Is anyone here taking Cesamet?

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MsBunky
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Date Joined Jan 2010
Total Posts : 1097
   Posted 4/14/2010 8:49 AM (GMT -7)   
My doctor prescribed this for me yesterday, in addition to all the other meds I take.

I'm experiencing the dizzy, loopy feeling of being stoned, and that's not unexpected, but I'm wondering if anyone knows if it's a permanent side effect, or does it go away completely?

thanks,

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine, Cesamet, plus Vitamin D and Multi-Vitamin daily


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/14/2010 9:57 AM (GMT -7)   
Bunky Booh! You lucky dog you! :) of course I'm just kidding you know! I just looked up this med your on, and it said: Cesamet is a man-made form of cannabis (marijuana is an herbal form of cannabis)

Tell me this isn't so! :) I'm sure someone will be along that will know something about it. I really don't have a clue, and as soon as I saw what one of the websites said, I stopped looking.

I hope it helps you, and I'm very interested to know how this does with your pain. There are lots of studies on cannabis for pain going on right now.
When I went back to the surgeon for my two week check-up, I visited with another fellow there, and he told me he was smoking Cannabis along with the pain meds for his pain. I thought it was interesting to say the least.


SE:)



I hope this subject doesn't get out of hand! :)
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


bsjaguar
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Date Joined Jun 2009
Total Posts : 974
   Posted 4/14/2010 1:49 PM (GMT -7)   
I know medical marijuana is legal in many states but I think the topic is taboo on this forum.  Not sure how the pill form is handled???


---Jag---
 
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/14/2010 2:07 PM (GMT -7)   
Yes! I can imagine it would be taboo! I do think that maybe it would be OK to answer her question though, if someone has some experience with it.

Or a Moderator may help out and jump in here to let us know if it is Ok to talk about the Pill form here. It should be ok , since is is a synthetic form, and not the pure form of the plant itself.

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 4/14/2010 2:18 PM (GMT -7)   
For what i read cesamet is for naseau and vomiting. If these side effects are bothering you I would call your dr and let him know.
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis ,gerd,gastric ulcer,gallbladder removal 3/23/10.
 
meds: lunesta, prilosec otc,lortab ,reglan,flonase. ibuprofren, zyrtec and benadryl.
 
Just added today: folic acid supplement  1 mg a day for the next year and also b12 injections increased to once a month. pernicous anemia and  Folic acid anemia.


MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 4/14/2010 2:53 PM (GMT -7)   
Kimber, I'm not taking it for those reasons and the drug WAS prescribed from my doctor.

There have been studies done that suggest Cesamet helps with Fibromyalgia pain, and since my doctor is quite open to trying new things and has no hesitation in prescribing pain meds for me, she suggested it to me to take with my Cymbalta (since I'm already taking the highest dosage of Cymbalta properly.

Jag, I'm in Canada, not the States.

SE, I didn't realize that asking about the drug would be forbidden here, as it's a synthetic form of cannibas. If I've made an error in posting my question, my apologies. I simply wanted to hear first hand about others experiences with it, especially side effects.

ADMINISTRATIOR: If this post should be removed, please let me know.

thanks everyone

Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine, Cesamet, plus Vitamin D and Multi-Vitamin daily


Splashdancer
Veteran Member


Date Joined Aug 2009
Total Posts : 927
   Posted 4/14/2010 4:01 PM (GMT -7)   
Imho, I think that talking about this particular medication, in this particular form, and being used for this particular purpose, shouldn't be considered a 'taboo' topic. It is legal where you live and you are not asking for a debate on the pros and cons of cannabis as a medicinal drug - you are just asking a question that could be asked/discussed on this forum about any other legal medication, i.e. side effects. Sorry I can't help you with this particular medication, but I did have a friend who took Marinol (sp? - another synthetic cannabis) for side effects of chemo and the few side effects that she had did go away in a fairly short time. I hope that it works for you! smile

Post Edited (Splashdancer) : 4/14/2010 6:39:40 PM (GMT-6)


solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 4/14/2010 4:50 PM (GMT -7)   
Hi Pam. I was just looking cesamet up and the site I found (drugs.com) said that basically you shouldn't be taking most of your meds such as the oxy, tramacet, flexeril, cymbalta, etc with it because they can cause an additive effect. I wonder if that is part of what your feeling. Maybe you need to call the dr to make sure mixing all those drugs with the cesamet is really OK. Would hate for something bad to happen to you. Please be careful. Lisa
If I can laugh at it, I can live with it.


MsBunky
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Date Joined Jan 2010
Total Posts : 1097
   Posted 4/14/2010 5:10 PM (GMT -7)   
Lisa, thanks for your concern.

