new med..embeda

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catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 4/23/2010 6:23 PM (GMT -7)   
just started on a new medication yesterday. embeda and boy is it a strong. but i must tell you all. I haven't had one instance of breakthrough pain since I started it. Thats down from an average of 6 to 10 bouts with a 10 out of 10. I guess this is a good thing. It works but I can't really do anything, like walk or think or move around or anything but watch tv...but I have very little pain. I went to this new pain doc I had found and besides the trigger point injections, she did a deep muscle injection as well as an oppcipital nerve block ( in a totally different place on my skull then my old doc had injected the 5 previous times times before). I've also been going to PT 3x's a week now. Nothing was really working until the introduction of the embeda. I had really gotten to a point of giving up as things were just getting worse and worse and worse. Maybe if I can get used to this stuff things might turn around. I hope.
I have been reading, just not posting because I've been feeling so rotten I felt it better to just keep to myself. Hopefully I'll be able to chat with you all...if I can try to make some sense...
cata(houla
sick and tired of being sick and tired


Snowbunny21
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Date Joined Jan 2010
Total Posts : 3557
   Posted 4/23/2010 6:38 PM (GMT -7)   
HI Catahoula,

I truly hope that this medicine continues to work for you in reducing your pain...

I use MSContin which contains one of the same ingredients, morphine sulfate..and it works very well for me..

I'm sure that your Dr./Pharmacist told you, but Embeda also contain Naltrexone, which used alone, is to help people who abuse alcohol..(not saying you of course..just giving info to those who may not know about this)...so PLEASE make sure you do not have even a sip of anything as it can cause an overdose with this specific medicine..

With all narcotics we shouldn't have any alcohol, but I have seen people go against this but with this medicine it could be deadly...

I am glad to see that they are making more and more medicines that for us who truly need them, like yourself, work well, but make people who unfortunately abuse meds, not be able to take them the wrong way...

They are releasing a new version of Oxycontin soon that has similar properties that keep drug abusers away from it since it breaks down the medicine to nothing if taken the wrong way...The more certain meds are not attractive to the wrong folks, the easier it will be for us CP'ers!

Sounds like a good plan to just stay put for the next week or so, not driving, or doing too much until you can get adjusted to the medicine...

But how wonderful to have less pain!!! Sometimes it takes a combination of all the PT, injections, and then the medicine to really start making some headway...

I am sending you some happy hugs (( ))
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 


mrsm123
Veteran Member


Date Joined Dec 2007
Total Posts : 1228
   Posted 4/23/2010 8:16 PM (GMT -7)   
Snowbunny is right and along with that, if someone alters the delivery of embeda, it will also release the naltrexone, which will cause  withdrawal, so anyone who is taking this medication needs to be aware of that as well.It is supposed to be a good pain medication though. I hope that you continue to get good relief from it.
Sandi
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.
Avascular necrosis of left wrist- maybe hips too


momtofourangels
Veteran Member


Date Joined Apr 2010
Total Posts : 2261
   Posted 4/23/2010 8:46 PM (GMT -7)   
Catahoula
 
it's good to hear that you've found a med that works well for your pain.  take care and take it easy.
 
hugs
Loretta
Dx:  ddd, spinal stenosis, bone spurs, hypothyroidism, typeII diabetes, asthma, allergies, high blood pressure, polycystic ovary syndrome, PTSD, depression, anxiety


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 4/23/2010 9:19 PM (GMT -7)   
Hi Cat!

I'm so glad this is working for you. I've not read much in the way of review/reports on how people like using it so I'm glad you posted. Many people have been looking to the pharmaceutical industry for this type of product. But...

While searching around I found an updated warning on Embeda from the manufacturer that was published 4 weeks ago, March 26,2010. Here's the first paragraph and the link for anyone interested in the article.

"On October 8, 2009, King Pharmaceuticals, Inc. (King) received a Warning Letter from the Division of Drug Marketing, Advertising, and Communications (DDMAC) at the Food and Drug Administration (FDA) regarding two video news releases - EMBEDA Media backgrounder, and EMBEDA Visual Media Technology (news releases), for EMBEDA® (morphine sulfate and naltrexone hydrochloride) Extended Release Capsules for oral use C-II (EMBEDA). The FDA stated that the news releases were false or misleading because they omitted and minimized the risks associated with EMBEDA, failed to present the limitations to its approved indication, and presented misleading claims about EMBEDA"

www.redorbit.com/news/health/1842454/important_correction_of_drug_information_about_embedar_morphine_sulfate_and/index.html

Hope this helps,
Chutz
Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 4/24/2010 2:09 AM (GMT -7)   
Cat,

I'm so happy that you have relief!

