End of my rope - carpal surgery.... Again

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Pattiren
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/23/2010 12:36 PM (GMT -7)   
I had carpal tunnel surgery in June 09. The pain never left like it was suppsoed to and got worse over the holidays and now is worse than before. My hand surgeion said I need more surgery (another one). He said the pain will only get worse without surgery so I asked if he is sure it will go away this time and he said there is a chance it may not. He didnt say that the first time. I turned 60 last month and we had to go into our savings to do this because our insurance only paid for half of it (actually less). I never had such problems before so Im lucky in that sense but we can ill afford doing this again if I wind up back where I am now.

This is just so frustrating and I‘m at the end of my rope now. Does anybody have any suggestions or advice t give me? I’m thinking there might be other therapys that are not as expensive as surgery.
Thank you!!!

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 4/23/2010 1:16 PM (GMT -7)   
Hey Pattiren , Sorry your having such difficulty with your surgery , having to repeat a surgery is always frustrating .But hang in and stay strong , think positive . I know they have a special glove you wear that massages the wrist , you wear it for two weeks and its supposed to releive the synptoms .I beleive you can buy them used as well . its about $350.00 I think . you can google it , and get more details about it . Good Luck friend !!! Mikel
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines -    ,viracept,truvada, l Indomethacin  '                                                                                                                         


Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9622
   Posted 4/23/2010 1:28 PM (GMT -7)   
Maybe you should make another appointment with this doctor and ask out right about where he
thinks the problem in your hand is? if physical thearpy might help and if you could get a discount of
some sort as your finances are not good..Sometimes they can help, or make arrangement for a payment option...
but he needs to know...
Mikel is rigth other members here have used a glove that can help, I just don't know about that.
Good luck to you and keep us posted..
(((((((((((((((((((((((((((((Pattiren))))))))))))))))))))))))))))))))))))))))))))))))))))
hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/23/2010 1:53 PM (GMT -7)   
Hi, Pattiren,
I want to welcome you to the chronic pain forum of Healing Well. Although my chronic pain is not related to carpal tunnel, I've had carpal tunnel surgery on both hands. I've been lucky in that both surgeries were successful. Wish I could say the same about my back surgery.

A few thoughts I have - can you tell me more about the exact procedure you had? I had an incision down the center of each of my hands, but I know some hand surgeons do a less invasive procedure where they cut a small opening and put a small tool in and go in and release the nerve that way. I had asked my hand surgeon about it before I had my left hand done in 2004 (right hand was done in 1994) and he said he didn't do it because it wasn't as successful. So my first thought is about the type of procedure you had.

I think maybe a second opinion might be a good idea, too, but with an experienced hand surgeon from a different practice (in other words, not a colleague of your current surgeon). It's important to get the diagnosis right and make sure it's not more than just regular carpal tunnel. Have you had any physical therapy, used any gloves or wrist supports, had an EMG, etc.? If there's more going on like tendonitis or something that could also be a reason. I certainly think it's worth exploring, but that's just my opinion. We're not doctors here and don't give medical advice; just share experiences and offer support.

You may want to check out the CP101 thread at the top of the page and see if you find any helpful ideas. Also a read through of the forum rules is always a good idea for new members.

Glad you found us. Again, welcome.

PaLady

Pattiren
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/23/2010 2:43 PM (GMT -7)   
Oh my goodness, I seem to have found the right place here! Thank you all so so much for helping out.
I had a very painful Emg test by a different hand doctor but he doesn't do surgery. He's the one who said I have carpals because I thought I had tendinits from all my knitting. He referred me to my hand surgeon who confirmed the carpals. My hand surgeon also said that he didnt do small incision surgery because it was not as successful as the one I got (I have a scar about 3 inchs long onmy palm and wrist). The surgeon followed me for some months and I also called my Emg doctor in December to tell him what happened (that I wasn't better) but he said give it more time. He said before doing another surgery to try physical therapy again first.
I tried physical therapy Before the surgery and it worked Ok, but not great. I still had alot of pain. My insurance would not pay for it anymore and so I just stopped. I went back to her (my PT) four times so far this month but I dont see improvement. I use a splint at night and Im afraid to stop using it.
So Im trying to see if ther is anyting else I can try. I dont know about the massage glove you refer to. I googled it but didnt see anything... do you have any more ifromation about it? I would be very interested in learning more. Also, im not sure what the CP101 thread is? (Im pretty new to this) but it sounds like I should find it!
Many many thanks again.

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 4/23/2010 2:51 PM (GMT -7)   
One is called ''The Carpal Glove '' , if you just type in Carpal tunnel releif gloves , it should come up .But theres one that is supposed to actually treat and help heal the condition . I'll find it for you and report back .Patti I'm having a little trouble locating this particular glove , the ones I'm finding restrict movement and use support ,however there is one that massages I beleive because someone came on this very site looking for a left-handed model of the glove , I'll keep trying to track it down for you though , hang in there !

