. It DID, however, stop that nerve root compression and gave relief in that way.

I wish you all the best!
DDD, CPS, TLIF L5-S1 2009, FIBRO, VERTIGO, MIGRAINES, GERD, SLEEP DISORDER, NISSEN FUNDOPLICATION (failed), DEPRESSION, EXTREME ANXIETY DISORDER, OCPD, PTSD, CHRONIC MUSCLE SPASMS, HGH DEFICIENCY, VIT D DEFICIENCY, CARPLE TUNNEL SYNDROME, BLOOD SUGAR ISSUES, THYROID CYSTS, AND SERIOUS MOOD SWINGS :) 
 
 


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 4/17/2010 4:42 PM (GMT -7)   
Hi Pompom,
 
I wanted to jump on here and say hi and throw my two cents in for whatever it is worse, which is usually nothing, lol. Have you considered getting a second opinion or even a third opinion? Have you by chance consulted with a good neurosurgeon about your back? If not, I would urge you to consider this. When dealing with pinched nerves or compressed nerves it is a whole different ballgame. The nerves are such an intricate part of the body. When surgery is done to release pressure off a nerve, nothing is done to the nerve itself in the surgery. The nerve has to heal on its own, the drs work with what is pinching or pressing on the nerve. Once that pressure is off the nerve it will either heal and the pain is lessened a great deal or gone or it can stay the same or be worse. The longer a person waits to have surgery for a pinched nerve, the more prone they are to having permanent nerve damage that is irreversible. This is why I am saying perhaps you need to consult with a very good neurosurgeon. Neurosurgeons have far more knowledge of the nerves in the body than an orthopod, that is their specialty. Your orthopods are schooled more into the bones and structure. I have a very good friend who waited, she was dragging her right leg, it had got to that point. She did have the surgery, the mechanical part was fixed but her nerve damage was permanent, she simply waited too long. Also we have people on here that has had back surgery and those people for whatever reason did not do well after surgery so you will not get a glowing report from how their surgery was great. It they had a good outcome they would not be hanging out on this forum.
 
As far as a PCP giving pain meds they will not do it long term. Usually a week to ten days and they are done. We have a few people on here that their PCP is handling rxing pain meds but those drs are few and far in between. They don't want to get involved with worrying about the DEA coming in and doing an audit to make sure they are doing their paperwork correctly, and many are just plain afraid of them. Also, they don't want to be responsible for a patientn that needs pain meds. Thats where the role of a good pain mgt dr comes in. There are some good ones out there it is a matter of finding one. Many times we have to see several until we find a good one, it is that way with any dr though.
 
I sort of feel like you have resigned yourself to a life of CP with no end in sight and believe me there are other options out there. It is becoming more and more prevalent that patients are having to advocate for their health care regardless off what the problem is. But, with a little work it can be done. Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


Pommom
Regular Member


Date Joined Mar 2008
Total Posts : 155
   Posted 4/17/2010 6:48 PM (GMT -7)   
straydog, can you tell me more about your pain pump? thanks,,,julie
 
Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001..Diabetes,,Sleep Apnea,,Silent Heart Attack,,Blocked Kidney Artery after the Bypass..Bulging Disks, Pinched Nerve..MEDS--,Purinethol,Folic Acid, Fish Oil,Humira,,Bentyl,Anamantle Cream, .and many more. 25 meds..

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13473
   Posted 4/18/2010 10:37 AM (GMT -7)   
Hi Julie,
 
Yes, I would be more than glad to discuss the pain pump with you. However, I must ask that you go up to the top of the page here which it says "search" and type in pain pump. You will find a great deal of info there because it has been discussed quite a bit here over time. There are several posts in there from me giving lots of details  on the pump things I learned "after" my pump was put in. Things I wish the dr would have discussed but didn't. Then whatever you else you may want to know ask away, if I can answer it I sure will. By doing the search it cuts down on repeat posting the same stuff over & over. Most folks on this website have no clue the owner is charged per letter (meaning if a word is 5 letters long that is how he is charged) every time a member posts here and we all need to do our part in helping keep his costs down, after all he does provide this to us at no charge.
 
I will tell you the pump is usually for those at the end of the line where there really is nothing out there left for them. Anyway, I will keep an eye out to hear from you.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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