I do hope that they continue to make these medications more fool-proof, so that people who really need them have an easier time.

Hugs,

Flower

catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 4/24/2010 6:51 AM (GMT -7)   
thank you all for your replies. i read them but am not sure I understood because I am really "high" from this stuff. Hopefully in a few days I will adjust. Thanks for the info about drinking, I didn't anyway but its good to know that it is definately a no no. Sometimes in the warmer weather I so desire a beer on a warm summer night as its been over 10 years since I started any kind of pain med and have been too chicken to mix. Now I know that it can't happen. Thanks again for the info. I'll be here , reading your posts, hopefully in a few days I'll have my senses back and can join in the conversations again.
Cheers
Cata(houla)
sick and tired of being sick and tired


golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 4/24/2010 9:21 PM (GMT -7)   
Catahoula, I'm so pleased to hear you've found some relief, It really is so hard being in pain, so mindnumbingly depressing at times. I feel a bit in the same boat. trying to find a med that brings relief without majorside effects so I can still function.

Sometimes I wonder how we all keep so positive, great to hear your happiness, golitho

ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 4/26/2010 8:44 AM (GMT -7)   
Catahoula

I have been taking this med for two months now and while I still get breakthrough pain on occasion this has been a godsend for me. The fuzzy feeling went away after a bit and it just leaves you with a med that works well and you do not get the stink eye from other docs when you tell them you take it!!!

Please keep in touch with me about how it continues to work for you, I am always curious about the new meds I am the test bunny for. (My doc seems to enjoy having me try all the new meds while we search for "the one")

Now if I could just find a breakthrough med that works (I have tried Percocet, Opana, Nucynta and diuladid with no luck :( )

Hysterectomy at 25 : 4 laproscopic surgeries since 24

Cervical Stenosis between C 2 and C6 and two bulging disks located C2/3 and C4/5

Meds - percocet  3x day : Methadone 10mg 1x day :Amrix 15mg 1x day: Pristiq 50mg 1x day

____________________________________________

In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 4/26/2010 10:13 AM (GMT -7)   
ekkorose-
the fuzziness is still there but then its only been 6 days. I have nothing written for breakthrough. I called the office friday and was told to call the pharmacy and if the pharmacist said there was no interaction with the norco, to go ahead and take a norco. But this was by a nurse as there was no doctor available. Pharmacist said the only interaction would be more sedation.. Well I guess if one is dealing with breakthrough then sedation is not a problem. I have some norco so I took half and it did sedate me more but I want to talk to the doc to see if this is the route she wants to go. What do you take for breakthrough now? I don't care about "stinkeye" from anyone anymore. I am just so tired of being in pain. If something works, then I don't care.
Will be glad to keep in touch. I am taking part in the study by the new England institute of health on post therpathtic pain that was listed here on the forum. So far its just been a "getting to know you " survey and a 14 day record of pain levels. Hopefully it will turn into something. At this point I am also willing to try anything.

On a different note. I turned off my supraorbital nerve stim 2 weeks ago as it was causing a lot of jabbing pain in my forehead ( new symptom, nothing wrong with stim, just a new pain in the head) and I actually feel better without it. I have heard that they tend to stop offering relief. I have had it in for 5 years now. I just wonder if it has run its course. Dose anyone know if there is any harm in leaving a stim in if its not being used?
wishing a fuzzy pain free day to you all my friends
Cata(houla
sick and tired of being sick and tired


ekkorose
Regular Member


Date Joined Jul 2008
Total Posts : 329
   Posted 4/26/2010 5:34 PM (GMT -7)   
I take another new drug called Nucynta and I HATE it. It either makes me high as a kite or does nothing for me. I have an appoinment with my doc 5/13 and am going to see if we can go back to percocet and maybe change the dosage or something. As for sedation I think it would take a horse tranq to knock me out.