My doctor is the only one prescribing my meds and she's well aware of what I'm currently taking and the side effects of all of these drugs - she's one of more up to date doctors on drugs, I have to say. I'm not getting a lot of relief from my other meds, and we've added this to help the Cymbalta work better.

She did warn me that I would probably feel more intense side effects than usual, but she couldn't say for how long. That's why I thought I'd ask here, to see if anyone had been on this and how long the side effects lasted.

I am home on disability, so I'm not worried about driving, or operating heavy machinery (unless typing counts), so I think I"ll be fine. I've been on my pain meds for a long long time and pretty much know how everything interacts. I can handle what I'm experiencing - I was just curious if it would be permanent or if they'd go away.

I appreciate everyone's advice and concern....thanks!!

hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine, Cesamet, plus Vitamin D and Multi-Vitamin daily


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/14/2010 6:14 PM (GMT -7)   
Hello MsBunky! I think you are just fine with the question. Maybe I should not have said anything, but I just happened to look it up, as I wanted to help you with the question.
It was just surprising to me, when I looked up the information on it

All is well, so carry on! :)


SE :)
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/14/2010 9:10 PM (GMT -7)   
OK MSBunky, I did take the time to look at the rules on this subject, and Rule #2 says there is to be no conversation regarding medical Marijuana use.

I don't know enough to know if the med in question here is considered Medical Marijuana, and I'm guessing if it is, then maybe we better leave it at that.

Maybe a Moderator will have some say on this as well. Of course we all are here to learn, and some of us don't know the rules as well as others, but we are trying to learn.

Good Luck to you, and I hope the med works well, and I will leave it at that.

Your Buddy,

Scrambled Eggs!

SE:)
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


ReactiveConstellationNE
Regular Member


Date Joined Dec 2005
Total Posts : 256
   Posted 4/14/2010 9:50 PM (GMT -7)   
I've been prescribed Cesamet for quite some time, on and off depending on how well I've been able to work with their assistance program which is wonderful except that it seems to give absolutely no response or help to patients....either they approve your paperwork and you receive your medication, or they ignore you and you have to figure out for yourself why they might have denied your application.

It has *some* similarity to cannabis, but far less so than Marinol which is itself really not a very good facsimile because it only contains THC, whereas cannabis' most therapeutically beneficial cannabinoids are the others (CBD, CBN, etc). In any case, I'm not trying to discuss cannabis itself, I'm just trying to give you an idea of what Cesamet's expected effects, and its effects for me, are like.

You will gain a tolerance to the lowest dose (taking a single 1mg capsule until it wears off before taking another, or spacing even more widely than that) fairly quickly.....a few days to get past any psychological effects, and you'll barely notice that you've taken it after a while if my experience is any indication. It will just have the benefits, which include very effective anti-emetic properties, and for me, quite a bit of pain relief. Substantially moreso than with Marinol/Dronabinol (the latter being the generic form).

I wouldn't think that discussing Cesamet or Marinol (or Canadian/European pharmaceuticals such as Sativex) is talking about medical marijuana. The two are quite distinct, even though they all provide molecules in the "cannabinoid" class. These are widely accepted prescription medications....whatever one thinks about marijuana, I think these deserve to be evaluated on their merits. They've been approved by the FDA and you can get them at your local pharmacy -- or from the assistance programs of the respective manufacturers.

Cesamet (Nabilone) is a very promising medication. It hasn't yet been approved (AFAIK) for pain relief, but it is very effective for several different kinds and should have *some* benefit for virtually any type of pain. It has not yet been proven to have direct benefits for treating underlying conditions themselves, but several other cannabinoids have shown anti-inflammatory, antibiotic/anti-viral, antinociceptive (pain relieving), and anti-emetic properties among many others. One unique property that some cannabinoids have is to modulate the auto-immune system with little to no negative effects on the ability to fight off infection versus "traditional" immune supressants.

A lot of us with chronic pain have some form of auto-immune condition or another, so I thought that was worth mentioning. It would be good to know whether Cesamet exhibits this property -- it is after all only a single, artificial, cannabinoid. These different properties show up with dozens of different molecules in this class.

To give a short answer: I would suggest patience, and see if you can develop a tolerance to any unwanted effects. Theoretically, with your doctor's knowledge, you could try opening the capsules and putting only a partial dose in a smaller capsule, or add to food, etc....if you really decided you found 1mg to be too much. Personally, Cesamet has helped me with my vomiting, digestive, and severe pain issues more than just about any medication....and there's not all that much tolerance to the beneficial effects, no dependency to speak of....which one can hardly say about opiates or any number of other medication options we're presented with. I have only good things to say about it.
Conditions: Reactive Arthritis (AKA Reiter Syndrome), Crohn's Disease, Chronic Pelvic Inflammatory Syndrome, Sacroiliitis, Costochondritis, As Yet Unknown MS-Like Relapsing/Remitting Neuropathy, and a partridge in a pear tree.

