~ Monday Morning Roll Call

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Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 4/19/2010 8:22 AM (GMT -7)   
 
 
     It is another beautiful Monday morning. Though I wish I could sit and and enjoy the morning, as with all Mondays, there is much to be done. Many tasks to accomplish.
 
     Before we get too wrapped up in the beginning of our week... We want to know how each other is doing. Mentally, physically, emotionally, socially. So, take a moment out of your busy day and sit with us. We want to know how you are doing.
 
  
How are you doing?
How is your pain and your body doing?
What are your thoughts about the current events in your life?
 

 

 

Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveler, long I stood

 

 


Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 4/19/2010 8:52 AM (GMT -7)   
Good morning all! Today has started out to be a tough one for me, as I woke up not feeling so well today. It seems like I have a couple of good days, then I have three or so bad days. I guess it is all part of the long recovery process.

SE
DDD (Degenerative Disk Disease) S1-L4-L5, Heart Attack 2002, Angioplasty to clear blocked Artery and to implant Stent. Six Epidurals, Disocgram, Melanoma Cancer 07, Lumbar Fusion March of 2010, Four cortisone injections Tendinitis in Elbow.


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 4/20/2010 12:00 AM (GMT -7)   
I'm late, but I am here. It has been a horrible few weeks. I don't know where to begin. The suffering seems too much to bear most days. I often ask why me, why did He choose me to bear this heavy cross??? I don't know why and I'm tired of it. I want me back, the good old happy Suzane, who was so much fun, who always smiled and laughed, who enjoyed the simple things in life, helped people, gave of herself each and every day, was a great nurse to sick children at the hospital!! Where is she?? Will she ever be back?? I hope so? I need her!!

Missing you all.

Hugs
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


stingray
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 4/20/2010 1:15 AM (GMT -7)   
Hi
This is my first time posting here and I'm sorry it's late. It's actually Tuesday now but I hope no one minds. Like some many of us the day to day struggles seem to much to bear sometimes. We never think to say man am I glad something doesn't hurt today when were having a good day but I often think back about days when things weren't so bad and wished I had of enjoyed it more. But like they say...hind sight is always 20/20. So enjoy the days things seem a bit better because you know there's gonna be a time you wished you had of enjoyed it more. Hope that wasn't to depressing. I wish everyone the best and continued health.

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 4/20/2010 4:42 AM (GMT -7)   
Hi to everyone,

I just wanted to pop on this thread to say to those who seem to be going through a tougher time emotionally right now along with your pain, TMJ and Stingray, that seeing a Pain Psychologist or any type of good caring Therapist (if you can't find the former)....I see a Pastoral Counselor...

I don't have insurance so he is on a sliding scale..and I'm as far as you can go to 0 dollars...lol...and I can see him from once a month, to twice a week if I needed..

He has been a tremendous assest to my emotional health dealing with chronic pain everyday...

I, as all of us on here, can relate to losing our old self...there was a post not too long ago, trying to remember who started it..maybe Mikel?

The pain can be so relenting at times...as well as it can get so discouraging to have test after test...procedure after procedure...taking pill after pill, to only end up at the same place...

It is our cross to bear unfortunately...the one blessing I certainly look at is it's not cancer...we aren't going to die from it...so we have to find ways to make peace with our 'new selves'..sometimes we can get better...and lower our levels which is fantastic...and other times we have awful days..

That's why I say it's.."living" with chronic pain...and taking care of the emotional side of ourselves can get lost in the fray at times but is so crucial to our pain levels...If we don't, this actual increases our pain tenfold each day...

Same goes for getting proper nutrition, taking care of our bodies (not smoking, exercise), trying to get proper sleep, finding ways to smile/laugh everyday to release those endorphins..

There are dozens of modalities to help us each day that all work together to live the most joyful and wonderful life we can...

It takes a 'shift' in thinking..for example..TMJ...if you used to the nurse for sick children...maybe if you can just go and visit them for a half hour to give out hugs or read a book...or on days you can't get out of the house...make phone calls to shut ins..or sending letters online to soldiers in the war...just some ideas...

When we start to shut ourselves off to the world, it spirals downward and makes our pain even worse..if we think..I can't run a mile like I used to..instead of not going out at all...take even a 5 minute walk outside in the fresh air...then if you feel good later...do it again....gradually do what you can..

We have to mourn and let the way it used to be go...or else it will keep us down everyday...it's taken me years to do this...and I still have my 'pity party' days...but only allow myself one day a month to really cry/yell/scream...get it all out..so that I try the other days to focus on ..what can I still do..what has God blessed me with today..not taken away...

that is why I truly believe a Psychologist/Therapist (along with antidepressants) are as necessary as any other treatment we receive...

Stingray...welcome to the boards...if you want to share more of your story you can start your own thread by hitting the New Topic button on the top left of the page and introduce yourself...it's a wonderful group of people here!
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2022
   Posted 4/20/2010 8:25 AM (GMT -7)   
What a beautiful post Snowbunny!! And you've got it right. i know that if i can't go back to work I will do some volunteer work at my hospital. I have a lady come from my church every week which helps me immensely. Also my priest is coming to see me this week and my cousin is a bishop and he is coming on Friday. I know this will give me more strength and courage to carry on.

Right now i am sleepy and must close my weary eyes. I only had one hour of sleep and my nurse is coming later this afternoon.