Since I have had a few REALLY nasty run-in's with docs about being on pain meds anything that lessens that stress is a blessing for me. If my pain is bad enough for me to go to the ER I do not want some a-hole doc deciding not to do anything because of my age and the assumption I am a drug-seeker. I have even been treated so poorly that I walked (Hobbled) out of the ER after getting into a shouting/crying match with a doc who refused to treat a possible kidney infection cause of my chronic pain issues.

Take care,
Sarrah

Hysterectomy at 25 : 4 laproscopic surgeries since 24

Cervical Stenosis between C 2 and C6 and two bulging disks located C2/3 and C4/5

Meds - percocet  3x day : Methadone 10mg 1x day :Amrix 15mg 1x day: Pristiq 50mg 1x day

____________________________________________

In the United States today, there is a pervasive tendency to treat children as adults, and adults as children. The options of children are thus steadily expanded, while those of adults are progressively constricted. The result is unruly children and childish adults. ~Thomas Szasz 


catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 4/27/2010 5:30 AM (GMT -7)   
Sarrah-
Pain control is my biggest fear and the reason I have vowed to never have another surgery, procedure( i.e. colonospcopy), fracture or anything that would involve any doctor other than my own treat me for pain control. They just don't get it right and never order enough.When I had laproscopic surgery on my shoulder I should have been able to go home the same day. Didn't work out that way. I ended up in hospital 2 days on a diulaudid pump just trying to get the pain to break. I'm not a "drug seeker"..I just want the pain to stop and sure as heck don't need more pain on top of what I go through on a daily basis. I will ask about the nucynta. Can't hurt to try. I'm finding the Embeda starts to wear off after about 8 hours and then the first 40 minutes after I take the second dose really sends me to "la laland". I'm just relieved that the breakthroughs are not as many or as bad with the Embeda as they were with just Norco or opana. Now if we could just conquor the constipation issue...
cheers
cat
sick and tired of being sick and tired


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 4/27/2010 10:52 AM (GMT -7)   
Cat you may want to look up Nucynta before asking the dr to try you on it. One of our members was put on it and had a horrific experience, it like anything else has its side effects. Now, that I think about it, it seems like someone else here tried it and it really gave them some problems too. If you are sensitive to meds it may not be a good one for you. Maybe if you did a search here at the forum you can see what members I am speaking about. I wish they could get something for you to help with your pain. Take care.
 

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.


catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 4/27/2010 1:45 PM (GMT -7)   
Thanks Straydog!
I did just that and it appears Nucyntu has cymbalta in it. Its suppose to be a short acting narco and not very strong, no acetominnophin plus tons of side effects. I remember way back I had tried the cymbalta at 125mgs for the nerve pain and it did nothing so it doesn't sound like a good match. Guess I'll just keep looking. I sure am catching up on my "rest" with this embeda...except I start watching a movie, zone out and have no idea what it was about...Hopefully I will adjust. Adding a norco for the Breakthrough just knocks me out completely but the BT's are fewer and not as bad. I guess that is progress.
Thanks for the advice!
painfree wishes from a sunny but chilly midwest
Cat
sick and tired of being sick and tired


Snowbunny21
Veteran Member


Date Joined Jan 2010
Total Posts : 3557
   Posted 4/27/2010 2:18 PM (GMT -7)   
Just an fyi, as maybe something you googled Cat came up with the wrong information...just wanted to let people know so they aren't confused or worried about Cymbalta..

Nucynta and Cymbalta are not the same medicine..

Nucynta is Tapentadol...and listed as opiod analgesic...a narcotic..

And Cymbalta is Duloxentine HCL..and is listed under Antidepressants...non narcotic..
but used as a nerve pain medicine as I was on this many years ago as well..It comes in 20mg, 30, and 60 mg and shouldn't be administered more than 60mg a day..

Rx list is a great place to look up certain medicines and their side effects:)


So maybe the 125mg you were on was a different medicine as it doesn't come in 5mg doses..?

I would think discussing with your Dr. if they want you to take a short acting medicine along with your Embeda would be best..when do you see them again? Maybe adding a muscle relaxer down the road when you get more used to this medicine being so strong..

I am glad to hear that it is helping you have less pain...