Medications: Currently not that many are taken daily, but there are many at my disposal for part-time use. Low dose pain medication, after years at high doses. Working on innovative ways of taking lesser-known pharmaceuticals and non-prescription supplements to maximum benefit.


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 4/15/2010 8:56 AM (GMT -7)   
Dear Pam,

Good morning *warm huggs*. I hope you had a chance to realx this morning. How are you feeling? I do hope the side effect from your med eases up. I have noticed that all my meds differ greatly as far as duration of side effect/ and getting used to the side effect. My amitryptaline, for instance, is a real pain in the rear.

I have some meds that have "Possible side effects" when combined, but really all that was needed was additional monitoring for the first few months. So, let me know how it works out for you I am very intrested in the synthetic compound and how you like it (or not).

Most of all, I hope you have a great afternoon and get some much needed rest.

*warm huggs!!!*
dani


I see that alot of folks posting in your thread, so if you don't mind im going to post a link or two with information/facts and hopefully stop confusing it with that illegal stuff Note: I know sometimes it is hard to read information put in summery in a scientific manner. Such as the case of other Class II. Imagine how folks felt about reading about opioid meds which contain opium poppy Or synthetic (man made) opioids that "mimic" the real plant. Yikes!


Dear Family,

Cesament (Nabilone) is a synthetic (MAN MADE) compound which "Mimics". Not grown in the ground illegally. Here is more information, especially for folks that are intrested in this medication to help alleviate their symptoms.

~~> "It was approved in 1985 by the U.S. Food and Drug Administration (FDA) for treatment of chemotherapy-induced nausea and vomiting that has not responded to conventional antiemetics. Though it was approved by the FDA in 1985, the drug only began marketing in the United States in 2006. It is also approved for use in treatment of anorexia and weight loss in patients with AIDS.
Although it doesn't have the official indication (except in Mexico), nabilone is widely used as an adjunct therapy for chronic pain management. Numerous trials and case studies have demonstrated various benefits for condition such as fibromyalgia and multiple sclerosis.

Nabilone is a racemic mixture consisting of the (S,S) and the (R,R) isomers ("trans").



~~> http://en.wikipedia.org/wiki/Nabilone

~~> http://www.mayoclinic.com/health/drug-information/DR600967

~~> http://dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?id=4474

~~>" Cesamet is controlled under Schedule II (CII) of the Controlled Substances Act."

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 4/15/2010 12:46 PM (GMT -7)   
Exitwound and Dani, thank you both very much.

Exitwould, your post was full of incredible information and I appreciate it SO much.

Dani, thank you for your post - I took away a few ways I can beat this thing.

Big hugs,
Pam
Conditions: Fibromyalgia, Chronic Pelvic Pain, FAI, Reynauds, IBS, Interstitial Cystitis, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (Surgical Menopause and drug related), plus physically unable to vomit due to Nissen, and I have extremely tiny veins...a joy for blood work or IV's)
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Tramacet, Cymbalta, Flexeril, Clonidine, Cesamet, plus Vitamin D and Multi-Vitamin daily


ReactiveConstellationNE
Regular Member


Date Joined Dec 2005
Total Posts : 256
   Posted 4/16/2010 2:34 AM (GMT -7)   
You're very welcome, MsBunky. It helps me cope with my own health problems and the drama that goes with them, when I am able to put the knowledge I've gained because of my sufferings to work aiding fellow sufferers in their own struggles.

Please don't hesitate to ask if there's ever anything I can try to explain the science behind. I've personally been forced to try practically every single one of the classic meds given to chronic pain/auto-immune disease sufferers over the years, and in the process I've had to learn a lot about how they work and why so few of them are really long-term solutions to anything.

The cannabinoids, regardless of one's opinions or cultural connotations associated with the plant cannabis itself.....are a very promising class of molecules. They exist naturally in the human brain as well as the gut, and can be found in many other plants including chocolate (anandamide). They have a wide range of potential benefits and none have demonstrated any sort of significant physical dependency. Having had to go on and off so many medications over the years, I can definitely appreciate that property as much as anything else the cannabinoids offer. I can benefit from them, and I don't have to "pay the piper" later in the form of withdrawal. I also don't have to worry about being brutally sick and useless for a long period of time if I were to get stranded somewhere without them.