Post Edited (MIKEL99) : 4/23/2010 4:01:39 PM (GMT-6)


kimber9807
Regular Member


Date Joined Jan 2010
Total Posts : 492
   Posted 4/23/2010 3:33 PM (GMT -7)   
Good Luck with surgery. I had carpal tunnel surgery on both hands and they were a success. ((((((hugs)))))))
im dxed with  herniated discs,fibromylagia , scolosis,ddd,athritis, spinal stenosis , spinal blockage ,gerd,gastric ulcer (2008), pernicous anemia , folic acid anemia and gallbladder removal 3/23/10.
 
meds: lunesta, prilosec otc, ,reglan,bentyl, ibuprofren,Ultracet, folic acid , b12 injections, zyrtec and benadryl.
 
Just added : folic acid supplement  1 mg a day for the next year and also b12 injections increased to once a month. pernicous anemia and  Folic acid anemia.


PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 4/23/2010 3:43 PM (GMT -7)   
Pattiren,
I'm curious what your surgeon has said about the lack of success with the surgery; did he give you any reasons? I know it's not always successful, and I do know about nerves not always doing what we want! They can take time to heal, although with my back the nerve causing the pain down my leg and into my feet didn't heal after back surgery. I wonder if with the carpal tunnel surgery the nerve could be so damaged it doesn't heal? I can imagine your not wanting to have a repeat surgery, but if it has a decent chance at helping the pain....I think if it was me I'd ask a lot of questions, and get a second opinion. If there's something in addition to the carpal tunnel, like tendonitis, that's causing the pain, will the surgery help that?

I know I'm asking more questions than I'm answer, but I'm sort of brainstorming in my head. I also had trigger fingers (tendons that stick so your finger doesn't open completely) that I got cortisone injections for. It took a series of 3 injections, one every 6 months, to cure the problem. I thought I was going to have to have the injections forever but finally the tendons calmed down. The injections are painful, though, and over with in a short time. I know about that EMG being painful, too, because you could have pulled me off the ceiling when I had mine!

I think some massage therapists (or some physical therapists) may know specialized techniques to help, but I don't know how much this would help. I would think a lot depends on making sure the problem is carpal tunnel and only carpal tunnel. May be hard to do, though.

Hope this helps a bit!

Oh- the CP101 topic thread is right at the top of the page where you see all the posts. It has a lot of information, like some links on how to find a teaching hospital around you. That might be an idea for a second opinion.

Good luck!

PaLady

Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 4/23/2010 3:58 PM (GMT -7)   
Hi Patterin,

Welcome to HW...I have never had any issues with carpal tunnel, but certainl can empathize with the chronic pain and failed surgeries...It sounds like a good plan to get another Dr. opinion as well as more research before having another surgery...

There are a lot of wonderful and caring folks on this board and even though it's sad that pain brings us together...the joy is being able to share, talk, cry, even whine when needed, and laugh and offer support to others...

Hope you are able to do something fun tonight and this weekend that can make you smile..

Take care..
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 


kaliope
New Member


Date Joined Mar 2010
Total Posts : 3
   Posted 4/24/2010 4:51 AM (GMT -7)   
Hi Pattiren....
The product you are looking for is called the Carpal Therapist. It's an electrical wrist massager for carpal tunnel.
Good luck!

Pattiren
New Member


Date Joined Apr 2010
Total Posts : 3
   Posted 4/25/2010 2:15 PM (GMT -7)   
Thank you so much for that information on the machine. It seems like a reasonable thing to do (massage, that is) for carpals. It says it's $200 so if it works it is well worth it because I really do not want to live through the hell of another failed surgery. Part of me asks what is there to lose? It says you can return it within 30 days for a rerfund if it does not work. That seems ok, but has anybody used it and gotten better? I may buy one anyway.

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 4/25/2010 6:35 PM (GMT -7)   
Thank you kalliope , I couldn't find it for the life of me , nice save !!! Pattiren , I've never had a carpal problem or used the glove but the people who came on the forum said it worked for them . Best of luck to you , I hope it works for you if you decide to try it . Mikel
HIV+ also Hep c , need hip replacement surgery on hold because of unknown but cellulitus-like ailment  .most pain from hip condition and cellulitus-like ailment .hands numb may have carpal tunnel syndrome now . Great frustration because doctors unable to diagnos ailment              .Medecines -    ,viracept,truvada, l Indomethacin  '                                                                                                                         


flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 4/26/2010 3:17 AM (GMT -7)   
Just wanted to pop in and say welcome!

Flower
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