Later
thanks for helping me snowbunny

Hugs
   
SUZANE
      
 Chronic, severe and continuous bilateral temporal headaches since April 2000.
 Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
 Currently Feb 2010: cycles of IV Ketamine infusion via a PICC line and pump at home with some success.
 Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
 Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
 52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada
 
           


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 4/20/2010 8:32 AM (GMT -7)   
Thanks Suzane,

I know how hard those Ketamine treatments have been on you..You really are such a strong person!

I can't imagine going on such little sleep..I told my PM that the Ambien I take has been one of the most helpful medicines I take since I realized I never got to stage 4 sleep all these years having Fibromyalgia...So after starting this a few years ago, and going to bed at exactly the same time as well as wake time..I am a new person! I can't believe the difference...my emotional state was not good at all with not getting restorative/consistent sleep week after week, year after year..as well as it increased my pain level by a few points..I only need/want to take a nap once every few months! It's a lifesaver for me..

I will pray that you can catch up on some well needed sleep and hope you have good visits from everyone this week...what a blessing for you:)

Sending you hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 4/20/2010 8:55 AM (GMT -7)   
I'm doing ok I guess , still feeling better , still juicing , have taken exactly 3 pain pills in 2 weeks , I was prescribed 14 per day , I can walk with a cane for short distances .I'm still taking indomethacin for the cellulitus condition in the lower lec and I have an appt with a vascular doctoron may 10th , 3 days after my birthday !I am completing my course for asst vet. with Penn Foster online .38 classes 30 completed 90%avg. I see a pain therapist once a week , attend a mens group once a week  and I'm trying to find a good painting teacher and to take some meditation classes as well .I'm back solo and ok with it , it was my choice , no chemistry after the initial rush .I've started a probiotics regimen and take vitiamin c  and anti-oxidents as well , also virgin coconut oil and a shot of wheat grass once in awhile too . Luv You All Mikel
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines -    ,viracept,truvada, l Indomethacin  '                                                                                                                         


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 4/20/2010 9:20 AM (GMT -7)   
Hey Mikel,

Sorry to hear about the girfriend situation...but it sounds like you are handling it pretty well. as well as looks like you have a great support system in place to help you with the chronic pain and other issues you are facing each day..

I also take both probiotics as well as started 'drinking' PRE-biotics...it's a yogurt like drink called Kefir, tastes exactly like a yogurt smoothie...It comes in all sorts of yummy flavors! I buy it at my organic food store..

Besides the juicing...I swtiched to all organic a few months ago..Wow..another HUGE difference...not only did the the last 10 pounds I wanted to lose come right off without trying, but skin is more clear..and just feel so much better..And it really costs the same as 'processed' food...I just love going to the farmers market each week...walking slowly, chatting with everyone, and then fixing a scrumptious meal with all the fresh items!

I am totally spoiled now with all the fresh foods and treat myself to a slice of yummy white pizza once a week, straight from the brick fire oven in their store!...They see me coming and make it special!

Now I just eat what I want, when I want, without thinking...and because it's all organic..less salt, (things are made with sea salt), less bloating...no artificial sweeteners in anything...less headaches...no preservatives, msg, etc....so less of a sluggish bowel...as well as less inflammation which means less pain in my muscles...

It's amazing to me the difference..I didn't think it would be so dramatic..

So glad to hear that you are taking care of yourself so well..still praying for those numbers to keep going up! And so proud of you for going for the vet asst. and not letting your daily pain stop you! Congrats on getting this far:)

Sending ya hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 2976
   Posted 4/20/2010 10:00 AM (GMT -7)   
Hi everyone,

I haven't been posting too much lately because my eye has just been too bad. I'm struggling to finish up my thesis & end of the semester course-work & so my eyes are being used really heavily right now. By the time that I get a break to come online I usually can't see or read very well & am really hurting, so I don't stay for long.

I spoke with the neurosurgeon's office & we have finalized the dates for my stimulator trial. I'll be having the temporary electrodes implanted on May 28th. The trial will last a week. If it works, the permanent system will be implanted the following Friday, if not, then the system will be removed at that time. Now I need to do is make it through the next 5 weeks. I just wish I didn't have so much work to do between now and then. One step at a time, I guess.

Skeye

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 4/20/2010 10:21 AM (GMT -7)   
Skeye, thanks for taking the time to let us know how you are doing..I am sorry to hear abou how bad your eye is doing...that must be so difficult when something effects your sight, as well as the pain...

I am amazed at how much you still get done! I will certainly keep you in my prayers with all your course work...you are one amazing young lady!!

I hope and pray that the trial goes well for you and gives you some pain relief...so well that they do the permanent implant and you can level off some with your unrelenting pain!

Hopefully all the work you have to do before then will help distract you and make the time go by quickly!!

Thanks again for giving us a brief update..sending you hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Dec 2006
 
 


stingray
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 4/20/2010 8:21 PM (GMT -7)   
Hi Snowbunny 21
Thank you for the warm welcome and encouraging words.

Stingray

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 4/20/2010 9:43 PM (GMT -7)   
Hi there Dani, always such a sweetie for caring about others. How are you coping? How did your Monday go?
I've been out of touch the last few weeks, migraines and vommitting. Lovely. Great way to lose all the weight I put on with the prednisone...
Great craziness, but good to be back. Golitho
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