Take care..
SB and "the pup who snores loudly" 
 
ACDF C5-C7, (no hardware), with autograft bone Nov. 2001
(reabsorption of bone 2 years later...still lost in body..expect to burp it out at anytime..haha")) 
ACDF with hardware, allograft bone Nov. 2005 
Anterior and Posterior CDF, allograft bone with BMP, removal of old hardware, use of titanium plates, rods, screws, & kitchen sink (lol) Oct 2006
 
 


catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 4/27/2010 3:15 PM (GMT -7)   
Nucynta is an analgesic with a norepinephrine reuptake inhibitor. Such drugs can increase the effectiveness of opioids against neuropathic pain and fibromyalgia or possibly diabetic neuropathy. Another example with an anti-depressant is Cymbalta. Another opioid example with selective norepinephrine reuptake inhibitor effects is levorphanol. This drug is somewhere between morphine and Tramadol in potency. Which means that it is NOT one of the most powerful analgesics. It is also a short-acting drug. Most patients with chronic pain are better served with a long-acting narcotic (Kadian, Oxycontin, Fentanyl Transdermal, etc.). We can then use a short-acting narcotic (like your Nucynta) for breakthrough pain.


Hope this isn't against the rules. This is the info I found on Web Md RE: nucynta and cymbalta. Problem is I was on 125 mgs a day of the cymbalta specifically for nerve pain. Had to check to see if I was crazy ( which there is always a good chance theses days :o)...but I keep my old empty med bottles around so I can show docs what I've tried. 60 mgs was the max for psych use but they did go up to the 125 dose for the nerve pain. Too bad it did nothing. Wish it had. I would so love to not use narcotics. Now this was quite a few years ago so maybe doses are different now.

On a seperate note. I forgot to mention that after MANY years of being on Lyrica and topomax from my old Pain doc, my new pain doc has agreed that they aren't doing any good and has agreed to titrate me off. YEAH!!!!!!!!!!!!! I know my liver will be very happy.
Doc did mention a muscle relaxer down the road so thanks for the reminder snowbunny21, I will reminder when I see her in 3 weeks Worries me a bit though. If I'm already a mental "bowl of jello", what would I be like wwith a MR. I just pray things will be better on May 15. Thats the day my daughter graduates from college. and I want to go to the ceremony. My son graduated last May. We drove the 4 hours down to his college and by the time we got there I was in so much pain I had to wait at his apartment while he graduated...He said he understood but I am so tired of my kids having to "understand. I guess I am hoping for a miracle. My daughter will be graduating with highest honors and I really want to see them put that diploma in her hands in person rather than on video, ya know :o(...?
Cat
sick and tired of being sick and tired


Tom Jefferies
New Member


Date Joined Apr 2010
Total Posts : 4
   Posted 4/27/2010 7:21 PM (GMT -7)   
Funny I don't see anyone mentioning how expensive this is. 414 for 90 20mg 354 after the 60 coupon from King Pharma.

While it helps, it's something that can't be afforded at the moment and King said they have no program to help people who can't afford their medicine. Rxassist or togetherrx while listed as helping with Embeda, don't at CVS or Walgreens.

catahoula
Regular Member


Date Joined Dec 2009
Total Posts : 184
   Posted 4/28/2010 11:41 AM (GMT -7)   
this is the same problem I had with Actiq 2 years ago when Insurance decided they would no longer pay for it for anything other than end stage cancer. Before that decision it was the usual $50 co-pay. After that for a usual 120 -800 mcg / month I was paying $2700 per month a Osco. Finally found it at CVS for $1575.00 for the 120 per month but after maxing all my credit cards, burning through my retirements funds i finally had to say "uncle" and start the long process of trying to find anything that would work even 1/4 way as well. Nothing eases the pain as well as the Actiq did but I am in financial ruin because of it. Sometimes I am so tempted to ask for a script for just a few just to break the pain cycle but I know I just can't afford it.
Fortunately, right now my insurance has the Embeda in their formulary so I believe after the 6 month trial the co-pay will be $50 per month. I hope so. If not I will have to start looking again as there is no way I can start racking up more medication debt. As it is now, its my life insurance that will finally pay off the Actiq.
Ask me if I believe there has to be health care and medication reform......
Cat(ahoula
sick and tired of being sick and tired

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