I think that in the near future, we'll start seeing a lot more medications available in the cannabinoid or related classes, such as vanilloids (yes, as in vanilla!). There are hundreds if not thousands that biochemistry suggests should be therapeutically active, and the few negative effects that some of these molecules display -- such as anxiety, jitteriness/overstimulation, or "paranoia," a feeling that something bad is about to happen -- are not present in most of them.

Do let us know how Cesamet works out for you. We can have all the on-paper scientific information in the world, but actual patient experiences are infinitely more valuable to those of us who actually have to live with the pharmaceutical tools we're given.
Conditions: Reactive Arthritis (AKA Reiter Syndrome), Crohn's Disease, Chronic Pelvic Inflammatory Syndrome, Sacroiliitis, Costochondritis, As Yet Unknown MS-Like Relapsing/Remitting Neuropathy, and a partridge in a pear tree.

Medications: Currently not that many are taken daily, but there are many at my disposal for part-time use. Low dose pain medication, after years at high doses. Working on innovative ways of taking lesser-known pharmaceuticals and non-prescription supplements to maximum benefit.


Chirping Cricket
New Member


Date Joined Jan 2013
Total Posts : 2
   Posted 1/2/2013 2:19 PM (GMT -7)   
My name is Matthew and I have been taking Cesamet for the past five years at least. It had been prescribed to me to try and reduce The amount of OxyContin-CR that I was taking. I have found it effective In reducing my opiate intake and as a muscle relaxant, especially at higher doses. I do feel the dopiness associate with marijuana sometimes but most of the time I don't.

I did research with the government for 10 years in the agricultural industry, I am a graduate from Nait, Biological Sciences – Renewable Resources (Ecology). My education includes experiments In the lab, at work experiments were conducted in the field/lab/Greenhouse/controlled environment. My position included Collecting data, analyzing data, and writing up the report. I also have written two papers and Are published in a science journal, I am co-author.

I have been a member of CPAC (Chronic Pain Ass of Canada) since 2000. I have been asked by CPAC to write my story of my injury and how I have been able to overcome most problems and issues. I have also been asked to write up an experiment which I conducted on myself with Cesamet. They are currently in the editing stage.

I was involved in a hunting accident on November 16,1997, where I was shot by a 30-06 on the left side of my neck. I had been mistaken for a moose by the shooter. I have been dealing with severe Neuropathic pain and many other symptoms ever since. I was in severe pain and I needed proper help and proper medication to control my pain. Not only was it for pain control, but also for all other symptoms which had developed from my injury physically, mentally, and emotionally. I was suffering tremendously and screaming for help. The fact is I'm lucky to be alive!

I have been teaching med students, residents, doctors who are applying to practice here in Canada, and a few specialists, about chronic pain, not only the neuropathic pain I am dealing with, but a lot that is pertinent to chronic pain in general. I was asked by the head doctor of the pain clinic at the U of A, Dr. Brian Knight, to teach one of his classes as well.

I do not consider myself an expert, I am just a very knowledgable person in many areas. I do however know more than most medical persons about chronic pain, having to deal with it, finding information on my own, and learning from every doctor or specialist for the last 15 years. I have an honorary doctorate with the Millwoods Family Clinic in Edmonton, not official yet. My doctor has been using me as a teaching patient for the last five years at the clinic I go to for my regular check-ups and counselling.

I have been diagnosed with PTSD, a depressive and anxiety disorder, disturbance of sleep patterns, possible seizures, allodynia (hypersensitive nerves) on the left side of my face, neck, shoulder front and back, so bad at times where the light touch of a shirt or blanket can aggravate and intensify my neuropathic pain. This pain is literally in my face, not figuratively, and the intensity level is unbearable most of the time because it is always there.

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 1/2/2013 4:21 PM (GMT -7)   
Hi there CC
You have responded to an old thread so it would be best if you would start your own thread by clicking on post a new topic and that way you will get the proper welcome.
You seem to have a lot of info you could share with us although I am very sorry that you are suffering so much.
I too am from Canada, in Ottawa Ontario. I did live in Edmonton for seven years working myself at the U of A.
Hope we get to chat again and once again, welcome to a very caring group of members.

Suzane

Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 1/2/2013 4:24 PM (GMT -7)   
Hey Matt,

I'm locking this thread - as Suzane said - it's an old thread.... in addition, we had some debate before whether or not this falls under "medical marijuana" which is against the rules to discuss....

But feel free to start your own intro thread and join the forum.

Take care --Tina
Moderator - Chronic Pain Forum

My faith and family sustain me even on my worst days... as well as my wonderful friends here at HW.

Health/Pain Issues - too many to list; feel free to e-mail me or ask on the board. Thanks!
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